scholarly journals Through the Lens of Chronic Kidney Disease: A Qualitative Study of the Experiences of Young Women Living With CKD

2020 ◽  
Vol 7 ◽  
pp. 205435812094547
Author(s):  
Heather Beanlands ◽  
Elizabeth McCay ◽  
Sheryll Pahati ◽  
Michelle A. Hladunewich
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Qualitative Study ◽  
Young Women ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Urban Setting ◽  
Focus Group Discussions ◽  
Group Discussions

Background: Young women may be particularly vulnerable to the negative psychosocial consequences of living with chronic kidney disease (CKD). To date, little is known about how women themselves experience and manage their illness. Objectives: This study explored the experiences of young women living with CKD. Design: Qualitative descriptive study. Setting: Nephrology program in an urban setting in Ontario, Canada. Participants: Women with category G1-3 glomerular-based CKD between 18 and 40 years of age. Methods: Focus group discussions guided by semi-structured interview questions. Qualitative content analysis was used to analyze interview transcripts. Results: Eleven women participated in 3 separate focus group discussions. Participants described living life through the lens of CKD, which was the central theme unifying their experiences of encountering CKD, re-encountering CKD, and getting on with life. Life decisions significant to women like pursuing a career or motherhood were often colored by CKD, particularly by illness-related challenges, such as unsatisfactory health care support and the physical implications of chronic illness. The women used a variety of strategies including seeking information and relying on supportive people to mitigate these challenges. Although these strategies sometimes enabled them to balance the demands of illness with other life priorities, the lack of resources directed toward their unique needs as young women with CKD often caused them difficulties in managing their illness. Limitations: Participants were from one nephrology program in an urban setting and were well educated overall. Their experiences may not be reflective of young women in other settings or from diverse backgrounds. Conclusions: The women’s emotional well-being and life choices were considerably influenced by CKD. Although the women were often able to manage challenges associated with CKD, they acknowledged the need to seek additional professional resources to complement their own self-identified strategies. As the women sought out these supports, they identified gaps in resources specific to women with CKD. This article summarizes recommendations from their perspective. Trial Registration: Not applicable as this was a qualitative study.

scholarly journals Sexual and reproductive health of Syrian refugee adolescent girls: a qualitative study using focus group discussions in an urban setting in Lebanon

2021 ◽  
Vol 18 (1) ◽  
Author(s):  
Rayan Korri ◽  
Sabine Hess ◽  
Guenter Froeschl ◽  
Olena Ivanova
Keyword(s):  
Focus Group ◽  
Reproductive Health ◽  
Sexual Harassment ◽  
Qualitative Study ◽  
Adolescent Girls ◽  
Sexual And Reproductive Health ◽  
Urban Setting ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
To Receive

Abstract Background The war in Syria caused the forced displacement of millions of Syrians to neighboring countries. Lebanon is the host country with the largest overall number of Syrian refugees per capita. Adolescent refugee girls experience a unique level of vulnerability during human emergencies and are at increased risk of suffering from poor sexual and reproductive health (SRH) outcomes. We conducted an exploratory qualitative study to learn about the SRH perceptions and experiences of refugee adolescent girls living in Bourj Hammoud, an urban setting in Lebanon. Methods We employed a qualitative design with eight focus group discussions (FGDs) conducted with 40 Syrian Arab and Syrian Kurdish adolescent girls between January and March 2020. Every FGD consisted of five participants aged 13 to 17 years. A semi-structured guide was used covering multiple themes: menstruation, puberty, SRH awareness, and sexual harassment. FGDs were transcribed and analyzed using thematic analysis. Findings The participants discussed adolescent girls’ health and named six elements of good health, such as healthy activities and self-protection. The majority of the FGD participants reported a lack of awareness about menstruation when they experienced it for the first time and the social stigma associated with menstruation. When defining puberty, they indicated its social link to a girl’s readiness for marriage and her need to become cautious about sexual harassment. Most FGD participants had very poor knowledge of the female reproductive system. Mothers were the most approached persons to receive information on SRH issues; however, the girls indicated a wish to receive advice from specialists in a comfortable and private atmosphere. All the girls reported that either they themselves, or an acquaintance, had experienced some type of sexual harassment. The girls rarely reported those incidents due to fear of being blamed or subjected to mobility restrictions, or forced to drop out of school. Conclusions The findings show the refugee girls need for satisfactory knowledge on SRH issues and interventions to prevent sexual and gender-based violence that take into consideration the complexity of urban settings.

Building Chronic Kidney Disease Clinical Practice Guidelines Using the openEHR Guideline Definition Language

2016 ◽  
Vol 55 (06) ◽  
pp. 495-505 ◽  
Author(s):  
Pei-Yuan Hung ◽  
Ching-Heng Lin ◽  
Ying-Chih Lo ◽  
Der-Ming Liou
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Public Health Problem ◽  
Clinical Decision ◽  
Global Public Health ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Ensure Patient Safety ◽  
High Prevalence

SummaryBackground: As a result of the disease‘s high prevalence, chronic kidney disease (CKD) has become a global public health problem. A clinical decision support system that integrates with computer-interpretable guidelines (CIGs) should improve clinical outcomes and help to ensure patient safety.Objectives: The openEHR guideline definition language (GDL) is a formal language used to represent CIGs. This study explores the feasibility of using a GDL approach for CKD; it also attempts to identify any potential gaps between the ideal concept and reality.Methods: Using the Kidney Disease Improving Global Outcomes (KDIGO) anemia guideline as material, we designed a development workflow in order to establish a series of GDL guidelines. Focus group discussions were conducted in order to identify important issues related to GDL implementation.Results: Ten GDL guidelines and 37 archetypes were established using the KDIGO guideline document. For the focus group discussions, 16 clinicians and 22 IT experts were recruited and their perceptions, opinions and attitudes towards the GDL approach were explored. Both groups provided positive feedback regarding the GDL approach, but raised various concerns about GDL implementation.Conclusions: Based on the findings of this study, we identified some potential gaps that might exist during implementation between the GDL concept and reality. Three directions remain to be investigated in the future. Two of them are related to the openEHR GDL approach. Firstly, there is a need for the editing tool to be made more sophisticated. Secondly, there needs to be integration of the present approach into non openEHR-based hospital information systems. The last direction focuses on the applicability of guidelines and involves developing a method to resolve any conflicts that occur with insurance payment regulations.

scholarly journals The Main Components of Body Image from the Perspectives of Iranian Adolescents: A Qualitative Study

2020 ◽  
Author(s):  
Sara Jalali-Farahani ◽  
Parisa Amiri ◽  
Fariba Zarani ◽  
Fereidoun Azizi
Keyword(s):  
Body Image ◽  
Focus Group ◽  
Qualitative Study ◽  
Physical Functioning ◽  
Bone Structure ◽  
Qualitative Content Analysis ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Main Components ◽  
Main Component

Abstract Background: This study investigates main components of body image from the perspectives of Iranian boys and girls. Methods: A qualitative approach was used to identify the main components of body image in Iranian adolescents. A total of 13 semi-structured focus group discussions were conducted with 84 adolescents (42 girls and 42 boys), aged 15–18 years. All focus group discussions were audio recorded and transcribed verbatim, followed by a qualitative content analysis of the data.Results: The mean age and BMI of participants were 16.2±0.9 years and 24.3±8.0 kg/m2 respectively. Regarding main components of body image, three main themes emerged from the data: 1) perceived face/hair, which included three subthemes-facial features, facial shape/form and hair, 2) perceived body, which included three subthemes-body size, body shape and bone structure and 3) perceived physical functioning which included three subthemes-physical ability, physical health and voice tone. Among mentioned themes, perceived body was the concept which was most frequently addressed by both adolescent boys and girls. When adolescents were talking about their bodies, girls more frequently mentioned their faces and its components, while boys tended to talk more about their physical functioning. Conclusion: This qualitative study provide further insight into the components of body image as perceived by Iranian boys and girls. Current findings indicated that besides those features that focused on body appearance and its aesthetic aspects, physical functioning was another main component of perceived body image by participants. These findings can contribute to the design and implementation of effective interventions aiming at improving body image and its related disorders in Iranian adolescents.

scholarly journals Cultural Perceptions of Child Abuse in Terms of Parents Perspective a Qualitative Study in Indonesia

2020 ◽  
Author(s):  
Reizkiana Feva Kosmah Dewi ◽  
Meita Dhamayanti ◽  
Sri Endah Rahayuningsih ◽  
Kuswandewi Mutyara ◽  
Nita Arisanti ◽  
...  
Keyword(s):  
High School ◽  
Child Abuse ◽  
Focus Group ◽  
Qualitative Study ◽  
Health Workers ◽  
Qualitative Content Analysis ◽  
World Health ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Cultural Perceptions

Abstract Background Child abuse (CA) is a serious problem and difficult to detect. According to World Health Organization (WHO), CA is responsible on 950,000 deaths in children aged below 18 every year. As many cultures as various of CA among parents inside. This research aims to determine the cultural perceptions of child abuse in terms of parents in Indonesia. Method A qualitative study using focus group discussions was conducted to thirty one parents that selected purposively. The discussion centered about CA definition, classification, and frequency, level of CA (mild, moderate, and severe), the difference between violence and discipline. The focus group discussions divided in to 3 groups level education, Elementary/Junior high school, senior high school, and bachelor’s degree. The process offocus group discussion were recorded, transcribed, and analyzed using manifest qualitative content analysis. Results Every cultures in Indonesia perceived that CA is a form of parents’ emotion which lead to injure children physically and mentally. Indonesian cultures were not familiar with neglect and exploitation. Participants’ opinion regarding level of violence can be categorized as severe if leaving wounds, need to be hospitalized, and visumed. The parents assumed as CA if occurred more than twice and/or leaving marks. The discipline’s ussualy purpose is not to mistreat, but for goods, character building, and educating the children. Conclusions Cultural perceptions of parents about CA is a form of parents’ emotion which lead to injure children physically and mentally. The community and health workers should be aware to decrease morbidity and mortality of CA

scholarly journals Cultural Perceptions of Child Abuse in Terms of Parents Perspective a Qualitative Study in Indonesia

2019 ◽  
Author(s):  
Reizkiana Feva Kosmah Dewi ◽  
Meita Dhamayanti ◽  
Sri Endah Rahayuningsih ◽  
Kuswandewi Mutyara ◽  
Nita Arisanti ◽  
...  
Keyword(s):  
High School ◽  
Child Abuse ◽  
Focus Group ◽  
Qualitative Study ◽  
Health Workers ◽  
Qualitative Content Analysis ◽  
World Health ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Cultural Perceptions

Abstract Background Child abuse (CA) is a serious problem and difficult to detect. According to World Health Organization (WHO), CA is responsible on 950,000 deaths in children aged below 18 every year. As many cultures as various of CA among parents inside. This research aims to determine the cultural perceptions of child abuse in terms of parents in Indonesia. Method A qualitative study using focus group discussions was conducted to thirty one parents that selected purposively. The discussion centered about CA definition, classification, and frequency, level of CA (mild, moderate, and severe), the difference between violence and discipline. The focus group discussions divided in to 3 groups level education, Elementary/Junior high school, senior high school, and bachelor’s degree. The process offocus group discussion were recorded, transcribed, and analyzed using manifest qualitative content analysis. Results Every cultures in Indonesia perceived that CA is a form of parents’ emotion which lead to injure children physically and mentally. Indonesian cultures were not familiar with neglect and exploitation. Participants’ opinion regarding level of violence can be categorized as severe if leaving wounds, need to be hospitalized, and visumed. The parents assumed as CA if occurred more than twice and/or leaving marks. The discipline’s ussualy purpose is not to mistreat, but for goods, character building, and educating the children. Conclusions Cultural perceptions of parents about CA is a form of parents’ emotion which lead to injure children physically and mentally. The community and health workers should be aware to decrease morbidity and mortality of CA

scholarly journals Factors affecting academic self-efficacy and learning experiences of pharmacy students: Insights from a qualitative study in Zambia

2021 ◽  
pp. 133-144
Author(s):  
Aubrey Chichonyi Kalungia ◽  
Micheal Chigunta ◽  
James Sichone ◽  
Bugewa Apampa ◽  
Sarah Marshall ◽  
...  
Keyword(s):  
Focus Group ◽  
Qualitative Study ◽  
Self Efficacy ◽  
Learning Experiences ◽  
Educational Programme ◽  
Pharmacy Students ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Factors Affecting ◽  
Academic Self Efficacy

Background: Factors influencing how pharmacy students learn and experience pharmaceutical education have not been elucidated in Zambia. Aim: To elucidate contextual factors affecting academic self-efficacy and learning experiences among undergraduate pharmacy students at a public university in Zambia. Methods: A qualitative study utilising focus group discussions was conducted at the University of Zambia. Thirty-two undergraduate pharmacy students participated in four focus group discussions. Qualitative data were thematically analysed. Results: Four themes and eight sub-themes emerged from the data. Notional time management, learning style, and motivation; educational programme-related factors such as course load, the pace of teaching; the learning environment; and assessment practices affected undergraduate pharmacy students’ self-efficacy and learning experiences. Conclusion: Addressing the student-related, educational programme-related, and the learning environment factors identified in this study will contribute to the improvement of undergraduate pharmacy students’ learning experiences. This is premised to improve their educational outcomes and future practice of pharmaceutical care.

scholarly journals Marginalization of Professionalism in Clinical Settings; A qualitative study at Tehran University of Medical Sciences

2020 ◽  
Author(s):  
Fateme Alipour ◽  
Zahra Shahvari
Keyword(s):  
Focus Group ◽  
Qualitative Study ◽  
Faculty Members ◽  
Professional Behavior ◽  
Clinical Settings ◽  
Medical Sciences ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Management Level ◽  
Management Issues

Background: Management-level challenges are among the factors that undermine the individuals' adherence to professional behavior in clinical settings. This study investigated glitches of the management system in clinical settings from the perspective of staff, faculty members, and medical students/residents in hospitals affiliated to Tehran University of Medical Sciences. Methods: This qualitative study was conducted in 2 parts by exploring the viewpoints of personnel and physicians. In this regard, 8 focus group discussions were performed with 85 faculty members, clinical residents, and interns. Furthermore, 15 focus group discussions were held with 165 staffs. Available sampling method was applied to collect the participants and the data were analyzed using the content analysis method. Results: A total of 22 focus-group discussions were conducted with 250 participants; Participants' age ranged from 24 to 65 years. Participants' education levels varied from diploma to postgraduate for the staff and from medical student to sub-specialist for the physicians. Finally, management-level barriers, which undermine the staffs' ability to adhere to professional behavior in clinical settings were explained with 315 codes, 12 subcategories, and 2 main categories of "macro management issues " and "hospital management issues". Conclusion: Managers are required to consider providing a proper context for enforcing the professional behavior law, selecting middle managers based on their empowerment in performing the professional behaviors, prioritizing the professional behavior in policy making, and promoting the professional behavior in an administrative system consistent with the health system. In selecting the hospital managers, authorities are recommended to consider the managers' professional behavior and power in implementing the professionalism leadership. Moreover, the possibility of conducting professional behavior should be considered in making the policies.

scholarly journals Persepsi Ibu Terhadap Iklan Vaksin Measles Rubella (MR)

2019 ◽  
Vol 1 (1) ◽  
pp. 1
Author(s):  
Muslimah Muslimah ◽  
Dian Ayubi
Keyword(s):  
Public Health ◽  
Health Promotion ◽  
Focus Group ◽  
Data Collection ◽  
Qualitative Study ◽  
Electronic Media ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Data Collection Process ◽  
Depth Interviews

Measles and Rubella (MR) is a disease that is highly contagious and usually occurs in children aged 9 months until the age of 15 years. One effort that can be done to reduce the incidence of the disease is through health promotion about the importance of immunization. Purpose the promotion was packaged in the form of advertisements on electronic media with the aim of building perceptions that the importance of immunization for public health. Methods this research was a qualitative study with a method of collecting in-depth interviews and focus group discussions. The number of informants in this study was 19 mothers who had children aged 0.9 to 15 years in one of the Puskesmas work areas in Merangin District, Jambi Province. Before the data collection process, all informants were asked to see two MR immunization advertisements. Results that immunization advertisements are interesting and contain humor. Meanwhile, informants who did not give MR immunization to their children tended to be negative towards MR immunization advertisements and tended to ignore the effects that arose if they did not give immunizations to their children. The recommendation that MR immunization advertisements should avoid using the fear arousal method and use the pay off idea method in those ads

Sign in / Sign up

Export Citation Format

Share Document