Care Needs and Health Care Burden of Persons With Epilepsy Receiving Home Care Services

The purpose of this study was to describe the characteristics of persons with epilepsy (PWE) receiving home care services. A cross-sectional study was conducted comparing the characteristics of PWE with those without epilepsy (comparison group). PWE were more likely to have mental health issues and functional, mobility, and cognitive impairments; to receive a variety of psychotropic medications; to experience psychosocial issues such as isolation and conflicts in their relationships; to have caregivers experiencing psychological distress; and to be economically disadvantaged necessitating making economic trade-offs in their care. Epilepsy is associated with caregiver distress and has an impact on health resource utilization. Future studies are needed to identify strategies to improve the quality of care and life of PWE.

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Between State, society and family: the care of female caregivers

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2018-0111 ◽

2018 ◽

Vol 71 (suppl 6) ◽

pp. 2720-2727

Author(s):

Irene Duarte Souza ◽

Jéssica de Aquino Pereira ◽

Eliete Maria Silva

Keyword(s):

Public Health ◽

Home Care ◽

Home Care Services ◽

Cross Sectional Study ◽

Care Work ◽

Sectional Study ◽

Cross Sectional ◽

Gender And Work ◽

Care Services ◽

Hospital Equipment

ABSTRACT Objective: to investigate the care provided by family female caregivers of elderly dependents who have been monitored by public home care and its social repercussions, discussing the facets between State, society and families. Method: descriptive cross-sectional study, with 45 caregivers of elderly patients accompanied by Home Care Services. Data were collected by means of a structured script. The discussion was elaborated in light of the works "Cuidado e cuidadoras: as várias faces do trabalho do 'care'" (Care and female caregivers: the several faces of the care work) and "Gênero e trabalho na França e no Brasil" (Gender and work in France and Brazil). Results: Most caregivers were women (95%) who performed home care at several places and incorporated hospital equipment into everyday life. They have been caregivers for four and a half years, working 18 hours a day on average; they presented average age of 55 years; 82% were ill, and 43% had no income. Conclusion: the study demonstrated the relevance of the care of female caregivers to society as well as their invisibility to public health and social policies.

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People diagnosed with dementia in Sweden: What type of home care services and housing are they granted? A cross-sectional study

Scandinavian Journal of Public Health ◽

10.1177/1403494818755600 ◽

2018 ◽

Vol 47 (2) ◽

pp. 229-239 ◽

Cited By ~ 8

Author(s):

Elzana Odzakovic ◽

Lars-Christer Hydén ◽

Karin Festin ◽

Agneta Kullberg

Keyword(s):

Home Care ◽

Older People ◽

Care Service ◽

Home Care Services ◽

Cross Sectional Study ◽

Home Care Service ◽

Sectional Study ◽

Dementia Diagnosis ◽

Cross Sectional ◽

Care Services

Aims: This study aims to examine what types of home care services and housing are granted to people with a dementia diagnosis and how these types are associated with socio-demographic factors (sex, age, marital status, native or foreign born, and regional area). Methods: A cross-sectional study of all people diagnosed with dementia in three Swedish counties was conducted from the medical records in 2012. Logistic regression analysis was carried out to investigate associations between home care services and housing and socio-demographic variables. Results: In total, 17,405 people had a dementia diagnosis, and the majority were women, aged 80+ years, and unmarried. Some 72% were living in ordinary housing and 28% lived in special housing. Of those who lived in ordinary housing, 50% did not receive any home care service. Not receiving any type of home care services was less common for older people and was also associated with being married and living in rural municipalities. The most common home care services granted were home help and personal care. Special housing was more common for older people, unmarried persons, and those living in rural municipalities. Conclusions: Most people with a dementia diagnosis were living in ordinary housing, and, surprisingly, half of those did not receive any type of home care service. This knowledge is essential for making the living conditions and needs of people living with dementia more visible and to provide good home care services for people with dementia and their families.

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Documented diabetes care among older people receiving home care services: a cross‐sectional study

BMC Endocrine Disorders ◽

10.1186/s12902-021-00713-w ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Lovise S. Heimro ◽

Monica Hermann ◽

Therese Thuen Davies ◽

Anne Haugstvedt ◽

Johannes Haltbakk ◽

...

Keyword(s):

Blood Glucose ◽

Home Care ◽

Diabetes Management ◽

Home Care Services ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Self Monitoring ◽

Care Services

Abstract Background Home care services plays an important role in diabetes management, and to enable older adults remain home-dwellers. Adequate follow-up and systematic nursing documentation are necessary elements in high quality diabetes care. Therefore, the purpose of this study was to examine the diabetes treatment and management for older persons with diabetes receiving home care services. Methods A cross-sectional study was used to assess the diabetes treatment and management in a Norwegian municipality. Demographic (age, sex, living situation) and clinical data (diabetes diagnose, type of glucose lowering treatment, diabetes-related comorbidities, functional status) were collected from electronic home care records. Also, information on diabetes management; i.e. follow-up routines on glycated haemoglobin (HbA1c), self-monitoring of blood glucose, insulin administration and risk factors (blood pressure, body mass index and nutritional status) were registered. HbA1c was measured upon inclusion. Descriptive and inferential statistics were applied in the data analysis. Results A total of 92 home care records from older home-dwelling persons with diabetes, aged 66–99 years were assessed. Only 52 (57 %) of the individuals had the diabetes diagnosis documented in the home care record. A routine for self-monitoring of blood glucose was documented for 27 (29 %) of the individuals. Only 2 (2 %) had individual target for HbA1c documented and only 3 (3 %) had a documented routine for measuring HbA1c as recommended in international guidelines. Among 30 insulin treated older individuals, a description of the insulin regimen lacked in 4 (13 %) of the home care records. Also, documentation on who performed self-monitoring of blood glucose was unclear or lacking for 5 (17 %) individuals. Conclusions The study demonstrates lack of documentation in home care records with respect to diagnosis, treatment goals and routines for monitoring of blood glucose, as well as insufficient documentation on responsibilities of diabetes management among older home-dwelling adults living with diabetes. This indicates that home care services may be suboptimal and a potential threat to patient safety.

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The Level of Care Needs of Patients With Cancer and the Time-dependent Burden on Their Family Caregivers in Home Palliative Care: A Cross-Sectional Study

10.21203/rs.3.rs-431425/v1 ◽

2021 ◽

Author(s):

Naoko Otsuki ◽

Ryohei Yamamoto ◽

Yukihiro Sakaguchi ◽

Kento Masukawa ◽

Tatsuya Morita ◽

...

Keyword(s):

Home Care ◽

Family Caregivers ◽

Clinical Characteristics ◽

Cross Sectional Study ◽

Time Dependent ◽

Care Needs ◽

Cross Sectional ◽

Patients With Cancer ◽

Care Services ◽

Adjusted Logistic Regression

Abstract PurposeAlthough home care improves patients' quality of life (QOL), several studies have suggested that home care lowers the QOL and mortality of family caregivers. To alleviate the deleterious impact of home care on caregivers, the major burdens on caregivers and the clinical characteristics of the caregivers vulnerable to the major burden needs to be clarified. MethodA survey questionnaire was distributed to 710 family caregivers of patients with cancer in Japan, and 342 valid responses were obtained (valid response rate: 48.2%). The Burden Index of Caregivers was used to identify the major burden on caregivers. To assess the associations of the patients' care needs level and other clinically relevant factors with the major burden, a multivariable-adjusted logistic regression model was used. ResultsThe time-dependent burden was identified as a major burden. An adjusted model showed a non-linear association between the care needs level and the time-dependent burden, in which the caregivers of the patients who required moderate care needs level had the highest time-dependent burden [adjusted odds ratio of none, mild, moderate, and severe care needs levels: 0.50 (95% confidence interval 0.07–2.12), 1.08 (0.43–2.57), 1.87 (1.01–3.52), and 1.00 (reference), respectively]. Additionally, older patients and younger caregivers were significantly associated with a time-dependent burden. ConclusionThe time-dependent burden was highest in caregivers at the moderate care needs level and younger caregivers. An imbalance between the demand and supply of care services may be improved by considering the clinical characteristics of both patients and caregivers.

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Towards specialised and differentiated long-term care services: a cross-sectional study

BMC Health Services Research ◽

10.1186/s12913-020-05647-y ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Hanne Marie Rostad ◽

Marianne Sundlisæter Skinner ◽

Ragnhild Hellesø ◽

Maren Kristine Raknes Sogstad

Keyword(s):

Nursing Homes ◽

Home Care ◽

Long Term Care ◽

Home Care Services ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Term Care ◽

Care Services

Abstract Background Numerous forces drive the evolution and need for transformation of long-term care services. During the previous decade, primary health care has assumed increased responsibility for developing and providing care services, but there is still limited knowledge about how European care service systems are evolving to address new tasks and patients. Based on data from Norwegian municipalities, this study aims to (1) describe the availability of specialised services in Norwegian nursing homes and home care services and (2) analyse whether structural factors, like population size and/or centrality, are associated with the availability of specialised services in nursing homes and home care. Methods This is a cross-sectional study of survey data. An online survey was designed specifically for this study. Its questions were developed from a comprehensive review of the literature and in partnership with a user panel. One representative from all of Norway’s 422 municipalities were invited to answer the survey from February to April 2019. In total, 277 municipalities completed the survey (response rate 66%). Chi-square analysis and Fisher’s exact test were used to test the associations between different categorical variables. Results Specialised care services were highly prevalent. For example, there were nursing home units specialising in dementia care (89%) and rehabilitation (81%) and home care teams for dementia care (79%) and reablement (76%). Approximately two-thirds of our sample were categorised as having high availability of specialisation in nursing home and home care services. The larger, more central municipalities had higher availability of specialisation compared to medium-sized and small, less central municipalities. Conclusions Our study indicates that a majority of nursing homes and home care services provide specialised and differentiated services that serve patient groups of different ages and diagnoses. Municipalities’ population size and centrality are associated with availability of specialised services in nursing homes and home care services.

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Risk factors for hip fracture in New Zealand older adults seeking home care services: a national population cross-sectional study

BMC Geriatrics ◽

10.1186/s12877-019-1107-1 ◽

2019 ◽

Vol 19 (1) ◽

Cited By ~ 2

Author(s):

Rebecca Abey-Nesbit ◽

Philip J. Schluter ◽

Tim Wilkinson ◽

John Hugh Thwaites ◽

Sarah D. Berry ◽

...

Keyword(s):

Risk Factors ◽

Older Adults ◽

New Zealand ◽

Hip Fracture ◽

Home Care ◽

Home Care Services ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Care Services

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Profile of Persons With Epilepsy Receiving Home Care Services

Home Health Care Management & Practice ◽

10.1177/1084822318769640 ◽

2018 ◽

Vol 30 (4) ◽

pp. 155-163 ◽

Cited By ~ 1

Author(s):

Vahe Kehyayan ◽

John P. Hirdes

Keyword(s):

Health Care ◽

Home Care ◽

Comparison Group ◽

Functional Dependence ◽

Health Care Systems ◽

Home Care Services ◽

Health Issues ◽

Psychosocial Needs ◽

Cross Sectional ◽

Care Services

The objective of this study was to describe the profile of persons with epilepsy (PWE) receiving home care to understand their needs and impact on health care. In this cross-sectional study, sociodemographic, psychosocial, and health characteristics of PWE 60 years of age and above were compared with PWE in the below 60 years age (the comparison) group. Relative to the comparison group, the aged 60 years and above group was more likely to have health and mental health issues, cognitive impairment, functional dependence, psychosocial needs, and health care resource utilization. This study showed that PWE receiving home care services are greatly affected by social, functional, and health issues. Future studies are needed to further explore the burden of PWE on caregivers and health care systems compared with nonepilepsy groups.

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Thriving among older people living at home with home care services—A cross‐sectional study

Journal of Advanced Nursing ◽

10.1111/jan.14307 ◽

2020 ◽

Vol 76 (4) ◽

pp. 999-1008 ◽

Cited By ~ 1

Author(s):

Kristina Lämås ◽

Karin Bölenius ◽

Per‐Olof Sandman ◽

Ådel Bergland ◽

Marie Lindkvist ◽

...

Keyword(s):

Home Care ◽

Older People ◽

Home Care Services ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Care Services ◽

At Home

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. Sobrecarga do cuidador de pacientes atendidos na atenção domiciliar

Revista de Enfermagem UFPE on line ◽

10.5205/1981-8963.2020.244235 ◽

2020 ◽

Vol 14 ◽

Author(s):

Monique Évellin Alves Cruz ◽

Daniel Vinícius Alves Silva ◽

Júlia Rocha do Carmo ◽

Gabriel Dias de Araújo ◽

Luiza Rodrigues Camisasca ◽

...

Keyword(s):

Home Care ◽

Statistical Significance ◽

Care Program ◽

Home Care Services ◽

Cross Sectional Study ◽

Common Finding ◽

Bivariate Analysis ◽

Daily Routine ◽

Cross Sectional ◽

Zarit Burden Interview

Objetivo: avaliar a sobrecarga de cuidadores de pacientes atendidos por um programa de atenção domiciliar público. Método: trata-se de um estudo quantitativo, descritivo, transversal, com 127 cuidadores de pacientes atendidos pelo Programa Melhor em Casa. Coletaram-se dados sociodemográficos e clínicos e aplicaram-se também a Escala Zarit Burden Interview reduzida e a Escala de Desesperança de Beck. Realizou-se análise descritiva e bivariada de dados. Resultados: verificou-se que, dos 127 cuidadores, a maioria era do sexo feminino (114=89,8%), de cor parda (81=63,8%); composta por solteiros (56=44,1%) e a média de idade foi de 46,66 anos. Destaca-se que 38,6% (49) apresentaram sobrecarga de moderada a grave, 78,7% (110) afirmaram que houve mudanças em sua rotina diária, 59,8% (76) dizem ter sofrido alguma mudança no estado emocional após iniciar o cuidado do paciente e 56,7% (72) sentem dores no corpo. Confirmaram-se, na análise bivariada, 15 variáveis independentes que obtiveram significância estatística. Conclusão: conclui-se que a sobrecarga do cuidador de pacientes da atenção domiciliar é um achado comum e cuidados para a sua prevenção devem ser estabelecidos. Descritores: Cuidadores; Esgotamento Psicológico; Serviços de Assistência Domiciliar; Assistência Domiciliar; Pacientes Domiciliares; Enfermagem.AbstractObjective: to assess the burden of caregivers of patients treated by a public home care program. Method: this is a quantitative, descriptive, cross-sectional study, with 127 caregivers of patients treated by the Melhor em Casa Program. Sociodemographic and clinical data were collected, and the reduced Zarit Burden Interview Scale and the Beck Hopelessness Scale were also applied. Descriptive and bivariate data analyses were performed. Results: of the 127 caregivers, the majority was female (114=89.8%), pardos (81=63.8%); composed of unmarried (56=44.1%) and the mean age was 46.66 years. Importantly, 38.6% (49) had moderate to severe burden, 78.7% (110) stated the occurrence of changes in their daily routine, 59.8% (76) mentioned having suffered some change in emotional state after starting the care with the patients and 56.7% (72) have body ache. The bivariate analysis confirmed the statistical significance of 15 independent variables. Conclusion: the burden of caregivers of homebound patients is a common finding, requiring care actions for its prevention. Descriptors: Caregivers; Burnout, Psychological; Home Care Services; Home Nursing; Homebound Persons; Nursing. ResumenObjetivo: evaluar la sobrecarga de los cuidadores de pacientes tratados mediante un programa de atención domiciliaria público. Método: se trata de un estudio cuantitativo, descriptivo, transversal, con 127 cuidadores de pacientes tratados por el Programa Melhor em Casa. Recogieron datos sociodemográficos y clínicos y se aplicaron la escala Zarit Burden Interview reducida y la Escala de Desesperanza de Beck. Se realizó el análisis descriptivo y bivariado de los datos. Resultados: se constató que, de 127 cuidadores, la mayoría eran mujeres (114=89,8%), pardos (81=63,8%); compuesto de solteros (56=44,1%) y el promedio de edad fue de 46.66 años. Cabe destacar que el 38,6% (49) presentó sobrecarga moderada a severa, el 78,7% (110) declaró que ha habido cambios en su rutina diaria, el 59,8% (76) afirmó tener sufrido algún cambio en el estado emocional después de iniciar los cuidados del paciente, y el 56,7% (72) siente dolor en el cuerpo. Se confirman, en el análisis bivariado, 15 variables independientes que tuvieron significación estadística. Conclusión: se concluye que la sobrecarga de los cuidadores de pacientes en atención domiciliaria es un hallazgo común y cuidados en su prevención deben ser establecidos. Descriptores: Cuidadores; Agotamiento Psicológico; Servicios de Atención de Salud a Domicilio; Atención Domiciliaria de Salud; Personas Imposibilitadas; Enfermería.

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Unmet care needs are common among community-dwelling older people with memory problems in Finland

Scandinavian Journal of Public Health ◽

10.1177/1403494819890800 ◽

2019 ◽

pp. 140349481989080 ◽

Cited By ~ 1

Author(s):

Mari S. Aaltonen ◽

Lina H. Van Aerschot

Keyword(s):

Home Care ◽

Older People ◽

Home Care Services ◽

Community Dwelling ◽

Care Needs ◽

Care Services ◽

Memory Problems ◽

More Care ◽

Community Dwelling Older People ◽

With Memory

Aims: Ageing in place has become a policy priority. Consequently, residential care has been reduced, and more older people with multiple care needs reside at home with the help of informal care and home care services. An increasing share of these people has memory disorders. We examined the extent to which memory problems, in addition to other individual characteristics, are associated with unmet care needs among community-dwelling older people. Methods: The study employed cross-sectional survey data from community-dwelling people aged 75+ collected in 2010 and 2015, analysed using binary logistic regression analysis. The study population consisted of people who had long-term illnesses or disabilities that limited their everyday activities ( N = 1928). Nine per cent reported substantial memory problems. Of these, 35.7% had a proxy respondent. Results: People with memory problems have more care needs than those with other types of disability or illness. They receive more care but still have more unmet needs than others. About a quarter of people with memory problems reported that they did not receive enough help. This result did not change significantly when the proxy responses were excluded. Even a combination of informal and formal home care was insufficient to meet their needs. Conclusions: Insufficient care for people with memory problems implies a serious demand for further development of home care services. The care needs of this population are often complex. Unmet needs represent a serious risk to the well-being of people with memory disorders, and may also create an extensive burden on their informal caregivers.

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