scholarly journals Satisfaction with Care in Late Stage Parkinson’s Disease

2019 ◽  
Vol 2019 ◽  
pp. 1-10
Author(s):  
Kristina Rosqvist ◽  
Peter Hagell ◽  
Susanne Iwarsson ◽  
Maria H Nilsson ◽  
Per Odin
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Late Stage ◽  
Informal Caregivers ◽  
Satisfaction With Care ◽  
Regression Analyses ◽  
Factors Associated ◽  
Individual Quality Of Life ◽  
Care Support

In late stage Parkinson’s disease (PD) (i.e., Hoehn and Yahr (HY) stages IV-V), both motor and nonmotor symptoms (NMS) are pronounced, and the patients become increasingly dependent on help in their daily life. Consequently, there is an increasing demand on health-care and social care resources for these patients and support for their informal caregivers. The aim of this study was to assess satisfaction with care in late stage PD patients and to identify factors associated with satisfaction with care. Moreover, to assess their informal caregivers’ satisfaction with support and to identify factors associated with caregivers’ satisfaction with support. Factors potentially associated with satisfaction with care/support were assessed in 107 late stage PD patients and their informal caregivers (n=76) and entered into multivariable logistic regression analyses. Fifty-eight (59%) of the patients and 45 (59%) of the informal caregivers reported satisfaction with their overall care/support. Patients satisfied with their care reported higher independence in activities of daily living (ADL) (Katz ADL index; P=0.044), less depressive symptoms (Geriatric Depression Scale, GDS-30; P=0.005), and higher individual quality of life (QoL) (Schedule for the Evaluation of Individual Quality of Life Questionnaire, SEIQoL-Q; P=0.036). Multivariable logistic regression analyses identified depressive symptoms (P=0.015) and independence in ADL (P=0.025) as independently associated with satisfaction with care. For informal caregivers, the analyses identified patients’ HY stage (P=0.005) and caregivers’ QoL (Alzheimer’s Carers Quality of Life Inventory, ACQLI; P=0.012) as independently associated with satisfaction with caregiver support. The results indicate that an effective both pharmacological and nonpharmacological PD therapy is important, to adequately treat motor and NMS (e.g., depressive symptoms) in order to improve depressive symptoms and patient independence in ADL. This may benefit not only the patients, but also their informal caregivers.

scholarly journals Caregiver Burden and Quality of Life in Late Stage Parkinson’s Disease

2022 ◽  
Vol 12 (1) ◽  
pp. 111
Author(s):  
Kristina Rosqvist ◽  
Anette Schrag ◽  
Per Odin ◽  
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Linear Regression ◽  
Caregiver Burden ◽  
Male Patient ◽  
Late Stage ◽  
Informal Caregivers ◽  
Regression Analyses ◽  
Patient Gender

Parkinson’s disease (PD) is a chronic, progressive, neurodegenerative disease involving both motor and non-motor symptoms (NMS). In the late stage of the disease, Hoehn and Yahr (H&Y) stage IV-V, the symptomatology is often severe and patients become increasingly dependent on help in their daily life, resulting in an increased burden for the informal caregivers. To assess the implications of the caregiver burden, caregiver quality of life (QoL) was assessed in 74 informal caregivers to patients in late stage PD, by the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue), which has been found useful also in PD. The majority of caregivers were the spouse/partner. Individual items provided information on which aspects of caregiver burden were the most common, i.e., items: “feel guilty if not there (71% affirmed)”, “the situation wears me down” (65% affirmed) and “always on my mind” (61% affirmed). In simple linear regression analyses, male patient gender (p = 0.007), better cognition (p = 0.004), lower NMS burden (p = 0.012) and not being the partner (p = 0.022) were associated with better caregiver QoL. Multivariable linear regression analyses identified better cognition (p = 0.004) and male patient gender (p = 0.035) as independently associated with better informal caregiver QoL. Identifying and treating NMS as well as recognizing and alleviating caregiver burden seem essential to enhance QoL for both patients and caregivers in late stage PD.

scholarly journals Factors Associated with Health‐Related Quality of Life in Late‐Stage Parkinson's Disease

2021 ◽  
Author(s):  
Kristina Rosqvist ◽  
Per Odin ◽  
Stefan Lorenzl ◽  
Wassilios G. Meissner ◽  
Bastiaan R. Bloem ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Late Stage ◽  
Health Related Quality ◽  
Factors Associated ◽  
Related Quality ◽  
Health Related

scholarly journals Investigating Factors Associated with Depressive Symptoms of Chronic Kidney Diseases in China with Type 2 Diabetes

2017 ◽  
Vol 2017 ◽  
pp. 1-7 ◽  
Author(s):  
Xu Wang ◽  
Biyu Shen ◽  
Xun Zhuang ◽  
Xueqin Wang ◽  
Weiqun Weng
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Type 2 Diabetes ◽  
Regression Analysis ◽  
Depressive Symptoms ◽  
Kidney Diseases ◽  
Chronic Kidney Diseases ◽  
Factors Associated

Aim.To assess the depressive symptoms status of chronic kidney diseases in Nantong, China, with type 2 diabetes and to identify factors associated with depressive symptoms.Methods.In this cross-sectional analytic study, 210 type 2 diabetic patients were recruited from the Second Affiliated Hospital of Nantong University. Depressive symptoms were assessed with the depression subscale of the Hospital Anxiety and Depression Scale (HAD-D). The quality of life was measured with the RAND 36-Item Health Survey (SF-36). And the independent risk factors of depressive symptoms were assessed by using a stepwise forward model of logistic regression analysis.Results.The mean age of the study subjects was 57.66 years (SD: 11.68). Approximately 21.4% of subjects reported depressive symptoms (n=45). Forward stepwise logistic regression analysis showed that female gender (P=0.010), hypertension (P=0.022), Stage IV (P=0.003), and Stage V (P<0.001) were significant risk factors for depressive symptoms. The quality of life of individuals with HAD-D score <11 was significantly better compared with individuals with HAD-D score ≥ 11.Conclusions.These results indicate that clinicians should be aware that female patients with chronic kidney diseases with T2DM in their late stage with hypertension are at a marked increased risk of depressive symptoms. Providing optimal care for the psychological health of this population is vital.

scholarly journals Factors associated with quality of life in elderly hospitalised patients undergoing post-acute rehabilitation: a cross-sectional analytical study in Switzerland

BMJ Open ◽  
2017 ◽  
Vol 7 (10) ◽  
pp. e018600 ◽  
Author(s):  
Marc-Antoine Bornet ◽  
Eve Rubli Truchard ◽  
Etienne Rochat ◽  
Jérôme Pasquier ◽  
Stéfanie Monod
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Analytical Study ◽  
Cognitive Status ◽  
Spiritual Needs ◽  
Geriatric Rehabilitation ◽  
Satisfaction With Care ◽  
Cross Sectional ◽  
Perceived Quality Of Life

ObjectivesWe investigated whether biopsychosocial and spiritual factors and satisfaction with care were associated with patients’ perceived quality of life.DesignThis was a cross-sectional analytical study.SettingData were collected from inpatients at a postacute geriatric rehabilitation centre in a university hospital in Switzerland.ParticipantsParticipants aged 65 years and over were consecutively recruited from October 2014 to January 2016. Exclusion criteria included significant cognitive disorder and terminal illness. Of 227 eligible participants, complete data were collected from 167.Main outcome measuresPerceived quality of life was measured using WHO Quality of Life Questionnaire—version for older people. Predictive factors were age, sex, functional status at admission, comorbidities, cognitive status, depressive symptoms, living conditions and satisfaction with care. A secondary focus was the association between spiritual needs and quality of life.ResultsPatients undergoing geriatric rehabilitation experienced a good quality of life. Greater quality of life was significantly associated with higher functional status (rs=0.204, p=0.011), better cognitive status (rs=0.175, p=0.029) and greater satisfaction with care (rs=0.264, p=0.003). Poorer quality of life was significantly associated with comorbidities (rs=−.226, p=0.033), greater depressive symptoms (rs=−.379, p<0.001) and unmet spiritual needs (rs=−.211, p=0.049). Multivariate linear regression indicated that depressive symptoms (β=−0.961; 95% CIs −1.449 to 0.472; p<0.001) significantly predicted quality of life.ConclusionsPatient perceptions of quality of life were significantly associated with depression. More research is needed to assess whether considering quality of life could improve care plan creation.

scholarly journals Factors associated with depressive symptoms in older adults in context of social vulnerability

2020 ◽  
Vol 73 (suppl 1) ◽  
Author(s):  
Letícia Souza Didoné ◽  
Isabela Thaís Machado de Jesus ◽  
Ariene Angelini Santos-Orlandi ◽  
Sofia Cristina Iost Pavarini ◽  
Fabiana de Souza Orlandi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Protective Factors ◽  
Social Vulnerability ◽  
Depression Scale ◽  
Mini Nutritional Assessment ◽  
Living Alone ◽  
Life Questionnaire ◽  
Factors Associated

ABSTRACT Objective: To identify factors associated with depressive symptoms in the elderly inserted in a context of high social vulnerability. Methods: A cross-sectional study was carried out with 302 elderly people enrolled in Primary Care. We used a sociodemographic questionnaire, Geriatric Depression Scale, Mini Nutritional Assessment, Shor-form-6D Quality of Life Questionnaire and Medical Outcome Study Scale. For data analysis, a logistic regression was performed considering two groups, with and without depressive symptoms. Results: A good perception of the quality of life (OR: 0.21) and receiving emotional support (OR: 0.98) were presented as protective factors for depression, have risks of malnutrition (OR: 4.87), belong to the female sex OR: 1.88) and living alone (OR: 2.34), indicated a predictor factor for depression. Conclusion: Quality of life and social support were identified as protective factors for depressive symptoms while being at risk of malnutrition, living alone, reporting pain and being female are predictors.

scholarly journals Factors associated with depression in patients with Parkinson’s disease A multicenter study in Lima, Peru

2018 ◽  
Vol 12 (3) ◽  
pp. 292-298 ◽  
Author(s):  
Nilton Custodio ◽  
Carlos Alva-Diaz ◽  
Cristian Morán-Mariños ◽  
Koni Mejía-Rojas ◽  
David Lira ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Depressive Symptoms ◽  
Disease Progression ◽  
Multicenter Study ◽  
Rapid Progression ◽  
Rapid Disease Progression ◽  
Factors Associated

Abstract The diagnosis and treatment of depression in patients with Parkinson’s disease (PD) is inadequate, often contributing to a reduced quality of life, rapid disease progression, higher cognitive impairment, and an increased burden of care for family members of patients with PD. Objective: To determine the factors associated with depression in PD and to examine the frequency of depressive symptoms among patients with PD. Methods: This study was an observational, analytical, multicenter study of a cross-sectional cohort, conducted between July 2016 and May 2017. PD patients were recruited from neurology clinics in Lima, Peru. All statistical analyses were performed using descriptive statistics. Bivariate and multivariate logistic regression analyses were calculated using STATA. Results: Out of 124 patients (average age: 68.7 years; 58% males) included in the study 60.5% (75/124) presented with symptoms of depression; only 20% (25/124) received antidepressants. Factors associated with depression in PD included: unemployment, falls, freezing of gait, involuntary movements micrographia, stooped posture, hyposmia, movement disorders in sleep, rapid disease progression, and the use of MAOIs. Furthermore, statistically significant differences were found in disease duration, UPDRS and MMSE scores, Hoehn and Yahr (HY) stage, and length of time taking L-dopa between PD patients with and without depressive symptoms. Conclusion: Factors associated with depressive symptoms in patients with PD were hyposmia, rapid progression of the disease, the use of L-dopa, and use of MAOIs. The frequency of depressive symptoms in patients with PD is high; early diagnosis and prompt treatment are needed to improve their quality of life and the family environment.

Preparation for the end of life and life completion during late-stage lung cancer: An exploratory analysis

2017 ◽  
Vol 15 (5) ◽  
pp. 554-564 ◽  
Author(s):  
Gail Adorno ◽  
Cara Wallace
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Older Adults ◽  
Palliative Care ◽  
Depressive Symptoms ◽  
End Of Life ◽  
Late Stage ◽  
Advanced Lung Cancer ◽  
Stage Lung Cancer

ABSTRACTObjective:Our aim was to explore preparation for the end of life (EoL) and life closure among persons with advanced metastatic lung cancer. Understanding quality of life through the lens of preparation and completion is important since the trajectory of lung cancer can be relatively short, often leading to application of cancer-directed therapies near death without the opportunity for advance planning or palliative care. Clinical research is needed to understand the kinds of distress specific to older adults with advanced lung cancer that are amendable to palliative care interventions.Method:We employed an exploratory cross-sectional design to examine psychosocial and existential concerns among a purposive sample (N = 30) of advanced lung cancer patients using the “end-of-life preparation” and “life completion” subscales of the Quality of Life at the End of Life (QUAL–E) questionnaire. Nonparametric methods were employed to analyze preparation, completion, global quality of life (QoL), and the associations among depressive symptoms, preparation, completion, and global QoL.Results:Higher scores on life completion were associated with better global QoL, and with items related to transcendence, communicative acts, and interpersonal relationships demonstrating important contributions. The perception of being a future burden on family members was the greatest concern within the preparation domain. Depressive symptoms were not associated with preparation, completion, or global QoL.Significance of Results:Psychosocial and existential issues contribute to QoL at the EoL among older adults with late-stage lung cancer during cancer-directed therapy, concurrent care, and hospice. The role of preparation, especially self-perceived burden, merits further research early on in the oncological setting. The preparation and life completion subscales of the QUAL–E are feasible clinical tools for facilitating dyadic communication about sensitive topics in the palliative care setting.

Depressive symptoms and depression in people screened positive for dementia in primary care – results of the DelpHi-study

2016 ◽  
Vol 28 (6) ◽  
pp. 929-937 ◽  
Author(s):  
Jochen René Thyrian ◽  
Tilly Eichler ◽  
Melanie Reimann ◽  
Diana Wucherer ◽  
Adina Dreier ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Depressive Symptoms ◽  
Delphi Study ◽  
Depression Scale ◽  
The Elderly ◽  
Adequate Treatment ◽  
Factors Associated ◽  
People With Dementia

ABSTRACTBackground:Dementia and depression are common syndromes in the elderly. There is lack of knowledge concerning the frequency of depressive symptoms in people with dementia (PWD) and factors associated with depression. The aim of this analysis is to (a) describe the frequency of depressive symptoms in people screened positive for dementia, (b) describe differences between PWD with and without depressive symptoms, and (c) analyze associations between depressive symptoms and other dementia-related variables.Methods:Analyses are based on data of the GP-based intervention trial DelpHi-MV. A sample of 430 (6.29%) people screened positive for dementia in primary care was analyzed regarding depression according to the German version of the Geriatric Depression Scale (GDS, 15-items), demographic variables, and dementia/depression-related variables. Multivariate analyses were conducted to identify factors associated with depressive symptoms.Results:The mean GDS-score of depressive symptoms inn= 430 PWD was m = 3.21 (SD 2.45) with 67 PWD (15.55%) showing clinically relevant depression (GDS < 5) m = 7.71 (SD = 1.92). A total ofn= 72 (16.74%) received a formal diagnosis of depression andn= 62 (14.42%) received antidepressive drug treatment. Depressive symptoms are significantly associated with age (OR = 0.93), functional impairment (OR = 1.36), and quality of life (OR = 0.01, CI: 0.00–0.06).Conclusion:Our results support previous findings that clinically relevant depressive symptoms are more common in people screened positive for dementia than in the general population and are often missed or mismanaged. Our findings underline the importance of managing quality of life, functional status, or depressive symptoms. Also, the results highlight the benefit of including the partner (and probably other carers) for adequate treatment of PWD.

scholarly journals Study on the quality of life and its related factors for older adults in communities in Beijing, China†

2021 ◽  
Vol 8 (2) ◽  
pp. 121-128
Author(s):  
Yu Liu ◽  
Robin Whittemore ◽  
Hong Guo ◽  
Yan Chen ◽  
Wei Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Depressive Symptoms ◽  
Chronic Disease ◽  
Short Form ◽  
Positive Influence ◽  
Older Age ◽  
Role Functioning ◽  
Factors Associated

Abstract Objectives To describe the quality of life (QOL) of adults ≥60 years of age in communities in Beijing and explore demographic, clinical, and psychological factors associated with QOL. Methods This was a cross-sectional study. A total of 363 older adults were recruited, in which 313 completed the questionnaires. Depressive symptoms were measured with the Self-Rating Depression Scale (SDS) and QOL was analyzed with the 36-item short form (SF-36). The t-test and Mann-Whitney U tests were used to compare QOL by gender and age group. Factors associated with QOL were determined using multiple linear regression. Results Among 313 older adults, depressive symptoms were observed to be prevalent to the extent of 16.6%. Overall, participants had higher QOL in the domains of social role functioning and emotional role functioning, with lower QOL in the domains of physical functioning and general health perceptions. There were no significant differences in QOL between women and men. However, there were significant differences between different age groups, with older adults having better mental QOL than younger adults. Better physical QOL was associated with less depressive symptoms, having a partner, and younger age (R 2 = 28.7%). Better mental QOL was associated with less depressive symptoms, less chronic disease, and older age (R 2 = 34.7%). Conclusions With aging, physical QOL was lower and mental QOL was better. Less depressive symptoms, having a spouse or partner, and young–old age assert positive influence on physical QOL of the older adults; and less depressive symptoms, no chronic disease, and older age assert positive influence on mental QOL.

Sign in / Sign up

Export Citation Format

Share Document