Parents’ Lived Experiences During Their Children’s Radiotherapy

2016 ◽  
Vol 34 (2) ◽  
pp. 140-147 ◽  
Author(s):  
Jenny Gårdling ◽  
Erna Törnqvist ◽  
Marie Edwinson Månsson ◽  
Inger Hallström
Keyword(s):  
Clinical Practice ◽  
Cancer Treatment ◽  
Lived Experiences ◽  
Symptomatic Relief ◽  
Gain Control ◽  
Phenomenological Approach ◽  
Daily Basis ◽  
Children With Cancer ◽  
Hermeneutic Phenomenological ◽  
Need Support

Background: The aim of radiotherapy is to provide a cure and/or symptomatic relief for children with cancer. Treatment is delivered on a daily basis, 5 days per week, over the course of 5 to 35 days. Many parents find that leaving their children alone during treatment and exposing them to radiation is a challenging experience. To gain an understanding of parents’ lived experiences, 10 parents were asked to keep a diary while their children underwent radiotherapy. Methods: A descriptive inductive design with a hermeneutic-phenomenological approach was chosen to analyze the diaries. The parents were asked to write down their lived experiences while their children underwent radiotherapy. Daily notes, both short and long, were desirable. Findings: The parents described radiotherapy as a balancing act involving a constant attempt to maintain a balance between coercing and protecting their children in order to improve their children’s chances of survival. Meanwhile, the parents themselves were struggling with their own despair and feelings of powerlessness. While protecting their children, they experienced a sense of hope and felt that they had gained control. Conclusion: Parents’ daily written reflections are important for clinical practice and provide vital knowledge. Parents need support when focusing on coercing and protecting their children and help with information and routines that enable them gain control.

scholarly journals Lived Experiences of Persons with Chronic Schizophrenia Living in the Community

2019 ◽  
Vol 2 ◽  
pp. 1-12
Author(s):  
Akanksha Rani ◽  
Sphoorthi G. Prabhu ◽  
Thirumoorthy Ammapattian ◽  
Janaki Trichy ◽  
Sojan Antony
Keyword(s):  
Social Life ◽  
Lived Experiences ◽  
Help Seeking ◽  
Economic Status ◽  
Chronic Schizophrenia ◽  
Phenomenological Approach ◽  
Educational Background ◽  
Structural Factors ◽  
Hermeneutic Phenomenological ◽  
Help Seeking Behaviour

Background and Purpose: Schizophrenia is a chronic and severe mental disorder which impacts a person’s ability to successfully function in the community. When it interacts with structural and situational stress like poverty, homelessness and unemployment, it can lead to negative experiences and makes a person vulnerable to abuse or even develop resilience or retaining a meaningful life within the limitation of the disorder. The study aims to understand how individuals diagnosed with schizophrenia define and evaluate their experience of living in the community; personal and environmental strengths, impact of illness on their personal and social life, the challenges and barriers they meet in their day to day life and how they overcome those challenges. Methods: The study focuses on lived experiences and deriving meaning from those experiences from a service user perspective. Therefore, Hermeneutic phenomenological approach will be used. In-depth interviews will be conducted over the course of four months to elicit client’s narratives of their experiences. The interviews are transcribed, read and coded to cluster thematic aspects in each case by using ATLAS.ti.v.7. Data will be collected till saturation point is reached and participants are from various age-group, socio-economic status, ethnicity and educational background, living in the Community. Implication: Participants’ stories would narrate sources of strength, process of normalization, describing instances of discrimination, social and structural factors which they encounter affecting their help-seeking behaviour and how these factors act as facilitator and barriers in their day to day life. Findings would suggest the need for advocacy services which are discussed through recommendations and suggestions.

scholarly journals Lived Experiences of Battered Women in Ozamiz City, Philippines

2018 ◽  
Author(s):  
Cynthia Superable
Keyword(s):  
Domestic Violence ◽  
Physical Abuse ◽  
Battered Women ◽  
Lived Experiences ◽  
Social Stigma ◽  
Hermeneutic Phenomenology ◽  
Phenomenological Approach ◽  
The Philippines ◽  
Hermeneutic Phenomenological ◽  
Van Manen

Domestic violence is prevalent not only in the Philippines but also in other countries. This study explored how battered women viewed their experiences as victims using a hermeneutic phenomenological approach (van Manen, 2016). Using purposive sampling and snowball technique, the study identified six battered women who were interviewed using researcher-made guide questions. The responses generated from the interviews were transcribed and analyzed using Heidegger's hermeneutic phenomenology which aimed to understand the lived experiences of the participants. Four central themes were identified, namely recurrence of physical abuse, endurance to pain, disempowerment of women, and love for family. Battered women prefer to stay home and endure their husbands’ battering to protect children and family from social stigma.

scholarly journals Exploring the contested borderland between data and meaning:

2020 ◽  
Vol 7 (1) ◽  
pp. 21-36
Author(s):  
Ian Coxon
Keyword(s):  
First Principles ◽  
Lived Experiences ◽  
Design Thinking ◽  
Phenomenological Approach ◽  
Research Centre ◽  
New Techniques ◽  
Hermeneutic Phenomenological ◽  
The People ◽  
Real People ◽  
Industry Sectors

At our research centre we have employed a hermeneutic phenomenological approach within a broad spectrum of projects to help us to better understand everyday human experience for the people for whom we wish to design. We have experimented with and explored creative ways to 'enter into' the lives of individuals and groups within diverse industry sectors. Finding new ways to capture lived experiences; understanding hidden 'meaning structures' within them and communicating these insights experientially are the goals driving this work. In this paper we share some examples of how we achieved these goals by infusing design thinking with hermeneutic phenomenology across four stages of our projects - Exploring; Sharing; Understanding and Showing How. These stages are kept rigorous by constantly referring back to philosophical first principles to inspire new techniques and 'ways into' the life-worlds of real people. We hope that designers and engineers will find these examples helpful in their attempts to find new perspectives on old problems and to challenge old perspectives on new problems.

scholarly journals Lived experiences of HIV community workers participating in a community empowerment programme

Curationis ◽  
2014 ◽  
Vol 37 (1) ◽  
Author(s):  
Juliana Horn ◽  
Petra Brysiewicz
Keyword(s):  
Lived Experience ◽  
Lived Experiences ◽  
Phenomenological Approach ◽  
Community Empowerment ◽  
Value Systems ◽  
Health Issues ◽  
Hermeneutic Phenomenological ◽  
Individual Interviews ◽  
Kwazulu Natal

Background: Both non-governmental organisations and governmental organisations are very involved in the development and implementation of community empowerment programmes (CEPs). Because of various health issues within the community, 10 CEPs were launched in Ladysmith with a focus on addressing the particular needs of HIV-affected and -infected members. Of the 10 programmes, however, only four were deemed sustainable after five years.Objectives: The researcher explored the lived experiences of HIV community workers participating in two CEPs in Ladysmith, KwaZulu-Natal in order to develop recommendations for CEPs.Method: Data were explored using a qualitative hermeneutic phenomenological approach. Ten participants who had been involved in HIV CEPs for more than six months were identified and individual interviews were held.Results: Three themes emerged, namely, giving of yourself, maintaining sustainability and assisting the CEPs and community workers. Each of these themes also contained a number of subthemes. Exploring the lived experience of the community workers revealed that there are a number of ways in which to promote the sustainability of CEPs.Conclusion: The community should be involved in all aspects of the CEP and community workers must respect the community and their knowledge, experience and value systems.

scholarly journals Lived Experiences of Critically Ill Patients with Covid-19 After Discharge from Intensive Care Unit: A Phenomenological Study

2021 ◽  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Critically Ill ◽  
Critically Ill Patients ◽  
Lived Experiences ◽  
Phenomenological Study ◽  
Social Stigma ◽  
Phenomenological Approach ◽  
Hermeneutic Phenomenological ◽  
Supportive Role

Objectives: The present study aimed to explore lived experiences of critically ill patients with COVID-19 after discharge from intensive care units of hospitals in Iran. Methods: The present study was qualitative research with a hermeneutic phenomenological approach. Participants were purposefully selected from critically ill patients with COVID-19 who were discharged from the intensive care unit (ICU) and transferred to the general ward. Data were mostly collected through in-depth, semi-structured, face-to-face interviews and, in some cases, telephone calls. Data were analyzed using the method of Dickelman et al. (1985). Guba and Lincoln's (1989) criteria were used to achieve data authenticity. Results: Data were obtained from 16 COVID-19 recovered patients with a history of ICU admission. Twelve participants were female and four were male with a mean age of 35 years. The four main themes were identified along with their subthemes: perception of death before dying (worry, helplessness, and expecting a different death), social stigma (social isolation and stigma), a nurse as a symbol of rebirth (a compassionate and supportive nurse and the supportive role of others), and meaningful life (a change in outlook on life and the manifestation of spirituality). Conclusion: The results of the present study indicated that personal thoughts such as thinking about death and social treatments such as stigma can lead to threatening physical and psychological problems in COVID-19 patients. Nurses and family members can prevent many of these problems by providing holistic care and psychological support. Apart from the challenges posed by the disease, post-recovery changes in patients' attitudes toward life can be considered as a positive point.

Persons who Dependent Upon Technologies for Care: Lived Experience of Being Cared for Following Lower Limb Amputation

2015 ◽  
Vol 19 (4) ◽  
pp. 38-43
Author(s):  
Rebecca S. Koszalinski, ◽  
Rozzano C. Locsin,
Keyword(s):  
Lived Experience ◽  
Lower Limb ◽  
Lived Experiences ◽  
Phenomenological Approach ◽  
Lower Limb Amputation ◽  
Limb Amputation ◽  
Inclusion Criteria ◽  
Hermeneutic Phenomenological ◽  
Human Care ◽  
Human Caring

The purpose of this study was to describe the experience of persons who were being cared for while dependent upon technologies for human care. Eight participants who met the inclusion criteria were interviewed. Following van Manen’s (1990) hermeneutic phenomenological approach, 4 thematic experiential descriptions were revealed. The lived experience of being cared for is an expression of independence in finding meaning and acceptance, while being mindful of recovery with existing technological use of configured space. Understanding the meaning of being cared for with technologies enhances human caring in community living. Engaging in understanding shared lived experiences of persons being cared for with technologies is expected.

scholarly journals Living With Moral Distress: The Perspectives and Experiences of Iranian Nurse Preceptors

2018 ◽  
Vol 32 (4) ◽  
pp. 355-369 ◽  
Author(s):  
Shahla Shahbazi ◽  
Sousan Valizadeh ◽  
Leili Borimnejad ◽  
Azad Rahmani ◽  
Mojtaba Vaismoradi
Keyword(s):  
Lived Experiences ◽  
Moral Distress ◽  
Phenomenological Approach ◽  
Design Strategies ◽  
Structured Interviews ◽  
New Nurses ◽  
Hermeneutic Phenomenological ◽  
Healthcare Settings ◽  
Transition Experience ◽  
Nurse Preceptors

Background and Purpose: Preceptors play a key role in the transition experience of new nurses. Preceptorship is a stressful role and is influenced by contextual factors. There is a lack of sufficient understandings of the perspectives and lived experiences of Iranian nurse preceptors of preceptorship. The aim of this study was to explore the perspective and lived experiences of Iranian nurse preceptors of preceptorship. Methods: A qualitative design using a hermeneutic phenomenological approach was used. Six Iranian nurse preceptors were chosen using a purposeful sampling method from a large paediatric teaching hospital in an urban area of Iran. Data was collected using in-depth semi-structured interviews and was analysed using the Diekelmann et al.’s method of hermeneutic phenomenological analysis. Results: The data analysis resulted in the development of a constitutive pattern of ‘living with moral distress’, which was constituted of two major themes: ‘asking for and being unable’ and ‘the experience of conflict’. Implications for Practice: The findings of this study can improve nurses’ understandings of the preceptor’s role and associated factors influencing the implementation of the preceptorship programme. ‘Moral distress’ caused by the preceptor role can influence nurse preceptors’ mental health and also the patient care outcomes. More studies are required to explore this phenomenon in different contexts and cultures and design strategies for reducing the burden of taking this role on nurse preceptors. Also, policies are needed for developing a formal preceptor support system to help preceptors take this stressful and demanding role in healthcare settings.

scholarly journals Examining lived experiences in a professional development program for online teaching: A hermeneutic phenomenological approach

2019 ◽  
Author(s):  
Brent Philipsen ◽  
Jo Tondeur ◽  
Bram Pynoo ◽  
Silke Vanslambrouck ◽  
Chang Zhu
Keyword(s):  
Professional Development ◽  
Lived Experiences ◽  
Online Teaching ◽  
Development Program ◽  
Phenomenological Approach ◽  
Professional Development Program ◽  
Hermeneutic Phenomenological ◽  
Positive Feelings ◽  
Educational Staff ◽  
Blended Teaching

The increased number of courses taught in an online environment has led to more teachers in need of professional development for online or blended teaching. Although various professional development programs have been scrutinised, only a few studies integrate the feelings of teachers during their professional development process. Teachers’ feelings form an inherent part of their teacher-selves and are reflected in their everyday practice. Therefore, this study uses a hermeneutic phenomenological research method to examine the lived experiences – the feelings – of educational staff within a professional development program that targets online and blended teaching. The results indicate that teachers experience a large range of feelings and that these fluctuate throughout the program. These include positive feelings of connectivity, responsibility, and satisfaction, but also more negative feelings of chaos and frustration. The recognition and understanding of these feelings can illuminate particular aspects of professional development that are experienced more positively or negatively, which can guide further efforts for qualitative improvement.

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