scholarly journals Health care professionals’ perspectives on self-management for people with Parkinson’s: qualitative findings from a UK study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Megan Armstrong ◽  
Remco Tuijt ◽  
Joy Read ◽  
Jennifer Pigott ◽  
Nathan Davies ◽  
...  

Abstract Background Parkinson’s disease is a long-term, complex health condition. To improve or maintain quality of life, people with Parkinson’s can have an active involvement in their care through self-management techniques. Given the complexity and individualization of self-management, people with Parkinson’s will need support and encouragement from their healthcare professionals (HCPs). Despite the key role HCPs have in this, research has seldom explored their perspectives and understanding of self-management for people with Parkinson’s. Methods Multi-disciplinary teams providing care for people with Parkinson’s across London, Coventry and Hertfordshire were approached and took part in either one of four focus groups or individual interviews. Forty-two HCPs, including a range of specialist doctors, general practitioners, allied health professionals, nurses, and social workers, took part in this study. Interviews were transcribed and analysed using thematic analysis to identify themes. Results Four themes were developed from the data: 1) Empowerment of patients through holistic care and being person-centred; 2) Maximising motivation and capability for patients, for example using asset based approaches and increasing opportunities; 3) importance of empowerment of carers to support self-management and 4) contextual barriers to self-management such as the social context. Conclusions This study is the first to explore the perspectives of HCPs on self-management in people with Parkinson’s. Our findings have identified important considerations surrounding empowerment, motivation, carers and contextual barriers to better understand how we enable effective self-management techniques in people with Parkinson’s. Research should build on these findings on to develop acceptable and effective self-management tools for use in practice with people affected by Parkinson’s.

2021 ◽  
Vol 4 (1) ◽  
pp. 116-123
Author(s):  
Mita Sri Handayani ◽  
Muhammad Nur Wangid ◽  
Andre Julius

The background of the current study is the urgency of possessing good social cognition to adapt to the social changes that are happening quickly. Weak social cognition makes individuals less in empathy, aggressive or unhappy in their daily life. The link between self-management and social cognition lies in cognitive adjustment. Hence, the authors think it is important to do research that focuses on the implementation of counseling with self-management techniques in developing social cognition. The authors aimed to investigate the effectiveness of self-management in improving social cognition. The present study used one group pretest-posttest quasi-experiment. We invited 10 students from Universitas Ma'soem, Indonesia to participate in the experiment. They were selected based on a low social cognition score after filling the self-report of nineteen items social cognition scale. The results showed counseling with self-management techniques effective in improving university students' social cognition. Besides, limitations and recommendations are discussed.


10.2196/14985 ◽  
2019 ◽  
Vol 21 (12) ◽  
pp. e14985 ◽  
Author(s):  
Matthijs de Wit ◽  
Mirella Kleijnen ◽  
Birgit Lissenberg-Witte ◽  
Cornelia van Uden-Kraan ◽  
Kobe Millet ◽  
...  

Background Supporting patients to engage in (Web-based) self-management tools is increasingly gaining importance, but the engagement of health care professionals is lagging behind. This can partly be explained by resistance among health care professionals. Objective The aim of this study was to investigate drivers of resistance among oncology nurses toward Web-based self-management tools in cancer care. Methods Drawing from previous research, combining clinical and marketing perspectives, and several variables and instruments, we developed the Resistance to Innovation model (RTI-model). The RTI-model distinguishes between passive and active resistance, which can be enhanced or reduced by functional drivers (incompatibility, complexity, lack of value, and risk) and psychological drivers (role ambiguity, social pressure from the institute, peers, and patients). Both types of drivers can be moderated by staff-, organization-, patient-, and environment-related factors. We executed a survey covering all components of the RTI-model on a cross-sectional sample of nurses working in oncology in the Netherlands. Structural equation modeling was used to test the full model, using a hierarchical approach. In total, 2500 nurses were approached, out of which 285 (11.40%) nurses responded. Results The goodness of fit statistic of the uncorrected base model of the RTI-model (n=239) was acceptable (χ21=9.2; Comparative Fit Index=0.95; Tucker Lewis index=0.21; Root Mean Square Error of Approximation=0.19; Standardized Root Mean Square=0.016). In line with the RTI-model, we found that both passive and active resistance among oncology nurses toward (Web-based) self-management tools were driven by both functional and psychological drivers. Passive resistance toward Web-based self-management tools was enhanced by complexity, lack of value, and role ambiguity, and it was reduced by institutional social pressure. Active resistance was enhanced by complexity, lack of value, and social pressure from peers, and it was reduced by social pressure from the institute and patients. In contrast to what we expected, incompatibility with current routines was not a significant driver of either passive or active resistance. This study further showed that these drivers of resistance were moderated by expertise (P=.03), managerial support (P=.004), and influence from external stakeholders (government; P=.04). Conclusions Both passive and active resistance in oncology nurses toward Web-based self-management tools for patients with cancer are driven by functional and psychological drivers, which may be more or less strong, depending on expertise, managerial support, and governmental influence.


2019 ◽  
Author(s):  
Matthijs de Wit ◽  
Mirella Kleijnen ◽  
Birgit Lissenberg-Witte ◽  
Cornelia van Uden-Kraan ◽  
Kobe Millet ◽  
...  

BACKGROUND Supporting patients to engage in (Web-based) self-management tools is increasingly gaining importance, but the engagement of health care professionals is lagging behind. This can partly be explained by resistance among health care professionals. OBJECTIVE The aim of this study was to investigate drivers of resistance among oncology nurses toward Web-based self-management tools in cancer care. METHODS Drawing from previous research, combining clinical and marketing perspectives, and several variables and instruments, we developed the Resistance to Innovation model (RTI-model). The RTI-model distinguishes between passive and active resistance, which can be enhanced or reduced by functional drivers (incompatibility, complexity, lack of value, and risk) and psychological drivers (role ambiguity, social pressure from the institute, peers, and patients). Both types of drivers can be moderated by staff-, organization-, patient-, and environment-related factors. We executed a survey covering all components of the RTI-model on a cross-sectional sample of nurses working in oncology in the Netherlands. Structural equation modeling was used to test the full model, using a hierarchical approach. In total, 2500 nurses were approached, out of which 285 (11.40%) nurses responded. RESULTS The goodness of fit statistic of the uncorrected base model of the RTI-model (n=239) was acceptable (χ<sup>2</sup><sub>1</sub>=9.2; Comparative Fit Index=0.95; Tucker Lewis index=0.21; Root Mean Square Error of Approximation=0.19; Standardized Root Mean Square=0.016). In line with the RTI-model, we found that both passive and active resistance among oncology nurses toward (Web-based) self-management tools were driven by both functional and psychological drivers. Passive resistance toward Web-based self-management tools was enhanced by complexity, lack of value, and role ambiguity, and it was reduced by institutional social pressure. Active resistance was enhanced by complexity, lack of value, and social pressure from peers, and it was reduced by social pressure from the institute and patients. In contrast to what we expected, incompatibility with current routines was not a significant driver of either passive or active resistance. This study further showed that these drivers of resistance were moderated by expertise (<italic>P</italic>=.03), managerial support (<italic>P</italic>=.004), and influence from external stakeholders (government; <italic>P</italic>=.04). CONCLUSIONS Both passive and active resistance in oncology nurses toward Web-based self-management tools for patients with cancer are driven by functional and psychological drivers, which may be more or less strong, depending on expertise, managerial support, and governmental influence.


2021 ◽  
pp. 174239532110650
Author(s):  
Kristin Heggdal ◽  
Natalie Stepanian ◽  
Bjørg Frøysland Oftedal ◽  
Joshua B. Mendelsohn ◽  
Marie Hamilton Larsen

Objective Patients with chronic illness who are empowered and activated are more likely to engage in self-management in order to stabilise their condition and enhance their quality of life. This study aimed to explore Health Care Professional's (HCP) assessment of a person-centered intervention called ‘The Bodyknowledging Program’ (BKP) for the facilitation of empowerment and patient activation in the context of chronic illness. Methods This study employed a qualitative process evaluation after programme completion. Data was collected through focus-groups and individual interviews with HCPs and content analysis was used in the analysis. Results Four themes were identified: 1) Shifts towards the patient-perspective, 2) The value of a patient-centered conceptual framework, 3) Patient activation through dialogue based support and 4) Challenging competencies. Discussion: This study introduces ‘The Bodyknowledging Program’ as a useful tool to uncover patients’ needs and to activate and empower them to take more responsibility for their health through self-care management. The usability of the new intervention depends on HCP's ability to develop their counselling skills and changing their approach towards utilising patients’ individual resources in the promotion of their health.


2016 ◽  
Vol 14 (4) ◽  
pp. 59-91
Author(s):  
Iwona Krzewska ◽  
Grażyna Dolińska-Zygmunt

Abstract This article seeks to explore the determinants of the sense of body boundaries and its implications for body self- relation in psychosomatic patients - patients with irritable bowel syndrome (IBS) as well as psoriasis and atopic dermatitis. Stepwise regression analysis and paths analysis were carried out. The most significant condition affecting the strength of the sense of body boundaries among IBS patients is their sensitivity to the violation of self- boundaries in the dimension of the social self. Likewise, among patients with skin diseases, the most important factor is their style of cognitive functioning (field independence). Furthermore, both similarities and differences have been found in the groups involved in the research in terms of determinants of the sense of body boundaries, as well as in comparison with the results from healthy patients. The results which were obtained indicated that the greater the strength of the sense of body boundaries in IBS patients, the greater its positive impact on the assessment of the patients’ own health, their physical attractiveness and comfort from touch, in a similar way to that in healthy people. As far as patients with psoriasis and atopic dermatitis are concerned, the sense of body boundaries was revealed to have a positive impact on the level of health orientation: active involvement with either maintaining or improving the health condition.


2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Yuliati Hasanah

Abstract Self management is a strategy in which the cognitive behavioral approach in the application, subject to the expected full attendance during the intervention process. NAP is an HIV patient and had undergone antiretroviral therapy. Saturation, fatigue experienced by NAP during the ARV therapy, so found some times subject medical leave provisions. Healthy behavior in a sick person (in this case a person suffering from HIV) one of which is adherent to treatment that must be endured. This research aims to gain result the applying of self management techniques against medication adherence of NAP patient with HIV in the Balai Rehabilitasi Sosial Pamardi PutraYogyakarta. This study focuses on the application of self-management techniques that include self-monitoring, self reinforcement and self evaluation of medication adherence that includes aspects of belief, accept and act on the subject. Researchers used quantitative approach by using the method of single subject design N = 1 model A-B-A now where the measurements and observations made in each phase. The subject in this study as many as one person with initials NAP. The purpose of this study is to look at the effect of applying the self management technique against NAP’s medication adherence. The results of this study indicate that the application of self-management techniques have a positive effect in improving NAP’s medication adherence with skor of 2SD smaller than skor of the mean phase difference A2 and A1. Stages through the application of this technique is extracting and determining value, set goals, formulate an action plan, the implementation of self-monitoring, self reinforcement and self evaluation. Based on the analysis of the results of the study concluded that the motivation, participation and discipline will determine the effectiveness of the intervention. Support of family members is also important to support the commitment of the subjects in this therapy.Keywords: behavior modification, HIV, medication adherence, self-management AbstrakManusia dapat memutuskan dan menentukan dirinya sendiri. Berdasarkan asumsi tersebut teknik self management merupakan salah satu teknik modifikasi perilaku yang memfokuskan pada regulasi diri. Self management merupakan salah satu strategi dalam pendekatan perilaku kognitif dimana dalam penerapannya, subjek diharapkan kehadiran penuh selama proses intervensi. NAP adalah seorang penderita HIV dan telah menjalani terapi ARV. Kejenuhan, kelelahan dialami NAP selama mengikuti terapi ARV, sehingga ditemukan beberapa kali subjek meninggalkan ketentuan-ketentuan medis. Perilaku sehat pada orang sakit (dalam kasus ini seseorang yang menderita HIV) salah satunya adalah patuh terhadap pengobatan yang harus dijalani. Penelitian ini bertujuan untuk memperoleh hasil dari penerapan teknik self management terhadap kepatuhan berobat subjek NAP sebagai penderita HIV di Balai Rehabilitasi Sosial Pamardi Putra Yogyakarta. Penelitian ini menitikberatkan pada penerapan teknik self management yang mencakup self monitoring, self reinforcement dan self evaluation terhadap kepatuhan berobat yang mencakup aspek mempercayai (belief), menerima (accept) dan tindakan (act) pada subjek. Peneliti menggunakan pendekatan kuantitatif dengan menggunakan metode single subject design N=1 dengan model A-B-A dinama pengukuran dan pengamatan dilakukan di setiap fase. Subjek dalam penelitian ini sebanyak satu orang dengan inisial NAP. Tujuan penelitian ini adalah untuk melihat pengaruh penerapan teknik self management terhadap kepatuhan berobat subjek NAP. Hasil penelitian ini menunjukkan bahwa penerapan teknik self management mempunyai pengaruh positif dalam meningkatkan kepatuhan berobat subjek NAP dengan nilai 2SD lebih kecil dari selisih mean fase A2 dan A1. Tahapan yang dilalui dalam penerapan teknik ini adalah penggalian dan penentuan value, menetapkan goals, merumuskan rencana tindakan, pelaksanaan self monitoring, self reinforcement dan self evaluation. Berdasarkan analisa hasil penelitian disimpulkan bahwa motivasi, peran serta dan kedisiplinan akan menentukan efektifitas intervensi. Dukungan anggota keluarga juga penting untuk mendukung komitmen subjek dalam terapi ini.Kata kunci:  HIV, kepatuhan berobat, modifikasi perilaku, self management


Author(s):  
Alfred F. S. Owusu ◽  
Alhassan Abdullah ◽  
Godfred H. Pinto ◽  
Hajara Bentum ◽  
Janet Tein Ni Moo ◽  
...  

In this study, we attempted to move beyond the skewed discussions on stigma to unravel other social consequences that are experienced by persons who have recovered from COVID-19. We conducted a documentary review of published news reports from 14 highly ranked news portals in Ghana and Malaysia (published between 1st January 2020 and 30th August 2020) that contained personal accounts from the recovered patients about their lived experiences with the virus and social consequences encountered after recovery. Narratives from the recovered patients were extracted and analyzed following the narrative thematic analysis procedure. Common themes identified from the narratives included: 1) Stigma impacting mental health, 2) Assault and abuse 3) Experiences of treatment. The findings show the need for interprofessional collaboration between social and health care professionals such as social workers, community health workers, medical practitioners and psychologists to prevent and address issues of abuse and other social consequences experienced by COVID-19 survivors.


1993 ◽  
Vol 21 (3) ◽  
pp. 275-279 ◽  
Author(s):  
John Turnbull

Polydipsia is a disorder that has received little attention in the research literature. Treatment has been mainly confined to medical or pharmacological intervention. Few studies have reported the use of contingency management techniques and none have sought to encourage self-management. This study shows how such a procedure brought about a significant change in rates of water drinking in a thirty-one year old man with a mild learning disability.


2021 ◽  
pp. 088832542097764
Author(s):  
Jolanta Arcimowicz ◽  
Mariola Bieńko ◽  
Beata Łaciak

Within sociological literature, including that which analyses systemic changes in the countries of the former Eastern Bloc, denunciation is one of the least studied issues, both empirically and theoretically. In Poland after the political transformation, as well as in other post-communist countries, the problem of dealing with security service and secret police informers and collaborators has not gone away. News media report a rapidly growing number of denunciations directed to various institutions and administrative offices, and legal regulations regarding denunciations have also appeared. In public discourse, denunciation and whistleblowing are increasingly often equated. Encouragement to inform about aberrations, confronted with the consequences that whistleblowers face, shows the legal and social vacuum around the institution of whistleblowing in Poland. This article, in response to questions about the modern social image of denunciation, is based on analysis of in-depth individual interviews conducted during 2015–2017 with children, adults, and administrative officials in three Polish cities. The results show that both children and adults treat denunciation as a form of harming others, though they do differentiate their moral judgments depending on the delator’s intention, but they rarely attribute any motive other than personal gain to whistleblowers’ actions. Finally, the existing administrative acquiescence and institutional support for denunciation are sometimes interpreted in terms of the weakness of democracy, immaturity of civic society, and the legacy of a totalitarian state.


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