scholarly journals Putting patients first: development of a patient advocate and general practitioner-informed model of patient-centred care

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Bryce Brickley ◽  
Lauren T. Williams ◽  
Mark Morgan ◽  
Alyson Ross ◽  
Kellie Trigger ◽  
...  
Keyword(s):  
General Practice ◽  
Focus Groups ◽  
Real World ◽  
Qualitative Description ◽  
Patient Centred Care ◽  
The Real ◽  
Patient Advocate ◽  
South Wales ◽  
Patient Advocates ◽  
Future Work

Abstract Background Patients, providers and health care organisations benefit from an increased understanding and implementation of patient-centred care (PCC) by general practitioners (GPs). This study aimed to evaluate and advance a theoretical model of PCC developed in consultation with practising GPs and patient advocates. Methods Qualitative description in a social constructivist/interpretivist paradigm. Participants were purposively sampled from six primary care organisations in south east Queensland/northern New South Wales, Australia. Participants engaged in focus group discussions where they expressed their perceptions, views and feelings of an existing PCC model. Data was analysed thematically using a constant-comparison approach. Results Three focus groups with 15 patient advocates and three focus groups with 12 GPs were conducted before thematic saturation was obtained. Three themes emerged: i) the model represents the ideal, ii) considering the system and collaborating in care and iii) optimising the general practice environment. The themes related to participants’ impression of the model and new components of PCC perceived to be experienced in the ‘real world’. The data was synthesised to produce an advanced model of PCC named, “Putting Patients First: A Map for PCC”. Conclusions Our revised PCC model represents an enhanced understanding of PCC in the ‘real world’ and can be used to inform patients, providers and health organisations striving for PCC. Qualitative testing advanced and supported the credibility of the model and expanded its application beyond the doctor-patient encounter. Future work could incorporate our map for PCC in tool/tool kits designed to support GPs and general practice with PCC.

scholarly journals Putting Patients First: Collaborative Development of a Map for Patient-Centred Care by General Practitioners

2020 ◽  
Author(s):  
Bryce Brickley ◽  
Lauren T. Williams ◽  
Mark Morgan ◽  
Alyson Ross ◽  
Kellie Trigger ◽  
...  
Keyword(s):  
General Practice ◽  
Focus Groups ◽  
General Practitioners ◽  
Real World ◽  
Qualitative Description ◽  
Patient Centred Care ◽  
The Real ◽  
South Wales ◽  
Data Saturation ◽  
Patient Advocates

Abstract Background: Patients, providers and health care organisations benefit from an increased understanding and implementation of patient-centred care (PCC) by general practitioners (GPs). This study aimed to evaluate and advance a theoretical model of PCC developed in consultation with practising GPs and patient advocates.Methods: Qualitative description in a social constructivist/interpretivist paradigm. Participants were purposively sampled from six primary care organisations in south east Queensland/northern New South Wales, Australia. Participants engaged in focus group discussions where they expressed their perceptions, views and feelings of an existing PCC model. Data was analysed thematically using a constant-comparison approach.Results: Three focus groups with 15 patient advocates and three focus groups with 12 GPs were conducted before data saturation was obtained. Three themes emerged: i) the model represents the ideal, ii) considering the system and collaborating in care and iii) optimising the general practice environment. The themes related to participants’ impression of the model and new components of PCC perceived to be experienced in the ‘real world’. The data was synthesised to produce an advanced model of PCC named, “Putting Patients First: A Map for PCC”.Conclusions: Our map represents an enhanced understanding of PCC in the ‘real world’ and can be used to inform patients, providers and health organisations striving for PCC. Qualitative testing advanced and supported the credibility of the model and expanded its application beyond the doctor-patient encounter. Future work could incorporate our map for PCC in tool/toolkits designed to support GPs and general practice with PCC.

scholarly journals Patient-centred care delivered by general practitioners: a qualitative investigation of the experiences and perceptions of patients and providers

2020 ◽  
pp. bmjqs-2020-011236
Author(s):  
Bryce Brickley ◽  
Lauren T Williams ◽  
Mark Morgan ◽  
Alyson Ross ◽  
Kellie Trigger ◽  
...  
Keyword(s):  
Focus Groups ◽  
General Practitioners ◽  
The Body ◽  
Qualitative Description ◽  
Comparative Approach ◽  
Future Research ◽  
Patient Centeredness ◽  
Patient Centred Care ◽  
South Wales ◽  
Patient Advocates

BackgroundPatient-centred care (PCC) is care that is respectful and responsive to the wishes of patients. The body of literature on PCC delivered by general practitioners (GPs) has increased steadily over time. There is an opportunity to advance the work on GP-delivered PCC through qualitative research involving both patients and providers.AimTo explore the perceptions and experiences of PCC by patient advocates and GPs.Design and settingQualitative description in a social constructivist paradigm. Participants were sampled from six primary care organisations in south east Queensland/northern New South Wales, Australia.MethodPurposive sampling was used to recruit English-speaking adult participants who were either practising GPs or patient advocates. Focus group sessions explored participants’ perceptions and experiences of PCC. Data were analysed thematically using a constant-comparative approach.ResultsThree focus groups with 15 patient advocates and three focus groups with 12 practising GPs were conducted before thematic saturation was obtained. Five themes emerged: (1) understanding of PCC is varied and personal, (2) valuing humanistic care, (3) considering the system and collaborating in care, (4) optimising the general practice environment and (5) needing support for PCC that is embedded into training.ConclusionPatient advocates’ and GPs’ understanding of PCC are diverse, which can hinder strategies to implement and sustain PCC improvements. Future research should explore novel interventions that expose GPs to unique feedback from patients, assess the patient-centeredness of the environment and promote GP self-reflection on PCC.

The Real-World Writing Project for Public Health Students: A Description and Evaluation

2020 ◽  
pp. 237337992092809
Author(s):  
Olivia S. Anderson ◽  
Ella August
Keyword(s):  
Public Health ◽  
Real World ◽  
Community Partner ◽  
Community Partners ◽  
The Real ◽  
Writing Project ◽  
Online Evaluation ◽  
Midwestern University ◽  
Future Work

Writing is a key skill for Public Health students, but instructors are not necessarily trained in how to teach writing. The Real-World Writing Project requires students to produce a writing project proposed by a community partner, for example, a report. The project includes multiple assignments that incorporate recommended characteristics for effective assigned writing. This article describes implementation of this project in two Public Health undergraduate courses at a large Midwestern University, including the type of products students produced, the number and type of community partners who participated, and student and community partner evaluations. Anonymous online evaluation surveys were distributed to community partners and students. We received responses from 19 community partners and 53 students. Partners were satisfied with the quality of 94% of the student products and were satisfied with their overall experience with the Real-World Writing Project (mean rating 5.14 on 6-point Likert-type scale, where 6 = extremely satisfied). Partners rated 85% of students as having satisfactory communication with them and were satisfied with the professionalism of 94% of students. Ninety-four percent of students reported being satisfied with the final product they produced and 84% of students indicated that working with their community partner was “very easy.” Students reported that the Real-World Writing Project was beneficial to them versus a more traditional assignment (mean response of 8.0 [ SD 2.3], where 1 represented the least and 10 represented the most satisfaction). Future work will include an evaluation of the project within graduate-level courses.

scholarly journals “I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes

2020 ◽  
Vol 7 (6) ◽  
pp. 911-914
Author(s):  
Allyson S Hughes ◽  
Jeoffrey Bispham ◽  
Ludi Fan ◽  
Magaly Nieves-Perez ◽  
Alicia H McAuliffe-Fogarty
Keyword(s):  
Type 1 Diabetes ◽  
Focus Groups ◽  
Real World ◽  
The Real ◽  
The Impact ◽  
Insight Into

Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study’s objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes.

scholarly journals Framework for developing algorithmic fairness

2020 ◽  
Vol 9 (4) ◽  
pp. 1550-1557
Author(s):  
Dedy Prasetya Kristiadi ◽  
Po Abas Sunarya ◽  
Melvin Ismanto ◽  
Joshua Dylan ◽  
Ignasius Raffael Santoso ◽  
...  
Keyword(s):  
Machine Learning ◽  
Social Science ◽  
Real World ◽  
Development Process ◽  
Multiple Points ◽  
The Real ◽  
Domain Expertise ◽  
Points Of View ◽  
And Gender ◽  
Future Work

In a world where the algorithm can control the lives of society, it is not surprising that specific complications in determining the fairness in the algorithmic decision will arise at some point. Machine learning has been the de facto tool to forecast a problem that humans cannot reliably predict without injecting some amount of subjectivity in it (i.e., eliminating the “irrational” nature of humans). In this paper, we proposed a framework for defining a fair algorithm metric by compiling information and propositions from various papers into a single summarized list of fairness requirements (guideline alike). The researcher can then adopt it as a foundation or reference to aid them in developing their interpretation of algorithmic fairness. Therefore, future work for this domain would have a more straightforward development process. We also found while structuring this framework that to develop a concept of fairness that everyone can accept, it would require collaboration with other domain expertise (e.g., social science, law, etc.) to avoid any misinformation or naivety that might occur from that particular subject. That is because this field of algorithmic fairness is far broader than one would think initially; various problems from the multiple points of view could come by unnoticed to the novice’s eye. In the real world, using active discriminator attributes such as religion, race, nation, tribe, religion, and gender become the problems, but in the algorithm, it becomes the fairness reason.

scholarly journals Assessing Resolvability and Consistency in OBO Foundry Ontologies: Pilot Study

2021 ◽  
Author(s):  
Shuxin Zhang ◽  
Nirupama Benis ◽  
Ronald Cornet
Keyword(s):  
Pilot Study ◽  
Real World ◽  
Scale Up ◽  
Point Of View ◽  
Human Beings ◽  
The Real ◽  
Common Problems ◽  
Future Work

Ontologies listed in the OBO Foundry are often regarded as reliable choices to be reused but ontology interoperability of them remains unknown. This study evaluated the resolvability of URIs and consistency of axioms in the OBO Foundry library, BFO ontology, and CIDO ontology. All had nonresolvable URIs, but the OBO library and the CIDO had additional interoperability issues regarding the use of incorrect prefixes, mixing up with ontologies, and inconsistency in the use of property. These detected issues reflected the real-world common problems that were not significant from human beings’ point of view but hindered the machine-processability of ontologies. The assessment performed in this study was automated and enables scale-up against more metrics over more ontologies, which remains future work.

Current Issues: Evidence-Based Practice for the Real World: Thoughts on Clinical Education in Communication Disorders

2010 ◽  
Vol 20 (3) ◽  
pp. 100-105 ◽  
Author(s):  
Anne K. Bothe
Keyword(s):  
Clinical Education ◽  
Real World ◽  
Evidence Based Practice ◽  
Communication Disorders ◽  
University Faculty ◽  
Evidence Based ◽  
Speech Language Pathology ◽  
Basic Principles ◽  
The Real ◽  
Language Pathology

This article presents some streamlined and intentionally oversimplified ideas about educating future communication disorders professionals to use some of the most basic principles of evidence-based practice. Working from a popular five-step approach, modifications are suggested that may make the ideas more accessible, and therefore more useful, for university faculty, other supervisors, and future professionals in speech-language pathology, audiology, and related fields.

The Real-World Fellowship

2006 ◽  
Vol 40 (7) ◽  
pp. 47
Author(s):  
LEE SAVIO BEERS
Keyword(s):  
Real World ◽  
The Real
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