Family Quality of Life

2016 ◽  
Vol 38 (4) ◽  
pp. 191-211 ◽  
Author(s):  
Anoo Bhopti ◽  
Ted Brown ◽  
Primrose Lentin
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Well Being ◽  
Family Quality Of Life ◽  
Family Interactions ◽  
Factors Affecting ◽  
Family Outcomes ◽  
Five Factors ◽  
Childhood Intervention

A scoping review was conducted to identify factors influencing the quality of life of families of children with disability. The review also explored the scales used to measure family quality of life (FQOL) as an outcome in early childhood intervention services (ECIS). Multiple databases were searched from 2000 to 2013 to include studies pertinent to ECIS. Results were charted and summarized based on scoping methodology. Eighteen articles were chosen for the review based on the selection criteria. Results were summarized as five factors that affect FQOL, namely, (a) disability-related support, (b) family interactions/family relationships, (c) overall well-being, (d) support from services, and (e) severity and type of disability. The review also identified two FQOL scales that were used most frequently within ECIS: (a) the Beach Center Family Quality of Life Survey, and (b) Family Quality of Life Survey: Main Caregivers of People With Intellectual or Developmental Disabilities. It is recommended that those responsible for evaluation decisions within ECIS programs should consider using a FQOL scale to measure family outcomes. Furthermore, professionals working with families within ECIS should consider the factors affecting FQOL to further enhance their service provision.

“I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings

2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Intellectual Disabilities ◽  
Family Relationships ◽  
Leisure Activities ◽  
Well Being ◽  
Family Quality Of Life ◽  
Adult Sibling ◽  
The Disabled

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

The Influence of Attending Festivals with Children on Family Quality of Life, Subjective Well-Being, and Event Experience

2021 ◽  
Author(s):  
Yi Liu ◽  
Jason Draper
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Structural Equation ◽  
Well Being ◽  
Equation Modeling ◽  
Family Quality Of Life ◽  
Subjective Well Being ◽  
Family Activity ◽  
The Relationship

Participants attending a festival(s) with children is a family activity that influences family relationships. This study examines the relationship between attending status (e.g., with or without children), event experience, subjective well-being, and family quality of life (FQOL). A total of 585 festival participants’ data analyzed by structural equation modeling (SEM) revealed that participants attending with children have a higher level of subjective well-being and FQOL compared to those without children. Participants attending with children have a higher level of cognitive engagement and experience novelty in festivals compared to those without children. Event experience results in a significant positive relationship with subjective well-being. This study expands current event literature in terms of FQOL and provides a practical guideline to event organizers to better understand the significance of festivals.

Toward assessing family outcomes of service delivery: validation of a family quality of life survey

2003 ◽  
Vol 47 (4-5) ◽  
pp. 367-384 ◽  
Author(s):  
J. Park ◽  
L. Hoffman ◽  
J. Marquis ◽  
A. P. Turnbull ◽  
D. Poston ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Service Delivery ◽  
Family Quality Of Life ◽  
Family Outcomes

Confirmatory Factor Analysis of a Family Quality of Life Scale for Taiwanese Families of Children With Intellectual Disability/Developmental Delay

2017 ◽  
Vol 55 (2) ◽  
pp. 57-71 ◽  
Author(s):  
Chun-Yu Chiu ◽  
Hyojeong Seo ◽  
Ann P. Turnbull ◽  
Jean Ann Summers
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Developmental Delay ◽  
Reliability And Validity ◽  
Family Quality Of Life ◽  
Family Outcomes ◽  
Quality Of Life Scale ◽  
Confirmatory Factor ◽  
Life Scale

Abstract The Beach Center Family Quality of Life Scale is an internationally validated instrument for measuring family outcomes. To revise the scale for better alignment with the Family Quality of Life theory, the authors excluded non-outcome items in this revision. In this study, we examined reliability and validity of the revised scale (i.e., the FQoL Scale-21) and its scores for Taiwanese families of children and youth with intellectual disability and developmental delay (age 0–18). Results from 400 Taiwanese respondents suggested that the FQoL Scale-21 has the potential to be used as an indicator of positive outcomes in intervention evaluation, policy making, and service delivery.

scholarly journals Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy

2019 ◽  
Vol 18 ◽  
pp. e019002
Author(s):  
Katarína Molnárová Letovancová ◽  
Miriam Slaná ◽  
Michaela Hromková
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cerebral Palsy ◽  
Well Being ◽  
Average Score ◽  
Family Quality Of Life ◽  
Life Questionnaire ◽  
Quality Of Life Scale ◽  
Children With Cerebral Palsy

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.

scholarly journals State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

2020 ◽  
Vol 17 (19) ◽  
pp. 7220
Author(s):  
Carmen Francisco Mora ◽  
Alba Ibáñez ◽  
Anna Balcells-Balcells
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Family Relationships ◽  
Family Quality Of Life ◽  
Early Care ◽  
Quality Of Family Life ◽  
Bibliographic Search ◽  
Families With Children ◽  
Age Range

Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

Dynamics of morbidity and risk factors affecting the quality of life of patients with benign prostatic hyperplasia

2021 ◽  
pp. 21-30
Author(s):  
Egor Aleksandrovich Perevezentsev ◽  
Nadezhda Ilyinichna Gurvich ◽  
Dmitriy Olegovich Kurbakov ◽  
Liliya Rustamovna Zakerova
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Benign Prostatic Hyperplasia ◽  
Well Being ◽  
Prostatic Hyperplasia ◽  
Surgical Approaches ◽  
Self Awareness ◽  
Factors Affecting ◽  
Prostate Diseases

The article discusses the dynamics of morbidity and risk factors that influence the occurrence of benign prostatic hyperplasia (BPH). An increase in the number of diseases of the genitourinary system, among which prostate diseases account for about 25%, is an important medical and social problem, as the symptoms of BPH significantly reduce the quality of life of men. The main parameters of the quality of life of patients with BPH include not only the severity of the signs of the disease, but also the mental well-being and self-awareness of physiological and psychological well-being. Early diagnosis and elimination of risk factors for the development of BPH makes it possible to start timely treatment. Among surgical approaches, transurethral methods are currently the most common: transurethral resection, transurethral enucleation with a bipolar loop and bipolar vaporesection of prostate.

Family quality of life and child psychological well-being in Palestine: A pilot case study

2014 ◽  
Vol 14 (6) ◽  
pp. 553-575 ◽  
Author(s):  
Guido Veronese ◽  
Francesca Fiore ◽  
Marco Castiglioni ◽  
Miras Natour
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Family Quality Of Life ◽  
Psychological Well Being
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