scholarly journals Impact of sight and hearing loss in patients with Norrie disease: advantages of Dual Sensory clinics in patient care

2020 ◽  
Vol 4 (1) ◽  
pp. e000781
Author(s):  
Jane C Sowden ◽  
Corné J Kros ◽  
Tony Sirimanna ◽  
Waheeda Pagarkar ◽  
Ngozi Oluonye ◽  
...  
Keyword(s):  
Hearing Loss ◽  
Sensory Loss ◽  
Clinical Environment ◽  
Norrie Disease ◽  
Seizure Disorders ◽  
Routine Monitoring ◽  
Dual Sensory Loss ◽  
Clinical Environments ◽  
Neurological Features ◽  
The Impact

Norrie disease (ND) is a rare, X-linked condition of visual and auditory impairment, often presenting with additional neurological features and developmental delays of varying severity. While all affected patients are born blind, or lose their vision in infancy, progressive sensorineural hearing loss develops in the majority of cases and is typically detected in the second decade of life. A range of additional symptoms of ND, such as seizure disorders, typically appear from a young age, but it is difficult to predict the range of symptoms ND patients will experience. After growing up without vision, hearing loss represents the greatest worry for many patients with ND, as they may lose the ability to participate in previously enjoyed activities or to communicate with others.Dual sensory loss has a physical, psychosocial and financial impact on both patients with ND and their families. Routine monitoring of the condition is required in order to identify, treat and provide support for emerging health problems, leading to a large burden of medical appointments. Many patients need to travel long distances to meet with specialists, representing a further burden on time and finances. Additionally, the rare nature of dual sensory impairment in children means that few clinical environments are designed to meet their needs. Dual Sensory clinics are multidisciplinary environments designed for sensory-impaired children and have been suggested to alleviate the impact of diseases involving sensory loss such as ND.Here, we discuss the diagnosis, monitoring and management of ND and the impact it has on paediatric patients and their caregivers. We describe the potential for dual sensory clinics to reduce disease burden through providing an appropriate clinical environment, access to multiple clinical experts in one visit, and ease of monitoring for patients with ND.

scholarly journals Association Between Sensory Loss and Falls Among Middle-Aged and Older Chinese Population: Cross-Sectional and Longitudinal Analyses

2022 ◽  
Vol 8 ◽  
Author(s):  
Yifan Zhou ◽  
Yanping Hu ◽  
Jianfeng Luo ◽  
Yinwen Li ◽  
Haiyun Liu ◽  
...  
Keyword(s):  
Chinese Population ◽  
Developed Countries ◽  
Falls Prevention ◽  
Sensory Loss ◽  
Time Varying ◽  
Middle Aged ◽  
Cross Sectional ◽  
Dual Sensory Loss ◽  
Older Chinese ◽  
The Impact

Introduction: Previous studies have suggested that sensory loss is linked to falls. However, most of these studies were cross-sectional designed, focused on single sensory loss, and were conducted in developed countries with mixed results. The current study aims to investigate the longitudinal relationship between hearing loss (HL), vision loss (VL) and dual sensory loss (DSL) with falls among middle-aged and older Chinese population over 7 years.Methods: The data was obtained from the China Health and Retirement Longitudinal Survey (CHARLS). In total, 7,623 Chinese older adults aged over 45 were included at baseline 2011 in this study. Self-reported falls and HL/VL/DSL were accepted. Other confounding variables included age, sex, BMI, educational level, marital status, various physical disorders and lifestyles. The impact of baseline sensory status on baseline prevalence of falls and incident falls over 7 years were assessed using logistic regression analyses. A logistic mixed model was used to assess the association between time-varying sensory loss with incident falls over 7 years after adjusted with multi-confounding factors.Results: Single and dual sensory loss groups had significantly higher prevalence of falls compared to no sensory loss (NSL) group (DSL: 22.4%, HL: 17.4%, VL: 15.7%, NSL: 12.3%). Baseline HL (OR: 1.503, 95% CI: 1.240–1.820), VL (OR: 1.330, 95% CI: 1.075–1.646) and DSL (OR: 2.061, 95% CI: 1.768–2.404) were significantly associated with prevalence of falls. For longitudinal observation over 7 years, baseline HL/DSL and persistence of all types of sensory loss were associated with incidence of falls. Time-varying HL (OR: 1.203, 95% CI: 1.070–1.354) and DSL (OR: 1.479, 95% CI: 1.343–1.629) were associated with incident falls after adjusted with multi-confounders, while VL was not.Conclusion: HL and DSL are significantly associated with both onset and increased incidence of falls over 7 year's observation in middle-aged and elderly Chinese population. Persistence or amelioration of sensory loss status could exert divergent influences on incidence of falls, which should be considered in the development of falls-prevention public health policies for aging population.

scholarly journals SCREENING FOR VISION AND HEARING LOSS IN OLDER ADULTS WITH DEMENTIA: A FEASIBILITY STUDY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S120-S121
Author(s):  
Katherine McGilton ◽  
Fiona Höbler ◽  
Marilyn Reed ◽  
Tammy Labreche ◽  
M Kathleen Pichora-Fuller ◽  
...  
Keyword(s):  
Older Adults ◽  
Hearing Loss ◽  
Vision Loss ◽  
Hearing Screening ◽  
Screening Tools ◽  
Sensory Loss ◽  
Term Care ◽  
Multi Stage ◽  
Dual Sensory Loss

Abstract Sensory loss accounts for one of the most common chronic conditions among older adults, with hearing loss affecting half of adults aged over 65 years and vision loss almost one fifth of those aged 70 years and over. Together, dual sensory loss is found to be most prevalent in older adults with dementia. The highest prevalence is found in long-term care (LTC) settings. For this reason, we conducted a multi-stage study to identify the most effective vision and hearing screening tools for use with older adults living with dementia and to evaluate their feasibility of use by nurses working in LTC. We first conducted a comprehensive review of the literature, and supplemented this with an environmental scan of healthcare professionals and sensory specialists working with older adults who have dementia. Following this extensive review and consultative decision-making process, a package of vision and hearing screening tools was selected for use by nurses working in LTC. On-site training was provided by two experienced audiologists and optometrists, after which the feasibility of sensory screening by three nurses of 17 residents under their care was evaluated. We report on the six measures of hearing and seven measures of vision that were piloted for screening of older adults with dementia living in LTC, and on the findings for their feasibility of use by nurses working in this setting. Recommendations regarding the feasibility and reliability of screening for vision and hearing loss in older adults with dementia are discussed.

The Prevalence of Hearing, Vision, and Dual Sensory Loss in Older Canadians: An Analysis of Data from the Canadian Longitudinal Study on Aging

2020 ◽  
pp. 1-22 ◽  
Author(s):  
Paul Thomas Mick ◽  
Anni Hämäläinen ◽  
Lebo Kolisang ◽  
M. Kathleen Pichora-Fuller ◽  
Natalie Phillips ◽  
...  
Keyword(s):  
Visual Acuity ◽  
Hearing Loss ◽  
Longitudinal Study ◽  
Vision Loss ◽  
Sensory Loss ◽  
Canadian Population ◽  
Dual Sensory Loss ◽  
Impairment Severity

ABSTRACT The purpose of this study was to describe the prevalence of hearing loss (HL), vision loss (VL), and dual sensory loss (DSL) in Canadians 45–85 years of age. Audiometry and visual acuity were measured. Various levels of impairment severity were described. Results were extrapolated to the 2016 Canadian population. In 2016, 1,500,000 Canadian males 45–85 years of age had at least mild HL, 1,800,000 had at least mild VL, and 570,000 had DSL. Among females, 1,200,000 had at least mild HL, 2,200,000 had at least mild VL, and 450,000 had DSL. Among Canadians 45–85 years of age, mild, moderate, and severe HL was prevalent among 13.4 per cent, 3.7 per cent, and 0.4 per cent of males, and among 11.3 per cent, 2.3 per cent, and 0.2 per cent of females, respectively. Mild and moderate, or severe VL was prevalent among 19.8 per cent and 2.4 per cent of males, and among 23.9 per cent and 2.6 per cent of females, respectively. At least mild DSL was prevalent among 6.4 per cent of males and 6.1 per cent of females.

Accommodating Dual Sensory Loss in Everyday Practice

2014 ◽  
Vol 19 (1) ◽  
pp. 4-16
Author(s):  
Katharina V. Echt ◽  
Gabrielle H. Saunders
Keyword(s):  
Health Care ◽  
Hearing Loss ◽  
Older People ◽  
Vision Loss ◽  
Sensory Loss ◽  
Sensory Impairment ◽  
Health Care Settings ◽  
Speech Language Pathologist ◽  
Dual Sensory Loss ◽  
Dual Sensory Impairment

Dual sensory impairment is increasingly prevalent in people over age 65. The combination of vision loss and hearing loss impacts not only day-to-day function from the perspective of the patient, but must also be considered by the speech-language pathologist working with older people in health care settings. This article will discuss the implications of dual sensory impairment for both patients and professionals, and will provide strategies to support communication.

Dual sensory loss: A major age-related increase of comorbid hearing loss and hearing aid ownership in visually impaired adults

2013 ◽  
Vol 14 (3) ◽  
pp. 570-576 ◽  
Author(s):  
Hilde L Vreeken ◽  
Ger HMB van Rens ◽  
Dirk L Knol ◽  
Nadja A van Reijen ◽  
Sophia E Kramer ◽  
...  
Keyword(s):  
Hearing Loss ◽  
Visually Impaired ◽  
Hearing Aid ◽  
Sensory Loss ◽  
Age Related ◽  
Dual Sensory Loss ◽  
Related Increase

Differential associations between sensory loss and neuropsychiatric symptoms in adults with and without a neurocognitive disorder

2017 ◽  
Vol 30 (2) ◽  
pp. 261-272 ◽  
Author(s):  
Kim M. Kiely ◽  
Moyra E. Mortby ◽  
Kaarin J. Anstey
Keyword(s):  
Psychosocial Support ◽  
Neuropsychiatric Symptoms ◽  
Unmet Need ◽  
Total Sample ◽  
Sensory Loss ◽  
Neurocognitive Disorder ◽  
Additional Risk ◽  
Increased Risk ◽  
Dual Sensory Loss ◽  
The Impact

ABSTRACTBackground:To investigate the differential associations between sensory loss and neuropsychiatric symptoms among older adults with and without diagnosed neurocognitive disorder.Methods:The sample comprised 1,393 adults (52.3% men) aged between 72 and 79 years from a community-based cohort study. There were 213 cases of mild and 64 cases of major neurocognitive disorders. The main outcome was number of informant reported symptoms on the Neuropsychiatric Inventory (NPI). Sensory loss was defined by visual acuity worse the 0.3 logMAR (6/12 or 20/40) and self-reported hearing problems.Results:Clinically relevant NPI symptoms were reported in 182 (13.1%) participants, but no individual symptom occurred in more than 5% of the total sample. Among participants diagnosed with a major neurocognitive disorder, those with any sensory loss had over three times (95%CI: 1.72–11.78) greater rates of NPI symptoms than those with unimpaired levels of sensory functioning. There were no differences in the number of neuropsychiatric symptoms by type of sensory loss, and no additional risk associated with a dual sensory loss compared to a single sensory loss. There was no evidence of an association between sensory loss and number of neuropsychiatric symptoms among cognitively healthy adults.Conclusions:The extent to which this association is the result of underlying neuropathology, unmet need, or interpersonal factors is unclear. These findings have significant implications for dementia care settings, including hospitals and respite care, as patients with sensory loss are at increased risk of neuropsychiatric symptoms and may require additional psychosocial support. Interventions to manage sensory loss and reduce the impact of sensory limitations on neuropsychiatric symptoms are needed.

Associations of Hearing Loss and Dual Sensory Loss With Mortality

2021 ◽  
Author(s):  
Benjamin Kye Jyn Tan ◽  
Faye Yu Ci Ng ◽  
Harris Jun Jie Muhammad Danial Song ◽  
Nicole Kye Wen Tan ◽  
Li Shia Ng ◽  
...  
Keyword(s):  
Hearing Loss ◽  
Sensory Loss ◽  
Dual Sensory Loss

Vision and Hearing Loss in Older Adults: “Double Trouble”

2004 ◽  
Vol 5 (1) ◽  
pp. 35-40 ◽  
Author(s):  
Paige Berry ◽  
John Mascia ◽  
Bernard A. Steinman
Keyword(s):  
Hearing Loss ◽  
Vision Loss ◽  
The Elderly ◽  
The United States ◽  
Sensory Loss ◽  
Older Individuals ◽  
The People ◽  
Common Causes ◽  
Functional Implications ◽  
Dual Sensory Loss

Recent studies indicate that by age seventy, 21% of the people living in the United States have both vision and hearing loss. Dual sensory loss in the elderly has a significant effect on an individual’s ability to socialize, communicate with others, and live independently. This article addresses the issues faced by older individuals who are hard of hearing and blind or visually impaired. Common causes and behavioral signs of hearing and vision loss are discussed. An emphasis is placed on the functional implications of the dual sensory impairment and possible accommodations and communication strategies are outlined.

scholarly journals The prevalence of hearing and vision loss in older Canadians: An analysis of Data from the Canadian Longitudinal Study on Aging

2019 ◽  
Author(s):  
Paul Mick ◽  
Anni Hämäläinen ◽  
Lebo Kolisang ◽  
M Kathleen Pichora-Fuller ◽  
Natalie Phillips ◽  
...  
Keyword(s):  
Visual Acuity ◽  
Hearing Loss ◽  
Longitudinal Study ◽  
Vision Loss ◽  
Sensory Loss ◽  
Dual Sensory Loss

Objective: To describe the prevalence of hearing loss (HL), vision loss (VL) and dual sensory loss (DSL) in Canadians aged 45-85. Methods: Data from the first wave of the Canadian Longitudinal Study on Aging were used. Audiometry and visual acuity were measured. Prevalence proportions for 2012-2015 and counts for 2011 and 2016 were estimated.Results: In 2016, 1.5 million Canadian males aged 45-85 had HL, 1.8 million had VL, and 570,000 had DSL. Among females, 1.2 million had HL, 2.2 million had VL, and 450,000 had DSL. Prevalence counts increased 8.7-16.9% between 2011 and 2016. Prevalence proportions increased with age but decreased exponentially with severity of impairment. Males were more likely to have HL and DSL; VL was more common in females.Conclusion: HL, VL and DSL are highly prevalent among older Canadian adults.

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