scholarly journals VALUE study: a protocol for a qualitative semi-structured interview study of IVF add-ons use by patients, clinicians and embryologists in the UK and Australia

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e047307
Author(s):  
Sarah C Armstrong ◽  
Sarah Lensen ◽  
Emily Vaughan ◽  
Elaine Wainwright ◽  
Michelle Peate ◽  
...  

IntroductionFor couples undergoing assisted reproduction, a plethora of adjuncts are available; these are known as ‘add-ons’. Most add-ons are not supported by good quality randomised trial evidence of efficacy, with some proven to be ineffective. However, estimates suggest that over 70% of fertility clinics provide at least one add-on, often at extra cost to the patient. This study has three aims. First, to undertake a survey of in vitro fertilisation (IVF) clinics in the UK to ascertain which add-ons are being offered and at what cost. Second, to undertake qualitative semi-structured interviews of patients, clinicians and embryologists, to explore their opinions and beliefs surrounding add-ons. Third, to review the interpretation of the Human Fertilisation and Embryology Authority traffic light system, to better understand the information required by IVF patients, clinicians and embryologists when making decisions about add-ons.Methods and analysisAll UK IVF clinics will be contacted by email and invited to complete an online survey. The survey will ask them which add-ons they offer, at what cost per cycle and how information is shared with patients. Semi-structured interviews will be conducted in the UK and Australia with three groups of participants: (i) fertility patients; (ii) clinicians and (iii) embryologists. Participants for the interviews will be recruited via social media channels, website adverts, email and snowball sampling. Up to 20 participants will be recruited for each group in each country. Following an online consent process, interviews will be conducted via video-conferencing software, transcribed verbatim and data subjected to inductive thematic analysis.Ethics and disseminationEthical approval has been granted by the Universities of Sheffield, Bath Spa and Melbourne. Findings will be published in a peer-reviewed journal and disseminated to regulatory bodies in the UK and Australia. A lay summary of findings will be shared via Fertility Network, UK.

2020 ◽  
Vol 9 (2) ◽  
pp. 184
Author(s):  
Amarpreet Kaur

The scope and use of in vitro fertilisation (IVF), a technology which inherently presents gender inequalities, and its platform applications differ across countries according to respective legislation and regulation (Inhorn, 2015). Using the context of human germline genome editing (hGGE) as a framework, this article will explore and discuss whether differences in legislation and regulation across countries force individuals/couples to seek transnational care to fulfil their reproductive desires. This article will primarily focus on regulation and practices in the United Kingdom (UK) and use these as a comparative to regulation and practices in other countries. The primary research upon which this article is based was conducted in the UK between 1st March 2018 – 31st October 2019. The research consisted of a largely qualitative, online public survey with a final data set of 521 respondents, semi-structured interviews with 11 experts/professionals who were/are involved in the scope of hGGE in the UK, and semi-structured/interactive interviews with 21 people affected by a respective range of genetic conditions. The findings reveal that 65.64% of respondents were supportive of people utilising transnational care to achieve their reproductive desires in relation to hGGE and that 76.39% felt they should not be prosecuted if they do.


2021 ◽  
Vol 29 (2) ◽  
pp. 82-88
Author(s):  
Amarpreet Kaur

This article explores how the development of assisted reproductive technologies (ARTs), arisen from in vitro fertilisation, have perpetuated an increase in non-traditional pregnancies ( Franklin, 1997 ). This article discusses what this increase means for midwifery practices and what care midwives may need to consider for such pregnancies. The discussions in this article are based on triangulated findings from a three-phase research design. The research consisted of an online mixed-methods survey of 521 citizens of the UK, semi-structured interviews with experts and professionals who speak to the future of ARTs, and structured interviews with people who are affected by genetic conditions. Findings reveal that applications of ARTs are anticipated to continue to expand with the potential introduction of genome editing technologies to reproductive choices for the prevention of disease. Thus, this article concludes that because of this expansion, the rise of non-traditional pregnancies is likely to continue, and that midwives may benefit from considering the implications the rise could have for midwifery care.


Author(s):  
Lorna Templeton ◽  
Sarah Galvani ◽  
Marian Peacock

AbstractThis paper draws on data from one strand of a six-strand, exploratory study on end of life care for adults using substances (AUS). It presents data from the key informant (KI) strand of the study that aimed to identify models of practice in the UK. Participant recruitment was purposive and used snowball sampling to recruit KIs from a range of health and social care, policy and practice backgrounds. Data were collected in 2016–2017 from 20 KIs using a semi-structured interview approach. The data were analysed using template analysis as discussed by King (2012). This paper focusses on two of seven resulting themes, namely “Definitions and perceptions of key terms” in end of life care and substance use sectors, and “Service commissioning and delivery.” The KIs demonstrated dedicated individual practice, but were critical of the systemic failure to provide adequate direction and resources to support people using substances at the end of their lives.


2018 ◽  
Vol 31 (08) ◽  
pp. 1181-1190
Author(s):  
Liz Ford ◽  
Peter Rudge ◽  
Kathy Robinson ◽  
John Collinge ◽  
Michele Gorham ◽  
...  

ABSTRACTObjectives:Prion diseases are rare dementias that most commonly occur sporadically, but can be inherited or acquired, and for which there is no cure. We sought to understand which prion disease symptoms are most problematic for carers, to inform the development of outcome measures.Design:Self-completed questionnaire with follow-up of a subset of participants by structured interview.Setting:A nested study in the UK National Prion Monitoring Cohort, a longitudinal observational study.Participants and measurements:71 carers, of people with different prion diseases with a wide range of disease severity, identified 236 of their four most problematic symptoms by questionnaire which were grouped into ten domains. Structured interviews were then done to qualitatively explore these experiences. Eleven family carers of people with prion disease were selected, including those representative of a range of demographics and disease subtypes and those who cared for people with prion disease, living or recently deceased. Interviews were transcribed and formally studied.Results:The six most problematic symptom domains were: mobility and coordination; mood and behavior; personal care and continence; eating and swallowing; communication; and cognition and memory. The prevalence of these symptoms varied significantly by disease stage and type. A formal analysis of structured interviews to explore these domains is reported.Conclusions:We make suggestions about how healthcare professionals can focus their support for people with prion disease. Clinical trials that aim to generate evidence regarding therapies that might confer meaningful benefits to carers should consider including outcome measures that monitor the symptomatic domains we have identified as problematic.


2017 ◽  
Vol 22 (4) ◽  
pp. 315-323
Author(s):  
Thomas Flamini ◽  
Natasha R. Matthews ◽  
George S. Castle ◽  
Elliot M. Jones-Williams

Purpose The purpose of this paper is to investigate perceptions towards a career in psychiatry among medical students and psychiatrists and identify how recruitment into the specialty may be improved. Design/methodology/approach This study locally compares medical student and psychiatric doctor responses to a structured online survey and structured interviews with key managerial figures in the Humber NHS Foundation Trust. Findings Comparison across two main areas (pre-decision exposure to psychiatry and reasons for considering a psychiatric career) found that both students and doctors were influenced to make a choice about a career in psychiatry during medical school. Medical students found compatibility with family life to be more important when considering psychiatry, whereas doctors cited content-based reasons as significant pull factors. Stigma and fear of being harmed deterred some students from choosing a career in psychiatry. Structured interview responses reiterated the importance of pre-medical school and undergraduate mentorship in bolstering future recruitment to psychiatry. Practical implications Medical students perceive certain career issues differently to their postgraduate counterparts. Widening the content-based appeal of psychiatry and optimising the medical school experience of the specialty via varied and high-quality placements may be a key step towards tackling the national shortfall in qualified psychiatrists. Originality/value This is the first published study comparing medical student and psychiatric doctor perceptions of a career in psychiatry.


Healthcare ◽  
2021 ◽  
Vol 9 (12) ◽  
pp. 1657
Author(s):  
Catherine Meads ◽  
Laura-Rose Thorogood ◽  
Katy Lindemann ◽  
Susan Bewley

Same-sex female couples who wish to become pregnant can choose donor insemination or in-vitro fertilization (IVF)—a technique intended for infertile women. In general, women in same-sex female partnerships are no more likely to be infertile than those in opposite sex partnerships. This article investigates data available from the Government Regulator of UK fertility clinics—the Human Fertilization and Embryology Authority, which is the only data available worldwide on same-sex female couples and their fertility choices. IVF is increasing both in absolute numbers and relative proportions year on year in the UK, compared to licensed donor insemination for same-sex female couples. As IVF has greater human and financial costs than donor insemination, policies should not encourage it as the first choice for fertile women requiring sperm. Commercial transactions are taking place where fertile lesbians receive cut price, and arguably unnecessary, IVF intervention in exchange for selling their eggs to be used for other infertile customers. If women are not told about the efficacy of fresh vs. frozen semen, and the risks of egg ‘sharing’ or intra-couple donation, exploitation becomes possible.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sukhtaj Singh ◽  
Ezekiel Chinyio ◽  
Subashini Suresh

Purpose Project managers still face challenges with managing stakeholders. Using building information modelling (BIM) has further increased these challenges. Meanwhile, there is a paucity of research specifically focussing on the techniques which organisations are adopting to manage stakeholders within BIM-implemented projects and the associated benefits which they can reap. Thus, this paper aims to identify the key techniques, enablers and benefits of managing stakeholders within BIM-implemented projects. Design/methodology/approach An exploratory approach was adopted due to the paucity of the variables on the topic. In total, 23 semi-structured interviews were conducted in the UK through purposive and snowball sampling. The data was analysed using content analysis and the “NVivo 11 Pro” software. Findings Two key techniques and two enablers required to manage stakeholders within BIM-implemented projects were identified. Nine benefits of managing stakeholders were identified which split into interim and eventual benefits. Originality This paper provides a richer understanding of the enablers and techniques which organisations should focus on while strategising for minimum resistance from stakeholders in their BIM implemented projects.


2021 ◽  
Vol 3 ◽  
Author(s):  
Julian Dobson ◽  
Tony Gore ◽  
Kim Graham ◽  
Kate Swade

Research has suggested that connexions between humans and the natural world lead to increased well-being and generate pro-environmental attitudes, which in turn benefit nature. This article asks whether users of outdoor public spaces in the UK during the Covid-19 pandemic in 2020 experienced greater connectedness with nature, consistent with the five “pathways to nature connectedness” identified in previous research. Semi-structured interviews were conducted with a purposive sample of 42 individuals on their use of green and public spaces during the UK's lockdown, while a further 29 participants responded to an online survey. While the research revealed the importance of nature connectedness, only three of the five pathways were well-evidenced, and these connexions were frequently mediated by social activities. The article advances the study of nature connectedness by identifying challenges in applying the pathways framework and suggesting areas for further research to understand how the pathways operate in real-world conditions.


2022 ◽  
pp. medethics-2021-107887
Author(s):  
Nathan Hodson

Sperm sharing arrangements involve a man (‘the sharer’) allowing his sperm to be used by people seeking donor sperm (‘the recipients’) in exchange for reduced price in vitro fertilisation. Clinics in the UK have offered egg sharing since the 1990s and the arrangement has been subjected to regulatory oversight and significant ethical analysis. By contrast, until now no published ethical or empirical research has analysed sperm sharing. Moreover the Human Fertilisation and Embryology Authority (HFEA) does not record the number of sperm sharing arrangements taking place.This paper describes the sperm sharing process providing an analysis of all the UK clinics advertising sperm sharing services. The ethical rationale for egg sharing is described: reducing the number of women exposed to the risks of stimulation and retrieval. This advantage is absent in sperm sharing where donation has no physical drawbacks. The key adverse social and emotional outcome of gamete sharing arises when the sharer’s own treatment is unsuccessful and the recipient’s is successful. This outcome is more likely in sperm sharing than in egg sharing given sperm from sharers can be used by up to 10 families whereas shared eggs only go to one other family.Given its morally relevant differences from egg sharing, sperm sharing requires its own ethical analysis. The HFEA should begin recording sperm sharing arrangements in order to enable meaningful ethical and policy scrutiny.


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