Abstract 135: Integration of Social Media With Targeted Emails and interviews for Exception From Informed Consent Community Consultation

Circulation ◽  
2018 ◽  
Vol 138 (Suppl_2) ◽  
Author(s):  
Cindy H Hsu ◽  
Jennifer Fowler ◽  
James A Cranford ◽  
Michael P Thomas ◽  
Robert W Neumar
Keyword(s):  
At Risk ◽  
Social Media ◽  
Cardiac Arrest ◽  
Informed Consent ◽  
Small Sample Size ◽  
Small Sample ◽  
Community Consultation ◽  
Cardiac Catheterization Laboratory ◽  
The Social ◽  
Interview Group

Introduction: Exception from informed consent (EFIC) enables the enrollment of subjects with emergent conditions for clinical trials without prior consent. All EFIC studies are required to include community consultation (CC). However, CC implementation is often challenged by significant cost and scarce community engagement. Hypothesis: We hypothesize that the utilization of social media, targeted emails, and interviews of at-risk individuals and their caretakers can lead to more effective EFIC CC. Methods: We utilized social media and targeted emails/interviews for the EFIC CC of the ACCESS to the Cardiac Catheterization Laboratory in Patients Without ST-Segment Elevation Myocardial Infarction Resuscitated From Out-of-hospital Ventricular Fibrillation Cardiac Arrest Trial. We disseminated study advertisements with survey links and opt-out option using Facebook/Instagram to our communities and targeted emails to prehospital and cardiology providers. We also interviewed at-risk individuals with cardiac conditions, their caretakers, and patient advocacy groups. Between-group comparisons of proportions were tested using modified chi-squared tests for small sample size. Results: We collected 559 fully or partially completed surveys over an eight-week period. The majority of the surveys (70.5%) were obtained using social media. The mean age was 45 years; 90% were white and 61% were female. Overall, 91.3% believed ACCESS is an important study. The interview group had significantly more loved ones with cardiac arrest than the social media (50% vs 36.7%, p < 0.05) or targeted email (50% vs 23.6%, p < 0.005) group. Compared to the interview group, more from social media (81.8% vs 63.3%, p < 0.05) and targeted email (77.4% vs 63.3, p < 0.05) groups said they would include their loved ones in the study. More from the interview group believed that their opinion would be considered seriously compared to the social media (75.9% vs 62.6%, p < 0.05) and targeted email (75.9% vs 54.5%, p < 0.05) groups. No one opted out from the study. Conclusions: The integration of social media with targeted emails and interviews is an effective approach for EFIC CC. Future work is necessary to determine the perception and best utilization of these strategies for EFIC studies.

Re-tweeting the Ayatollah

2015 ◽  
Vol 36 (2) ◽  
pp. 49-52
Author(s):  
Peter Buell Hirsch
Keyword(s):  
Social Media ◽  
Media Use ◽  
Small Sample Size ◽  
Small Sample ◽  
Social Media Use ◽  
Content Type ◽  
Community Stakeholders ◽  
The Social ◽  
The World ◽  
Data Tracking

Purpose – The purpose of this paper is to examine how the sudden emergence of official government voices using social media as their first platform for communication creates new opportunities to understand how those voices are influenced and by whom. Design/methodology/approach – The article examines some recent examples of social media use by government entities from around the world, particularly the Middle East. Findings – This examination of social media use by government entities suggests that this usage provides significant clues about what government leaders are paying attention to. The social media outputs from these sources creates for the first time a unique signature of what these leaders react to and also how the various publics to whom they speak react to their utterances. Research limitations/implications – By virtue of the small sample size of the examples reviewed, the findings are of necessity subjective opinion. Practical implications – If in fact, this social media “exhaust” from governmental sources continue to grow, companies and organizations for whom the evolution of government opinion is important will be able to gather fresher and powerful insights into public policy and views. Originality/value – Cyberspace continues to offer an ever expanding set of data tracking both the opinions and behaviors of various community stakeholders. To the best of authors’ knowledge, the viewpoint presented in this article is among the first to examine the ramifications of the shift to social media by government leaders from around the world.

‘There is no sincerer love than the love of food’ (George Bernard Shaw, 1903): The meaning of food and its uses in prison subculture

2018 ◽  
Vol 16 (2) ◽  
pp. 127-146 ◽  
Author(s):  
Tomer Einat ◽  
Moran Davidian
Keyword(s):  
Small Sample Size ◽  
Food Products ◽  
Analysis Data ◽  
Small Sample ◽  
Structured Interviews ◽  
Maximum Security ◽  
Maximum Security Prison ◽  
The Social ◽  
Bernard Shaw

This study examines the ways in which the prison service handles food and analyses the uses and meanings of food in prison subculture. Using semi-structured interviews and content analysis, data were collected and analysed from 20 ex-prisoners who were incarcerated in maximum-security prison facilities for a period of three years or more. Our main findings are that, according to the interviewees’ testimonies, (a) the Israel Prison Service (IPS) makes manipulative and abusive use of food in order to perpetuate its power; and (b) food serves as a means to determine the relationship between prisoners and staff, govern social status or rejection in the prison subculture, or pass the time. We have four main conclusions. First, the IPS nutrition policy differentiates and discriminates among prisoners and clearly violates the basic human rights of prisoners, thus suggesting an abuse of power. Second, the IPS’s use of food as a tool for punishing or rewarding introduces and perpetuates inequalities and encourages the illegal prison trade in food and food products. Third, cooking in prison, especially in light of its illegality, constitutes a symbolic expression of resistance to the institution and a meaningful way of coping with boredom. Lastly, food and its possession in prison serve as very powerful tools for constructing and perpetuating exploitation and unequal power relations among prisoners. Although the study suffers from two limitations – the validity of the adolescents’ responses and the small sample size – its findings lead us to propose that an improvement in the food products that are accessible to prisoners and permission to cook in their cells are inexpensive and legitimate means of bettering both the prisoners’ quality of life and the social atmosphere in prison.

scholarly journals Impact of Social Media on Community Consultation in Exception From Informed Consent Clinical Trials

2019 ◽  
Vol 234 ◽  
pp. 65-71 ◽  
Author(s):  
John A. Harvin ◽  
Jeanette M. Podbielski ◽  
Laura E. Vincent ◽  
Mike K. Liang ◽  
Lillian S. Kao ◽  
...  
Keyword(s):  
Social Media ◽  
Clinical Trials ◽  
Informed Consent ◽  
Community Consultation

Corporate social disclosure through social media: an exploratory study

2019 ◽  
Vol 21 (2) ◽  
pp. 265-281 ◽  
Author(s):  
Dimaz Ramananda ◽  
Apriani Dorkas Rambu Atahau
Keyword(s):  
Social Media ◽  
Small Sample Size ◽  
Small Sample ◽  
Annual Reports ◽  
Content Type ◽  
Early Stages ◽  
Size Limits ◽  
Csr Disclosure ◽  
Corporate Social ◽  
Skill Building

Purpose The purpose of this paper is to determine the extent of voluntary corporate social responsibility (CSR) disclosure by Indonesian firms on their social media and to compare it with the mandatory disclosure on their annual reports. Design/methodology/approach The authors use publicly listed Indonesian firms that are included in the SRI-KEHATI Index as the sample. Further, by using NVIVO software, the authors qualitatively analyze CSR activities disclosed on firms’ social media and annual reports with an interpretive approach. Findings The findings indicate that Indonesian firms still exhibit early stages of social media-based voluntary CSR disclosure. Further, issues on training, education and skill building dominate firms’ disclosure. Finally, Indonesian firms disclose less CSR information in their social media than in their annual reports, thus confirming the early stages of social media-based CSR disclosure. Research limitations/implications The small sample size limits the generalizability of the results. Practical implications This paper provides insights on which CSR issues are commonly disclosed in firms’ social media. This study may also inform regulators the extent of disclosures that could be regulated in social media. Originality/value Social media-based CSR disclosure in developing countries is relatively understudied. Thus, this paper empirically shows the topic and intensity of CSR disclosure in social media and the comparison between this type of CSR disclosure with CSR disclosure using other media.

Evaluation of Patient Feedback following Laparoscopic Cholecystectomy based on Information Described in the Informed Consent form Developed by the Association of Polish Surgeons

2015 ◽  
Vol 87 (11) ◽  
Author(s):  
Piotr Misiak ◽  
Sławomir Jabłoński ◽  
Jerry Lazarek ◽  
Katarzyna Malinowska ◽  
Edyta Santorek-Strumiłło ◽  
...  
Keyword(s):  
Laparoscopic Cholecystectomy ◽  
Informed Consent ◽  
Surgical Intervention ◽  
Small Sample Size ◽  
Laparoscopic Approach ◽  
Invasive Procedure ◽  
Small Sample ◽  
Consent Form ◽  
Patient Feedback ◽  
Informed Consent Form

AbstractThe cholecystectomy procedure is the most routinely performed intervention in general surgery. The current international gold standard is via the laparoscopic approach. It is a safe, minimally-invasive procedure; however, it is associated with complications in 1% of cases.was to analyze patient feedback, by means of a survey, to determine how much knowledge patients possessed about their disease state and proposed surgical intervention, based primarily on information contained within the informed consent form developed by the Association of Polish Surgeons.This study involved the participation of 51 patients who underwent laparoscopic cholecystectomy, indicated by a diagnosis of gallstones, in the years 2014 and 2015.Despite having signed the informed consent form, there was considerable variation among the responses given to the survey by the 51 patients in this study. Some patients’ responses were tangential to the questions asked; many patients did not respond to any of the sub points.Given that this study is based on a small sample size of patients, it must be presumed that the process by which the patient declares his or her informed consent requires further consideration with respect to the means by which it is obtained. The authors of this study thus recommend that multimedia resources be harnessed as part of the process of obtaining the informed consent of patients prior to surgical intervention.

scholarly journals Comprehension, Perception, and Practice of Indians about COVID-19 Anticipating the Second Wave of the Pandemic

2021 ◽  
Vol 11 (4) ◽  
pp. 215-224
Author(s):  
Prakash Gondode ◽  
◽  
Amrusha Raipure ◽  
Bhuvaneswari Balasubramanian ◽  
Abhinav Lambe ◽  
...  
Keyword(s):  
Social Media ◽  
Informed Consent ◽  
Good Practice ◽  
The Self ◽  
Convenience Sample ◽  
The Social ◽  
True Answer ◽  
Practice Knowledge ◽  
The City ◽  
Second Wave

Background: We assessed knowledge, attitudes, practice, and perceptions about COVID-19 among a convenience sample of the general public in India anticipating the second wave of the pandemic. Methods: This questionnaire-based survey was conducted among the general population quarantined at various institutional quarantine facilities in the city of Nagpur, Maharashtra, India. Informed consent was obtained from each participant. The self-designed questionnaire comprised 25 questions regarding knowledge, eight for attitude, and ten for practice. Knowledge questions were responded to on a Yes/No basis with an additional ‘don’t know’ option. The true answer was given 1 point and false/I don’t know answers were given 0 point. Results: The majority of the participants were aware of COVID-19 (97.9%) and did not either wash or knew how to properly dispose of the used mask (88.02%). Only 10.96% of the participants agreed that they verify the social media posts shared over WhatsApp and Facebook on government authentic websites before sharing them with family and friends. Conclusion: Awareness about the virus, modes of spread, good practice, and an optimistic attitude is the prime requisite to curb the spread and to avoid the impending severity anticipating the second wave of the pandemic.

Teaching metaliteracy: a new paradigm in action

2014 ◽  
Vol 42 (2) ◽  
pp. 188-208 ◽  
Author(s):  
Donna Witek ◽  
Teresa Grettano
Keyword(s):  
Social Media ◽  
Information Literacy ◽  
Literacy Instruction ◽  
Small Sample Size ◽  
Rhetorical Analysis ◽  
Small Sample ◽  
Social Evaluation ◽  
New Paradigm ◽  
Content Type ◽  
Information Literacy Instruction

Purpose – The purpose of this paper is to offer a model of information literacy instruction that utilizes social media to teach metaliteracy as the foundation for information literacy today and articulate the effects of social media on students’ information-seeking behaviors and processes and complete the goals articulated in part one of this study (Witek and Grettano, 2012). Design/methodology/approach – The study was conducted in conjunction with the course rhetoric and social media, co-designed and co-taught by the authors. Data sources consisted of student work and methodologies including textual and rhetorical analysis and observation. Findings are analyzed and presented through the lens of the Association of College and Research Libraries Standards (2000) and Mackey and Jacobson’s (2011) metaliteracy framework. Findings – The study identified four effects of social media use on students’ information literacy practices and behaviors: information now comes to users; information recall and attribution are now social; evaluation is now social; and information is now open. Data illustrate metaliteracy in practice and tie examples of this to the authors’ pedagogical decisions. Research limitations/implications – Article offers a model for teaching information literacy in the context of participatory information environments which can be adapted by other practitioners. Authors concede that the small sample size, limited by course enrollment, limits the generalizability of the study findings to student populations as a whole. Originality/value – Valuable to information literacy instructors and researchers because it offers the first formal application of concepts theorized in Mackey and Jacobson’s (2011) metaliteracy framework to information literacy instruction.

Posting photos of luxury cuisine online: an exploratory study

2019 ◽  
Vol 121 (2) ◽  
pp. 454-465 ◽  
Author(s):  
Glyn Atwal ◽  
Douglas Bryson ◽  
Valériane Tavilla
Keyword(s):  
Social Media ◽  
Cultural Context ◽  
Small Sample Size ◽  
Demographic Variables ◽  
Small Sample ◽  
Group Discussions ◽  
Comprehensive Overview ◽  
Self Presentation ◽  
Content Type ◽  
Diary Research

Purpose The purpose of this paper is to identify the motives for posting or sharing food photos using social media, focussed within the context of fine dining (FD) restaurants. Design/methodology/approach Ethnographic fieldwork was conducted in France by combining analysis of qualitative diary research and transcripts of focus group discussions. Findings The motivation to take food images can be broadly categorised according to experiential (hedonism, altruism and passion collecting) and symbolic (social status, uniqueness, self-esteem and self-presentation) benefits. Research limitations/implications This research is limited by its relatively small sample size and the inability to consider the direct influences of demographic variables and attitudes to FD and social media. Moreover, the cultural context of the study needs to be considered as the study took place in France. Practical implications User-generated images are increasingly an integral aspect of the holistic dining experience. Luxury restaurants need to leverage the opportunities of user-generated content. The FD experience needs to be visually captured and expressed. This can include both tangible and intangible attributes. Originality/value Although the literature has provided a comprehensive overview of social media behaviour, the efficacy of a gastronomic perspective is limited. To the authors’ knowledge, this is the first study to investigate consumer-generated postings of images of food within the luxury restaurant classification.

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