Granting wishes of seriously ill children: Effects on parents’ well-being

2016 ◽  
Vol 21 (10) ◽  
pp. 2314-2327 ◽  
Author(s):  
Covadonga Chaves ◽  
Gonzalo Hervas ◽  
Carmelo Vazquez
Keyword(s):  
Well Being ◽  
Seriously Ill

Optimism

2009 ◽  
pp. 302-312 ◽  
Author(s):  
Charles S. Carver ◽  
Michael F. Scheier ◽  
Daniel Fulford
Keyword(s):  
Disease Progression ◽  
Health Risks ◽  
Well Being ◽  
Problem Solution ◽  
Subjective Well Being ◽  
Negative Effects ◽  
Negative Feelings ◽  
Seriously Ill

Optimism is expecting good things to occur in one's life. Such positive expectations are associated with higher subjective well-being, even under conditions of stress or adversity. In contrast, pessimists respond to adversity with more intense negative feelings. There are also differences in the manner in which optimists and pessimists try to cope with adversity. Optimists tend to put the best face on the adversity, but they acknowledge its existence and its importance, and they try to do as much as possible to resolve whatever problems can be resolved. Pessimists are more likely to distance themselves from the problem and put off doing anything about it as long as possible. They are also more likely to give up trying, if things remain difficult. Some kinds of problem solution is proactive, engaged in before the problem arises. Optimists also tend to engage in such proactive efforts, including taking actions to minimize various kinds of health risks. Perhaps, as a consequence of these preventive steps, optimists also tend to have better health than pessimists. They seem to heal faster from wounds, and there is some evidence that when they are seriously ill they experience slower disease progression. It has been suggested that optimists sometimes are no better off than pessimists, and sometimes are worse off: that their confidence can get them into situations where it is difficult to cope effectively. Evidence of such negative effects of optimism does exist, but it is relatively sparse.

Encountering Grief in Patient Care

2012 ◽  
pp. e81-e84
Author(s):  
Teresa Gilewski
Keyword(s):  
General Pattern ◽  
Well Being ◽  
Health Care Team ◽  
Compassionate Care ◽  
Critical Aspect ◽  
Psychiatric Intervention ◽  
Emotional Level ◽  
Dying Patient ◽  
Seriously Ill ◽  
Insight Into

Overview: Grief is essentially unavoidable and is a normal reaction to loss. Grief may be experienced by patients and their loved ones as well as by physicians and members of the health care team in response to the consequences of illness or death. Grief is typified by certain indicators that may significantly effect one's emotional and physical well-being. Although these indicators tend to follow a general pattern, there is variability among individuals. Complicated grief may require psychiatric intervention. Caring for the seriously ill or dying patient may be particularly challenging from an emotional level and may increase the risk of burnout. Recognition of these emotions is a critical aspect of providing compassionate care on a sustainable level. Various strategies may be beneficial in coping with grief, and the exploration of grief may provide greater insight into the humanistic basis of medicine.

Positive interventions in seriously-ill children: Effects on well-being after granting a wish

2016 ◽  
Vol 21 (9) ◽  
pp. 1870-1883 ◽  
Author(s):  
Covadonga Chaves ◽  
Carmelo Vázquez ◽  
Gonzalo Hervás
Keyword(s):  
Well Being ◽  
Positive Interventions ◽  
Seriously Ill

scholarly journals Palliative Care Consult for Clinician Distress Through the Philosophical Lenses of Gender Norms and Phenomenology

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 245-245
Author(s):  
Anessa Foxwell ◽  
Salimah Meghani ◽  
Connie Ulrich
Keyword(s):  
Older Adults ◽  
Palliative Care ◽  
Gender Norms ◽  
Well Being ◽  
Future Research ◽  
Post Traumatic Stress ◽  
Social Construct ◽  
The Social ◽  
Palliative Care Teams ◽  
Seriously Ill

Abstract The National Academy of Medicine has raised significant concerns on clinician health and well-being as many experiencing burnout, post-traumatic stress, and depression. Indeed, clinicians experience a range of human emotions when caring for older adults with severe, life-limiting illnesses. These emotions may manifest in multiple ways and from various sources. Uncertain of how to attend to such distress, clinicians may consult a trusted resource, including the palliative care team. Palliative care specialists are trained to support the complexities and needs of patients and families; increasingly, however, palliative care consults are rooted in clinician distress. This session uses clinical case examples to explore the palliative care consult for distressed clinicians from two different philosophical perspectives: (1) phenomenology and (2) the social construct of gender norms. A phenomenological lens respects the unique, subjective lived experience of each individual in their day-to-day interactions with patients, families, and health care systems. Therefore, when caring for seriously ill older adults, clinicians may bring their own subjective experiences to the patient encounter and react differently to ethical dilemmas and conflicts that arise. The social construct of gender norms asks us to examine clinician distress from a different perspective. Here, the postmodern rejection of gender binarism allows clinicians to experience a spectrum of emotions and distress regardless of gender. Exploration through clinical cases will highlight the unique, varied experience of clinician distress and offer opportunities for future research into the role of palliative care teams in supporting distressed clinicians who care for seriously ill older adults.

scholarly journals RESEARCH OF FEATURES OF SOCIAL AND PSYCHOLOGICAL WELL-BEING OF TEENAGERS FROM FAMILIES WITH NON-NORMATIVE FAMILY CRISES

2020 ◽  
pp. 49-59
Author(s):  
Наталья Юрьевна Макеева
Keyword(s):  
Well Being ◽  
Parental Rights ◽  
Psychological Well Being ◽  
Serious Illness ◽  
Death Of A Parent ◽  
The Family ◽  
Psychoemotional State ◽  
Psychological Assistance ◽  
Seriously Ill

Представлены результаты эмпирического исследования социально-психологического благополучия подростков, в семье которых за последние 1,5 года произошли ненормативные кризисные ситуации: смерть одного из родителей, развод родителей, один из родителей попал в места заключения, тяжелая болезнь одного из родителей, попадание подростка под опеку или в замещающую семью по причине лишения родителей родительских прав. Результаты исследования указывают на необходимость социально-психологической помощи подросткам, имеющим тяжелобольного родителя. Актуальная продолжительная травматичная ситуация страдания от болезни родителя отрицательно сказывается на их психоэмоциональном состоянии и негативно отражается на социально-психологическом благополучии . Presents the results of empirical research of socio-psychological well-being of adolescents in the family which for the last 1,5 years there was a non-normative crises: death of a parent, divorce of parents, one parent was in detention, a serious illness of one of the parents, the hit teen under guardianship or in a foster family because of deprivation of parental rights. The results of the study indicate the need for social and psychological assistance to teenagers who have a seriously ill parent. The actual, long-term traumatic situation of suffering from a parent's illness negatively affects their psychoemotional state and negatively affects their socio-psychological well-being.

scholarly journals Partnering with frail or seriously ill patients in research: a systematic review

2020 ◽  
Vol 6 (1) ◽  
Author(s):  
Claire Ludwig ◽  
Ian D. Graham ◽  
Wendy Gifford ◽  
Josee Lavoie ◽  
Dawn Stacey
Keyword(s):  
Systematic Review ◽  
Mixed Methods ◽  
Lived Experience ◽  
Narrative Analysis ◽  
Mixed Methods Research ◽  
Well Being ◽  
Research Partnerships ◽  
Research Teams ◽  
Seriously Ill Patients ◽  
Seriously Ill

Abstract Background The expectation to include patients as partners in research has steadily gained momentum. The vulnerability of frail and/or seriously ill patients provides additional complexity and may deter researchers from welcoming individuals from this patient population onto their teams. The aim was to synthesize the evidence on the engagement of frail and/or seriously ill patients as research partners across the research cycle. Methods A systematic review was conducted using PRISMA guidelines. A search strategy included MEDLINE®, EMBASE®, Cumulative Index to Nursing and Allied Health Literature (CINAHL), and PsycINFO from database inception to April, 2019. Eligible studies were peer-reviewed qualitative, quantitative, and mixed methods research reporting on the engagement of frail and/or seriously ill patients as partners on research teams. The Mixed Methods Appraisal Tool was used to appraise study quality. Narrative analysis was conducted. Results Of 8763 citations, 30 were included. Most studies included individuals with cancer on the research team (60%). Barriers included: lack of time and resources (50%), discontinuity in contribution (37%), and concerns for well-being (33%). Facilitators included: trust and mutual respect (60%), structural accessibility (57%), flexibility in timing and methods of engagement (43%), and attention to care and comfort, (33%). Perceived impacts for patients included: renewed personal sense of agency (37%) and emotional/peer support (37%). Impacts for researchers included sensitization to the lived experience of disease (57%) and an increased appreciation of the benefits of patient engagement (23%). Research design, execution, and outcomes, developed with patients, were deemed more suitable, relevant and reflective of patients’ priorities. Conclusions There is emerging evidence to suggest that research partnerships with frail and/or seriously ill patients can be achieved successfully. Patients mostly report benefit from partnering with research teams. Frailty and/or serious illness do present legitimate concerns for their well-being but appear to be successfully mitigated when researchers ensure that the purpose of engagement is well-defined, the timing and methods of engagement are flexible, and the practical and emotional needs of patient partners are addressed throughout the process. Systematic review registration The systematic review protocol was registered with the International Prospective Register of Systematic Reviews PROSPERO (CRD42019127994).

scholarly journals A Qualitative Study: An Examination of Police Officers’ Lived Experiences During the COVID-19 Pandemic

2021 ◽  
pp. 105756772110504
Author(s):  
Richard C. Helfers ◽  
Johnny Nhan
Keyword(s):  
Police Officers ◽  
Lived Experiences ◽  
Well Being ◽  
The United States ◽  
Community Safety ◽  
Health Crisis ◽  
Public Health Crisis ◽  
Police Agencies ◽  
Semistructured Interviews ◽  
Seriously Ill

In the spring of 2020, the COVID-19 pandemic spread across the globe prompting stay-at-home orders for all but the most essential workers in society. Policing was one of the professions that is essential for community safety, regardless of the circumstances. Officers were on the front-line of the COVID-19 public health crisis and their preparedness was crucial for officer and community health. During the onset of the pandemic little was known about how officers perceived the virus and how police agencies prepared officers to work in a highly contagious environment. This study used semistructured interviews of police officers in two states in the United States that had elevated cases of the virus. The authors explored the lived experiences of police officers to explore officers’ perceptions, concerns, implications the pandemic had on patrol activity, and agency preparedness during the onset of the COVID-19 pandemic. The results revealed structural and cultural forces that resulted in officers and their agency leadership not taking the pandemic seriously, ill-preparation and ill-equipping, and disincentives in reporting exposure. Moreover, officers’ fears were largely not based on their own well-being, but on the risk of spreading the disease to their family members.

Oncology nurse perspectives on the nature and meaning of their positive relationships with seriously ill patients.

2017 ◽  
Vol 35 (31_suppl) ◽  
pp. 42-42
Author(s):  
Emily M. Wright ◽  
Alaina Carr ◽  
Barbara J. Cashavelly ◽  
William F. Pirl ◽  
Lara Traeger
Keyword(s):  
End Of Life ◽  
Academic Medical Center ◽  
Well Being ◽  
Patient Centered Care ◽  
Positive Relationships ◽  
Patient Centered ◽  
Oncology Nurse ◽  
Centered Care ◽  
Patient Relationships ◽  
Seriously Ill

42 Background: Inpatient oncology nurses regularly care for patients at or near the end of life. Given increasing attention to risk of compassion fatigue in this setting, we conducted a qualitative study to explore nurses’ perspectives on the nature and meaning of their positive relationships with patients who were seriously ill or dying. Methods: We conducted in-depth interviews with 24 registered nurses (RN)s working on an inpatient medical oncology unit at an academic medical center. We used a semi-structured interview guide to elicit RNs’ descriptions of ‘good’ relationships they had with patients/families with attention to aspects that made these relationships meaningful. Using a framework approach, including an iterative coding process, two team members independently coded all interview data (Kappa = .80) and worked with a multidisciplinary team to identify themes. Results: RNs (95.8% female; 95.8% non-Hispanic white, M age = 32.7 yrs [SD = 10.8 yrs], median yrs as RN = 4.0 [range: 1.5-35.0 yrs]) described specific cases in which they felt they had developed ‘good’ relationships with patients and families. RN descriptions centered on highly intimate and transformative moments in patient/family care. These unique moments occurred in the context of longitudinal nurse-patient relationships in which RNs felt able to 1) facilitate patient/family processing of emotions and disclosure of treatment preferences that they otherwise were not able to process or disclose to other loved ones or clinicians; 2) provide highly-skilled patient-centered care to reduce patient suffering; and/or 3) facilitate patient/family prognostic understanding and peace at the end of life. RNs felt privileged to serve these roles. Memorable transformative moments enriched RNs’ professional identities and inspired their continued work. Conclusions: Inpatient oncology nurse-patient relationships serve distinctive functions for both patient-centered care and RN well being. Results underscore the importance of assisting RNs in managing patient symptoms, forming longitudinal relationships with patients/families, and coping with factors that impede ‘good’ relationships.

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