scholarly journals Ethical issues related to eHealth: An integrative review

2020 ◽  
pp. 096973302094576
Author(s):  
Anu Jokinen ◽  
Minna Stolt ◽  
Riitta Suhonen

Background: Identifying and safeguarding ethics in eHealth services from the service users’ perspective in social care and healthcare is important. The use of eHealth services should not prejudice the quality of services or the social interaction required in care. There is a lack of studies about the ethics of eHealth services from the service users’ perspective. Aim: The aim of this study is to identify and analyse ethical issues related to eHealth in social care and healthcare from the service users’ perspective. Research design: An integrative literature review. Ethical considerations: The review followed good scientific conduct. Research context and data sources: A systematic literature search was performed using CINAHL, Scopus, PubMed/MEDLINE, Web of Science, Cochrane Library and Academic Search Premier to find relevant empirical studies published in English from their earliest up to 30 November 2018. In addition, reference lists from the identified research papers were searched. A quality appraisal of each paper included in the review was conducted before thematic analysis. Results: In total, 26 studies were included in the review, and from these four ethical themes were identified: (1) privacy in eHealth, (2) beneficence and nonmaleficence in eHealth, (3) justice in eHealth and (4) trust in eHealth. The ethical issues within these themes were related to information sharing; ownership; access to information and data protection; informed consent; defence of rights; and equity, equality and proportionality of response. Conclusion: eHealth inequality occurs in social care and healthcare. eHealth service designers and social care and healthcare professionals need to act to maintain and improve user access and data accuracy and provide different levels of security in eHealth services, relative to the information stored. There is a need for further research about ethical issues of eHealth from the user’s perspective, including the customer-oriented availability and usability of eHealth services which avoid discrimination.

2021 ◽  
Author(s):  
Egor Bunov

The monograph contains a theoretical analysis of the social effectiveness of the internal affairs bodies as the degree of satisfaction of the population with the quality of law enforcement activities to protect their interests, rights and freedoms. The results of a multidimensional analysis of empirical studies of the influence of macro - and microsocial factors on the effectiveness of interaction between the population and law enforcement agencies are presented. The article substantiates the criteria for social assessment of the activities of the internal affairs bodies, the use of which allows for practical adjustment of the forms and methods of the management system. For a wide range of readers interested in the practice of applying legal measures of law enforcement.


Author(s):  
Sarah Cullum ◽  
Tesema Taye

The cornerstone of dementia care is social care, and much of this is delivered by the families and carers of people with dementia. The management of dementia should therefore focus on supporting and developing the care provided by family members and carers in the community, because their education and enablement will help to optimize the quality of life for all people living with dementia. This chapter concentrates on the assessment and management of people with dementia in the early and later stages of the disorder. At both stages we consider engagement, autonomy, respect, protection, and ethical issues, as well as describing the clinical and psychosocial aspects of treatment. The emphasis is on the broader principles of management, which apply to people with dementia of any aetiology, their families, carers, and communities, and take into account the different settings in which they may present.


2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Johann Frick ◽  
Daniel Schindel ◽  
Pimrapat Gebert ◽  
Ulrike Grittner ◽  
Liane Schenk

Abstract Background Cancer patients experience psychological and social distress due to their medical treatment and social issues. However, continuous and specialized social support is still lacking. In Germany, a group of company health insurance funds has developed an approach to support cancer patients with monthly structured interviews conducted by specially trained Social Care Nurses. The nurses will identify patient needs in order to provide help with medical, personal, and social matters. One aim of the scientific evaluation is to analyze the effect of the consultations on various patient-reported outcomes, especially quality of life. The evaluation concept will be described in this study protocol. Methods/design The evaluation is a non-randomized, controlled, multi-center intervention study with a mixed-method design. It consists of three research modules which include primary data from questionnaires, and claims data from the health insurance funds. In Module 1, cancer patients will be recruited to form an intervention group (OSCAR, n = 150) and a control group (n = 200) in four study centers for a period of 1 year. One baseline and three follow-up questionnaires will be conducted to survey the patient-reported outcomes. Relevant secondary outcomes are health literacy, participation, and physician-patient communication. In Module 2, claims data will be used to analyze cost effects and thereby assess effectivity and hospitalization. Module 3 will involve a qualitative analysis of project diaries kept by the Social Care Nurses. The diaries will record the nurses’ practical experiences and the benefits of deploying OSCAR across the German healthcare system. Discussion OSCAR is an innovative way of providing cancer patients with continuous support to improve their quality of life. The evaluation concept aims to assess the effects of the monthly consultations by the Social Care Nurses on the patients, and will use a mixed-method design. The results are important for assessing the transferability of OSCAR to the healthcare system as a whole. Trial registration German Clinical Trials Register (DRKS-ID: DRKS00013640). Registered 29 December 2017.


2015 ◽  
Vol 129 (3) ◽  
pp. 206-211 ◽  
Author(s):  
G L Garrett ◽  
I Beegun ◽  
A D'souza

AbstractObjective:To present the clinical outcomes obtained by the first facial transplant teams worldwide, reviewing current practice and addressing controversies.Methods:A bibliographic search of Medline and Embase databases was performed, and a comparative analysis of all articles published from 1980 to the present was conducted. Two independent investigators screened the manuscripts in accordance with pre-defined criteria.Results:A total of 12 partial and 5 full facial transplants were recorded in the literature. Procedures included partial and near-total facial myocutaneous flaps, and complex osteomyocutaneous grafts. Fifteen patients had fully vascularised grafts, and two patients died of transplant-related and infectious complications.Conclusion:Facial transplantation can restore quality of life and enable the social re-integration of recipients. Results published by the first facial transplant teams are promising. However, long-term reports of aesthetic and functional outcomes are needed to more precisely define outcomes. In addition, significant technical, medical and ethical issues remain to be solved.


2021 ◽  
Author(s):  
S.E. Gasumova

This article presents the author’s definitions of “digitization of social service provision” and “digitization of social services” concepts and identifies the difference between them. It presents the results of an interview with 18 experts — the heads of institutions and organizations of social service provision implementing the rehabilitation of disabled people in Perm region. The research was conducted in 2019 and sought to identify problems and prospects for the digitization of the social services sphere. Interviewees rated their satisfaction regarding the convenience and time cost of automated systems that are currently being used in their organizations; characterized their needs in introducing various innovative interactive services, mobile applications, and other digital software; and expressed their attitude to various innovations. Social innovations were developed by the researchers and offered to experts by interviewers (for example, services for assessing the quality of work of specialists by service users, quick selection of the right social service, filing a complaint, referring a citizen to another organization, counseling in video mode, electronic appointment service, etc.). The research has shown how innovations can improve the performance of social service providers’ work and the quality of their interactions with citizens, which will ultimately increase the satisfaction of social service users and will positively affect the level of social well-being in society as a whole. A number of problems have been identified that currently impede the development of digitization: they are related to staff resources, the level of computerization, the lack of motivation among managers and personnel of social service organizations to implement innovative IT, and a certain distrust that such technologies can facilitate the activities of the organization and increase its effectiveness. Keywords: digitization, social service provision, social services, social institutions, social work


Author(s):  
Hamid Reza Dehghan ◽  
Saeed Eslami ◽  
Mahdieh Namayandeh ◽  
Arezo Dehghani ◽  
Saeed Hajian Dashtaki ◽  
...  

Introduction: The implementation of information technology is an important factor in improving the quality of patient care. Since a hospital is an organization that needs effective management of information, the implementation of information technology is necessary for improving the ef ciency of the services, quality of care, and reducing the costs. Ethical evaluation of hospital information systems is one of the existing gaps in evaluating this technology. Many evaluations have been carried out for information that is more technical and not concerned with ethical issues. Therefore, this study aims to compile a checklist for the evaluation of ethical dimensions of this technology using a systematic review. Methods: We searched international medical databases, such as the U.K. Centre for Reviews and Dissemination, MEDLINE/PubMed, and Cochrane Library; Iranian databases Irandoc, Iranmedex, Medlib, SID, and grayscale websites SInGLE, and Ideas.recp. After selecting the studies based on inclusion and exclusion criteria, two experts in the eld of information technology and ethical evaluation extract ethical issues from the full text of the articles. Results and Dissemination: The results of the study will be published in a peer-reviewed journal and presented at relevant conferences, which can be used by policy makers and healthcare decision-makers.


2019 ◽  
Vol 1 (1) ◽  
pp. 15
Author(s):  
Mahmudah Hasanah ◽  
Mutiani Mutiani

Wajib belajar (Wajar) 12 tahun merupakan hak bagi seluruh rakyat Indonesia. Pelaksanaan Wajar 12 tahun  diharapkan mampu mendorong peningkatan mutu lulusan dan mutu pendidikan di Indonesia. Artikel ini bertujuan untuk mendeskripsikan pemahaman wajar 12 tahun melalui pendampingan yang dilakukan di Sekolah Bawang Banjarmasin. Pemilihan lokasi didasari oleh peserta didik di Sekolah Bawang didominasi oleh anak gelandangan, kuli angkut, maupun remaja putus sekolah. Pelaksanaan pendampingan dilakukan setiap hari sabtu pada 21 April dan 12 Mei 2018. Penyampaian materi digunakan metode ceramah bervariasi serta mengedepankan prinsip pendekatan saintifik dalam kurikulum 2013. Hasil pengabdian dipaparkan, yakni; 1) peserta didik yang mengenyam pendidikan di Sekolah Bawang Banjarmasin didominasi oleh masyarakat yang kurang mampu bekerja di Pasar Lima sebagai juru parkir, kuli angkut, buruh kupas bawang, 2) Sekolah Bawang Banjarmasin banyak memiliki buku yang tidak up to date sehingga tidak menarik perhatian peserta didik, dan 3) lingkungan di Sekolah Bawang Banjarmasin sangat kumuh. Hal ini dikarenakan lokasi berdekatan dengan pasar. Pengabdian masyarakat memberikan motivasi bagi peserta didik yang belajar di Sekolah Bawang karena mereka diberikan pengalaman belajar dengan metode yang beragam. Pengabdian masyarakat sebagai langkah konkret bentuk kepedulian sosial dari lembaga Program Studi Pendidikan IPS FKIP ULM.The 12-year compulsory education is a right for all Indonesian people. Implementation of the 12-year Fair is expected to be able to encourage improvement in the quality of graduates and the quality of education in Indonesia. This article aims to describe a reasonable understanding of 12 years through mentoring conducted at the Sekolah Bawang, Banjarmasin. The location selection is based on students in Sekolah Bawang which are dominated by homeless children, porters, and teenagers who drop out of school. The assistance is carried out every Saturday on April 21 and May 12, 2018. The submission of material used varied lecture methods and emphasizes the principles of the scientific approach in the 2013 curriculum. Service results are presented, namely; 1) students who study in Sekolah Bawang are dominated by people who are less able to work in Pasar Lima as parking attendants, porters, onion peel workers, 2) Sekolah Bawang have many books that are not up to date so that they do not attract the attention of participants students, and 3) the environment in Sekolah Bawang is very dirty. This is because the location is close to the market. Community service motivates students who study at Sekolah Bawang because they are given learning experiences with a variety of methods. Community service as a concrete step in the form of social care from the Social Studies Department FKIP ULM.


2017 ◽  
Vol 9 (2-3) ◽  
pp. 61
Author(s):  
Erja Ailio ◽  
Niina Häkälä ◽  
Jarmo Kärki

The decision about the relevant information in social care should be made in co-operation with the social care professionals. That is why the data model of Finnish social welfare was evaluated by the social care professionals between 2013 and 2015. The professionals came all over Finland. They evaluated the quality of the client document structures in the data model. They also evaluated the details in every client document structure, for example the necessity, the correct location and the correct data type of each data field. Altogether over 2 000 comments were given. The results in this article are based on the summary table which was made by the consultant. Most of the comments concerned those document structures which were extensive by their content and essential in client work, for example the assessments of service need and the client plans. Based on the feedback several client document structures were removed, the data fields for narrative documentation were increased, the data fields for structured documentation were decreased and several minor changes were made. Collecting and analysing feedback systematically is an efficient way to enhance and to confirm the quality of data structures. Challenging is that the operational environment, the client data system used, and the habit of documentation have a significant impact on professionals’ views about the relevant information and data structures. When collecting feedback, the presentation of the data structures should be as understandable as possible; this could be achieved for example by simulating client data system interfaces. This could have a positive effect on the quality of the feedback. In addition to data structures also the other properties of the information systems should be created in co-operation with the social care professionals.


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