scholarly journals ‘Somebody stuck me in a bag of sand’: Lived experiences of the altered and uncomfortable body after stroke

2021 ◽  
pp. 026921552110007
Author(s):  
Hannah Stott ◽  
Mary Cramp ◽  
Stuart McClean ◽  
Ailie Turton

Objective: This study explored stroke survivors’ experiences of altered body perception, whether these perceptions cause discomfort, and the need for clinical interventions to improve comfort. Design: A qualitative phenomenological study. Setting: Participants’ homes. Participants: A purposive sample of 16 stroke survivors were recruited from community support groups. Participants (median: age 59; time post stroke >2 years), were at least six-months post-stroke, experiencing motor or sensory impairments and able to communicate verbally. Interventions: Semi-structured, face-to-face interviews were analysed using an interpretive phenomenological approach and presented thematically. Results: Four themes or experiences were identified: Participants described (1) a body that did not exist; (2) a body hindered by strange sensations and distorted perceptions; (3) an uncontrollable body; and (4) a body isolated from social and clinical support. Discomfort was apparent in a physical and psychological sense and body experiences were difficult to comprehend and communicate to healthcare staff. Participants wished for interventions to improve their comfort but were doubtful that such treatments existed. Conclusion: Indications are that altered body perceptions cause multifaceted physical and psychosocial discomfort for stroke survivors. Discussions with patients about their personal perceptions and experiences of the body may facilitate better understanding and management to improve comfort after stroke.

Author(s):  
Jose Miguel Cachón-Pérez ◽  
Purificación Gonzalez-Villanueva ◽  
Marta Rodriguez-Garcia ◽  
Oscar Oliva-Fernandez ◽  
Esther Garcia-Garcia ◽  
...  

Background: Professional nursing organizations recommend the use of nursing diagnosis to enhance and facilitate the standardization of care and the development of a common language used by nursing practitioners. In the clinical reality of hospital emergency departments, however, its use is controversial. The objectives of the research are (a) to explore the use of nursing diagnosis in hospital emergency departments, and (b) to describe the meaning of nursing diagnosis for hospital emergency nurses. Methods: A qualitative phenomenological study was conducted. A purposeful sampling and snowball technique were used. Data were collected using in-depth interviews, researchers’ field notes, and documental analysis. An inductive analysis based on Giorgi´s proposal was used to identify significant emerging themes from interviews and field notes. Seventeen participants with a mean age of 40 were recruited. Results: Three themes were identified. The results showed how the use of nursing diagnosis in hospital emergency departments depends on nurses to apply a working methodology in their practice, along with other dimensions such as the characteristics of emergency care, the type of health problems, and the complexity of care. Conclusions: The use of standardized language in emergency departments is complex due to the overcrowded nature of care in these settings.


2017 ◽  
Vol 7 (2) ◽  
Author(s):  
Patrick Khor

This qualitative phenomenological approach examined the Generation X and Y cohorts in terms of their lived experience towards the  entrepreneurial journey in Singapore, which can consequently fill empirical gap on entrepreneurship among generational cohorts of Asian entrepreneurs.  The study sample comprised  15 generation X and 15 Y Singaporean entrepreneurs from 30 companies who identified their involvement in starting a business venture and in the day-to-day running of the business. Using NVIVO to cull down key components and ideas from the data, the study revealed that Generation X and Generation Y to have similar work attitudes, values and behaviours. The differences between the generations include differences in age, experience as well as obligations in life such as to one’s family. Further studies are needed to examine the differences of these cohorts in terms demographic, psychological and social variables to provide additional insights and identify contributing factors to successful entrepreneurial venture.


2020 ◽  
Vol 34 (2) ◽  
pp. 129-143
Author(s):  
Esma D. Paljevic

Background and PurposeThis qualitative phenomenological study explored the lived experiences of family members who have been referred to a cardiogenetics clinic following the loss of a family member to sudden cardiac death (SCD). These family members were evaluated in a Cardiogenetics Clinic in a Children's Hospital in the New York region, which utilizes an interprofessional approach to care.MethodsA qualitative phenomenological approach was used to explore the lived experience of family members that were referred following the SCD of a family member. The researcher used hermeneutic dialectics and interviewed family members that attended the Cardiogenetics Clinic.ResultsInsights gained through discussion were discussed in the following themes: stories of feelings being heard, stories of meaningfulness, and stories of mutual process. This led to the transformation of the typical linear clinic process to a transformative and dynamic model for integrated delivery of care.Implications for PracticeThis interprofessional model of care offers information regarding SCD, a genetic profile to determine risk for SCD, an integrative collaborative approach to care as well as nursing, medical interventions, psychological support, and counseling for families.


2017 ◽  
Vol 28 (4) ◽  
pp. 561-571 ◽  
Author(s):  
Stephanie Bogue Kerr ◽  
Marguerite Soulière ◽  
Lorraine Bell

For people with kidney disease, transplantation is considered a better treatment option than dialysis. A kidney transplant does not, however, ensure an illness-free existence. Compared with the wealth of literature produced from a biomedical perspective, there is little qualitative research focused on the young adult transplant experience. This article presents the findings of a phenomenological study exploring young adults’ kidney transplant experiences. Using a qualitative phenomenological approach, semidirected interviews were conducted with five people. Analysis of the transcribed interviews revealed that these individuals’ kidney transplant experiences were paradoxical in nature: Participants described an existence between sickness and health, self and other, life and death. Consequently, liminality was identified as one of the experience’s key elements and used together with the concept of rites of passage in its analysis. To incorporate these experiences, the term transliminal self is proposed.


2018 ◽  
Vol 68 (suppl 1) ◽  
pp. bjgp18X696797
Author(s):  
Martina Kelly ◽  
Lisa Freeman

BackgroundOnce the cornerstone of clinical family practice, the role of physical examination is changing. Patients and physicians alike express concern that emphasis on evidence-based medicine and increasing reliance of technology has relegated the role of physical examination in clinical practice.AimTo understand the role of physical examination in contemporary family practice.MethodQualitative phenomenological study, interpreted through the writings of Merleau-Ponty. Semi-structured interviews were conducted with a purposive sample of sixteen family physicians; men, women, recent graduates and experienced physician working in urban, rural and academic practices. Interviews were recorded, transcribed and examined using template analysis, complimented with researcher reflexivity.ResultsStudy participants described physical examination as core to practice, to diagnose, to communicate, and to validate patient and practitioner concerns. Performance of physical examination became routine over time but a disruption to the expected caused physicians to pause. Participants described this as a slowing of time where they became conscious of the body of the patient and their own body, intertwined in a moment. Physicians experienced affective, intellectual, and physical phenomena, which integrated to guide their behaviour, diagnosis, and management of the patient. The role of physical examination was to not only diagnosis as an evidence-based medical expert, but was experienced as a form of embodied, nonverbal communication, which expressed care.ConclusionPhysical examination plays an important role to reassure and communicate trust in the doctor–patient relationship, enacted through the body of the physician. Complimenting diagnosis, the laying on of hands remains an essential element of patient care.


2018 ◽  
Vol 2018 ◽  
pp. 1-8 ◽  
Author(s):  
Theresa M. Smith ◽  
Monique R. Pappadis ◽  
Shilpa Krishnan ◽  
Timothy A. Reistetter

Approximately 800,000 people in the United States have a stroke annually. Up to two thirds of stroke survivors have some visual problems, which result in disability and can affect survivors’ overall rehabilitation outcomes. Although some post-stroke visual impairments can be corrected and respond well to intervention, ocular signs can be subtle and may not be recognized or reported by the stroke survivor but rather by a vigilant caregiver. The purpose of this study was to explore the post-stroke visual concerns and consequences expressed by stroke survivors and caregivers. This study employed a qualitative design using semistructured interviews conducted with a convenience sample of stroke survivors and caregivers recruited from either a community support group or skilled nursing and long-term care facilities. Interviews were recorded and transcribed verbatim. Comparative content analysis was used to identify vision-related themes by two independent coders. All research team members completed quality checking of coding. Twenty participants (11 stroke survivors and 9 caregivers) expressed visual concerns or consequences following stroke: (1) eye movement problems, (2) perceptual issues, and (3) consequences of vision problems or issues, which affected their daily life/quality of life. Stroke survivors and caregivers reported receiving vision care from (1) eye doctors, (2) occupational therapists, and (3) other healthcare professionals. All vision care providers need to be observant of potential post-stroke visual concerns. Stroke survivors should have a thorough vision evaluation to optimize their independence in everyday activities and quality of life.


2014 ◽  
Vol 19 (1) ◽  
pp. 67-77 ◽  
Author(s):  
Julia Bennett

How can the intangible aspects of everyday life be uncovered? A phenomenological approach has its origins in the everyday but also allows everything to be questioned. In studying belonging a phenomenological approach supported by a variety of qualitative methods produced a wealth of ‘insider’ information that could have been missed using more traditional methods. The research was based around multi-generational family groups as a family narrative focuses on relations between different family members over the generations rather than on an individual biography. Biographical interviews in family groups allowed families to talk about their lives together. Diaries put the direction of the research in the hands of the participants thus reversing, to some extent, the traditional power relations between researcher and researched. Through written and photo diaries participants shared details of their daily lives which might have been more difficult to elicit in a formal interview situation. The photos allowed the researcher to ‘visit’ places which are a part of the daily life of participants in a subtle and non-intrusive manner. These research approaches privilege the voices of the participants in research into their lives. Through demonstrating the richness of the data collected this article argues that such approaches could be used more widely.


2019 ◽  
Vol 36 (9) ◽  
pp. 535-540 ◽  
Author(s):  
Karl Charlton ◽  
John Franklin ◽  
Rebekah McNaughton

ObjectivesWe set out to investigate paramedics’ views of ethics and research, drawing on experiences from Paramedic-2, a randomised controlled trial comparing epinephrine and placebo in out-of-hospital cardiac arrest (OHCA).MethodsAn interpretative phenomenological approach was adopted. A purposive sample of paramedics (n=6) from North East Ambulance Service NHS Foundation Trust were invited to a semi-structured, in-depth interview.ResultsThree superordinate themes emerged: (1) morality, (2) emotion and (3) equipoise. Some viewed Paramedic-2 as an opportunity to improve OHCA outcomes for the many, viewing participation as a moral obligation; others viewed the study as unethical, equating participation with immoral behaviour. Morality was a motivator to drive individual action. Positive and negative emotions were exhibited by the paramedics involved reflecting the wider view each paramedic held about trial participation. Those morally driven to participate in Paramedic-2 discussed their pride in being associated with the trial, while those who found participation unethical, discussed feelings of guilt and regret. Individual experience and perceptions of epinephrine guided each paramedic’s willingness to accept or reject equipoise. Some questioned the role of epinephrine in OHCA; others believed withholding epinephrine was synonymous to denying patient care.ConclusionA paucity of evidence exists to support any beneficial role of epinephrine in OHCA. Despite this, some paramedics were reluctant to participate in Paramedic-2 and relied on their personal perceptions and experiences of epinephrine to guide their decision regarding participation. Failure to acknowledge the importance of individual perspectives may jeopardise the success of future out-of-hospital trials.


2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Ravida Chauria Shavir

Rapid changes in both rural and urban societies require da’wa to be delivered more creatively. This paper aims at investigating the development of cultural da’wa by analyzing the dynamics of socio-cultural life in an Islamic da’wa institution named Yayasan Pendidikan Islam Kyai Thelingsing (YPIKT). This paper applies a qualitative phenomenological approach. Finding reveals that the cultural da’wa approach to the urban community was manifested in three ways: education, cultural heritage (grave pilgrimage), and recitation. On the education aspect, the YPIKT has four levels. The cultural heritage is shown by Haul Mbah Kyai Thelingsing activity, which attended whether Muslim and non-muslim (Chinese descendent) every Muharram. The recitation aspect has an ultimate goal this activity is happened every day after Maghrib or every Thursday night by the name of tahlilan.Keywords: Da’wa, Cultural, Community, Modern, Education


Author(s):  
Zhiwei Wang ◽  
Zhenbiao He ◽  
Zhengke Fu

The number of Chinese postgraduates in JMC has steadily increased with the growing number of JCC master’s programs in in China. Little is known about key factors that influence Chinese students’ decisions in choosing which program attend. In order to fill a gap in the academic field, a qualitative phenomenological approach was applied to examine the experiences of seven Chinese master’s students in JMC from three different universities in Zhejiang province, China. Three important themes have been created including (1) geographical advantages; (2) recommendation of peers and professors; and (3) course design and curriculum. These findings have important implications for school officials and decision makers, with respect to allocating their resources wiser to make masters programs in JMC more attractive. In addition, this research study is the first analysis of its kind to apply a phenomenological approach to study experiences of Chinese students in making decisions of choosing a master’s program. This study lays a valuable foundation for similar topics through a qualitative research method.


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