Lost in translation: Adolescents and young adults use words of hope to express their spirituality.

2017 ◽  
Vol 35 (31_suppl) ◽  
pp. 185-185
Author(s):  
Krysta S. Barton ◽  
Tyler P Tate ◽  
Abby R. Rosenberg

185 Background: Adolescents and Young Adults (AYAs) with cancer are at risk for poor psychosocial outcomes, in part because cancer may disrupt developmental processes such as spiritual questioning. Indeed, spirituality may enable hope, meaning, and purpose, in turn facilitating the adjustment to cancer. The need to address spirituality has been established among adult patients, how to do so in an AYA age-appropriate manner has not been described. We aimed to better understand the language and perspectives of AYAs regarding spirituality. Methods: AYA patients (ages 14-25 years) were eligible if they had been diagnosed with cancer within the past 60 days. Demographic surveys including self-reported spirituality and religiousness were completed at the time of enrollment. Semi-structured, 1:1 interviews were conducted at the time of enrollment, 6-12, and 12-18 months later. Verbatim transcripts were coded by three independent coders using directed content analysis for instances of spirituality, religiosity, hope, and fear. Additional deductive analyses used a priori coding themes defined from prior conceptualizations of AYA hope: forced effort, personal possibilities, expectations of a better tomorrow, and anticipation of a better tomorrow Results: Seventeen patients completed 44 interviews with > 100 hours of transcript-data. Their mean age was 17.1 (±2.7); 8 (47%) were male, their diagnoses were sarcoma (n = 8), acute leukemia (n = 6), and lymphoma (n = 3). At enrollment 10 (58%) & 6 (35%) endorsed personal spirituality and religiousness in surveys, respectively, few verbal narratives included explicit self-identification of either construct. Further, while many AYAs denied spiritual beliefs, all of them endorsed hopes, often as a source of strength, meaning, or self-expression. Longitudinal analyses suggested an evolution of spiritual beliefs and self-identities, even when patients selected other language to describe such processes. Conclusions: AYAs with cancer are trying to work-through complex existential beliefs and questions. Often, instead of defining themselves as spiritual or religious or using explicit spiritual language, they articulate their existential feelings with the language of hope.

1995 ◽  
Vol 41 (4) ◽  
pp. 311-324 ◽  
Author(s):  
Nancy Van Ranst ◽  
Karine Verschueren ◽  
Alfons Marcoen

Why do adolescents value their grandparents? This was the leading question of an investigation among 563 adolescents and young adults in Flanders (Belgium). The Grandparent Meaning Scale which probes eleven a priori dimensions of meaning, was completed by 147 early adolescents ( M = 12.5 years), 175 middle adolescents ( M = 15.7 years), and 241 late adolescents ( M = 18.9 years). Results show that adolescents generally find their grandparents important and feel close to them. Grandparents are valued primarily because they provide affection, reassurance of worth, and reliable alliance. Relational-affective and caregiving meanings were assigned more often to grandmothers whereas advising, teaching, and narrative roles were ascribed more frequently to grandfathers. Maternal grandparents were generally perceived as more important and closer than paternal grandparents. Early adolescents assigned more importance and meaning to their grandparents than middle and late adolescents. There were no differences between grandsons and granddaughters.


2019 ◽  
Vol 111 (11) ◽  
pp. 1152-1160 ◽  
Author(s):  
Theresa H M Keegan ◽  
Helen M Parsons ◽  
Yi Chen ◽  
Frances B Maguire ◽  
Cyllene R Morris ◽  
...  

Abstract Background Uninsured adolescents and young adults (AYAs) and those with publicly funded health insurance are more likely to be diagnosed with cancer at later stages. However, prior population-based studies have not distinguished between AYAs who were continuously uninsured from those who gained Medicaid coverage at the time of cancer diagnosis. Methods AYA patients (ages 15–39 years) with nine common cancers diagnosed from 2005 to 2014 were identified using California Cancer Registry data. This cohort was linked to California Medicaid enrollment files to determine continuous enrollment, discontinuous enrollment, or enrollment at diagnosis, with other types of insurance determined from registry data. Multivariable logistic regression was used to evaluate factors associated with later stages at diagnosis. Results The majority of 52 774 AYA cancer patients had private or military insurance (67.6%), followed by continuous Medicaid (12.4%), Medicaid at diagnosis (8.5%), discontinuous Medicaid (3.9%), other public insurance (1.6%), no insurance (2.9%), or unknown insurance (3.1%). Of the 13 069 with Medicaid insurance, 50.1% were continuously enrolled. Compared to those who were privately insured, AYAs who enrolled in Medicaid at diagnosis were 2.2–2.5 times more likely to be diagnosed with later stage disease, whereas AYAs discontinuously enrolled were 1.7–1.9 times and AYAs continuously enrolled were 1.4–1.5 times more likely to be diagnosed with later stage disease. Males, those residing in lower socioeconomic neighborhoods, and AYAs of Hispanic or black race and ethnicity (vs non-Hispanic white) were more likely to be diagnosed at a later stage, independent of insurance. Conclusions Our findings suggest that access to continuous medical insurance is important for decreasing the likelihood of late stage cancer diagnosis.


2010 ◽  
Vol 28 (32) ◽  
pp. 4825-4830 ◽  
Author(s):  
Sue Morgan ◽  
Simon Davies ◽  
Susan Palmer ◽  
Meg Plaster

Adolescents and young adults (AYAs) with cancer are a distinct group whose needs have been poorly addressed within health care systems. This imbalance is being addressed in some countries, and this growing specialty is now receiving the recognition it requires in order to develop further. This article discusses some of the psychosocial issues of AYAs and, with reference to the phrase of sex, drugs, and rock and roll, highlights the various rites of passage that young people experience. It also discusses how services and professionals can work alongside AYAs, enabling them to feel a part of the process by providing age-appropriate environment and expertise.


2015 ◽  
Vol 17 (2) ◽  
pp. 171-180 ◽  

Adolescents and young adults (AYAs) with cancer are at risk for depression due to disruptions in their developmental trajectory, greater physical symptom burden, and increased likelihood of developing aggressive disease. Rates of depression and other psychological disorders are substantially higher in AYAs with cancer when compared with older adults. Psychiatrists caring for these patients must consider the age-appropriate developmental context of these patients along with familial and medical factors that may influence the presentation and treatment of depression. Previous research suggests that psychosocial interventions specifically designed for AYA patients are promising, but studies of psychopharmacology treatments for depression are lacking. There is a pressing need for prospective studies and controlled clinical trials that evaluate the optimal strategies for treating depression in this patient group.


Author(s):  
Marc Allroggen ◽  
Peter Rehmann ◽  
Eva Schürch ◽  
Carolyn C. Morf ◽  
Michael Kölch

Abstract.Narcissism is seen as a multidimensional construct that consists of two manifestations: grandiose and vulnerable narcissism. In order to define these two manifestations, their relationship to personality factors has increasingly become of interest. However, so far no studies have considered the relationship between different phenotypes of narcissism and personality factors in adolescents. Method: In a cross-sectional study, we examine a group of adolescents (n = 98; average age 16.77 years; 23.5 % female) with regard to the relationship between Big Five personality factors and pathological narcissism using self-report instruments. This group is compared to a group of young adults (n = 38; average age 19.69 years; 25.6 % female). Results: Grandiose narcissism is primarily related to low Agreeableness and Extraversion, vulnerable narcissism to Neuroticism. We do not find differences between adolescents and young adults concerning the relationship between grandiose and vulnerable narcissism and personality traits. Discussion: Vulnerable and grandiose narcissism can be well differentiated in adolescents, and the pattern does not show substantial differences compared to young adults.


Crisis ◽  
2009 ◽  
Vol 30 (3) ◽  
pp. 115-119 ◽  
Author(s):  
Stephanie De Munck ◽  
Gwendolyn Portzky ◽  
Kees Van Heeringen

Background: Notwithstanding the epidemiological studies indicating an increased risk of attempted suicide among adolescents and young adults, there is a scarcity of international studies that examine long-term epidemiological trends in rates and characteristics of this vulnerable group. Aims: This article describes the results of a 9-year monitoring study of suicide attempts in adolescents and young adults referred to the Accident and Emergency Department of the Gent University Hospital (Belgium). Methods: Between January 1996 and December 2004, trends, sociodemographic, and methodrelated characteristics of suicide attempts were assessed by a psychiatrist on data sheets. Results: Attempted suicide rates declined from 1996 to 2001 and then rose until 2004, but did not exceed previous rates. During the 9 years of monitoring, there was a preponderance of female suicide attempters, except for 1997. Rates of attempts and of fatal suicide were negatively correlated. Significantly more males than females deliberately injured themselves. Younger attempters, especially females, significantly more often poisoned themselves with analgesics. In nearly one in five attempts, alcohol was used in combination with other methods, and alcohol intake was more commonly observed in older suicide attempters. Nearly half of the adolescents were identified as repeaters. Conclusions: The results of this study warrant further monitoring of trends and characteristics of young suicide attempters.


2017 ◽  
Vol 33 (2) ◽  
pp. 123-128 ◽  
Author(s):  
Anne van Alebeek ◽  
Paul T. van der Heijden ◽  
Christel Hessels ◽  
Melissa S.Y. Thong ◽  
Marcel van Aken

Abstract. One of the most common personality disorders among adolescents and young adults is the Borderline Personality Disorder (BPD). The objective of current study was to assess three questionnaires that can reliably screen for BPD in adolescents and young adults (N = 53): the McLean Screening Instrument for BPD (MSI-BPD; Zanarini et al., 2003 ), the Personality Diagnostic Questionnaire 4th edition – BPD scale (PDQ-4 BPD; Hyler, 1994 ), and the SCID-II Patient Questionnaire – BPD scale (SCID-II-PQ BPD). The nine criteria of BPD according to the Diagnostic and Statistical Manual of Mental Disorders-IV (DSM-IV; APA, 1994 ) were measured with the Structural Clinical Interview for DSM-IV Axis II disorders – BPD scale (SCID-II; First, Spitzer, Gibbon, Williams, & Benjamin, 1995 ). Correlations between the questionnaires and the SCID-II were calculated. In addition, the sensitivity and specificity of the questionnaires were tested. All instruments predicted the BPD diagnosis equally well.


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