Adaptation and Psychometric Evaluation of the Parenting Concerns Questionnaire—Advanced Disease

Purpose: When patients with advanced cancer have minor children (age < 18), their health-related quality of life is closely linked to their concerns about the impact of progressive illness and death on their children. The Parenting Concerns Questionnaire (PCQ), a validated measure for parents with cancer, does not capture the full range of concerns in advanced cancer. The aim of this was study was to adapt and establish psychometrics for the PCQ for advanced disease (PCQ-AD). Methods: After generating an initial item-bank, we conducted concept elicitation interviews with clinicians (n = 8) and cognitive interviews with patients (n = 23) for face validity. New items addressed concerns about impact of parental death, making every moment count, communication, and financial impact of cancer on children. We administered 21 candidate items to 151 parents with advanced cancer. We conducted confirmatory factor analysis (CFA), calculated internal consistency, and assessed convergent and known-groups validity. Results: We removed 8 redundant items due to residual covariation between items. CFA of the 13-item PCQ-AD demonstrated satisfactory fit (CFI = 0.971, TLI = 0.966, RMSEA = 0.081) and high internal consistency (Cronbach’s alpha = 0.94, composite reliability = 0.95). The PCQ-AD demonstrated convergent validity and known-groups validity; patients with poor functional status reported higher scores than patients with better functional status (Cohen’s d = 0.56, p = 0.002). Conclusion: Adaptation of the PCQ yielded the addition of constructs important in advanced cancer. The PCQ-AD appears to be a reliable and valid measure of parenting concerns in advanced cancer, but future studies are needed to examine measure performance in diverse populations and responsiveness of the PCQ-AD to interventions.

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Development and Evaluation of an Android-based Platform for Early MCI Detection in an Elderly Population

10.1101/2020.03.16.20037028 ◽

2020 ◽

Author(s):

Mahsa Roozrokh Arshadi Montazer ◽

Roohollah Zahediannasb ◽

Roxana Sharifian ◽

Mahshid Tahamtan ◽

Mahdi Nasiri ◽

...

Keyword(s):

Cognitive Assessment ◽

Convergent Validity ◽

Pearson Correlation ◽

Psychometric Evaluation ◽

Intermediate Stage ◽

The Elderly ◽

Assessment Tools ◽

Face Validity ◽

Elderly Subjects ◽

System Usability Scale

AbstractBackgroundMild cognitive impairment (MCI) is an intermediate stage of cognitive decline fitting in-between normal cognition and dementia. With the growing aging population, this study aimed to develop and psychometrically validate an android-based application for early MCI detection in elderly subjects.MethodThis study was conducted in two phases, including 1-Initial design and prototyping of the application named M-Check, 2-psychometric evaluation. After the design and development of the M-Check app, it was evaluated by experts and elderly subjects. Face validity was determined by two checklists provided to the expert panel and the elderly subjects. Convergent validity of the M-Check app was assessed using the Montreal Cognitive Assessment (MoCA) battery through Pearson correlation. Test-retest and internal consistency and reliability were evaluated using Intra-Class Correlation (ICC) and Kuder-Richardson coefficients, respectively. In addition, the usability was assessed by a System Usability Scale (SUS) questionnaire. SPSS 16.0 was employed to analyze the data.ResultThe app’s usability assessment by elderlies and experts scored 77.11 and 82.5, respectively. Also, the correlation showed that the M-Check app was negatively correlated with the MoCA test (r = -0.71, p <0.005), and the ICC was more than 0.7. Moreover, the Richardson’s Coder coefficient was 0.82, corresponding to an acceptable reliability.ConclusionIn this study, we validated the M-Check app for the detection of MCI based on the growing need for cognitive assessment tools that can identify early decline. Such screeners are expected to take much shorter time than typical neuropsychological batteries do. Additional work are yet to be underway to ensure that M-Check is ready to launch and used without the presence of a trained person.

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Opposite-Sex Relationship Questionnaire for Male Adolescents: Development and Psychometric Evaluation

Journal of Relationships Research ◽

10.1017/jrr.2018.1 ◽

2018 ◽

Vol 9 ◽

Author(s):

Nasim Bahrami ◽

Masoumeh Sibmar ◽

AbouAli Vedadhir ◽

Hamid Alavi Majd ◽

Averil Parker

Keyword(s):

Content Validity ◽

Psychometric Evaluation ◽

Peer Pressure ◽

Face Validity ◽

Male Adolescents ◽

Family Attitudes ◽

Opposite Sex ◽

Coefficient Omega ◽

The Impact ◽

Qualitative Phase

We used a mixed-methods, sequential, exploratory design. In the qualitative phase, an in-depth interview approach was used to identify the properties and dimensions to be included in the Opposite-Sex Relationship Questionnaire for Male Adolescents (OSRQMA). In the quantitative phase, the psychometric properties of the OSRQMA were evaluated according to the concepts of face, content, and construct validity. Reliability and stability were assessed with Cronbach's alpha (α) and McDonald's coefficient omega (ω), and with test–retest analysis respectively. A preliminary questionnaire was developed, including 61 items that emerged from the qualitative phase of the study. Based on the impact scores for face validity, and the cutoff points for the content validity ratio (CVR) and content validity index (CVI), the preliminary questionnaire was reduced to 53 items. The Kaiser criteria (eigenvalues >1) and scree plot tests demonstrated that 22 items forming four factors, which were labelled ‘innate predilection’, ‘abstinence’, ‘family attitudes’, and ‘peer pressure’, were optimum, accounting for an estimated 53.449% of the variance. These scales had acceptable levels of internal consistency (α = .854, ω = 0.977) and stability (r = .892, p < .001).

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Parenting while living with advanced cancer: A qualitative study

Palliative Medicine ◽

10.1177/0269216316661686 ◽

2016 ◽

Vol 31 (3) ◽

pp. 231-238 ◽

Cited By ~ 27

Author(s):

Eliza M Park ◽

Devon K Check ◽

Mi-Kyung Song ◽

Katherine E Reeder-Hayes ◽

Laura C Hanson ◽

...

Keyword(s):

Decision Making ◽

Qualitative Study ◽

Functional Status ◽

Advanced Cancer ◽

Metastatic Cancer ◽

Eastern Cooperative Oncology Group ◽

Comprehensive Cancer Center ◽

Cancer Center ◽

Parental Concerns ◽

The Impact

Background: Patients with advanced cancer who have dependent children are an important population with a life-limiting illness and high levels of psychological distress. Few studies have addressed the experience of being a parent with advanced cancer and their potential palliative needs. Aim: To describe the experience of living with advanced cancer as a parent, including illness experience, parental concerns, and treatment decision making and to explore whether these experiences differ by their functional status. Design: We conducted a cross-sectional, qualitative study using in-depth, semi-structured interviews. Data were analyzed using thematic content analysis. Setting and participants: A total of 42 participants with metastatic cancer and with at least one child under the age of 18 years were recruited from a comprehensive cancer center. 25 participants were rated as having high functional status (the Eastern Cooperative Oncology Group (ECOG) Performance Status Scale = 0–1) and 17 with low functional status (ECOG=2–4). Results: We identified four themes regarding the experience of being a parent with advanced cancer: (1) parental concerns about the impact of their illness and death on their children, (2) “missing out” and losses of parental role and responsibilities, (3) maintaining parental responsibilities despite life-limiting illness, and (4) parental identity influencing decision making about treatment. Parental functional status influenced not only physical responsibilities but also intensified parenting psychological concerns. Conclusion: Parents with metastatic cancer may have unique palliative care needs as they experience parenting concerns while managing the psychological and physical demands of advanced cancer.

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Development and psychometric evaluation of performance-based upper extremity motor control test (PB-UE-MCT) for people with cerebral palsy

Cadernos Brasileiros de Terapia Ocupacional ◽

10.1590/2526-8910.ctoao21567 ◽

2021 ◽

Vol 29 ◽

Author(s):

Fatemeh Etemad Shams ◽

Malek Amini ◽

Afsoon Hassani Mehraban ◽

Mehdi Alizadeh Zarei ◽

Dorsa Kalani

Keyword(s):

Cerebral Palsy ◽

Motor Control ◽

Upper Extremity ◽

Internal Consistency ◽

Convergent Validity ◽

Interrater Reliability ◽

Correlation Coefficients ◽

Psychometric Evaluation ◽

Control Test ◽

Intrarater Reliability

Abstract Introduction Upper extremity disorders limits the performance in the activities of daily living, especially, in bilateral (two-handed) activities. Objective This study was designed to develop a performance-based upper extremity motor control test (PB-UE-MCT) and to measure its psychometric properties (including, convergent validity, intrarater reliability, and interrater reliability) for people with cerebral palsy (CP). Method The PB-UE-MCT was developed in three phases, including planning, construction, and psychometric evaluation. The participants included 50 people with CP with an age range of 6 to 18 years. To measure internal consistency, Cronbach's alpha was run (n=50). Intrarater and interrater reliability was measured for 25 participants. To assess convergent validity, the correlations of the PB-UE-MCT with the Manual Ability Classification System (MACS) and with the Selective Control Upper Extremity Scale (SCUES) were calculated. Results The values obtained for Cronbach's alpha (.90 to .96) indicated the excellent internal consistency of the PB-UE-MCT. The ICC values for intrarater reliability and interrater reliability were between .84 and .99 and between .89 and .99, respectively. The correlation coefficients obtained for the items of the PB-UE-MCT and those of the MACS were between .51 and .73. The correlation coefficients of the items of the PB-UE-MCT with those of the SCUES were in the range of .67 to .98, which proves the PB-UE-MCT's good to excellent levels of convergent validity. Conclusion The results confirm that the PB-UE-MCT is a valid and reliable tool for evaluating the upper extremity performance of people with CP through task analysis.

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Psychometric Evaluation of Instruments Measuring The Older Adult’s Functional Status in Indonesian

Jurnal Keperawatan Padjadjaran ◽

10.24198/jkp.v7i2.840 ◽

2019 ◽

Vol 7 (2) ◽

Author(s):

Dara Febriana ◽

Juanita Juanita ◽

Nurhasanah Nurhasanah

Keyword(s):

Older Adults ◽

Psychometric Properties ◽

Functional Status ◽

Physical Performance ◽

Convergent Validity ◽

Performance Test ◽

Functional Disability ◽

Psychometric Evaluation ◽

Validity And Reliability ◽

Functional Status Questionnaire

For year research on quantifying how well individual’s function has been reported. Assessing function is particularly important in the older adults, as the prevalence of functional disability increases with age. In Indonesia, there is a lack of studies that measure the functional status of the older adults. There is even less research on evaluating the psychometric properties of an instrument. Therefore, this study aimed to compare the psychometric properties of the evidence supported functional status instrument consisting of the Short Physical Performance Battery (SPPB), the Functional Status Questionnaire (FSQ) and the Physical Performance Test (PPT). This study using the validation design with descriptive approach. And 401 subjects aged more than 60 years old were recruited purposively from five districts in Aceh. Every instrument showed good validity and reliability and has been used either for research purposes or in clinical setting. All subjects completed the FSQ, SPBB, and FSQ assessment. Correlation between SPPB and PPT were higher than FSQ when assessed for convergent validity the FSQ had comparable correlations with the reported health status. However, relationship between SPPB, PPT and FSQ were inconsistent. The findings of this study is expected to support the psychometric properties of all three instrument for functional status assessment in Indonesian Older adults, and SPPB appear to be the best among the other instruments to use in the nursing practice.

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Validation of a Spanish version of the Leicester Cough Questionnaire in cystic fibrosis

Chronic Respiratory Disease ◽

10.1177/14799731211036903 ◽

2021 ◽

Vol 18 ◽

pp. 147997312110369

Author(s):

Gerard Muñoz ◽

Javier de Gracia ◽

Rosa Giron ◽

Casilda Olveira ◽

Antonio Alvarez ◽

...

Keyword(s):

Cystic Fibrosis ◽

Internal Consistency ◽

Convergent Validity ◽

Intraclass Correlation ◽

Stable State ◽

Spanish Version ◽

Leicester Cough Questionnaire ◽

Sputum Volume ◽

Prospective Longitudinal ◽

The Impact

Cough is a main symptom in cystic fibrosis (CF). We aim to validate a Spanish version of the Leicester Cough Questionnaire (LCQ-Sp) to measure the impact of cough in CF bronchiectasis. A prospective longitudinal multicentre study was performed. Internal consistency and score changes over a 15-day period in stable state were assessed to analyse reliability. Concurrent validity was analysed by correlation with Saint George’s Respiratory Questionnaire (SGRQ) and convergent validity by assessing the association with clinical variables. Changes in scores between stable state and the first exacerbation were assessed to analyse responsiveness. 132 patients (29.73 ± 10.52 years) were enrolled in four hospitals. Internal consistency was high for the total score and good for the three domains (Cronbach’s α 0.81–0.93). The test–retest reliability showed an intraclass correlation coefficient of 0.86 for the total score. The correlation between LCQ-Sp and SGRQ scores was −0.74. The LCQ-Sp score negatively correlated with sputum volume, and the mean score decreased at the beginning of exacerbations (16.04±3.81 vs 13.91±4.29) with a large effect size. The LCQ-Sp is a reliable, repeatable and responsive instrument to assess the impact of cough in CF bronchiectasis and is responsive to change in the event of exacerbations.

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Development of the Therapist Empathy Scale

Behavioural and Cognitive Psychotherapy ◽

10.1017/s1352465813000039 ◽

2013 ◽

Vol 42 (3) ◽

pp. 339-354 ◽

Cited By ~ 15

Author(s):

Suzanne E. Decker ◽

Charla Nich ◽

Kathleen M. Carroll ◽

Steve Martino

Keyword(s):

Internal Consistency ◽

Convergent Validity ◽

Discriminant Validity ◽

Rating Scale ◽

Single Factor ◽

Client Outcome ◽

Rater Reliability ◽

Empathy Scale ◽

Therapist Empathy ◽

The Impact

Background: Few measures exist to examine therapist empathy as it occurs in session. Aims: A 9-item observer rating scale, called the Therapist Empathy Scale (TES), was developed based on Watson's (1999) work to assess affective, cognitive, attitudinal, and attunement aspects of therapist empathy. The aim of this study was to evaluate the inter-rater reliability, internal consistency, and construct and criterion validity of the TES. Method: Raters evaluated therapist empathy in 315 client sessions conducted by 91 therapists, using data from a multi-site therapist training trial (Martino et al., 2010) in Motivational Interviewing (MI). Results: Inter-rater reliability (ICC = .87 to .91) and internal consistency (Cronbach's alpha = .94) were high. Confirmatory factor analyses indicated some support for single-factor fit. Convergent validity was supported by correlations between TES scores and MI fundamental adherence (r range .50 to .67) and competence scores (r range .56 to .69). Discriminant validity was indicated by negative or nonsignificant correlations between TES and MI-inconsistent behavior (r range .05 to −.33). Conclusions: The TES demonstrates excellent inter-rater reliability and internal consistency. Results indicate some support for a single-factor solution and convergent and discriminant validity. Future studies should examine the use of the TES to evaluate therapist empathy in different psychotherapy approaches and to determine the impact of therapist empathy on client outcome.

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Elders Health Empowerment Scale. Spanish adaptation and psychometric analysis

Colombia Medica ◽

10.25100/cm.v45i4.1518 ◽

2014 ◽

pp. 179-185 ◽

Cited By ~ 6

Author(s):

Daniel Jorge Luis Serrani Azcurra

Keyword(s):

Internal Consistency ◽

Content Validity ◽

Convergent Validity ◽

Short Form ◽

Correlation Coefficients ◽

Face Validity ◽

Psychometric Validation ◽

Validity And Reliability ◽

Spanish Speaking ◽

Health Empowerment

Introduction: Empowerment refers to patient skills that allow them to become primary decision-makers in control of daily self-management of health problems. As important the concept as it is, particularly for elders with chronic diseases, few available instruments have been validated for use with Spanish speaking people. Objective: Translate and adapt the Health Empowerment Scale (HES) for a Spanish-speaking older adults sample and perform its psychometric validation. Methods: The HES was adapted based on the Diabetes Empowerment Scale-Short Form. Where “diabetes” was mentioned in the original tool, it was replaced with “health” terms to cover all kinds of conditions that could affect health empowerment. Statistical and Psychometric Analyses were conducted on 648 urban-dwelling seniors. Results: The HES had an acceptable internal consistency with a Cronbach’s α of 0.89. The convergent validity was supported by significant Pearson’s Coefficient correlations between the HES total and item scores and the General Self Efficacy Scale (r= 0.77), Swedish Rheumatic Disease Empowerment Scale (r= 0.69) and Making Decisions Empowerment Scale (r= 0.70). Construct validity was evaluated using item analysis, half-split test and corrected item to total correlation coefficients; with good internal consistency (α> 0.8). The content validity was supported by Scale and Item Content Validity Index of 0.98 and 1.0, respectively. Conclusions: HES had acceptable face validity and reliability coefficients; which added to its ease administration and users’ unbiased comprehension, could set it as a suitable tool in evaluating elder’s outpatient empowerment-based medical education programs.

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The impact of advanced cancer on the functional status of patients attending oncology clinics in selected urban areas

Curationis ◽

10.4102/curationis.v11i3.142 ◽

1988 ◽

Vol 11 (3) ◽

Author(s):

H.L. Brink

Keyword(s):

Functional Status ◽

Advanced Cancer ◽

Urban Areas ◽

Symptom Distress ◽

Oncology Nursing ◽

Active Therapy ◽

Large Hospital ◽

Secondary Purpose ◽

Random Samples ◽

The Impact

The primary purpose of the study was to obtain information from out patients with advanced cancer on their functional status, and to construct a profile of existing needs, which may be of use for nurses involved with planning and rendering support. A secondary purpose was to determine whether an existing instrument would provide a reliable means of assessing the degree of symptom distress and its impact on the functional status of patients with advanced cancer in this country. The population consisted of patients who had been diagnosed as suffering from cancer with metastases to at least one of the following organs - liver, lung, bone or brain - and who were under active therapy or supervision at an oncology clinic of a large hospital as out patients. Six clinics were selected; however, only four participated. Random samples of one or two patients per clinic day were selected during the period from October 1987 to January 1988for interviews. A total of 146 patients participated. The Chairmen of the Regional Oncology Nursing Societies were the chief investigators. Selected oncology nurses assisted with data collection. The instrument was found to be reliable and a positive relationship between symptom distress and functional status was established. Areas of problems and concerns of cancer patients were identified and a profile was constructed as an aid to nurses planning or rendering cancer care.

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Psychometric Evaluation of the Caregiver Needs Screen in Neuro-Oncology Family Caregivers

Journal of Nursing Measurement ◽

10.1891/1061-3749.27.2.162 ◽

2019 ◽

Vol 27 (2) ◽

pp. 162-176

Author(s):

Florien W. Boele ◽

Lauren Terhorst ◽

Jennifer Prince ◽

Heidi S. Donovan ◽

Jason Weimer ◽

...

Keyword(s):

Internal Consistency ◽

Convergent Validity ◽

Reliability And Validity ◽

Psychometric Evaluation ◽

Well Being ◽

Internal Consistency Reliability ◽

Preliminary Evidence ◽

Expert Review ◽

Scale Scores ◽

Caregiver Needs

Background and PurposeThe informal care demands of primary malignant brain tumor (PMBT) patients include unique issues associated with neurological and cognitive symptoms. Existing caregiver needs questionnaires do not include these disease-specific symptoms, which are particularly distressing. Therefore, we have developed the neuro-oncology Caregiver Needs Screen (CNS) and evaluated its psychometric properties.MethodsThe 32-item instrument was developed based on PMBT caregiver interviews (N = 109) and expert review. The CNS was tested along measures of depression, anxiety, burden, and mastery in 122 PMBT caregivers. Principal components analysis was used to examine item properties and internal structure. Internal consistency reliability and construct validity were assessed.ResultsSix subscales were identified with internal consistency ranging between alpha = .653 and .857. Convergent validity was verified by moderate/high correlations between measures of caregiver well-being and CNS scale scores.ConclusionsFindings provide preliminary evidence of reliability and validity for the CNS. This instrument can be useful when assessing caregivers' needs for supportive care.

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