scholarly journals Stigma experienced by family members of people with intellectual and developmental disabilities: multidimensional construct

BJPsych Open ◽  
2018 ◽  
Vol 4 (5) ◽  
pp. 332-338 ◽  
Author(s):  
Natasha Mitter ◽  
Afia Ali ◽  
Katrina Scior
Keyword(s):  
Developmental Disabilities ◽  
Caregiver Burden ◽  
Family Members ◽  
Well Being ◽  
Autism Spectrum ◽  
Self Report ◽  
Intellectual And Developmental Disabilities ◽  
Subjective Well Being ◽  
Good Reliability ◽  
The Impact

BackgroundThere is a lack of good-quality instruments measuring stigma experienced by family members of stigmatised people.AimsTo develop a self-report measure of stigma among families of people with intellectual and developmental disabilities and examine associations between family stigma and other variables.MethodThe new Family Stigma Instrument (FAMSI) was tested with 407 family carers, 53% of whose offspring had an autism spectrum disorder in addition to intellectual disability. They also completed measures of subjective well-being, caregiver burden, self-esteem and social support.ResultsThe FAMSI yielded a five-factor structure and had good reliability. Perceived family stigma, caregiver burden and subjective well-being were the strongest predictors of family stigma.ConclusionsThis instrument can advance our understanding of the impact of stigma on family members. It can also help us understand sociodemographic, psychosocial and contextual variables of both the carer and cared for person that may influence family members' experiences.Declaration of interestNone.

scholarly journals Social trust and emotional health in rural older adults in China: The mediating and moderating role of subjective well-being and subjective social status

2020 ◽  
Author(s):  
Hongsheng Chen ◽  
Zhenjun Zhu
Keyword(s):  
Social Status ◽  
Social Trust ◽  
Emotional Health ◽  
Family Members ◽  
Well Being ◽  
The Elderly ◽  
Subjective Social Status ◽  
Rural Elderly ◽  
Subjective Well Being ◽  
The Impact

Abstract BackgroundChina is becoming an aging society. The emotional health of the elderly is gaining importance. Social trust is an important factor affecting emotional health, but existing studies have rarely considered the various effects of different types of social trust on rural elderly emotional health. Few studies have analysed the role of subjective well-being and subjective social status in the relationship between social trust and elderly emotional health.MethodsUsing the data of the China Labor-force Dynamics Survey 2016 (CLDS 2016) and regression models, this study selected 2084 rural respondents aged 60 years and above to analyse the impact of social trust on their emotional health. Social trust was divided into three categories: trust in family members, trust in friends, and trust in neighbours. This study also examined the mediating and moderating effects of subjective well-being and subjective social status on the relationship between social trust and emotional health.ResultsTrust in family members was significantly and positively associated with emotional health (coefficient=0.194, P<0.01) and subjective well-being (coefficient=0.177, P<0.01). Trust in friends was significantly and positively associated with emotional health and subjective well-being (coefficient=0.097, P<0.01; coefficient=0.174, P<0.01, respectively). Trust in neighbours was significantly and positively associated with emotional health and subjective well-being (coefficient=0.088, P<0.01; coefficient=0.177, P<0.01; respectively). Subjective well-being effectively reduced the impact of social trust in family, friends, and neighbours on the emotional health of the elderly by 0.023, 0.022, and 0.023, respectively. Trust in friends and neighbours significantly and positively affected respondents’ subjective social status (coefficient=0.120, P<0.05; coefficient=0.090, P<0.10; respectively). Subjective social status effectively reduced the impact of social trust in friends and neighbours on the emotional health of the elderly both by 0.004. The positive relationship between trust in family members and emotional health is weakened by subjective well-being.ConclusionsSocial trust, especially family relationships, play an important role in maintaining the emotional health of the rural elderly. In response to population ageing, more social policies must be introduced to care for the rural elderly and help them lead a happy and satisfactory life.

scholarly journals The impact of subjective well-being under neuroleptic treatment on compliance and remission

2006 ◽  
Vol 8 (1) ◽  
pp. 131-136 ◽  
Keyword(s):  
Rating Scale ◽  
Well Being ◽  
Self Report ◽  
Systematic Evaluation ◽  
Antipsychotic Treatment ◽  
Strong Impact ◽  
Subjective Well Being ◽  
Schizophrenic Patients ◽  
Long Term Prognosis ◽  
The Impact

The patients' perspective of antipsychotic treatment was largely neglected for a long period. It has only been during the last 10 years, with the development of atypical antipsychotics, that scientific interest in this issue has markedly increased. Numerous studies have shown that the majority of schizophrenic patients are able to fill out a self-rating scale in a meaningful way, and several self-report scales with sufficient internal consistency and good construct validity have been developed. The effects of antipsychotic treatment on psychopathology and on subjective well-being (SW) are not strongly related; the perspectives of the patient and his/her psychiatrist markedly differ. Recent research indicates that SW/quality of life, much more improved by atypical than by typical antipsychotics, has a strong impact on compliance, as well as on the chance of achieving remission. The data strongly suggest that a systematic evaluation of the patient's perspective of antipsychotic treatment is meaningful and necessary to increase compliance, functional outcome, and long-term prognosis.

scholarly journals Grief Experiences in Family Caregivers of Children with Autism Spectrum Disorder (ASD)

2019 ◽  
Vol 16 (23) ◽  
pp. 4821 ◽  
Author(s):  
Jorge Bravo-Benítez ◽  
María Nieves Pérez-Marfil ◽  
Belén Román-Alegre ◽  
Francisco Cruz-Quintana
Keyword(s):  
Autism Spectrum Disorder ◽  
Family Caregivers ◽  
Family Members ◽  
Well Being ◽  
Structured Interview ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Children With Asd ◽  
Caregiver Role ◽  
The Impact

The main objective of this study was to analyse the experience of grief and feelings of loss in family caregivers of children diagnosed with autism spectrum disorder (ASD), as well as the perceived overload from taking on the primary caregiver role. Twenty family caregivers of children with ASD participated. The family members were assessed using an ad-hoc semi-structured interview that addressed the families’ reactions to the diagnosis, implications for daily functioning, and concerns for the immediate and long-term future of their relatives with ASD. The results indicate that family caregivers of children with ASD endure intense and continuous sorrow and grief due to the impact that having and caring for a child with these characteristics has on all aspects of their lives. These data highlight the importance of creating support and intervention programmes and services focused on the feelings and manifestations of ambiguous grief that occur in these family members, in order to improve their well-being and quality of life and reduce caregiver role overload.

scholarly journals What are the physical and psychological health effects of suicide bereavement on family members? An observational and interview mixed-methods study in Ireland

BMJ Open ◽  
2018 ◽  
Vol 8 (1) ◽  
pp. e019472 ◽  
Author(s):  
Ailbhe Spillane ◽  
Karen Matvienko-Sikar ◽  
Celine Larkin ◽  
Paul Corcoran ◽  
Ella Arensman
Keyword(s):  
Mixed Methods ◽  
Psychological Health ◽  
Family Members ◽  
Well Being ◽  
Mixed Methods Study ◽  
Self Report ◽  
Next Of Kin ◽  
Suicide Bereavement ◽  
Physical And Psychological Health ◽  
The Impact

ObjectivesResearch focussing on the impact of suicide bereavement on family members’ physical and psychological health is scarce. The aim of this study was to examine how family members have been physically and psychologically affected following suicide bereavement. A secondary objective of the study was to describe the needs of family members bereaved by suicide.DesignA mixed-methods study was conducted, using qualitative semistructured interviews and additional quantitative self-report measures of depression, anxiety and stress (DASS-21).SettingConsecutive suicide cases and next-of-kin were identified by examining coroner’s records in Cork City and County, Ireland from October 2014 to May 2016.ParticipantsEighteen family members bereaved by suicide took part in a qualitative interview. They were recruited from the Suicide Support and Information System: A Case-Control Study (SSIS-ACE), where family members bereaved by suicide (n=33) completed structured measures of their well-being.ResultsQualitative findings indicated three superordinate themes in relation to experiences following suicide bereavement: (1) co-occurrence of grief and health reactions; (2) disparity in supports after suicide and (3) reconstructing life after deceased’s suicide. Initial feelings of guilt, blame, shame and anger often manifested in enduring physical, psychological and psychosomatic difficulties. Support needs were diverse and were often related to the availability or absence of informal support by family or friends. Quantitative results indicated that the proportion of respondents above the DASS-21 cut-offs respectively were 24% for depression, 18% for anxiety and 27% for stress.ConclusionsHealthcare professionals’ awareness of the adverse physical and psychosomatic health difficulties experienced by family members bereaved by suicide is essential. Proactively facilitating support for this group could help to reduce the negative health sequelae. The effects of suicide bereavement are wide-ranging, including high levels of stress, depression, anxiety and physical health difficulties.

Development and Initial Validation of a Multidimensional Scale Assessing Subjective Well-Being: The Well-Being Scale (WeBS)

2017 ◽  
Vol 121 (1) ◽  
pp. 135-160 ◽  
Author(s):  
P. Priscilla Lui ◽  
Gaithri A. Fernando
Keyword(s):  
Structural Equation ◽  
Empirical Studies ◽  
Well Being ◽  
Internal Consistency Reliability ◽  
Equation Model ◽  
Self Report ◽  
Subjective Well Being ◽  
Confirmatory Factor Analyses ◽  
Mean Differences ◽  
The Impact

Numerous scales currently exist that assess well-being, but research on measures of well-being is still advancing. Conceptualization and measurement of subjective well-being have emphasized intrapsychic over psychosocial domains of optimal functioning, and disparate research on hedonic, eudaimonic, and psychological well-being lacks a unifying theoretical model. Lack of systematic investigations on the impact of culture on subjective well-being has also limited advancement of this field. The goals of this investigation were to (1) develop and validate a self-report measure, the Well-Being Scale (WeBS), that simultaneously assesses overall well-being and physical, financial, social, hedonic, and eudaimonic domains of this construct; (2) evaluate factor structures that underlie subjective well-being; and (3) examine the measure’s psychometric properties. Three empirical studies were conducted to develop and validate the 29-item scale. The WeBS demonstrated an adequate five-factor structure in an exploratory structural equation model in Study 1. Confirmatory factor analyses showed that a bifactor structure best fit the WeBS data in Study 2 and Study 3. Overall WeBS scores and five domain-specific subscale scores demonstrated adequate to excellent internal consistency reliability and construct validity. Mean differences in overall well-being and its five subdomains are presented for different ethnic groups. The WeBS is a reliable and valid measure of multiple aspects of well-being that are considered important to different ethnocultural groups.

scholarly journals Social trust and emotional health in older adults in China: The mediating and moderating role of subjective well-being and subjective social status

2020 ◽  
Author(s):  
Hongsheng Chen ◽  
Zhenjun Zhu
Keyword(s):  
Social Status ◽  
Social Trust ◽  
Emotional Health ◽  
Family Members ◽  
Well Being ◽  
The Elderly ◽  
Subjective Social Status ◽  
Subjective Well Being ◽  
The Impact

Abstract Background China is becoming an aging society. The emotional health of the elderly is gaining importance. Social trust is an important factor affecting emotional health, but existing studies have rarely considered the various effects of different types of social trust on elderly emotional health. Few studies have analysed the role of subjective well-being and subjective social status in the relationship between social trust and elderly emotional health. Methods Using the data of the China Labor-force Dynamics Survey 2016 (CLDS 2016) and regression models, this study selected 3767 respondents aged 60 years and above to analyse the impact of social trust on their emotional health. Social trust was divided into three categories: trust in family members, trust in friends, and trust in neighbours. The Center for Epidemiologic Studies Depression Scale (CES-D) was used to assess emotional health, and the respondents’ self-assessment scores were adjusted. Results Trust in family members was significantly and positively associated with emotional health (coefficient = 2.854, P < 0.01) and subjective well-being (coefficient = 0.189, P < 0.01). Trust in friends was significantly and positively associated with emotional health and subjective well-being (coefficient = 1.703, P < 0.01; coefficient = 0.171, P < 0.01, respectively). Trust in neighbours was significantly and positively associated with emotional health and subjective well-being (coefficient = 1.461, P < 0.01; coefficient = 0.186, P < 0.01; respectively). Subjective well-being effectively reduced the impact of social trust in family, friends, and neighbours on the emotional health of the elderly by 0.378, 0.341, and 0.370, respectively. Trust in family members, friends, and neighbours, significantly and positively affected respondents’ subjective social status (coefficient = 0.115, P < 0.05; coefficient = 0.095, P < 0.05; coefficient = 0.121, P < 0.01, respectively). Subjective social status effectively reduced the impact of social trust in family, friends, and neighbours on the emotional health of the elderly by 0.092, 0.076, and 0.096, respectively. The positive relationship between trust in family members and emotional health was weakened by subjective well-being, and that between trust in neighbours and emotional health was weakened by subjective social status. Conclusions Family relationships play an important role in maintaining the emotional health of the elderly. In response to population ageing, more social policies must be introduced to care for the elderly and help them lead a happy and satisfactory life.

scholarly journals Social trust and emotional health in rural older adults in China: the mediating and moderating role of subjective well-being and subjective social status

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Hongsheng Chen ◽  
Zhenjun Zhu
Keyword(s):  
Social Status ◽  
Social Trust ◽  
Emotional Health ◽  
Family Members ◽  
Well Being ◽  
The Elderly ◽  
Subjective Social Status ◽  
Rural Elderly ◽  
Subjective Well Being ◽  
The Impact

Abstract Background China is becoming an aging society. The emotional health of the elderly is gaining importance. Social trust is an important factor affecting emotional health, but existing studies have rarely considered the various effects of different types of social trust on rural elderly emotional health. Few studies have analysed the role of subjective well-being and subjective social status in the relationship between social trust and elderly emotional health. Methods Using the data of the China Labor-force Dynamics Survey 2016 (CLDS 2016) and regression models, this study selected 2084 rural respondents aged 60 years and above to analyse the impact of social trust on their emotional health. Social trust was divided into three categories: trust in family members, trust in friends, and trust in neighbours. This study also examined the mediating and moderating effects of subjective well-being and subjective social status on the relationship between social trust and emotional health. Results Trust in family members was significantly and positively associated with emotional health (coefficient = 0.194, P < 0.01) and subjective well-being (coefficient = 0.177, P < 0.01). Trust in friends was significantly and positively associated with emotional health and subjective well-being (coefficient = 0.097, P < 0.01; coefficient = 0.174, P < 0.01, respectively). Trust in neighbours was significantly and positively associated with emotional health and subjective well-being (coefficient = 0.088, P < 0.01; coefficient = 0.177, P < 0.01; respectively). Subjective well-being effectively reduced the impact of social trust in family, friends, and neighbours on the emotional health of the elderly by 0.023, 0.022, and 0.023, respectively. Trust in friends and neighbours significantly and positively affected respondents’ subjective social status (coefficient = 0.120, P < 0.05; coefficient = 0.090, P < 0.10; respectively). Subjective social status effectively reduced the impact of social trust in friends and neighbours on the emotional health of the elderly both by 0.004. The positive relationship between trust in family members and emotional health is weakened by subjective well-being. Conclusions Social trust, especially family relationships, play an important role in maintaining the emotional health of the rural elderly. In response to population ageing, more social policies must be introduced to care for the rural elderly and help them lead a happy and satisfactory life.

scholarly journals And What About The Family Back Home? International Migration and Happiness In Cuenca, Ecuador

1970 ◽  
Vol 27 (1) ◽  
pp. 7-27
Author(s):  
Fernando Borraz ◽  
Susan Pozo ◽  
Maximo Rossi
Keyword(s):  
International Migration ◽  
Family Members ◽  
Well Being ◽  
Careful Analysis ◽  
Subjective Well Being ◽  
Left Behind ◽  
The Family ◽  
Cursory Examination ◽  
And Migration ◽  
The Impact

In this study we use data on subjective well being and migration of familymembers in Cuenca, one of Ecuador's largest cities, to examine the impact of migrationon the happiness of the family left behind. While a cursory examination of thedata suggests that the heads of households that have experienced the migration ofone or more family members are less happy, a more careful analysis reveals otherwise.Households that have been impacted by migration express equal levels of happinessas those households that have not been affected by migration. One plausibleexplanation for our finding is that the remittances that households receive followingthe migration of loved ones counteract the downsides to family emigration.

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