scholarly journals Development and preliminary evaluation of a novel physician-report tool for assessing barriers to providing care to autistic patients

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Chloe Walsh ◽  
Sinéad Lydon ◽  
Rosemary Geoghegan ◽  
Cornelia Carey ◽  
Michael Creed ◽  
...  
Keyword(s):  
Discriminant Validity ◽  
Autism Spectrum ◽  
Future Research ◽  
Measurement Tool ◽  
Preliminary Evaluation ◽  
Healthcare Provision ◽  
Initial Development ◽  
Healthcare Settings ◽  
Preliminary Version ◽  
Physician Report

Abstract Background Individuals on the autism spectrum face significant disparities in health and physicians often report difficulties in providing care to autistic patients. In order to improve the quality of care autistic individuals receive, it is important to identify the barriers that physicians experience in providing care so that these may be addressed. This paper reports the initial development and preliminary evaluation of a physician-report ‘Barriers to Providing Healthcare’ measurement tool. Method An established taxonomy of healthcare barriers for autistic individuals informed the initial draft of a 22-item measurement tool. This measurement tool was distributed to physicians working in various healthcare specialties and settings. Exploratory factor analysis (EFA) was conducted to determine the construct validity of the tool; discriminant validity between, and internal consistency of, the resultant factors were assessed. Multiple regressions were used to explore variables potentially associated with barriers endorsed by physicians. Results A total of 203 physicians were included in the analyses. The EFA resulted in a 17-item tool with three distinct factors which explained 37.6% of the variance: 1) Patient-related barriers (Cronbach’s α = 0.83; e.g., the patient’s reactivity to the healthcare environment); 2) Healthcare provider (HCP)/family-related barriers (Cronbach’s α = 0.81; e.g., a lack of providers willing to work with autistic patients); and 3) System-related barriers (Cronbach’s α = 0.84; e.g., there is a lack of support for patients and families). Discriminant validity between the factors was adequate (r < .8). The barriers that were most frequently endorsed as occurring ‘often’ or ‘very often’ included a lack of support for patients and families (endorsed by 79.9% of physicians); communication difficulties (73.4%); and a lack of coordination between services (69.9%). The regression analyses identified no significant associated variables. Conclusion A preliminary version of a novel physician-report tool to assess barriers to providing care to autistic patients has been developed although further validation work is required. The use of this tool will help physicians to identify issues specific to different medical specialities and healthcare settings. This information may help identify the supports physicians require to recognise and implement the required accommodations. Future research which elucidates barriers to healthcare provision for autistic patients is required to support systemic change in healthcare so as to improve care experiences and health outcomes for people on the autism spectrum.

Measuring humility in musical contexts: Initial development of the Musical Humility Scale

2020 ◽  
pp. 030573561989641
Author(s):  
William J Coppola ◽  
Anita B Kumar ◽  
Joshua N Hook
Keyword(s):  
Discriminant Validity ◽  
Model Building ◽  
A Priori ◽  
Future Research ◽  
Initial Development ◽  
Convergent And Discriminant Validity ◽  
Five Factors ◽  
Confirmatory Factor ◽  
Musical Engagement ◽  
Testing Criteria

The purpose of this study was to construct and validate a psychometric measure of humility in musical contexts. Using confirmatory factor analysis (CFA) ( N = 423), we demonstrated initial evidence for the validity of a theoretical model of musical humility. We used CFA to test an a priori model building from prior research, which confirmed five factors: purposeful musical engagement and collaboration, other-orientedness, lack of superiority, acknowledgment of shortcomings and learnability, and healthy pride. The resulting Musical Humility Scale is comprised of 30 items that may be further tested alongside other psychometric batteries for investigating predictors and correlates of humility in musical participation. We offer limitations and directions for future research, including strategies for refining the testing criteria and suggestions for establishing convergent and discriminant validity.

scholarly journals The importance and availability of adjustments to improve access for autistic adults who need mental and physical healthcare: findings from UK surveys

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e043336
Author(s):  
Samuel Brice ◽  
Jacqui Rodgers ◽  
Barry Ingham ◽  
David Mason ◽  
Colin Wilson ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Services ◽  
Physical Health ◽  
Response Rate ◽  
Autism Spectrum ◽  
Healthcare Provision ◽  
Healthcare Settings ◽  
Autistic People ◽  
Autistic Adults ◽  
Mental And Physical Health

Objectives To investigate autistic people’s views on the importance and availability of adjustments to mental and physical healthcare provision. To explore whether specific categories of adjustments can be identified and to identify any differences in their importance and availability between mental and physical healthcare. Design Data from two studies, both employing a cross-sectional survey design. Setting UK-based autistic adults registered with the Adult Autism Spectrum Cohort-UK were contacted by post or online. In both studies, recruitment was staged over a 12-month period. Non-responders were sent a single reminder letter 2 weeks after initial contact. Participants 537 autistic adults completed a survey about mental health services (51% response rate), 407 completed the physical health survey (49% response rate). Within these samples, 221 participants completed both surveys. Primary outcome measures Each study developed a bespoke survey to explore participants’ views on mental and physical health services, respectively. Both included an identical list of adjustments that participants rated based on importance and availability. Results Three factors of important adjustments were identified: sensory environment, clinical and service context, and clinician knowledge and communication. Adjustments across healthcare settings were widely rated as being important yet rarely available. One significant difference between the importance of adjustments available through mental and physical health services was identified. Participants reported that having access to a clinician who is willing to adapt their approach to suit the person’s preferences was significantly more important for participants attending mental health settings (p=0.001). Conclusions Autistic people reported the limited availability of important adjustments in current healthcare provision. To address unmet need and tackle the health inequalities faced by autistic people attending physical and mental healthcare settings, healthcare providers should offer adjustments relating to the three identified factors. Future research should focus on identifying and addressing service provider barriers to implementation.

scholarly journals Clean and Contain: Initial Development of a Measure of Infection Prevention Behaviors During the COVID-19 Pandemic

2020 ◽  
Vol 54 (9) ◽  
pp. 619-625
Author(s):  
Loren L Toussaint ◽  
Alyssa D Cheadle ◽  
Jesse Fox ◽  
David R Williams
Keyword(s):  
Factor Analysis ◽  
Construct Validity ◽  
Infection Prevention ◽  
Discriminant Validity ◽  
Amazon Mechanical Turk ◽  
Future Research ◽  
Initial Development ◽  
Prevention Behavior ◽  
Control And Prevention ◽  
Identical Factor

Abstract Background The Centers for Disease Control and Prevention (CDC) offer behavioral guidance to prevent the spread of infectious diseases like COVID-19. Cleaning (e.g., cleaning surfaces, washing and sanitizing hands) and containing (e.g., covering coughs, keeping distance from others, especially sick people) behaviors are recommended. Purpose To develop the Clean and Contain Measure, a brief measure of compliance with CDC recommendations for prevention of infectious disease, and validate the measure in individuals experiencing the COVID-19 pandemic. Methods Participants were recruited from Amazon Mechanical Turk and social media. Results In Study 1 (N = 97), exploratory factor analysis revealed two scales: (a) five items assessing cleaning behaviors and (b) four items assessing containing behaviors. Simple structure was obtained and alpha coefficients for both scales were &gt;.83. In Studies 2 (N = 204) and 3 (N = 527), confirmatory factor analysis verified the identical factor structure found in Study 1. All loadings were statistically significant at p &lt; .001. Alpha coefficients for both scales were &gt;.84 for Studies 2 and 3. Conclusions Our measure is a reliable and valid indicator of compliance with cleaning and containing health behaviors that help to prevent the spread of diseases like COVID-19. Future research should replicate construct validity in more diverse samples and continue to refine items, examine construct validity, including predictive and discriminant validity, and improve the measure for future use. With continued use and refinement, this measure could allow health officials and researchers to accurately assess compliance with important infection prevention behavior guidelines.

The Influence of Background Auditory Noise on P50 and N100 Suppression Elicited by the Paired-Click Paradigm

2020 ◽  
Vol 34 (3) ◽  
pp. 171-178
Author(s):  
Samantha Major ◽  
Kimberly Carpenter ◽  
Logan Beyer ◽  
Hannah Kwak ◽  
Geraldine Dawson ◽  
...  
Keyword(s):  
Sensory Gating ◽  
Autism Spectrum ◽  
Inhibitory Response ◽  
Future Research ◽  
Typically Developing ◽  
Optimal Outcomes ◽  
Hyperactivity Disorder ◽  
Auditory Sensory Gating ◽  
Auditory Noise ◽  
P50 Suppression

Abstract. Auditory sensory gating is commonly assessed using the Paired-Click Paradigm (PCP), an electroencephalography (EEG) task in which two identical sounds are presented sequentially and the brain’s inhibitory response to the second sound is measured. Many clinical populations demonstrate reduced P50 and/or N100 suppression. Testing sensory gating in children may help to identify individuals at risk for neurodevelopmental disorders earlier, including autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD), which could lead to more optimal outcomes. Minimal research has been done with children because of the difficulty of performing lengthy EEG experiments with young children, requiring them to sit still for long periods of time. We designed a modified, potentially child-friendly version of the PCP and evaluated it in typically developing adults. The PCP was administered twice, once in a traditional silent room (silent movie condition) and once with an audible movie playing (audible movie condition) to minimize boredom and enhance behavioral compliance. We tested whether P50 and N100 suppression were influenced by the presence of the auditory background noise from the movie. N100 suppression was observed in both hemispheres in the silent movie condition and in the left hemisphere only during the audible movie condition, though suppression was attenuated in the audible movie condition. P50 suppression was not observed in either condition. N100 sensory gating was successfully elicited with an audible movie playing during the PCP, supporting the use of the modified task for future research in both children and adults.

Development and Construct Validation of the German Workplace Trust Survey (G-WTS)

2010 ◽  
Vol 26 (1) ◽  
pp. 3-10 ◽  
Author(s):  
Nale Lehmann-Willenbrock ◽  
Simone Kauffeld
Keyword(s):  
Convergent Validity ◽  
Affective Commitment ◽  
Discriminant Validity ◽  
Organizational Context ◽  
Organizational Trust ◽  
Three Dimensional ◽  
Future Research ◽  
Work Related ◽  
Reliable Assessment ◽  
Workplace Trust

In research on trust in the organizational context, there is some agreement evolving that trust should be measured with respect to various foci. The Workplace Trust Survey (WTS) by Ferres (2002) provides reliable assessment of coworker, supervisor, and organizational trust. By means of a functionally equivalent translation, we developed a German version of the questionnaire (G-WTS) comprising 21 items. A total of 427 employees were surveyed with the G-WTS and questionnaires concerning several work-related attitudes and behaviors and 92 of these completed the survey twice. The hypothesized three-dimensional conceptualization of organizational trust was confirmed by confirmatory factor analysis. The G-WTS showed good internal consistency and retest reliability values. Concerning convergent validity, all of the three G-WTS dimensions positively predicted job satisfaction. In terms of discriminant validity, Coworker Trust enhanced group cohesion; Supervisor Trust fostered innovative behavior, while Organizational Trust was associated with affective commitment. Theoretical and practical contributions as well as opportunities for future research with the G-WTS are discussed.

Development of the Fear of Intimacy Components Questionnaire (FICQ)

2015 ◽  
Vol 31 (4) ◽  
pp. 302-309 ◽  
Author(s):  
Maria Pedro Sobral ◽  
Maria Emília Costa
Keyword(s):  
Convergent Validity ◽  
Discriminant Validity ◽  
Two Dimensions ◽  
Dimensional Structure ◽  
Future Research ◽  
Fear Of Intimacy ◽  
Confirmatory Factor Analyses ◽  
New Instrument ◽  
Confirmatory Factor ◽  
Test Retest Reliability

Abstract. We developed a new instrument designed to measure fear of intimacy in romantic relationships. We suggest assessing fear of intimacy through two dimensions: self-revelation and dependence. The Fear of Intimacy Components Questionnaire (FICQ) was validated across three studies in which a 10-item solution systematically emerged. Consistently with a two component perspective, a two-factor solution fitted data the best: fear of losing the self (FLS) and fear of losing the other (FLO). Qualitative analyses verified content validity. Exploratory and confirmatory factor analyses tested the factor structure. Multigroup analyses supported the structural invariance across gender, age, and relationship status. Both factors showed adequate discriminant validity and internal consistency, and good 3-week period test-retest reliability. Associations between the FICQ and insecure attachment orientations demonstrated convergent validity. The association between the FICQ and relationship satisfaction above and beyond a preexisting measure offered criterion validity. By going beyond traditional self-revelation-focused conception of fear of intimacy, that is, by proposing a bi-dimensional structure to fear of intimacy, we believe that this new measure will contribute to future research on fear of intimacy.

Aviation and the Microbiome

2020 ◽  
Vol 91 (8) ◽  
pp. 651-661
Author(s):  
Joshua T. Davis ◽  
Hilary A. Uyhelji
Keyword(s):  
Psychological Health ◽  
Aviation Safety ◽  
Autism Spectrum ◽  
Unintended Consequences ◽  
Microbial Colonization ◽  
Future Research ◽  
Aerospace Medicine ◽  
Medical Certification ◽  
Physical Disorders ◽  
The Impact

INTRODUCTION: Although the impact of microorganisms on their hosts has been investigated for decades, recent technological advances have permitted high-throughput studies of the collective microbial genomes colonizing a host or habitat, also known as the microbiome. This literature review presents an overview of microbiome research, with an emphasis on topics that have the potential for future applications to aviation safety. In humans, research is beginning to suggest relationships of the microbiome with physical disorders, including type 1 and type 2 diabetes mellitus, cardiovascular disease, and respiratory disease. The microbiome also has been associated with psychological health, including depression, anxiety, and the social complications that arise in autism spectrum disorders. Pharmaceuticals can alter microbiome diversity, and may lead to unintended consequences both short and long-term. As research strengthens understanding of the connections between the microbiota and human health, several potential applications for aerospace medicine and aviation safety emerge. For example, information derived from tests of the microbiota has potential future relevance for medical certification of pilots, accident investigation, and evaluation of fitness for duty in aerospace operations. Moreover, air travel may impact the microbiome of passengers and crew, including potential impacts on the spread of disease nationally and internationally. Construction, maintenance, and cleaning regimens that consider the potential for microbial colonization in airports and cabin environments may promote the health of travelers. Altogether, the mounting knowledge of microbiome effects on health presents several opportunities for future research into how and whether microbiome-based insights could be used to improve aviation safety.Davis JT, Uyhelji HA. Aviation and the microbiome. Aerosp Med Hum Perform. 2020; 91(8):651–661.

PENGEMBANGAN SKALA LOCUS OF CONTROL

2017 ◽  
Vol 2 (3) ◽  
pp. 417-424
Author(s):  
Hendryadi Hendryadi
Keyword(s):  
Locus Of Control ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Discriminant Validity ◽  
Short Form ◽  
Employee Selection ◽  
Future Research ◽  
Validity And Reliability ◽  
Control Scale ◽  
Two Stages

This article aims to develop a short form of the locus of control scale. The study was conducted in two stages: a study of 66 respondents as pilot testing which aims to test content validity, structure validity, and internal consistency. Study 2 was conducted on 328 respondents used to test the validity and reliability of the scale evaluated by the PLS-SEM method (such as internal consistency, convergent validity, and discriminant validity). The analysis concludes that the 8-item locus of control scales tested have adequate validity and reliability. A short form locus of control scale was developed and validated in this study, so it can be used in future research and evaluation for HR management practitioners in employee selection Keywords: locus of control, EFA, CFA, scale construction

Oppositional Defiant Disorder and Related Disruptive Behaviors in Autism Spectrum Disorder

2020 ◽  
pp. 136-158
Author(s):  
Connor M. Kerns ◽  
Chandler Puhy ◽  
Chelsea M. Day ◽  
Steven J. Berkowitz
Keyword(s):  
Autism Spectrum Disorder ◽  
Oppositional Defiant Disorder ◽  
Challenging Behaviors ◽  
Disruptive Behaviors ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Oppositional Defiant ◽  
Assessment And Treatment ◽  
Defiant Behavior

The Diagnostic and Statistical Manual of Mental Disorders, fifth edition characterizes oppositional defiant disorder (ODD) as reflecting pervasive patterns of irritable mood, defiant behavior, and/or vindictiveness. Youth with autism spectrum disorder (ASD) exhibit high rates of disruptive behaviors commonly associated with ODD, such as noncompliance, irritability, temper tantrums, and mood dysregulation. This chapter reviews the presentation of ODD in individuals with ASD, including current prevalence estimates, proposed etiology, validated assessment methods, and emerging best practices designed to treat challenging behaviors. Although there is a robust literature describing assessment and treatment procedures for disruptive behaviors in individuals with ASD, conceptualizing these hallmark behaviors within the framework of ODD is relatively novel and not without controversy. Discussion thus includes challenges around the applicability of the diagnostic criteria in this population and future research directions that may provide clarity on this issue.

Synthesis

2020 ◽  
pp. 421-428
Author(s):  
Lauren Brookman-Frazee ◽  
Amy Drahota ◽  
Colby Chlebowski ◽  
Yael Koenig ◽  
Katherine Nguyen Williams ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Future Research ◽  
Research Directions ◽  
Course Assessment ◽  
Academic Partnerships ◽  
Assessment And Treatment ◽  
Important Field ◽  
Future Research Directions ◽  
Psychiatric Conditions

Recent research and clinical attention devoted to co-occurring psychiatric conditions within autism spectrum disorder (ASD) has led to significant advances in the understanding of and ability to assess and treat co-occurring problems effectively. This chapter summarizes those advances while also highlighting the substantial gaps that remain in the understanding of co-occurring problems in people with ASD. The chapter provides recommendations for future research directions in the areas of etiology, developmental course, assessment, and treatment. It also offers suggestions for improving the representativeness of research participants and strengthening community–academic partnerships in this important field of study.

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