scholarly journals Daily life participation in childhood chronic disease: a qualitative study on the child’s and parent’s perspective

2021 ◽  
Vol 5 (1) ◽  
pp. e001057
Author(s):  
Merel M Nap-van der Vlist ◽  
Emma E Berkelbach van der Sprenkel ◽  
Linde N Nijhof ◽  
Martha A Grootenhuis ◽  
Cornelis K van der Ent ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Daily Life ◽  
Well Being ◽  
Parents And Children ◽  
Proactive Study ◽  
Parental Strategies ◽  
Depth Interviews ◽  
Level Of Agreement

ObjectiveTo understand how a child with a stable chronic disease and his/her parents shape his/her daily life participation, we assessed: (1) the parents’ goals regarding the child’s daily life participation, (2) parental strategies regarding the child’s participation and () how children and their parents interrelate when their goals regarding participation are not aligned.MethodsThis was a qualitative study design using a general inductive approach. Families of children 8–19 years with a stable chronic disease (cystic fibrosis, autoimmune disease or postcancer treatment) were recruited from the PROactive study. Simultaneous in-depth interviews were conducted separately with the child and parent(s). Analyses included constant comparison, coding and categorisation.ResultsThirty-one of the 57 invited families (54%) participated. We found that parents predominantly focus on securing their child’s well-being, using participation as a means to achieve well-being. Moreover, parents used different strategies to either support participation consistent with the child’s healthy peers or support participation with a focus on physical well-being. The degree of friction between parents and their child was based on the level of agreement on who takes the lead regarding the child’s participation.ConclusionsInterestingly, parents described participation as primarily a means to achieve the child’s well-being, whereas children described participation as more of a goal in itself. Understanding the child’s and parent’s perspective can help children, parents and healthcare professionals start a dialogue on participation and establish mutual goals. This may help parents and children find ways to interrelate while allowing the child to develop his/her autonomy.

scholarly journals Dutch Healthcare Professionals Experiences of Assisted Dying: A Constructivist Qualitative Study Conducted in a Chronic Disease Care Centre and Hospice.

2019 ◽  
Author(s):  
Deborah Lewis ◽  
Nancy Preston
Keyword(s):  
Palliative Care ◽  
Chronic Disease ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Recovery Period ◽  
Well Being ◽  
Psychological Support ◽  
Assisted Dying ◽  
Care Centre ◽  
Chronic Disease Care

Abstract Background: Assisted dying is a contemporary issue, but comprehensive consideration of healthcare professionals’ experiences has been lacking. This study sought to gain a deeper understanding of professionals’ experiences of assisted dying to inform the global debate surrounding its implementation. Methods: This constructivist, qualitative study, recruited twenty-one physicians, nurses and therapists from a Dutch chronic disease care centre and a hospice. Data were gathered in semi-structured interviews, conducted in English. Questioning focused on professionals’ experiences along a clinical trajectory from an initial request to beyond the death. Data were subjected to thematic analysis to identify main and subthemes. Results: Analytical procedures generated four broad themes ‘Assessment and its Challenges’, ‘Preparing Staff and Learners’, ‘Assisting a Death’ and ‘Bereavement Care and Beyond’, supported by subthemes. Assessment of requests involved all professional groups and required open dialogue, exploration of fears, palliative care optimisation and psychological evaluation. Such measures resolved the majority of requests. Assisted deaths were challenging, required careful management and were not perceived as normal. Administration of lethal drugs and reporting procedures were stressful for physicians. Structured debriefing and proactive psychological support were valued by all professionals, but resolving their emotions took time. Some physicians required a recovery period creating equity of access issues. Life and care experience aided the preparation of professionals, but resilience was also needed. Support for the provision of assisted dying was overwhelming, but this was unqualified in only a third of participants. Conclusions: Assisted dying creates significant challenges for healthcare professionals who require preparation and support. This is likely to require enhanced levels of palliative care education, legislative advice, and proactive psychological support to ensure professionals’ own well-being. Meeting these needs will have financial implications which should be addressed prior to implementing legislation which permits assisted dying.

scholarly journals Understanding the Occupational Adaptation Process and Well-Being of Older Adults in Magallanes (Chile): A Qualitative Study

2019 ◽  
Vol 16 (19) ◽  
pp. 3640 ◽  
Author(s):  
Palma ­Candia ◽  
Hueso­Montoro ◽  
Martí-García ◽  
Fernández-Alcántara ◽  
Campos-Calderón ◽  
...  
Keyword(s):  
Older Adults ◽  
Qualitative Study ◽  
Well Being ◽  
Self Esteem ◽  
Adaptation Process ◽  
Occupational Adaptation ◽  
Use Of Time ◽  
Low Levels ◽  
Interpretative Approach ◽  
Depth Interviews

Background: Aging and longevity are important topics nowadays. Purpose: To describe how older adults perform the occupational adaptation process in the extreme region of Magallanes (Chile), and to identify the factors that might contribute to successful occupational adaptation and well-being. Method: Qualitative study, with a phenomenological interpretative approach. In-depth interviews were carried out with 16 older adults, with high or low levels of well-being, assessed with the Ryff Scale. An inductive content analysis according to Elo and Kyngäs was performed. Findings: Resilience, self-esteem and interdependence with significant others are key elements that promote well-being. Participants develop strategies to minimize the effects of environmental factors. The occupation’s function in terms of socialization, use of time, and social participation is revealed as a conditioning factor of occupational adaptation. Implications: Interventions with older people to achieve a successful occupational adaptation process must take into consideration the commitment to meaningful activities.

scholarly journals Protective and Risk Factors of Italian Healthcare Professionals during the COVID-19 Pandemic Outbreak: A Qualitative Study

2021 ◽  
Vol 18 (2) ◽  
pp. 453
Author(s):  
Amalia De Leo ◽  
Eloisa Cianci ◽  
Paolo Mastore ◽  
Caterina Gozzoli
Keyword(s):  
Risk Factors ◽  
Qualitative Study ◽  
Extrinsic Motivation ◽  
Healthcare Professionals ◽  
Well Being ◽  
Organizational Level ◽  
Emotional Impact ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Interpersonal Level

The COVID-19 pandemic put the Italian health system under great stress. The sudden reorganization of work practices and the emotional impact of the large number of the victims had many consequences on the well-being of the healthcare professionals (HCPs) involved in managing the crisis. In the available literature, most studies have focused on the risk aspects while only few studies also take into account protective factors. For this reason, it was decided to conduct, within psycho-sociological perspective, a qualitative study with the aim to explore in depth the protective and risk factors as experienced by HCPs who worked in the Italian healthcare system during the COVID-19 outbreak. A total of 19 semi-structured interviews were conducted with HCPs–9 nurses and 10 physicians (7M and 12F) with an average age of 43 (SD = 13.4)–selected using snowball sampling. Considering three different levels of analysis the results highlight the protective and risk factors: personal history level (intrinsic/ethical motivation and flexible role versus extrinsic motivation and static role), interpersonal level (perception of supportive relationships with colleagues, patients, and family versus bad relationships), and organizational level (good leadership and sustainable work purpose versus absence of support from management and undefined or confused tasks).

scholarly journals Women’s views about physical activity as a treatment for vasomotor menopausal symptoms: a qualitative study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Adèle Thomas ◽  
Amanda J. Daley
Keyword(s):  
Physical Activity ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Well Being ◽  
Menopausal Symptoms ◽  
Hot Flushes ◽  
Physical Activity Interventions ◽  
Night Sweats ◽  
Randomised Controlled ◽  
Women’S Views

Abstract Background Women commonly seek medical advice about menopausal symptoms. Although menopausal hormone therapy is the most effective treatment, many women prefer non-pharmacological treatments, such as physical activity. The effectiveness of physical activity has been inconclusive when assessed by randomised controlled trials, and it remains unclear how women feel about it as a possible treatment approach. The aim of the study was to explore symptomatic menopausal women’s views and experiences of physical activity as a treatment for vasomotor and other menopausal symptoms. Methods An in-depth qualitative study was embedded within a randomised controlled trial that assessed the effectiveness of physical activity as a treatment for vasomotor menopausal symptoms in previously inactive vasomotor symptomatic women. Participants were randomised to one of two physical activity interventions or a usual care group. Both physical activity interventions involved two one-to-one consultations, plus either supporting materials or access to physical activity support groups, over 6 months. Semi-structured interviews were conducted with 17 purposively selected participants from all three trial groups after they had completed trial follow-up. Interviews were audio recorded, transcribed verbatim, and analysed by constant comparison. Results All participants talked positively about physical activity as a treatment for their menopausal symptoms, with most reporting participation had improved their hot flushes and night sweats. They reported that they had experienced improved sleep, physical health and psychological well-being. Those who received the physical activity plus social-support intervention reported their ability to cope with their menopausal symptoms had improved. Many participants commented that they would prefer doctors to discuss physical activity as a possible treatment for their hot flushes and night sweats, before offering medication. Conclusions Based on the views and experiences of the women who participated in this study, healthcare professionals should continue discussing physical activity as a potential first treatment option with menopausal women. Furthermore, healthcare professionals should ensure they prepare, support, and encourage these women both physically and emotionally. Trial registration ISRCTN ISRCTN06495625 Registered 10/11/2010

scholarly journals Experiences of Iranian women with prenatal diagnosis of fetal abnormalities: A qualitative study

2020 ◽  
Author(s):  
Fahimeh Ranjbar ◽  
Fatemeh Oskouie ◽  
Shahrzad Hashemi Dizaji ◽  
Maryam Gharacheh
Keyword(s):  
Decision Making ◽  
Prenatal Diagnosis ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Fetal Abnormalities ◽  
Economic Problems ◽  
Self Blame ◽  
Emotional Suffering ◽  
Conventional Content Analysis ◽  
Depth Interviews

Abstract Background: Women are more likely to be diagnosed with congenital anomalies. Following prenatal diagnosis of fetal abnormalities, women may be forced to make decisions about whether to continue a pregnancy with fetal abnormalities. This can be a dilemma for the women. The aim of the study was to explore women’s experiences of prenatal diagnosis of fetal abnormalities. Methods: A qualitative study was conducted in a referral women’s hospital in Tehran, Iran in 2018. Participants were a purposeful sample of 15 women with prenatal diagnosis of fetal abnormalities. Data were collected by individual, in-depth interviews. The conventional content analysis approach was used to analyze the data. Results: Two main themes “emotional suffering” and “decision-making challenge” were extracted from the participants’ experiences. Emotional suffering consisted of subthemes “sense of guilt”, “self-blame”, “questioning of God”, “commiseration” and “projection”. Decision making challenge included subthemes “distrust”, “possible cure”, “dark future”, “economic problems”, “stereotypical beliefs”, “coercion” and “lack of support”. Conclusions: The experience of prenatal diagnosis of fetal abnormalities was associated with emotional suffering and challenges in decision-making to continue or terminate the pregnancy. Strategies need to be employed to improve women’s autonomy in decision-making. Healthcare professionals should be trained in communication skills to provide appropriate counseling to support women with diagnosis of fetal anomalies.

Exploring nurse navigators' contribution to integrated care: a qualitative study

2019 ◽  
Vol 25 (4) ◽  
pp. 339
Author(s):  
Clare Hannan-Jones ◽  
Charlotte Young ◽  
Geoffrey Mitchell ◽  
Allyson Mutch
Keyword(s):  
Qualitative Study ◽  
Integrated Care ◽  
Healthcare Professionals ◽  
Interdisciplinary Collaboration ◽  
Clinical Integration ◽  
Two Phase ◽  
Professional Integration ◽  
Healthcare Settings ◽  
Care Practices ◽  
Depth Interviews

This paper examines nurse navigation as a model of integrated care operating across primary and secondary healthcare settings. A two-phase qualitative study involving a focus group with seven nurse navigators (NNs) to explore their understandings and perceptions of the role, followed by in-depth interviews with three NNs to examine current practice, was undertaken in Queensland, Australia. NNs’ role spanned a continuum of patient and population care, and involved engagement in clinical integration, coordinating patient care and providing education and points-of-contact for healthcare professionals. NNs also engaged in professional integration, fostering interdisciplinary collaboration, education and connections between healthcare professionals, while promoting integrated care across care settings. NNs were enabled through the establishment of relationships, trust and shared communication between stakeholders. NNs’ work transcended traditional clinical boundaries, operating horizontally across silos and specialties, which allowed them to avoid (some) system shortfalls. By contributing to a culture of integration, NNs can potentially support more sustainable integrated care practices that extend relationships between healthcare professionals and beyond individual patients. Increasing our understanding of nurse navigation as a model of integrated care, this study illustrates the complexity, diversity and breadth of the role and its ability to contribute to broader, system-wide integration.

Choice or No Choice? Genuine or Fake Choice? – A Qualitative Study for Reflecting on Housing Choice

2020 ◽  
Vol 7 (2) ◽  
pp. 1-10
Author(s):  
Betty Yung ◽  
Barbara Leung
Keyword(s):  
Qualitative Study ◽  
Empirical Data ◽  
Well Being ◽  
Housing Choice ◽  
Housing Supply ◽  
Housing Options ◽  
Depth Interviews ◽  
Market Perspective

This paper seeks to reflect on issues related to the nature of housing choice, drawing on qualitative empirical data collected in in-depth interviews. This paper discusses two perspectives related to housing choice, namely, the ‘market perspective of housing choice’ and the ‘perspective of housing choice for well-being’. The ‘market perspective of housing choice’ highlights that desirability generally increases with a greater range of housing choice as the housing supply increases till a climax is reached, after which a further expansion of housing choice may indicate an excess housing supply, which may not be advantageous and home-buyers may instead ‘decide not to choose or buy’. The ‘perspective of housing choice for well-being’ reveals that choice in the housing arena is often viewed as a means to eventual well-being, rather than as an end in itself. Housing choice is ‘genuine’ and ‘meaningful’ if there are meaningful and significant options among a few desirable housing alternatives. ‘Fake housing choice’ involves having to choose from among housing options that are all generally bad.

scholarly journals When COVID-19 enters in a community setting: an exploratory qualitative study of community perspectives on COVID-19 affecting mental well-being

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e049851
Author(s):  
Naureen Akber Ali ◽  
Anam Shahil Feroz ◽  
Noshaba Akber ◽  
Rida Feroz ◽  
Salima Nazim Meghani ◽  
...  
Keyword(s):  
Mental Health ◽  
Qualitative Study ◽  
Primary Outcome ◽  
Well Being ◽  
Coping Mechanisms ◽  
Community Perception ◽  
Community Members ◽  
Mental Well Being ◽  
Depth Interviews ◽  
Anxiety And Fear

ObjectiveThe COVID-19 pandemic has resulted in an increased level of anxiety and fear among the general population related to its management and infection spread. Considering the relevance of present circumstances, we explored perceptions and attitudes of community members towards their mental well-being during the COVID-19 pandemic.SettingWe conducted an exploratory qualitative study using a purposive sampling approach, at two communities of Karachi, Pakistan.ParticipantsIn-depth interviews were conducted with community members including, young adults, middle-aged adults and older adults of both genders. Study data were analysed manually using the thematic analysis technique.Primary outcomeThe primary outcome is assessing community perception towards their mental well-being amidst the COVID-19 pandemic.ResultsA total of 27 in-depth interviews were conducted, between May and June 2020. Three overarching themes were identified: (1) impact of COVID-19 on the mental health of the general communities; (2) current coping mechanisms to adapt to the new reality and (3) recommendations to address the mental health of communities. Generally, community members underwent increased anxiety and fear due to the contagious nature of the virus. Alongside, social, financial and religious repercussions of the pandemic have also heightened psychological distress among community members. However, community members were able to point out some of the coping mechanisms such as getting closer to God, connecting with family, participating in mental health sessions and resetting lives by indulging in diverse activities. Simultaneously, they also recommended the need for remote mental health services for elders and continuous efforts by the government to address the mental health needs of the community.ConclusionCOVID-19-associated mental health consequences have hit every individual in society. The study finding has the potential to guide the development of context-specific innovative mental health programmes to overcome the pandemic repercussions.

scholarly journals Health professionals’ perceptions of weight loss programmes and recommendations for future implementation: a qualitative study

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e039667
Author(s):  
Christina Jessen-Winge ◽  
Pia Marie Ilvig ◽  
Trine Thilsing ◽  
Kim Lee ◽  
Heather Fritz ◽  
...  
Keyword(s):  
Weight Loss ◽  
Qualitative Study ◽  
Health Professionals ◽  
Daily Life ◽  
Holistic Approach ◽  
Well Being ◽  
Holistic Approaches ◽  
Weight Loss Programme ◽  
Public Health Challenge ◽  
Health And Well Being

ObjectiveObesity is an increasing public health challenge and most weight loss programmes are still inadequate to support sustainable weight loss. One reason for the continued lack of success might be the dominant biomedical, individualised approach to weight loss. Holistic approaches that focus on overall health and well-being in addition to weight loss are increasingly recommended. In Denmark, health professionals in the municipalities are responsible for developing and conducting weight loss programmes. The objective of this study was to explore what health professional’s perceived as an ideal, holistic weight loss programme that could be feasibly implemented in the municipalities.DesignA phenomenological-hermeneutical qualitative study was performed using semistructured interviews.SettingThirty-two Danish municipalities were weight loss programmes are developed and conducted.ParticipantsThirty-five health professionals with experience conducting weight loss programmes.ResultsThree themes emerged from the analysis: Support from the social network are important both during and after a weight loss, Changing the self-belief by positive discussions and doing activities, Maintaining changes through daily life.ConclusionFuture municipal weight loss programmes should emphasise overall health and well-being instead of weight loss and adopt a holistic approach including a focus on social relationships, meaningful activities and successes as part of a balanced daily life.

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