Adult daughters providing post-stroke care to a parent: a qualitative study of the impact that role overload has on lifestyle, participation and family relationships

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

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The impact of funding deadlines on personal workloads, stress and family relationships: a qualitative study of Australian researchers

BMJ Open ◽

10.1136/bmjopen-2013-004462 ◽

2014 ◽

Vol 4 (3) ◽

pp. e004462 ◽

Cited By ~ 22

Author(s):

Danielle L Herbert ◽

John Coveney ◽

Philip Clarke ◽

Nicholas Graves ◽

Adrian G Barnett

Keyword(s):

Qualitative Study ◽

Family Relationships ◽

The Impact

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Caring through a screen: caring for kin under lockdown

Families Relationships and Societies ◽

10.1332/204674321x16293510454010 ◽

2021 ◽

Author(s):

Rachel Benchekroun

Keyword(s):

Qualitative Study ◽

Empirical Evidence ◽

Family Relationships ◽

Small Scale ◽

Everyday Practices ◽

The Impact ◽

Unique Context ◽

Family Caring

COVID-19 and UK-wide lockdown measures in spring 2020 confined people to their homes, with implications for exchanging care. In a small-scale qualitative study, I examined the impact on individuals’ everyday caring practices with adult kin beyond the home. In this article, drawing on empirical evidence from my study, I argue that lockdown restrictions on in-person interactions and the increased reliance on ICTs shaped interactions and how relationships were experienced. The shift in practices highlighted the significance of the physicality and embodiment of everyday practices of care and perceptions of relationships. I argue that ‘caring through a screen’ under lockdown had impacts on subjective and relational wellbeing. I use the concept of developing co-presence across distance through ICTs to analyse shifts in family caring practices in the unique context of a national lockdown. I show how experiences of the disruption of the physicality of everyday micro-acts of care have shaped perceptions of family relationships.

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Radiomics Derived Brain Age Predicts Functional Outcome After Acute Ischemic Stroke

10.21203/rs.3.rs-923769/v1 ◽

2021 ◽

Author(s):

Martin Bretzner ◽

Anna Bonkhoff ◽

Markus Schirmer ◽

Sungmin Hong ◽

Adrian Dalca ◽

...

Keyword(s):

Ischemic Stroke ◽

Brain Aging ◽

Stroke Care ◽

Smoking History ◽

Stroke Patients ◽

Prognostic Information ◽

Stroke Outcomes ◽

Post Stroke ◽

The Impact ◽

Brain Age

Abstract While chronological age is one of the most influential determinants of post-stroke outcomes, little is known of the impact of neuroimaging-derived biological brain age. We here first examine whether radiomics analysis of the texture of brain T2-FLAIR MRI images can be used to predict brain age in stroke patients. We then assess the clinical determinants of accelerated brain aging and, finally, its impact on post-stroke functional outcomes. Leveraging a multisite cohort of 4,163 ischemic stroke patients, we show that older-appearing patients have more hypertension, diabetes mellitus, prior strokes, and smoking history and are more likely to develop worse post-stroke outcomes than their younger-appearing counterparts. Our results strengthen the importance of preventive medicine for maintaining brain health in stroke patients as they age and suggest a novel methodology to capture previously undescribed prognostic information available on commonly acquired MRI sequences during routine stroke care.

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Band-Aids and Kisses Can’t Fix It: Mothers’ and Daughters’ Perceptions of Non-Death Loss and Boundary Ambiguity

Illness Crisis & Loss ◽

10.1177/1054137320968484 ◽

2020 ◽

pp. 105413732096848

Author(s):

Kathryn E. Bojczyk ◽

Heather R. Haverback

Keyword(s):

Young Adult ◽

Qualitative Study ◽

Adult Daughters ◽

Mothers And Daughters ◽

Individual Interviews ◽

Boundary Ambiguity ◽

Mother Daughter Relationship ◽

Convergence And Divergence ◽

The Individual ◽

The Impact

The goal of this study was to explore middle aged mothers’ and young adult daughters’ perceptions of the impact of non-death loss. This qualitative study explored perceptions of loss and boundary ambiguity of 24 mother-daughter dyads through individual interviews. All mothers and daughters described losses such as illness, the daughters’ launching, and dissolution of relationships that impacted the mother-daughter relationship. Comparison of mothers’ and daughters’ descriptions of the impacts of loss revealed convergence and divergence in their descriptions of associated levels of boundary ambiguity. Although experiences of loss do seem to be a universal human experience, perceptions regarding the impact of loss on both the individual and the mother-daughter dyad vary greatly.

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The Best Time to Start Stroke Rehabilitation: A Review of the Evidence in ResourceAdequate and Resource Constrained Settings

Journal of Preventive and Rehabilitative Medicine ◽

10.21617/jprmv1i1.55 ◽

2018 ◽

Vol 1 (1) ◽

pp. 7-12

Author(s):

Margaret M. Mweshi ◽

◽

Hastings K. Shula ◽

Loveness A. Nkhata ◽

Brian Chiluba ◽

...

Keyword(s):

Stroke Rehabilitation ◽

Statistical Power ◽

Negative Impact ◽

Early Mobilization ◽

Stroke Care ◽

Early Rehabilitation ◽

Post Stroke ◽

The Impact ◽

The Brain

Background: Stroke is a global health problem and one of the major causes of death, disability and impairment among adults worldwide. Post-stroke outcomes vary widely, between and within world regions depending on a range of factors including demographic profile, stroke type, severity and immediate and long-term post stroke care. It has been reported that early initiation of rehabilitation following stroke promotes better long-term outcomes than delayed rehabilitation, although this has been disputed by some researchers in the AVERT (A very early rehabilitation trial) study. Purpose of Review: To evaluate the best time to start stroke rehabilitation with good outcomes Results of the Review: There is limited evidence to show that later rehabilitation is better than early rehabilitation. It also remains unclear whether early mobilization is more effective than mobilization at a later stage, due to insufficient statistical power of the studies that have examined this practice because clinicians around the world are practicing this model to this day. Furthermore, some trial limitations of the AVERT study in line with the uncertainty of the external validity of the results, make generalizability something to be concerned about. Conclusion: The best time to start stroke rehabilitation is as soon as the patient is clinically stable i.e; as early as possible. The results of the poor outcomes of the AVERT study in providing evidence of the impact of early stroke rehabilitation, should not be interpreted as proof of the ineffectiveness of early physical rehabilitation. Every stroke is different from one person to another because the impact of the damage to the brain is associated with the different functions of several parts of the brain making generalizability quite difficult. Therefore, in the absence of provision of high quality evidence, clinicians like physiotherapists should base their decisions on clinical experience, individual circumstances and patient preferences as appropriate. It is extremely important to develop evidence-based practice protocols that can guide clinical practice on the best time to start stroke rehabilitation and also enhancing plasticity and reducing the negative impact of stroke through pharmacotherapy, especially for

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59. General medicine residents' perception of the mini-CEXs

Clinical & Investigative Medicine ◽

10.25011/cim.v30i4.2820 ◽

2007 ◽

Vol 30 (4) ◽

pp. 61

Author(s):

S. Malhotra ◽

R. Hatala ◽

C.-A. Courneya

Keyword(s):

Internal Medicine ◽

Medical Education ◽

Focus Group ◽

Qualitative Study ◽

Focus Groups ◽

General Medicine ◽

Clinical History ◽

Phenomenological Approach ◽

Medical Teacher ◽

The Impact

The mini-CEX is a 30 minute observed clinical encounter. It can be done in the outpatient, inpatient or emergency room setting. It strives to look at several parameters including a clinical history, physical, professionalism and overall clinical competence. Trainees are rated using a 9-point scoring system: 1-3 unsatisfactory, 4-6 satisfactory and 7-9 superior. Eight months after the introduction of the mini-CEX to the core University of British Columbia Internal Medicine Residents, a one hour semi-structured focus group for residents in each of the three years took place. The focus groups were conducted by an independent moderator, audio-recorded and transcribed. Using a phenomenological approach the comments made by the focus groups participants were read independently by three authors, organized into major themes. In doing so, several intriguing common patterns were revealed on how General Medicine Residents perceive their experience in completing a mini-CEX. The themes include Education, Assessment and Preparation for the Royal College of Physicians and Surgeons Internal Medicine exam. Resident learners perceived that the mini-CEX process provided insight into their clinical strengths and weaknesses. Focus group participants favored that the mini-CEX experience will benefit them in preparation, and successful completion of their licensing exam. Daelmans HE, Overmeer RM, van der Hem-Stockroos HH, Scherpbier AJ, Stehouwer CD, van der Vleuten CP. In-training assessment: qualitative study of effects on supervision and feedback in an undergraduate clinical rotation. Medical Education 2006; 40(1):51-8. De Lima AA, Henquin R, Thierer J, Paulin J, Lamari S, Belcastro F, Van der Vleuten CPM. A qualitative study of the impact on learning of the mini clinical evaluation exercise in postgraduate training. Medical Teacher January 2005; 27(1):46-52. DiCicco-Bloom B, Crabtree BF. The Qualitative Research Interview. Medical Education 2006; 40:314-32.

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ADOLESCENTS' PERCEPTIONS OF STRESSORS CONTRIBUTING TO SUICIDAL BEHAVIOUR

SOUTHERN AFRICAN JOURNAL OF SOCIAL WORK AND SOCIAL DEVELOPMENT ◽

10.25159/2415-5829/2243 ◽

2017 ◽

Vol 26 (2) ◽

pp. 192-213

Author(s):

Henriëtte Van den Berg ◽

Hester Tancred ◽

Dap Louw

Keyword(s):

South African ◽

Family Environment ◽

Family Relationships ◽

Suicidal Behaviour ◽

Stressful Life Events ◽

Qualitative Content Analysis ◽

Peer Group ◽

Conservation Of Resources ◽

Western Cape ◽

The Impact

South African adolescents show increased levels of suicidal behaviour. This article explores the perceptions of adolescents at risk of suicide regarding the psychosocial stressors they believe contribute to suicidal behaviour among South African adolescents. This study was conducted on 214 adolescents from the Western Cape Province with a high suicide risk. The group was selected on the basis of their high scores on the Suicidal Ideation Questionnaire. A qualitative content analysis was performed with their responses on a question about the reasons for adolescent suicide. The analysis highlighted risk factors relating to substance abuse, negative emotional experiences, lack of self-esteem, problem-solving ability and hope for the future; negative family environment and conflict in family relationships; peer group and romantic relationships; stressful life events; and socioeconomic factors. Guided by the Conservation of Resources (COR) theory suggestions were made for adolescent resource development to counter-act the impact of the various stressors they experience.

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The Strategies and Response of Internalizing Islamic values in English Learning

Prosiding Seminar Nasional Pendidikan KALUNI ◽

10.30998/prokaluni.v2i0.161 ◽

2019 ◽

Vol 2 ◽

Author(s):

Aswir Aswir ◽

Hasanul Misbah

Keyword(s):

Qualitative Study ◽

Education Program ◽

Role Model ◽

English Education ◽

Moral Values ◽

English Learning ◽

Preparation Process ◽

The Impact ◽

Islamic Values ◽

Descriptive Qualitative

This study is aimed at describing lecturers’ strategies to internalize Islamic values and students’ response toward the strategies. This a descriptive-qualitative study. The participants were 40 students of English education program and 3 English lecturers. All participants were given questionnaire and 3 students and 3 lecturers were interviewed. The data showed that all lecturers did internalize the Islamic values such as aqidah, worship, and moral values in the English learning preparation, process, and evaluation. However, students requested that the lecturers should consistently became the role model, performed positive habit, and gave best learning service so that the impact of internalizing Islamic values would be significantly and positively received.

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A Qualitative Assessment of "The Men's Program:" The Impact of a Rape Prevention Program on Fraternity Men

NASPA Journal ◽

10.2202/0027-6014.1120 ◽

2000 ◽

Vol 38 (1) ◽

pp. 1-13 ◽

Cited By ~ 8

Author(s):

John D. Foubert ◽

Sharon A. La Voy

Keyword(s):

Qualitative Study ◽

Prevention Program ◽

Qualitative Assessment ◽

Rape Prevention ◽

Male Rape ◽

Rape Survivors ◽

The Impact ◽

Fraternity Men

This qualitative study examined the impact of an all-male rape prevention program on fraternity men. Seven months after participating in The Mens Program, fraternity men were asked whether during the previous year the program impacted their attitude or behavior and if so what about the program led to that change. Results point to the importance of establishing empathy with rape survivors to increase mens awareness and sensitivity to rape.

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