Measuring quality of life after intensive care using the Arabic version for Morocco of the EuroQol 5 Dimensions

Objective: This study compared the oral health-related quality of life (OHRQoL) among children with a cleft lip with or without a cleft palate (CL±P) and a group of their peers. The reliability of the Arabic version of the Child Oral Health Impact Profile Questionnaire (COHIP) was also assessed. Design: A cross-sectional study. Settings: Cleft clinic in a private dental college in Omdurman City, Sudan. Patients: In all, 75 children (mean age 11.3 ± 2.5 years) with a history of CL±P and a group of 150 school children without CL±P (mean age 11.4 ± 2.6 years). Main Outcome Measures: Overall and subscale scores on the Arabic version of the COHIP. Results: Test–retest reliability of COHIP in Arabic was high with an interclass correlation coefficient >0.8. Cronbach α value internal consistency was 0.8 for the total scale and between 0.7 and 0.8 for the subscales. The COHIP score was 89.41 ± 19.97 in children with CL±P and 122.82 ± 9.45 for the control group. Children with CL±P had significantly lower scores on the overall and all subscales when compared to children without CL±P ( P ≤ .001). Among the children with CL±P, there were no statistically significant differences on the COHIP based on age and/or gender ( P ≥ .05). Conclusions: Children with CL±P had a relatively high OHRQoL, which was lower than that of their peers without CL±P in both the overall scale and all subscales. Gender and age differences had no significant impact on the OHRQoL. The COHIP Arabic version showed appropriate reliability.

Download Full-text

Assessing the impact of chemotherapy-induced nausea and vomiting on patients’ quality of life: An Arabic version of the Functional Living Index-Emesis

Journal of Oncology Pharmacy Practice ◽

10.1177/1078155221998447 ◽

2021 ◽

pp. 107815522199844

Author(s):

Abdullah M Alhammad ◽

Nora Alkhudair ◽

Rawan Alzaidi ◽

Latifa S Almosabhi ◽

Mohammad H Aljawadi

Keyword(s):

Quality Of Life ◽

Cancer Patients ◽

Arabic Language ◽

Nausea And Vomiting ◽

Cancer Center ◽

Arabic Version ◽

Patient Reported ◽

Arabic Speaking ◽

The Impact

Introduction Chemotherapy-induced nausea and vomiting is a serious complication of cancer treatment that compromises patients’ quality of life and treatment adherence, which necessitates regular assessment. Therefore, there is a need to assess patient-reported nausea and vomiting using a validated scale among Arabic speaking cancer patient population. The objective of this study was to translate and validate the Functional Living Index-Emesis (FLIE) instrument in Arabic, a patient-reported outcome measure designed to assess the influence of chemotherapy-induced nausea and vomiting on patients’ quality of life. Methods Linguistic validation of an Arabic-language version was performed. The instrument was administered to cancer patients undergoing chemotherapy in a tertiary hospital's cancer center in Saudi Arabia. Results One-hundred cancer patients who received chemotherapy were enrolled. The participants’ mean age was 53.3 ± 14.9 years, and 50% were female. Half of the participants had a history of nausea and vomiting with previous chemotherapy. The Cronbach coefficient alpha for the FLIE was 0.9606 and 0.9736 for nausea and vomiting domains, respectively, which indicated an excellent reliability for the Arabic FLIE. The mean FLIE score was 110.9 ± 23.5, indicating no or minimal impact on daily life (NIDL). Conclusions The Arabic FLIE is a valid and reliable tool among the Arabic-speaking cancer population. Thus, the Arabic version of the FLIE will be a useful tool to assess the quality of life among Arabic speaking patients receiving chemotherapy. Additionally, the translated instrument will be a useful tool for future research studies to explore new antiemetic treatments among cancer patients.

Download Full-text

The association of intensive care with utilization and costs of outpatient healthcare services and quality of life

PLoS ONE ◽

10.1371/journal.pone.0222671 ◽

2019 ◽

Vol 14 (9) ◽

pp. e0222671 ◽

Cited By ~ 1

Author(s):

Robert P. Kosilek ◽

Sebastian E. Baumeister ◽

Till Ittermann ◽

Matthias Gründling ◽

Frank M. Brunkhorst ◽

...

Keyword(s):

Quality Of Life ◽

Intensive Care ◽

Healthcare Services

Download Full-text

Factors Associated With Health-Related Quality of Life Changes in Survivors to Pediatric Intensive Care

Pediatric Critical Care Medicine ◽

10.1097/pcc.0b013e31826012b4 ◽

2013 ◽

Vol 14 (1) ◽

pp. e8-e15 ◽

Cited By ~ 11

Author(s):

Francisco Cunha ◽

Teresa Mota ◽

Armando Teixeira-Pinto ◽

Leonor Carvalho ◽

João Estrada ◽

...

Keyword(s):

Quality Of Life ◽

Intensive Care ◽

Pediatric Intensive Care ◽

Life Changes ◽

Health Related Quality ◽

Factors Associated ◽

Related Quality ◽

Health Related

Download Full-text

Validation of the Arabic version of the “12-item short-form health survey” (SF-12) in a sample of Lebanese adults

Archives of Public Health ◽

10.1186/s13690-021-00579-3 ◽

2021 ◽

Vol 79 (1) ◽

Author(s):

Chadia Haddad ◽

Hala Sacre ◽

Sahar Obeid ◽

Pascale Salameh ◽

Souheil Hallit

Keyword(s):

Quality Of Life ◽

Principal Component Analysis ◽

Psychometric Properties ◽

Short Form ◽

Principal Component ◽

Arabic Version ◽

Short Form Health Survey ◽

Form Health ◽

Short Form Health

Abstract Background In clinical practice, quality of life measures can be used alongside some types of assessment to give valuable information that can identify areas that influence an individual and help the clinician make the best healthcare choices. This study aimed to investigate the psychometric properties of the Arabic version of the 12-item short-form health survey (SF-12) in a sample of Lebanese adults. Methods This cross-sectional study performed between July and November 2019 recruited 269 participants. Cronbach’s alpha was used to assess the reliability of the SF-12 questionnaire, and a factor analysis using the principal component analysis was performed to confirm its construct validity. Results The mean score for the “physical component summary (PCS-12)” was 50.27 ± 8.94 (95 % CI: 49.18–51.36) and for the “Mental component summary (MCS-12)” was 44.95 ± 12.17 (95 % CI: 43.47–46.43). A satisfactory Cronbach’s alpha was found for the two components: MCS (α = 0.707) and PCS (α = 0.743). The principal component analysis converged over a two-factor solution (physical and mental), explaining a total variance of 55.75 %. Correlations between the SF-12 scales and single items were significant, showing a good construct validity. The “physical functioning”, “role physical”, “bodily pain”, and “general health” subscales were highly associated with “PCS-12”, while the “vitality”, “social functioning”, “role emotional”, and “mental health” subscales were more associated with MCS-12. Conclusions The Arabic version of the SF-12 is a reliable, easy-to-use, and valid tool to measure health-related quality of life in the general population. Future studies using a larger sample size and focusing on questionnaire psychometric properties are necessary to confirm our findings.

Download Full-text

Measuring quality of life and identifying what is important to Jordanian living with multiple sclerosis using the Arabic version of the patient‐generated index

Physiotherapy Research International ◽

10.1002/pri.1893 ◽

2021 ◽

Author(s):

Ala’ S. Aburub ◽

Hanan Khalil ◽

Alham Al‐Sharman ◽

Khalid El‐Salem

Keyword(s):

Quality Of Life ◽

Multiple Sclerosis ◽

Arabic Version ◽

Patient Generated Index

Download Full-text

Ethical Decisions in Neonatal Intensive Care Units: The Dutch Experience

PEDIATRICS ◽

10.1542/peds.90.5.729 ◽

1992 ◽

Vol 90 (5) ◽

pp. 729-732

Author(s):

Pieter J. J. Sauer

Keyword(s):

Quality Of Life ◽

Intensive Care ◽

The Netherlands ◽

Neonatal Intensive Care ◽

Fatal Outcome ◽

Modern Technology ◽

Withholding Treatment ◽

Intensive Care Treatment ◽

Best Interest

Modern technology makes it possible to keep more sick, extremely small, and vulnerable neonates alive. Many neonatologists in the Netherlands believe they should be concerned not only about the rate of survival of their patients, but also about the way the graduates of their care do, in fact, survive beyond the neonatal period. In most cases, we use all available methods to keep newborns alive. However, in some instances there is great concern about the quality of life, if the newborn should survive; here questions do arise about continuing or withholding treatment. In this commentary, I present my impression of the opinions held by a majority of practicing neonatologists in the Netherlands, as well as some personal thoughts and ideas. Recently, a committee convened by the Ministers of Justice and Health in the Netherlands issued an official report regarding the practice of euthanasia and the rules of medical practice when treatment is withheld.1 In this report of more than 250 pages, only 2 pages focus on the newborn. The following conclusions were made in this small section of the report. In almost one half of the instances of a fatal outcome in a neonatal intensive care unit in the Netherlands, discussions about sustaining or withholding treatment did take place at some stage of the hospital stay. A consideration of the future quality of life was always included in the discussion. The committee agreed with doctors interviewed for the report that there are circumstances in which continuation of intensive care treatment is not necessarily in the best interest of a neonate.

Download Full-text

Post–Intensive Care Syndrome in Family Decision Makers of Long-term Acute Care Hospital Patients

American Journal of Critical Care ◽

10.4037/ajcc2017414 ◽

2017 ◽

Vol 26 (5) ◽

pp. 416-422 ◽

Cited By ~ 3

Author(s):

Amy Petrinec

Keyword(s):

Quality Of Life ◽

Intensive Care ◽

Acute Care ◽

Acute Care Hospitals ◽

Summary Score ◽

Decision Makers ◽

Family Decision ◽

Post Intensive Care Syndrome

Background Family members of critically ill patients experience indications of post–intensive care syndrome, including anxiety, depression, and posttraumatic stress disorder. Despite increased use of long-term acute care hospitals for critically ill patients, little is known about the impact of long-term hospitalization on patients’ family members. Objectives To examine indications of post–intensive care syndrome, coping strategies, and health-related quality of life among family decision makers during and after patients’ long-term hospitalization. Methods A single-center, prospective, longitudinal descriptive study was undertaken of family decision makers of adult patients admitted to long-term acute care hospitals. Indications of post–intensive care syndrome and coping strategies were measured on the day of hospital admission and 30 and 60 days later. Health-related quality of life was measured by using the Short Form-36, version 2, at admission and 60 days later. Results The sample consisted of 30 family decision makers. On admission, 27% reported moderate to severe anxiety, and 20% reported moderate to severe depression. Among the decision makers, 10% met criteria for a provisional diagnosis of posttraumatic stress disorder. At admission, the mean physical summary score for quality of life was 47.8 (SD, 9.91) and the mean mental summary score was 48.00 (SD, 10.28). No significant changes occurred during the study period. Problem-focused coping was the most frequently used coping strategy at all time points. Conclusion Family decision makers of patients in long-term acute care hospitals have a significant prevalence of indications of post–intensive care syndrome.

Download Full-text