Out-of-pocket spending (OOPS) and financial toxicity survey for neuroendocrine tumor (NET) patients.

2020 ◽  
Vol 38 (4_suppl) ◽  
pp. 632-632
Author(s):  
Aman Chauhan ◽  
Rohitashva Agrawal ◽  
Rebecca Edwins ◽  
Maryann Wahmann ◽  
Bob Wahmann ◽  
...  
Keyword(s):  
Online Survey ◽  
Somatostatin Analogues ◽  
Insurance Premium ◽  
Median Income ◽  
Financial Toxicity ◽  
Cancer Awareness ◽  
Online Questionnaire ◽  
Long Distance ◽  
Patient Support Group ◽  
Study Participants

632 Background: Incidence and prevalence of neuroendocrine tumors (NETs) are on the rise. However, with the increasing burden of the disease, there is a need to understand financial toxicity associated with NET management. Especially the out of pocket spending or expenses made by patients and family members, which affects the management and treatment adherence. We report results of our prospective online survey based study looking into determinants and the burden of financial toxicity in NET patients. Methods: We collaborated with NCAN (Neuroendocrine Cancer Awareness Network) a national NET patient support group for our prospective online questionnaire-based survey. After IRB approval, NCAN disseminated online link to the survey on their webpage. The survey had twenty-one questions with the goal of at least 200 complete responses. Results: We received 215 responses before we decided to stop the survey for analysis. The average age of the respondents was 58.4 years. 75% of respondents were females with most repsondents of the survey (37%) being graduates. About 41% of respondents had small bowel NET while 27% had pancreas NET as their NET diagnosis. The median income of the respondents was $65000/year. Median oncology visits were reported to be 4 per year. Median co-pay for the NET specialist visit was found to be $30. The median spending on travel for the physician`s appointment was $250 per visit to see NET specialists. Median monthly insurance premium was $300. Study participants reported spending $75 out of pocket on NET related care every month on top of insurance premiums. More than half of the respondents were on Somatostatin analogues only as their main treatment. About 21% mentioned that they were not able to get required treatment due to cost related issues. Conclusions: The preliminary analysis of the survey gave us an insight into financial toxicity related to NET management. Although most NETs are indolent, the chronic nature of disease and associated, symptom management is often time and resource-intensive. Many patients mentioned having issues with the coverage of insurance and having to travel a long distance to see a NET specialist, which demonstrate a lack of access to NET specialists.

scholarly journals Emotional Bonding and Sexual Activity During COVID-19 Lockdown: A Cross-National Pilot Study

2021 ◽  
pp. 263183182110274
Author(s):  
Deblina Roy ◽  
Sujita Kumar Kar ◽  
SM Yasir Arafat ◽  
Pawan Sharma ◽  
Russell Kabir
Keyword(s):  
Online Survey ◽  
Sampling Technique ◽  
Sexual Relationships ◽  
Sexually Active ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Emotional Bonding ◽  
Significant Difference ◽  
The Mean ◽  
Study Participants

Background: The COVID-19 pandemic and lockdown measures have affected the sexuality and emotional bonding among the couple across the world. Objectives: We aimed to assess the effects of the COVID-19 pandemic and lockdown on the married people’s emotional bonding and sexual relationships in 3 south Asian counties (Bangladesh, India, and Nepal). Methods: A cross-sectional online survey was conducted among Bangladesh, India, and Nepal residents from April 3 to April 15, 2020. The survey was designed in English. The participants were selected through convenience sampling technique, the link of the online questionnaire was shared with the participants. Only participants older than 18 years and above, married, and living with their spouses were included in the study. Results: A total number of 120 respondents were included finally for analysis from the participating countries (India, Nepal, and Bangladesh). The mean age of the participants was 35.42 (±5.73) years; the majority were males under the age of 40 years and had completed postgraduation as their qualification. Among the study participants, more than half (53.8%) of the women reported being sexually active during the lockdown, whereas 41% of the men reported being sexually active. Among the sexually active participants, most women (57.7%) reported that they perceived positive emotional bonding with their partners. Nevertheless, there was no significant difference observed when compared with men. There are variations in responses. However, no significant association was identified. Conclusion: There are a few insights from the study, that is, there was no significant difference found in almost 3 countries in emotional intimacy. There had been a trend that there is improved emotional bonding with their partners, although no significant difference was observed.

scholarly journals Nonverbal Communication in Text-Based, Asynchronous Online Education

2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Rima Al Tawil
Keyword(s):  
Online Education ◽  
Nonverbal Communication ◽  
Online Survey ◽  
Phase 1 ◽  
Nonverbal Cues ◽  
Online Questionnaire ◽  
Human Interactions ◽  
The Social ◽  
Research Findings ◽  
Study Participants

Does nonverbal communication exist in asynchronous, text-based online education? It is commonly believed that it does not due to the absence of body language and paralanguage. An examination of the definitions and forms of nonverbal cues suggests the possibility for some of them to be transmitted through asynchronous, text-based online human interactions. To explore the presence, type, and potential impact of electronic nonverbal cues (eNVC), I conducted this research using the Exploratory Sequential Mixed-Method Design. Phase 1 constituted the preliminary, qualitative stage of this research, during which participants completed an online questionnaire to identify what actions, if any, could speak louder than words in discussion-based courses. Thematic analysis of the questionnaire answers revealed the potential existence and influence of several eNVC categories. Phase 2 constituted the quantitative stage, and served to validate Phase 1 findings through the data collection and analysis of two versions of an online survey: one for professors and another for learners. The collated research findings confirmed that eNVC exist and communicate messages beyond those sent and received through printed words in the asynchronous, online learning environment. According to study participants, these types of electronic cues contributed to the social and teaching presences, and therefore carried the potential to influence students’ levels of engagement and motivation.  

scholarly journals Death Anxiety and Locus of Control during Corona virus (COVID-19) Pandemic in Pakistan

2021 ◽  
Vol 2 (1) ◽  
pp. 3-9
Author(s):  
Farha Kiran ◽  
Umair Asghar ◽  
Saba Arif ◽  
Muhammad Arif
Keyword(s):  
Locus Of Control ◽  
Death Anxiety ◽  
Online Survey ◽  
Demographic Variables ◽  
Descriptive Statistics ◽  
Online Questionnaire ◽  
Pakistani Population ◽  
Corona Virus ◽  
Study Participants ◽  
Test Correlation

The Corona virus pandemic is producing significant stress and anxiety for millions of individuals all over the world. All these factors are generating death anxiety for people. This study aimed to assess death anxiety and locus of control among Pakistani population during the COVID-19 pandemic. This study was conducted at The Islamia University of Bahawalpur, Pakistan from March to May 2020. An online survey was conducted using an online questionnaire. A total of 149 responses were received. Descriptive statistics was calculated for demographic variables. t-test, correlation and analysis of variance (ANOVA) were used to test the hypotheses. Results showed statistically significant relationship between death anxiety domains and locus of control except own death and locus of control. The anxiety and apprehensions in society are globally influencing every individual to variable extents. Recent evidence indicates that people who are kept in isolation and quarantine experience substantial distress in the shape of anxiety which are likely to rise progressively during this new pandemic (COVID-19). In this study, participants showed high levels of anxiety regarding death domains and low level of control over their lives.

Impact of the COVID-19 Pandemic on the Palestinian Family: A Community-Based Cross-Sectional Country-Level Online Survey (Preprint)

2020 ◽  
Author(s):  
Samer Abuzerr
Keyword(s):  
Online Survey ◽  
Personal Hygiene ◽  
Online Questionnaire ◽  
Community Based ◽  
Cross Sectional ◽  
Country Level ◽  
Additional Burden ◽  
Containment Measures ◽  
Media Platform ◽  
Study Participants

UNSTRUCTURED It is imperative to take lessons from the current COVID-19 Pandemic situation and to ensure that governments and local institutions have the knowledge to improve their actions. The current community-based cross-sectional descriptive study aims to better understand and assess more fully the consequences that the present COVID-19 pandemic is having on the Palestinian family using a structured online questionnaire which was distributed through a social media platform (Facebook) between 29 April 2020 and 5 June 2020. A total of 570 adults aged 18 years or over participated in the study. The vast majority of the study participants 549 (96.3%) reported that water supplies were not always available in the home during the period of the COVID-19 pandemic. However, paying attention to personal hygiene and home cleaning was more than usual before the announcement of the COVID-19 pandemic. In general, following the onset of the pandemic, around three-fourths of the study participants, 417 (73.2%) reported that the containment measures of the COVID-19 pandemic have put an additional burden on their families. There was a clear limitation in people's movement after the announcement of the COVID-19 pandemic. We suggest discussing the obtained results in focus groups with local and national stakeholders ensuring in knowledge translation towards the community.

scholarly journals The Impact of the COVID-19 Pandemic on the Perception of Health and Treatment-Related Issues among Patients with Phenylketonuria in Poland—The Results of a National Online Survey

2021 ◽  
Vol 18 (12) ◽  
pp. 6399
Author(s):  
Dariusz Walkowiak ◽  
Bożena Mikołuć ◽  
Renata Mozrzymas ◽  
Łukasz Kałużny ◽  
Bożena Didycz ◽  
...  
Keyword(s):  
Online Survey ◽  
High Stress ◽  
Online Questionnaire ◽  
Dietary Compliance ◽  
Vulnerable Patients ◽  
Therapy Effectiveness ◽  
Therapy Compliance ◽  
Study Participants ◽  
Perception Of Health ◽  
The Impact

There is agreement that the pandemic has affected the healthcare system and behaviour of patients. This study aims to identify problems encountered by patients with phenylketonuria (PKU) and their parents/caregivers during the six-week pandemic lockdown in Poland (15 March to 30 April 2020). To determine the factors that influenced health and treatment-related issues, as well as the respondents’ perception of the impact of the pandemic, study participants were asked to complete a non-validated online questionnaire comprising 31 questions (including 27 single-choice, two multiple-choice and two open-ended ones). A total of 571 patients or their parents completed the questionnaire, with 9.5% of respondents not performing any blood phenylalanine (Phe) test in the analysed period, 21.3% declaring a blood Phe increase, and 15.3% a decrease. Increased problems in contacting the doctor or dietitian were reported by 26.1% of subjects, whereas 39.3% of them felt restricted access to dietary products. Most (63.4%) participants were satisfied with remote contact with their PKU clinic. Better compliance was associated with higher odds of acceptance of remote contact and of reporting fewer problems with contacting the doctor, and with lower odds of missing Phe testing. Self-reported high stress was associated with higher odds of reporting the limited availability of low-Phe products and Phe-free formulas, as well as with increased Phe concentrations and non-PKU-related health problems. These patients also had poor dietary compliance and experienced more problems in contacting specialists. Health and treatment-related problems experienced during the pandemic lockdown were related to a higher intensity of stress in patient’s family and worse therapy compliance before the pandemic. Previous experience of remote visits resulted in a better perception of this method of contact. It seems that this form of communication should be popularized and improved to increase therapy effectiveness in case of different limitations in the future. Special attention should be paid to vulnerable patients who may be at extra risk when the provision of standard care is affected.

Unexpected Gender Moderation of Marital Satisfaction–Health Associations in Long-Distance Relationships

2019 ◽  
Vol 27 (2) ◽  
pp. 133-141 ◽  
Author(s):  
Steve N. Du Bois ◽  
Wren Yoder ◽  
Stephen D. Ramos ◽  
Karolina Grotkowski ◽  
Tamara Goldman Sher
Keyword(s):  
Marital Satisfaction ◽  
Online Survey ◽  
Therapeutic Interventions ◽  
Future Research ◽  
Long Distance ◽  
Health Measures ◽  
Gender Moderation ◽  
Long Distance Relationships ◽  
N 93 ◽  
Study Participants

High marital satisfaction is associated with better individual health and health behavior. Gender moderates these associations; generally, they are stronger for women than for men. Theories such as subordination-reactivity attempt to explain marital satisfaction–health associations by gender. Extant research exploring this phenomenon focuses on individuals in proximal relationships, not those in long-distance relationships (LDR). LDR are prevalent, particularly among students, military personnel, and caregivers. They are also increasing both in number and cultural relevance. Current study participants ( N = 93) were ages 21+, married for 6+ months, and LDR, defined as living more than 50 miles apart and not able to see each other daily. Participants completed an online survey of relationship and health measures. We tested gender as a moderator of marital satisfaction–health associations. Unexpectedly, higher marital satisfaction related to better health for men more than for women on several health variables. Specifically, higher marital satisfaction related to significantly less drug use and less pain interference, and marginally better overall health, for men more than for women. No other marital satisfaction–health associations emerged. These results suggest marital satisfaction may be more important to health for LDR men than women, and in some cases, marital satisfaction may not relate to health for LDR individuals. Future research can explore these unique satisfaction–health associations in LDR. Therapeutic interventions for individuals and couples in LDR can consider these findings.

scholarly journals Physicians’ Knowledge, Attitude and Practice of Generic Substitution in China: A Cross-Sectional Online Survey

2021 ◽  
Vol 18 (15) ◽  
pp. 7749
Author(s):  
Mingyue Zhao ◽  
Lingyi Zhang ◽  
Zhitong Feng ◽  
Yu Fang
Keyword(s):  
Online Survey ◽  
Generic Substitution ◽  
Generic Drugs ◽  
Final Analysis ◽  
Generic Medicine ◽  
Generic Medicines ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Ordered Logistic Regression ◽  
Tertiary Hospitals

The purpose of this study is to investigate physicians’ knowledge, attitudes and practice of generic medicine substitutions in China. We conducted a cross-sectional online questionnaire survey on physicians from secondary or tertiary hospitals in China from 2020 December to 2021 April. Descriptive statistical and ordered logistic regression were used for analysis. A total of 1225 physicians were included in the final analysis, and only 330 (26.94%) of them scored 4 or above in the knowledge part, which means that the physicians have a good knowledge of generic substitutions. Of the total, 586 (47.83%) agreed or strongly agreed that generic drugs could be substituted for originator drugs and 585 (47.75%) always or often prescribed generic medicines. The percentage of physicians with a positive attitude toward or that practice prescribing generic medicine is below 50%, which needs to be improved in China. Physicians’ knowledge, their attitude toward generic substitution, if familiar with the policy of generic substitution, and incentives for prescribing generic medicines are influencing factors for the practice of generic substitution. Our studies show that the practice of generic substitution by physicians could be improved by several measures in China. We suggested that the physicians should be taught more about the bulk-buy policy and the generic-originator equivalence evaluation policy. Moreover, government incentives to promote generic substitution should be established. Our study also suggested that physicians with less working experience and female physicians should learn more about generic substitution.

scholarly journals Intention to Be Vaccinated for COVID-19 among Italian Nurses during the Pandemic

Vaccines ◽  
2021 ◽  
Vol 9 (5) ◽  
pp. 500
Author(s):  
Marco Trabucco Aurilio ◽  
Francesco Saverio Mennini ◽  
Simone Gazzillo ◽  
Laura Massini ◽  
Matteo Bolcato ◽  
...  
Keyword(s):  
Vaccine Efficacy ◽  
Online Survey ◽  
Vaccine Development ◽  
Vaccine Coverage ◽  
World Health ◽  
Vaccine Hesitancy ◽  
Effective Vaccine ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Female Sex

Background: While the COVID-19 pandemic has spread globally, health systems are overwhelmed by both direct and indirect mortality from other treatable conditions. COVID-19 vaccination was crucial to preventing and eliminating the disease, so vaccine development for COVID-19 was fast-tracked worldwide. Despite the fact that vaccination is commonly recognized as the most effective approach, according to the World Health Organization (WHO), vaccine hesitancy is a global health issue. Methods: We conducted a cross-sectional online survey of nurses in four different regions in Italy between 20 and 28 December 2020 to obtain data on the acceptance of the upcoming COVID-19 vaccination in order to plan specific interventions to increase the rate of vaccine coverage. Results: A total of 531 out of the 5000 nurses invited completed the online questionnaire. Most of the nurses enrolled in the study (73.4%) were female. Among the nurses, 91.5% intended to accept vaccination, whereas 2.3% were opposed and 6.2% were undecided. Female sex and confidence in vaccine efficacy represent the main predictors of vaccine intention among the study population using a logistic regression model, while other factors including vaccine safety concerns (side effects) were non-significant. Conclusions: Despite the availability of a safe and effective vaccine, intention to be vaccinated was suboptimal among nurses in our sample. We also found a significant number of people undecided as to whether to accept the vaccine. Contrary to expectations, concerns about the safety of the vaccine were not found to affect the acceptance rate; nurses’ perception of vaccine efficacy and female sex were the main influencing factors on attitudes toward vaccination in our sample. Since the success of the COVID-19 immunization plan depends on the uptake rate, these findings are of great interest for public health policies. Interventions aimed at increasing employee awareness of vaccination efficacy should be promoted among nurses in order to increase the number of vaccinated people.

scholarly journals Blood Donation-Related Adverse Reactions: Results of an Online Survey among Donors in Germany (2018)

2021 ◽  
pp. 1-11
Author(s):  
Stefano Orru’ ◽  
Kay Poetzsch ◽  
Marcus Hoffelner ◽  
Margarethe Heiden ◽  
Markus B. Funk ◽  
...  
Keyword(s):  
Risk Factors ◽  
Whole Blood ◽  
Online Survey ◽  
Adverse Reactions ◽  
Blood Donation ◽  
Age Groups ◽  
Female Gender ◽  
Online Questionnaire ◽  
Logistic Analysis ◽  
German Legislation

<b><i>Introduction:</i></b> According to German legislation, reports of suspected serious adverse reactions (AR) associated with the donation of blood and its components are continuously being evaluated by the Paul-Ehrlich-Institut. This survey aimed at providing a more complete picture of the AR associated with the donation of blood and blood components. <b><i>Materials and Methods:</i></b> Eligible donors had the opportunity to anonymously report all AR occurring during or after their last donation by completing an online questionnaire. Reported AR were classified according to the Standard for Surveillance of Complications Related to Blood Donation. Donors’ self-assessment of AR seriousness was compared with the official severity classification as laid down by German legislation. Besides a descriptive statistical analysis, a multiple logistic analysis was performed to identify risk factors for AR. <b><i>Results:</i></b> A total of 8,138 data records were evaluated. Slightly more males (57.9%) participated in the survey and, except for donors aged ≥60 years, all age groups were equally represented. The majority of participants were whole blood donors (85.4%), repeat donors (97.2%), and stayed under observation in the blood establishment (BE) for more than 5 min (63.1%) after donation. Most participants did not report any reaction (72.5%), whereas 2,237 reported at least one AR (27.5%), 475 of whom underwent apheresis and 1,762 donated whole blood. Most AR occurred after leaving the BE (64.4%). Only a minority of participants required medical treatment (5.1%) or assessed the experienced AR as serious (3.9%). The most frequently reported donor AR were haematoma and other local reactions (57.6%). Vasovagal reactions without and with loss of consciousness were developed in 17 and 2% of the participants, respectively, whilst 7.6% experienced citrate reactions. New AR (i.e., allergic reactions and symptoms associated with iron deficiency) were reported as well. The occurrence of AR was linked to risk factors (i.e., female gender, young age, first-time donation, and thrombocytapheresis). <b><i>Discussion:</i></b> This survey yielded a more comprehensive AR spectrum, revealed a prolonged time to symptom onset, and identified risk factors for AR. This novel information could be implemented in an amended informed consent addressing common and rare AR.

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