Anxiety, Coping, and Stress: Counseling Parents of Children With a Rare Disease

2021 ◽  
pp. 106648072110272
Author(s):  
Renee S. Sherrell

Rare diseases affect an estimated 300 million individuals worldwide, and ∼30 million Americans. One of these diseases, FOXG1 syndrome, is a severe neurological condition that causes medical complications and developmental delays. The majority of those diagnosed with the genetic condition are children, making parenting a challenging experience. The purpose of this investigation was to explore the relationship between anxiety, coping, and stress among parents of children with FOXG1 syndrome, ( N = 84). The objective was to identify how these constructs relate and contribute to one another to best treat parents who are seeking counseling services. Results indicated significant relationships between these constructs. Study implications, limitations, and areas for future research are discussed.

2017 ◽  
Vol 19 (1) ◽  
pp. 65-73 ◽  
Author(s):  
Mohamed Essawy

This research is designed to investigate the effects of e-atmospheric cues of hotel websites on emotions and on the behavioral responses of customers. Frequent hotel customers (each conducted at least five online bookings yearly) participated in an online survey. The survey measured the impact of two atmospheric cues (graphics design and information design) on emotions (pleasure, arousal, and dominance), the relationship between emotions and booking intentions, and the impact of atmospheric cues on booking intentions. The results showed significant effects of information design on emotions and on booking intentions. The results also revealed the significant relationships between emotions and booking intentions. The present findings of the specific impact of information design on emotions and on booking intentions contribute to extending the knowledge in pleasing hotel customers and forming their booking intentions. Future research could consider other e-atmospherics such as the use of music and color.


Author(s):  
Samantha J. Herrick ◽  
Weili Lu ◽  
Deanna Bullock

This study examined the relationship between acceptance of disability, perceived stigma of students on a college campus and adaptation to college for students with disabilities. One hundred forty-five surveys were collected from student participants via the disability support services offices at sixteen colleges or universities in the northeast and mid-west United States. The results of a hierarchical multiple regression analysis revealed two statistically significant relationships, students with a higher level of acceptance of disability were more adapted to college, and higher GPA was associated with less adaptation to college. The exploratory test of mediation revealed that the relationship between acceptance of disability and adaptation to college was significantly mediated by perception of stigma on a college campus. The implications for higher education support services and recommendations for future research are discussed.


2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Geisa dos Santos Luz ◽  
Mara Regina Santos da Silva ◽  
Francine DeMontigny

ABSTRACT Rare diseases cause strong impact in families and generate needs beyond those associated with the most frequent diseases. Some of these needs are the inclusion of new responsibilities and the relationship with the healthcare and social services. This study is aimed at identifying the priority needs of families of rare disease patients as perceived from the time of diagnosis. This is a qualitative study conducted with 16 relatives of rare disease patients who live in the state of Rio Grande do Sul. Data were collected from November 2012 to March 2013, through semi-structured interviews and submitted to content analysis, based on the bioecological system of human development. The results indicated the following priority needs: access to social and healthcare services; knowledge about rare diseases; social support structures; acceptance and social integration; preservation of personal and family life. It was concluded that (re)organizing services and meeting the specific needs are preconditions to qualify nursing care and soften the impact the rare disease has on the family.


2021 ◽  
Vol 13 (2) ◽  
pp. 93-104
Author(s):  
METIN ARGAN ◽  
SABRI KAYA ◽  
CANER OZGEN ◽  
GOZDE YETIM ◽  
ALIKHAN GUSEYNO

Background: Leisure experience, including dance motivation, is one of the key factors for participation in dance events or festivals. Therefore, the experience quality that facilitates individual relationships is likely to influence the dancers’ participation. The purpose of this study is to determine and to analyze dance experience motivations, experience quality, satisfaction and word-of-mouth. Material and methods: The sample of this study consisted of 201 persons who attended the Turkey Dance Festival and who were selected by the convenience sampling method. In this study, the theoretical principles of structural equation modeling (SEM) were applied with the Amos 20 program to analyze the data. Results: The results showed that there were significant relationships (<0.05) between dance experience motivations, experience quality, satisfaction and WOM. This study results are important both as significant and practical implication for leisure managers’ strategies regarding their leisure and experience motivation, and contribution to the leisure literature. Conclusions: The findings of this study can help event managers contribute to increased participation in sustainable dance practices, and the participant-based experience value can be used as a planning tool to attract the attention of event organizers. The findings of this study also give useful insights into theoretical, practical and managerial implications for dance event organization and provide suggestions for future research.


10.32698/0411 ◽  
2019 ◽  
Vol 2 (1) ◽  
pp. 27
Author(s):  
Nor Syakila Jaeh ◽  
Amalia Madihie

The aim of this study is to examine the relationship between self- efficacy and resilience among late adolescents in the five components of resilience which are meaningfulness, perseverance, self- reliance, equanimity and existential aloneness. The number of sample was 250, aged between 18-19 year olds.  Generalized Self- Efficacy (GSE) by Schwarzer and Jerusalem (1995) and Resilience Scale (RS) by Wagnild and Young (1993) were carried out. Results showed that there are significant relationships between self- efficacy and resilience in the form of meaningfulness, perseverance, self- reliance, equanimity and existential aloneness where the null hypothesis is being rejected. These findings can be used to design effective intervention to solve the client issue related with self- efficacy and resilience and promote positive behaviour such as resilience. Future research could conduct research for early adolescent, middle adolescent and late adolescent which can lead to new contribution to the research.


2017 ◽  
pp. 1162-1189
Author(s):  
J. R. Smith ◽  
Andrea Tillman-Hawkins ◽  
Alisa L. Mosley ◽  
Jean-Claude Assad

The study purpose is to examine the relationship between cultural diversity and firm performance from the perspective of the investors. Stock values were used to test the hypothesized relationships between the components of cultural diversity (i.e. racio-ethnicity and gender impact on firm performance) using an event study methodology with regression analysis techniques. The findings indicate that the influences of racio-ethnicity and gender diversity on firm performance were mixed. However, significant relationships were found between the components of cultural diversity and firm performance. New directions for future research are offered.


2018 ◽  
Author(s):  
Thomas Curran

A meta-analysis of research examining the relationships between multidimensional perfectionism and burnout is provided. In doing so, relationships before and after controlling for the relationship between dimensions of perfectionism were examined along with whether relationships were moderated by domain (work, sport, or education). A literature search yielded 43 studies (N = 9,838) and 663 effect sizes. Meta-analysis using random-effects models revealed that perfectionistic strivings had small negative or non-significant relationships with overall burnout and symptoms of burnout. By contrast, perfectionistic concerns displayed medium-to-large and medium positive relationships with overall burnout and symptoms of burnout. After controlling for the relationship between dimensions of perfectionism, "pure" perfectionistic strivings displayed notably larger negative relationships. In terms of moderation, in some cases, perfectionistic strivings were less adaptive and perfectionistic concerns more maladaptive in the work domain. Future research should examine explanatory mechanisms, adopt longitudinal designs, and develop interventions to reduce perfectionistic concerns fueled burnout.


2021 ◽  
Vol 14 (1) ◽  
pp. 44
Author(s):  
Cartmell Warrington ◽  
Javaid Syed ◽  
Ruth M. Tappin

The Big Five Factors Model (FFM) of personality traits theory was tested for its ability to explain employee information security behavior (EISB), when age, measured by generational cohort (GCOHORT), moderated the relationship between the independent variables (IVs) extraversion, agreeableness, conscientiousness, emotional stability, intellect (EACESI) and the dependent variable (DV), employees&rsquo; information security behavior (EISB) which is measured by file protection behavior (FPB). Three age groups defined GCOHORT: 52&ndash;70 years old (1946&ndash;1964, Baby Boomers), 36&ndash;51 yrs old (1965&ndash;1980, Generation X), and 18&ndash; 35 yrs. Old (1981&ndash;1998, Millennial). Results of hierarchical multiple regressions analyses revealed statistically significant relationships between overall personality traits, four individual factors of personality traits, and the DV (p &lt; .05). However, contrary to expectations, GCOHORT did not moderate the relationship between any of the main IVs and the DV (p &gt; .05). Recommendations for future research are offered.


2010 ◽  
Vol 16 (3) ◽  
pp. 411-424 ◽  
Author(s):  
Stacey Porter ◽  
Roya Ayman

AbstractIn a sample of 243 women from a Midwestern healthcare organization, we found that the work-to-family interference (WIF) was positively related to intentions to quit. Significant relationships were found among work flexibility, WIF, and intention to quit. This relationship was supported, allowing us to conclude that employees who perceive personal control and autonomy in their work environment (as defined by how, when and where they work) will report lower levels of WIF and intentions to quit. The implications of these findings on future research and organizational practice are discussed.


1980 ◽  
Vol 8 (1) ◽  
pp. 17-25 ◽  
Author(s):  
Robert E. Niebuhr ◽  
Arthur G. Bedetan ◽  
Achilles A. Armenatcis

A field study in a hospital's nursing service organization was conducted to investigate the relationship of subordinate personality characteristics with perceptions of leader behavior. Measures of four individual need states (independence, achievement, affiliation, power) were obtained from the subjects as well as their perceptions of leader behavior. The study found a number of significant relationships between subordinate personality characteristics and both instrumental and supportive leader behavior perceptions, the primary finding being that individuals strongly motivated toward self-goals (achievement, power, independence) rather than other-directed goals (affiliation) apparently perceive their leader to be less active, particularly with regard to instrumental supervisory behavior. The implications of these results are discussed with respect to the focus of future research regarding the influence of individual personality characteristics in behavioral studies.


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