Double-edged MAiD death family legacy: a qualitative descriptive study

2020 ◽  
pp. bmjspcare-2020-002648
Author(s):  
Andrea N Frolic ◽  
Marilyn Swinton ◽  
Leslie Murray ◽  
Allyson Oliphant
Keyword(s):  
Family Members ◽  
Social Consequences ◽  
Main Theme ◽  
Structured Interviews ◽  
Loved One ◽  
Medical Assistance In Dying ◽  
Double Edge ◽  
Qualitative Descriptive ◽  
Conventional Content Analysis ◽  
Descriptive Approach

BackgroundIndividuals who accompany a loved one through medical assistance in dying (MAiD) have to live with the experience and the psychological, moral and social consequences of their involvement in the process long after the death occurs.AimTo explore the legacy of a MAiD death for individuals who accompanied a loved one through the process.DesignUsing a qualitative descriptive approach we conducted semi-structured interviews to collect data from family members who had accompanied a loved one through MAiD. Data were analysed using conventional content analysis.Setting/participants16 family members of 14 patients who received MAiD at a Canadian hospital with an interdisciplinary MAiD programme.ResultsThe main theme in the analysis is the opposing tensions experienced by individuals who accompany a loved one through a MAiD death, which we conceptualise as a double-edge experience. This double-edge experience is illustrated through four thematic opposing tensions: (1) support for patient autonomy and ambivalence about the MAiD choice, (2) gratitude for suffering relieved for loved one and grief for lost time with loved one, (3) time as a gift and time as a burden and (4) positive legacy and challenging bereavement experience.ConclusionThe nature of the MAiD experience for involved families is rooted in complexity, ambiguity and ambivalence and thus resists easy categorisation. Families would benefit from structured psychosocial and spiritual supports that acknowledge this complexity, along with MAiD-specific bereavement support following the death.

Family and Clinician Experiences of Sympathy Cards in the 3 Wishes Project

2020 ◽  
Vol 29 (6) ◽  
pp. 422-428
Author(s):  
Alyson Takaoka ◽  
Meredith Vanstone ◽  
Thanh H. Neville ◽  
Sophia Goksoyr ◽  
Marilyn Swinton ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Focus Groups ◽  
Family Members ◽  
Loved One ◽  
Symptoms Of Depression ◽  
Shared Humanity ◽  
Clinician Experiences ◽  
Conventional Content Analysis ◽  
Bereaved Family

Background A recent randomized trial of bereaved family members of patients who died in an intensive care unit identified symptoms of depression and posttraumatic stress in recipients of semistructured condolence letters. Objectives To explore family member and clinician experiences with receiving or sending handwritten sympathy cards upon the death of patients involved in a personalized end-of-life intervention, the 3 Wishes Project. Methods Interviews and focus groups were held with 171 family members and 222 clinicians at 4 centers to discuss their experiences with the 3 Wishes Project. Interview transcripts were searched to identify participants who discussed sympathy cards. Data related to sympathy cards were independently coded by 2 investigators through conventional content analysis. Results Sympathy cards were discussed during 32 interviews (by 25 family members of 21 patients and by 11 clinicians) and 2 focus groups (8 other clinicians). Family members reported that personalized sympathy cards were a welcome surprise; they experienced them as a heartfelt act of compassion. Clinicians viewed cards as an opportunity to express shared humanity with families, reminding them that they and their loved one were not forgotten. Signing cards allowed clinicians to reminisce individually and collectively with colleagues. Family members and clinicians experienced sympathy cards as a meaningful continuation of care after a patient’s death. Conclusions Inviting clinicians who cared for deceased patients to offer personalized, handwritten condolences to bereaved family members may cultivate sincere and individualized expressions of sympathy that bereaved families appreciate after the death of patients involved in the 3 Wishes Project.

scholarly journals Cancer patients’ family members’ experiences of the information and support provided by healthcare professionals

2018 ◽  
Vol 78 (4) ◽  
pp. 416-427 ◽  
Author(s):  
Jacqueline F Lavallée ◽  
Sarah Grogan ◽  
Carol A Austin
Keyword(s):  
Cancer Patients ◽  
Information Acquisition ◽  
Healthcare Professionals ◽  
Family Members ◽  
Sources Of Information ◽  
Structured Interviews ◽  
Loved One ◽  
Critical Realist ◽  
Sensitive Topics ◽  
Data Collection And Analysis

Objectives: This qualitative study aimed to understand the experiences, information and support needs of family members of cancer patients and their satisfaction with the services provided to them as a family member. Design: Inductive qualitative and critical realist approach to data collection and analysis. Methods: Purposive sampling was used to identify family members of cancer patients. We conducted semi-structured interviews with 10 participants by means of email, enabling us to explore sensitive topics at a pace appropriate for each participant and gain rich sources of information. We analysed the data using an inductive thematic approach. Results: Three superordinate themes were identified: information acquisition, seeking support and family members’ experiences of cancer. Needs were high, and a complex relationship between information and support was apparent. Many participants felt dissatisfied with the support and information received as it was sometimes inconsistent, incorrect or vague, and some reported deterioration in their own health as a consequence. Online communities were reported as being informative and supportive as the participants felt they could relate to the firsthand experience of the other members. Conclusion: Improving healthcare professionals’ awareness of the type of information and support the family members need is vital for both family members and patients. There is a need for the development of educational and psychological interventions to assist family members in coping when a loved one is diagnosed with cancer, is undergoing or recovering from treatment, or is receiving palliative care.

scholarly journals P.137 A qualitative study of families’ experiences with medical assistance in dying (MAiD) in Nova Scotia

2021 ◽  
Vol 48 (s3) ◽  
pp. S59-S59
Author(s):  
E Leck ◽  
C Jackson-Tarlton ◽  
E Crumley ◽  
G Gubitz
Keyword(s):  
Decision Making ◽  
Nova Scotia ◽  
Family Members ◽  
Sense Of Control ◽  
Medical Assistance ◽  
Structured Interviews ◽  
Eligibility Criteria ◽  
Medical Assistance In Dying ◽  
Life Journey ◽  
Iterative Coding

Background: MAiD became legal in Canada in 2015, with Bill C-14 delineating eligibility criteria and access. Previous research found families are intimately involved with decision-making, with conflicting perspectives on how they cope. Our study sought to learn about the experiences of family members, and determine what supports might be beneficial to improve MAiD delivery and aftercare. Methods: We conducted hour-long semi-structured interviews with 20 family members of individuals who had MAiD. Interviews took place by telephone or virtually via MS Teams, and transcripts were analyzed using an iterative coding process and thematic analysis. Results: Prominent themes emphasized the importance of respecting autonomy, decision-making, and allowing people to regain a sense of control, particularly with so much taken away. The death itself was described as peaceful. Interviewees were overwhelmingly filled with relief and gratitude for being able to respect the individual’s wishes. Interviewees spoke of importance of support for themselves, and the desire to build a network of individuals with similar experiences; to share their stories, grieve together, and support the next generation. Conclusions: These results will help improve MAiD delivery and aftercare in Nova Scotia, by informing, developing and enabling access to resources for individuals who accompany a family member on their end-of-life journey.

scholarly journals Exploring the Family Expectation of Patients Undergoing Surgery: A Qualitative Study

2021 ◽  
Vol 12 (2) ◽  
pp. 140-148
Author(s):  
Ebrahim Nasiri ◽  
Sara Shabanzad
Keyword(s):  
Treatment Process ◽  
Phenomenological Study ◽  
Medical Condition ◽  
Qualitative Content Analysis ◽  
Family Members ◽  
High Stress ◽  
Main Theme ◽  
Structured Interviews ◽  
Internal Conflicts ◽  
Qualitative Phenomenological

Background and Objectives: Accompanying the patients' family members in hospital creates feeling of empathy, safety of and help with fulfilling their expectations. Because both the patients and careers suffer from high stress due to lack of awareness about medical condition and treatment process. It is important for health system to understsand the expectations of patients and family members to be responsive and fullfill it correctly. This study was conducted to discover the patients carers (family members) experiences and expectation of patients undergoing surgery. Material and Methods: This qualitative phenomenological study was performed on 15 family members of patients undergoing surgery by purposive sampling until complete saturation of information. Data were collected through semi-structured interviews and recorded using word software. Items were extracted and qualitative content analysis method was used to analyze the data. Results: By analyzing the data, the main theme is "anxious minutes" and 5 main categories including "associated internal conflicts, behavioral changes while waiting, concerns about the prognosis of surgery, concerns about the outcome of the treatment process, and doubts about Hospital components" were extracted. Conclusion: While waiting for the end of the surgery, families experience many anxieties and worries about the patient's health and the treatment process. Considering the concerns of the patient's companions with principled planning, appropriate and practical interventions can improve the mental health of families and improve the quality of patient care.

Older people’s long-term care experiences during the COVID-19 pandemic in Ghana: a qualitative descriptive study

2021 ◽  
Author(s):  
Kofi Awuviry-Newton ◽  
Jacob Oppong Nkansah ◽  
Abraham Newton ◽  
Kwamina Abekah-Carter
Keyword(s):  
Long Term Care ◽  
Well Being ◽  
Descriptive Study ◽  
Structured Interviews ◽  
Term Care ◽  
Care Policies ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
Southern Ghana

This study explores older people’s long-term care experiences during the COVID-19 pandemic in Ghana. A qualitative descriptive approach employing semi-structured interviews was used to collect data from 15 older people from Southern Ghana. Analysis of interview data resulted in five interrelated themes: (1) sources and type of long-term care; (2) older people’s satisfaction with the long-term care received; (3) changes in their long-term care; (4) feelings of neglect regarding long-term care; and (5) older people’s resilience in long-term care. The sustainability of long-term care depends on the state’s ability to devise innovative long-term care policies and programmes to promote older people’s and their carers’ well-being.

The Transformative Potential of Community Dance for People With Cancer

2016 ◽  
Vol 26 (14) ◽  
pp. 1928-1938 ◽  
Author(s):  
Mary Butler ◽  
Barbara Snook ◽  
Ralph Buck
Keyword(s):  
Family Members ◽  
Convenience Sample ◽  
Community Dance ◽  
Transformative Potential ◽  
Original Group ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
The Way

This research describes a community dance project for people affected by cancer, which was led by a trained community dancer over 10 movement workshops and three performances. Using a qualitative descriptive approach, the research explored the experiences of a convenience sample of 8 participants out of the original group of 17 individuals who took part in the community dance. The research was participatory and the researchers were involved in workshops and performances as members of the group who also had family members with cancer. The findings indicate the motivation of the dancers to continue in spite of hardship, their sense of pride in being part of something that was larger than themselves, the way the dance permitted them to embody a sense of courage, and finally, in performing, how they managed to share something that genuinely moved an audience.

scholarly journals Motivasi Menghafal Al-Qur’an pada Anak melalui Komunikasi Interpersonal

2019 ◽  
Vol 3 (2) ◽  
pp. 97
Author(s):  
Annisa Nurul Mardhiyah ◽  
Ayub Ilfandy Imran
Keyword(s):  
Interpersonal Communication ◽  
Family Members ◽  
Communication Pattern ◽  
High Achievement ◽  
Parents And Children ◽  
Achievement Outcomes ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
High Level ◽  
At Home

Orang tua mempunyai peran yang penting bagi keberhasilan pendidikan anak, termasuk dalam meningkatkan motivasi anak untuk menghafal Al-Qur’an. Selain itu, proses tahfizh Al-Qur’an harus selaras antara tujuan pendidikan di sekolah dan aktivitas anak di rumah. Penelitian ini bertujuan untuk mengetahui dan menganalisis pola komunikasi interpersonal orang tua dan anak dalam meningkatkan motivasi menghafal Al-Qur’an pada anak. Penelitian ini dilakukan pada orang tua dan siswa STP MI Khoiru Ummah yang memiliki prestasi di bidang tahfizh. Dengan paradigma konstruktivisme, penelitian ini menggunakan pendekatan kualitatif-deskriptif. Hasil penelitian menunjukkan anak yang memiliki capaian tahfizh tinggi berasal dari keluarga yang menerapkan pola komunikasi konsensual. Pola komunikasi konsensual adalah pola komunikasi yang memiliki tingkat interaksi dan konformitas tinggi antaranggota keluarga. Dengan diterapkannya pola komunikasi ini, orang tua dapat meningkatkan motivasi menghafal Al-Qur’an pada anak dan anak dapat mencapai target hafalan yang diinginkan.Kata Kunci: Komunikasi interpersonal, keluarga, tahfizh Al-Qur’an ABSTRACTParents have an important role in the success of children’s education, including in increasing the motivation of children to memorize the Qur’an. In addition, the process of tahfizh Al-Qur’an must be in harmony between the goals of education in schools and the activities of children at home. This study aims to determine and analyze the patterns of interpersonal communication of parents and children in increasing motivation to memorize the Qur’an in children. This research was carried out on parents and students of STP MI Khoiru Ummah who had achievements in the field of tahfizh. With the constructivism paradigm, this study uses qualitative-descriptive approach. The results of the study show that children who have high achievement outcomes come from families that apply the consensual communication pattern. The pattern of consensual communication is a communication pattern that has a high level of interaction and conformity between family members. With the implementation of this pattern, parents can increase motivation in children to memorize the Qur’an and children can achieve the desired memorization target.Keywords: Interpersonal communication, family, tahfizh Al-Qur’an

scholarly journals SOCIAL MEDIA AT THE PUBLIC UNIVERSITY: A Case Study at the Federal University of Amapá

2020 ◽  
Vol 6 (4) ◽  
pp. a7en
Author(s):  
Laís Karla da Silva Barreto ◽  
Emanuelle Silva Barbosa ◽  
Luciana Gondim de Almeida Guimarães ◽  
Priscila Silva Esteves ◽  
Allan Gustavo Freire da Silva ◽  
...  
Keyword(s):  
Social Media ◽  
Integrated Management ◽  
Study Data ◽  
Communication Process ◽  
Structured Interviews ◽  
The Public ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
Case Study Data

The advent of the internet has enabled changes in the way people communicate. The current reseach endeavours to analyse the organizational communication process, through social media, at the Academic Department of Philosophy and Human Sciences - DFCH, at the Federal University of Amapá. Methodologically, it is a qualitative, descriptive approach, configured as a case study. Data were collected through semi-structured interviews, with the participation of 10 administrative technicians. The results reveal that communication in the DFCH occurs through integrated management systems (SIPAC, SIGRH and SIGAA), by email and institutional website and, informally, by WhatsApp. As a result of the research, it was proposed the creation of groups linked to the Dean Special Advisory Board (AER), to improve the communication process.  

scholarly journals New Zealand Families' Beliefs About What Constitutes Successful Management of Unsupervised Childcare

2021 ◽  
Author(s):  
◽  
Deborah Ann Trenberth
Keyword(s):  
New Zealand ◽  
Parental Support ◽  
Social Consequences ◽  
Community Context ◽  
Structured Interviews ◽  
Successful Management ◽  
Policy Makers ◽  
Practitioner Knowledge ◽  
Qualitative Descriptive ◽  
Critical Components

<p>This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. The findings from this study, while not conclusive, provide an insight into the New Zealand experience of successful unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children.</p>

scholarly journals When Control Exacerbates Distress: A Qualitative Study Exploring the Experiences of Hong Kong Chinese Parents in Caring for a Child with Asthma

2018 ◽  
Author(s):  
Yuen-yu Chong ◽  
Doris Leung ◽  
Yim-wah Mak
Keyword(s):  
Hong Kong ◽  
Childhood Asthma ◽  
Asthma Management ◽  
Structured Interviews ◽  
Educational Training ◽  
Chinese Parents ◽  
Children With Asthma ◽  
Qualitative Descriptive ◽  
Conventional Content Analysis ◽  
Primary Form

Many parents have difficulty managing childhood asthma. In Hong Kong (HK), while medication is the primary form of treatment, traditional Chinese medicine is another favored option. In addition, HK follows a dual-track healthcare system, which may pose unique experiences for Chinese parents in childhood asthma management. This qualitative descriptive study aimed to explore the experiences of HK Chinese parents in caring for their children with asthma. Methods: Fourteen HK Chinese mothers of children (aged 3-10) suffering from asthma were purposively sampled to participate in individual, semi-structured interviews. A realist approach following conventional content analysis was used to interpret the interviews. Results: The mothers expressed feelings of uncertainty, fear of asthma crises, and searching for ways to cope. These feelings triggered various strategies to control their child&rsquo;s asthma. As long as the child&rsquo;s asthma symptoms recurred, the mothers&rsquo; distress continued. Their distress was sometimes exacerbated by self-doubt and worries about whether they would receive adequate support from their family and healthcare professionals. Conclusion: Helping parents to understand their limits may help them be more open to varied aspects of their caregiving experiences, and thus to cope better. Psychological interventions together traditional educational training may help to alleviate parents&rsquo; psychological difficulties.

Sign in / Sign up

Export Citation Format

Share Document