scholarly journals Should we use the Parental Stress Index—Short Form in parents of children with ASD? A French validation study

2020 ◽  
Vol 104 ◽  
pp. 103716
Author(s):  
C. Derguy ◽  
D. Loyal ◽  
E. Devouche ◽  
E. Cappe
2020 ◽  
Vol 39 (3) ◽  
pp. 335-357
Author(s):  
Kyong-Mee Chung ◽  
Seungmin Jung ◽  
Yoon Jung Yang

2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.


2015 ◽  
Vol 10 (1) ◽  
pp. 17-28 ◽  
Author(s):  
Catrin Eames ◽  
Rebecca Crane ◽  
Eluned Gold ◽  
Sophie Pratt

Purpose – Behavioural parent training (PT) interventions partially mediate risk factors for the development of child behavioural problems. Mindfulness skills could have benefit in alleviating the impact of these risk factors for parents who are socio-economically disadvantaged. The paper aims to discuss these issues. Design/methodology/approach – A pre-post single group comparison of disadvantaged mothers attending the Mindfulness-Based Wellbeing for Parents (MBW-P) programme. Findings – Changes were observed in facets of parental stress (Parenting Stress Index-Short Form; Abidin, 1995), depression (Beck Depression Inventory-II; Beck et al., 1996) and brooding (Ruminative Responses Scale; Nolen-Hoeksema and Morrow, 1991), with moderate to large effect sizes and incidences of clinical change. Research limitations/implications – The research design, although pragmatic, includes a small sample and no control or long-term comparison group. Social implications – Mothers considered as the “hardest to reach” group in terms of vulnerability, risk factors and being likely to gain from intervention demonstrated positive shifts post-intervention. A targeted mindfulness-based intervention, delivered pragmatically within a health service context, may have benefit in reducing the impact of risk factors on parental wellbeing. Originality/value – To the authors’ knowledge, this is the first evaluation of a targeted mindfulness group delivered within routine health care settings, in identified “high risk” areas, by routine staff.


2021 ◽  
Vol 11 (8) ◽  
pp. 1040
Author(s):  
Martina Siracusano ◽  
Assia Riccioni ◽  
Leonardo Emberti Gialloreti ◽  
Eugenia Segatori ◽  
Lucrezia Arturi ◽  
...  

Parenting a child with a disability, such as neurodevelopmental disorders and genetic syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period implying additional challenges—few studies have specifically investigated caregivers’ distress among neurodevelopmental disabilities. The objective of the study is to investigate whether during the COVID-19 pandemic, the level of parental stress differs between four disability groups including neurodevelopmental disorders (autism spectrum disorder (ASD), attention deficit and hyperactivity disorder (ADHD)) and genetic syndromes (Rett syndrome (RTT), Sotos syndrome (SS)) in comparison to families with typical development offspring (TD). In total, 220 Italian parents of children affected by neurodevelopmental disabilities (74 ASD, 51 ADHD, 34 SS, 21 RTT, 40 TD; age M 9.4 ± SD 4.2) underwent a standardized evaluation for stress related to parenting through the self-report questionnaire, Parental Stress Index-Short Form (PSI-SF). The main findings show greater levels of parental stress—mainly linked to child behavioral characteristics rather than parental sense of competence—in parents of children affected by a disability in comparison to children with typical development. This study highlights the need to support not only individuals with special needs but also their own caregivers: core figures in the management and outcome of children disorders.


2021 ◽  
Vol 11 (4) ◽  
pp. 5-9
Author(s):  
Grazia Maria Giovanna Pastorino ◽  
Francesca Operto ◽  
Valeria De Simone ◽  
Valentina Vivenzio ◽  
Chiara Scuoppo ◽  
...  

Aim: The objective of our study is to evaluate the impact that the COVID-19 emergency and the related measures adopted have had on the family management of minors with neuropsychiatric disorders. Another objective of this study is to carry out a first longitudinal evaluation of this impact on parental stress, comparing the data collected before the pandemic with those collected during the lockdown. Methods: This is an observational study that involved 271 families of patients already treated at the Child Neuropsychiatry Unit of the Salerno University Hospital between 2 and 23 years (112 with Autism Spectrum Disorder, 86 with epilepsy and 73 with other disorders of neurodevelopment). All participants were given an ad hoc telephone interview and a standardized questionnaire (PSI - Parenting Stress Index-Short Form). The telephone interview showed that a significant percentage of parents reported an increase in their child's daily management difficulties during the lock-down and emotional / behavioral problems, in particular the externalizing disorder. Comparison of the mean scores of the PSI-SF questionnaires completed before and during the lockdown showed a statistically significant increase in scores in the Total Stress scale and in the Parental Distress subscales. Results & Conclusion: The results of our study suggest that the confinement measures and changes in daily routine imposed by quarantine negatively affected the behavioral and emotional dimensions of both children and parents causing a significant increase in parental stress, which is mainly related to feelings of inadequacy in relation to their role in such a delicate situation, and concern for the future.


2021 ◽  
Vol 13 (4) ◽  
pp. 576-582
Author(s):  
Daniela Smirni ◽  
Marco Carotenuto

Primary headache is an increasing phenomenon in pediatric age, and very often, it causes disabling limitations in children’s daily activities, negatively affecting family well-being. There are conflicting data in the literature on the impact of children’s migraines on parental experienced stress. This study aimed to evaluate maternal stress in a sample of school-aged children with a migraine without aura (MwoA) and its correlation with migraine intensity and frequency. A total of 474 mothers aged between 31 and 55 participated in the study: 237 were mothers of children with MwoA, and 237 were mothers of typical developing children. All participants were administered the Parent Stress Index-Short Form (PSI-SF) for the assessment of parental stress; the Pediatric Migraine Disability Assessment (PedMIDAS) was administered to children with MwoA to assess the presence of a related disability migraine. The results showed a significantly higher rate of stress in mothers of MwoA children (p < 0.001) in all the domains explored by the PSI-SF and a statistically significant correlation between the maternal stress total score and the intensity and frequency of migraine attacks (p < 0.0001). This study highlights the need for the holistic contribution of the family to be considered in the clinical management of pediatric migraines.


2016 ◽  
Vol 34 (17) ◽  
pp. 3691-3710 ◽  
Author(s):  
Fatemeh Alizadeh Maralani ◽  
Mirmahmoud Mirnasab ◽  
Touraj Hashemi

The link between inappropriate parenting style and both bullying and victimization is well documented. However, it is not clear as to which kind of parenting style is associated with victimization. Furthermore, no studies have yet been conducted regarding the role of parental stress in bullying and victimization. This study aimed to examine the role of parenting styles and maternal stress in pupils’ bullying and victimization. A total of 300 primary school pupils, enrolled in fourth and fifth grades, participated in the study. Initially, 100 noninvolved pupils were randomly selected using a multistage cluster sampling method. Then using a screening method, 100 bully pupils and 100 victimized peers were selected. Olweus Bullying Scale and teacher nomination were administered for screening these pupils. Baumrind Parenting Style Questionnaire and revised version of Abidin Parental Stress Index (short form) were also applied to all pupils in the study. Data were analyzed using discriminant function analysis. The findings showed that (a) with regard to parenting styles, significant differences were found among groups. Authoritarian parenting style could significantly predict pupils’ bullying behavior, whereas victimization was predictable in families with permissive parenting style. In addition, noninvolved pupils were predicted to have authoritative parenting style. (b) Considering maternal stress, significant differences were observed across groups. Parents of bullies and victims were predicted to have higher maternal stress than noninvolved pupils. The implications of the study in relation to the role of mothers in bullying and victimization are discussed.


2020 ◽  
Vol 16 (3) ◽  
pp. 514-531
Author(s):  
Elisa Delvecchio ◽  
Alessandro Germani ◽  
Veronica Raspa ◽  
Adriana Lis ◽  
Claudia Mazzeschi

In the last decades, consensus from laymen, scholars, and policy-makers has emphasized the role of child-parent relationships to promote child’s development and positive well-being. Parenting style was claimed as one of the crucial factors for the child’s positive adjustment. The main aim of the present study was to investigate the relationships between authoritative and authoritarian parenting styles and child’s difficulties. The mediational role of parent’s perception of a difficult child on the above mentioned relation was taken into account. The study was carried out on a sample of 459 couples including mothers (n = 459) and fathers (n = 459) of children aged 2 to 10 years old who filled in the Parenting Styles & Dimensions Questionnaire short version, the Strengths and Difficulties Questionnaire, and the Parenting Stress Index-short form. Main findings indicated that authoritative style was associated with less child’s maladjustment, while the authoritarian one showed the opposite association. These relationships were partially mediated by the perception of a difficult child, which partially explained the link between parenting style and child’s problems. Above and beyond the role of parent’s perception as a difficult child, parenting styles had an important effect on child’s difficulties. Future studies should replicate these results with other samples, use the spouse version of the parenting styles, control the effect of socio-economic status and other variables related to family functioning, as well as to consider the child’s perception regarding parents’ parenting style.


2021 ◽  
Author(s):  
Si-Jing Tu ◽  
Xiao-Fei Zhang ◽  
Chen Jin ◽  
Bi-Yan Wang ◽  
Chao Luo ◽  
...  

Abstract Background: As more than 200,000 neonates participate in newborn congenital hypothyroidism (CH) screening in Guangxi each year, the overall number of false positives has increased. Concerns arise regarding the potential demographic impact on parental stress and knowledge of CH results has emerged. Methods: 255 parents were invited to participate in the false-positive (FP) group, and 1040 parents were invited to participate in the control group. After providing consent, the parents completed a semistructured questionnaire on demographic characteristics, knowledge of CH and the parental stress index-short form (PSI-SF). Results: The parents in the FP group had better knowledge of CH and higher PSI scores than did the parents in the control group (both P <0.001). The result of Logistic Regression showed that the major influence factors of knowledge of CH were FP experience and source of knowledge (both P <0.001). The parents in the FP group who were well-informed during the recall phone call had lower PSI scores than did the other parents (P = 0.001). The results suggested that FP screening results may affect parental stress and the parent-child relationships. Conclusion: Targeted health education should be carried out to increase prospective parents’ knowledge of NBS and reduce parental stress when false-positive results are received.


2020 ◽  
pp. 136749352090538
Author(s):  
Alan H Silverman ◽  
Gina Erato ◽  
Praveen Goday

Paediatric feeding disorders (PFDs) are common. Earlier studies have shown an association between PFD and caregiver stress, but these studies have been hampered by insufficient power. This study reports stress for caregivers of children diagnosed with PFD. These caregivers were then compared to community norms of the Parental Stress Index–Short Form. Caregivers also completed the Mealtime Behaviour Questionnaire, Child Behaviour Checklist and Child Development Inventory. Linear regression and hierarchical regression analyses assessed the relationship among the variables. Caregivers of 840 children with PFD responded. Negative child behaviours and lower child developmental function predicted higher levels of total parenting stress, parental distress, parent–child dysfunctional interaction and caregiver perceptions of their child as difficult. Higher rates of child internalizing and externalizing problems and child mealtime aggression were associated with parent perceptions of their child as difficult and contributed to total parental stress. Parents of older children reported higher levels of stress, whereas parents of younger children were more likely to be defensive responders. Overall, parents of children with PFD have more caregiver-related stress. These caregivers may benefit from consultations with mental health professionals to provide the most appropriate care to affected families.


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