scholarly journals Conforto nos momentos finais da vida: a percepção da equipe multidisciplinar sobre cuidados paliativos [Comfort in the last moments of life: the multidisciplinary team's perception on palliative care] [Confort en los momentos finales de la vida: la percepción del equipo multidisciplinaria en cuidados paliativos]

2019 ◽  
Vol 27 ◽  
pp. e45135
Author(s):  
Antonio Ribeiro Silva ◽  
Thereza Maria Magalhães ◽  
Raquel Sampaio Florencio ◽  
Lorena Campos Souza ◽  
Amanda Caboclo Flor ◽  
...  

Objetivo: analisar a percepção dos profissionais da equipe multidisciplinar acerca da assistência em cuidados paliativos. Método: estudo descritivo, qualitativo, desenvolvido em outubro de 2017, em hospital especializado em doenças cardiopulmonares situado em uma capital do nordeste brasileiro. O projeto do estudo foi aprovado por Comitê de Ética em Pesquisa. A amostra contou com 15 participantes da equipe multidisciplinar. Os dados foram coletados mediante entrevista semiestruturada e submetidos à análise temática. Resultados: da análise, emergiram duas categorias: conhecimento da equipe multidisciplinar sobre cuidados paliativos e a percepção da prática dos cuidados paliativos. Os profissionais possuem um conhecimento ainda incipiente sobre cuidados paliativos e suas prerrogativas, além da necessidade de um comprometimento efetivo para a qualidade desse cuidado. Conclusão: apesar de os profissionais reconhecerem a necessidade de oferecer conforto nos momentos finais da vida, o conhecimento acerca do cuidado paliativo é limitado e, por isso, eles vivenciam dilemas ao lidar com equipes, pacientes e familiares.ABSTRACTObjective: to analyze the perception of professionals of the multidisciplinary team about assistance in palliative care. Method: descriptive, qualitative study, developed in October 2017 in a hospital unit specialized in cardiopulmonary diseases located in a capital of Northeastern Brazil. The sample included 15 participants from the multidisciplinary team. Data were collected through semi-structured interviews and submitted to thematic analysis. Results: from the analysis, two categories emerged: knowledge of the multidisciplinary team on palliative care and the perception of palliative care practice. The professionals have a still incipient knowledge about what palliative care is and its prerogatives, in addition to the need for an effective commitment to the quality of this care. Conclusion: Although professionals recognize the need to offer comfort in the final moments of life, knowledge about palliative care is limited and, therefore, professionals perceive dilemmas when dealing with staff, patient and family.RESUMENObjetivo: analizar la percepción de los profesionales del equipo multidisciplinario sobre la asistencia en cuidados paliativos. Método: estudio descriptivo, cualitativo, desarrollado en octubre de 2017 en una unidad hospitalaria especializada en enfermedades cardiopulmonares ubicada en una capital del noreste de Brasil. La muestra incluyó a 15 participantes del equipo multidisciplinario. Los datos fueron recolectados a través de entrevistas semiestructuradas y sometidos a análisis temático. Resultados: del análisis surgieron dos categorías: conocimiento del equipo multidisciplinario sobre cuidados paliativos y la percepción de la práctica de cuidados paliativos. Los profesionales tienen un conocimiento aún incipiente sobre qué son los cuidados paliativos y sus prerrogativas, además de la necesidad de un compromiso efectivo con la calidad de esta atención. Conclusión: aunque los profesionales reconocen la necesidad de ofrecer comodidad en los momentos finales de la vida, el conocimiento sobre los cuidados paliativos es limitado y, por lo tanto, los profesionales perciben dilemas al tratar con el personal, el paciente y la familia.

Author(s):  
Viviana Dávalos-Batallas ◽  
Vinita Mahtani-Chugani ◽  
Carla López-Núñez ◽  
Víctor Duque ◽  
Fatima Leon-Larios ◽  
...  

Background: The worldwide need for palliative care is high, especially in mid- income countries like Ecuador, where the percentage of patients receiving such care is very small due to the scarcity of infrastructure and specialized personnel and to the unequal distribution in the country. The objective of this study is to explore the knowledge, attitudes and expectations related to palliative care of the physicians in Ecuador. Methods: A qualitative study based on 28 semi-structured interviews, from March 2014 to November 2016, with physicians working in four cities in Ecuador recruited through the snowball technique. Thematic analysis was developed supported by the ATLAS.ti software. Results: Five core themes were identified: (1) training, (2) health policy, (3) professionals’ activities, (4) health services and (5) development of palliative care in Ecuador. Conclusions: Strategies are needed which intensify the training of medical professional in palliative care, as well as avail the human resources and materials for providing it.


2020 ◽  
Vol 41 ◽  
Author(s):  
Tuani Magalhães Guimarães ◽  
Sandra Teixeira de Araújo Pacheco ◽  
Michelle Darezzo Rodrigues Nunes ◽  
Liliane Faria da Silva

ABSTRACT Objective: To understand the perception of adolescents with cancer undergoing palliative cares about their illness process. Method: An exploratory and qualitative study, per formed at a federal public hospital specialized in oncology disease in Rio de Janeiro, through interviews with nine adolescents aged 12 to 20 years old, from July to August 2017. Data was submitted to thematic analysis and the theoretical framework was Hildegard Peplau's Theory of Interpersonal Relationships Results: Three categories emerged: Living the difficult moment of the trajectory of the disease; Feeling the social isolation and that life has stopped; and Overcoming the difficult stage of the disease. They addressed the trajectory of the disease since the diagnosis, with the awakening of feelings of isolation and stagnation of life. Moreover, they highlighted the overcoming power of these adolescents. Final considerations: The study made it possible to know the difficulties experienced during the course of the disease, providing subsidies for the practice of nurses to happen in a sensitive, individualized manner and focused on the individual's need thus enhancing comfort and quality of life.


2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Carol-Anne Boudy ◽  
Tiphanie Bouchez ◽  
Didier Caprini ◽  
Isabelle Pourrat ◽  
Stéphane Munck ◽  
...  

Abstract Background Most French people (71%) would like to die at home, but only one out of four actually do. While the difficulties inherent in the practice of home-based palliative care are well described, few studies highlight the resources currently used by general practitioners (GPs) in real life. We have therefore sought to highlight the resources actually used by GPs providing home-based palliative care. Methods Twenty-one GPs of different ages and practice patterns agreed to participate to this qualitative study based upon semi-structured interviews. They were recruited according to a purposive sampling. Transcripts analysis was based upon General Inductive Analysis. Results The resources highlighted have been classified into two main categories according to whether they were internal or external to the GPs. The internal resources raised included the doctor’s practical experience and continuous medical education, personal history, work time organization and a tacit moral contract related to the referring GP’s position. External resources included resource personnel, regional assistance platforms and health facilities, legislation. Conclusion This study provides a simple list that is easy to share and pragmatic solutions for GPs and policymakers. Home-based palliative care practice can simultaneously be burdensome and yet a fulfilling, meaningful activity, depending on self-efficacy and professional exhaustion (burnout), perhaps to a greater extent than on medical knowledge. Home-based palliative care promotion is a matter of social responsibility. The availability of multidisciplinary teams such as regional assistance platforms and Hospitalization at Home is particularly important for the management of palliative care. Policymakers should consolidate these specific resources out of hospitals, in community settings where the patients wish to end their life.


2021 ◽  
Vol 13 (6) ◽  
pp. 3481
Author(s):  
Katia Valenzuela-Fuentes ◽  
Esteban Alarcón-Barrueto ◽  
Robinson Torres-Salinas

The last decade has witnessed the proliferation of socio-environmental conflicts across Chile, characterized by the resistance of local communities against extractive and industrial projects. Increasingly, these conflicts have revealed the multiple injustices experienced by communities living in sacrifice zones. A sacrifice zone can be defined as a segregated place where the quality of life of its communities is compromised in the name of progress and capital accumulation. By focusing on socio-environmental struggles taking place in Quintero-Puchuncaví Bay, Coronel Bay, and Hualpén-Talcahuano Bay, three highly polluted and industrialized areas in Chile, this article explores the views and practices developed by grassroots activists in their quest for resisting and moving beyond the capitalist and extractivist model of development. By conducting a thematic analysis of semi-structured interviews with 32 socio-environmental activists, this qualitative study provides a detailed account of how they understand a sacrifice zone and resist in these areas. Furthermore, it describes alternatives to capitalist and extractivist development envisioned and enacted by grassroots movements, expanding on the notions of territorial sovereignty and “buen vivir”.


Nutrients ◽  
2021 ◽  
Vol 13 (7) ◽  
pp. 2299
Author(s):  
Rachael M. McLean ◽  
Zhengxiu Xie ◽  
Vicky Nelson ◽  
Vili Nosa ◽  
Hla Thein ◽  
...  

People receiving haemodialysis have considerable and complex dietary and healthcare needs, including co-morbidities. A recent New Zealand study has shown that few patients on haemodialysis are able to meet nutritional requirements for haemodialysis. This study aims to describe the perspectives and experiences of dietary management among patients on haemodialysis in New Zealand. This exploratory qualitative study used in-depth semi-structured interviews. Purposive sampling was used to recruit participants from different ethnic groups. Forty interviews were conducted, audio-recorded and transcribed verbatim. An inductive approach was taken using thematic analysis. Forty participants were interviewed. Participants spoke of major disruption to their lives as a result of their chronic kidney disease and being on haemodialysis, including loss of employment, financial challenges, loss of independence, social isolation and increased reliance on extended family. Most had received adequate dietary information, although some felt that more culturally appropriate support would have enabled a healthier diet. These findings show that further support to make the recommended dietary changes while on haemodialysis should focus on socio-cultural factors, in addition to the information already provided.


Author(s):  
Nooreddine Iskandar ◽  
Tatiana Rahbany ◽  
Ali Shokor

Abstract Background: Due to the common instability caused by political and security issues, Lebanese hospitals have experienced acts of terrorism multiple times. The most recent Beirut Explosion even forced several hospitals to cease operations for the first time in decades—but studies show the preparedness levels for such attacks in similar countries are low. Objective: The aim of this study is to explore the experience of Lebanese hospitals with terrorist attacks. Methods: This qualitative study used semi-structured interviews with various stakeholders to assess their experience with terrorist bombings. Data was analyzed using the thematic analysis method. Results: The researchers found that Lebanese hospitals vary greatly in their structures and procedures. Those differences are a function of 3 contextual factors: location, culture, and accreditation status. Hospitals found near ‘dangerous zones’ were more likely to be aware and to have better response to such events. A severe lack of communication, unity of command, and collaboration between stakeholders has made the process fragmented. Conclusion: The researchers recommend a larger role for the Ministry of Public Health (MOPH) in this process, and the creation of a platform where Lebanese organizations can share their experiences to improve preparedness and resilience of the Lebanese healthcare system in the face of terrorism.


Author(s):  
Sara C. Keller ◽  
Sara Pau ◽  
Alejandra B. Salinas ◽  
Opeyemi Oladapo-Shittu ◽  
Sara E. Cosgrove ◽  
...  

Abstract Background: Physical distancing among healthcare workers (HCW) is an essential strategy in preventing HCW-to-HCW transmission of the SARS-CoV-2 virus. Objective: To understand barriers to physical distancing among HCW on an inpatient unit and identify strategies for improvement. Design: Qualitative study including observations and semi-structured interviews over three months. Setting: A non-COVID adult general medical unit in an academic tertiary hospital. Participants: HCWs based on the unit. Methods: We performed a qualitative study in which we (1) observed HCWs activities and proximity to each other on the unit during weekday shifts July-October 2020 and (2) conducted semi-structured interviews of HCWs to understand their experiences with and perspectives of physical distancing in the hospital. Qualitative data were coded based on a human factors engineering model. Results: We completed 25 hours of observations and 20 HCW interviews. High-risk interactions often occurred during handoffs of care at shift changes and patient rounds, where HCWs gathered regularly in close proximity for at least 15 minutes. Identified barriers included spacing and availability of computers, the need to communicate confidential patient information, and the desire to maintain relationships at work. Conclusions: Physical distancing can be improved in hospitals by restructuring computer workstations, work rooms, and breakrooms; applying visible cognitive aids; adapting shift times; and supporting rounds and meetings with virtual conferencing. Additional strategies to promote staff adherence to physical distancing include rewarding positive behaviors, having peer leaders model physical distancing, and encouraging additional safe avenues for social connection at a safe distance.


2021 ◽  
Vol 31 (1) ◽  
Author(s):  
Sogand Tourani ◽  
Narges Rafiei ◽  
Shahnaz Rimaz ◽  
Seyed Kazem Malakouti ◽  
Alireza Heidari

BACKGROUND፡ Recently, one of the challenges in the health system of the country is the need for research contributing to policy-making. Therefore, it is crucial to develop activities in the field of knowledge Translation (KT). This study aimed to propose KT improvement strategies in universities of medical sciences in Iran.METHODS: In this qualitative study, 18 semi-structured interviews were conducted with key informants from the medical universities in Iran during January-July 2018. The transcribed documents were analyzed using the Gale framework analysis approach. Data organization was carried out using MAXQDA version 10 software.RESULTS: According to framework analysis, six KT improvement strategies were identified including improving the abilities and skills of researchers, improving the processes and quality of knowledge production, revising policies and laws, mproving the prerequisites, culture-building, and promoting the, use of evidence.CONCLUSION: Given the challenges and strategies outlined in this study, it seems that the mechanism of KT and its effects on improving health plans for policymakers and researchers has not been elucidated yet. Therefore, considerable changes in prerequisites, knowledge production processes, academic procedures, policies and laws are necessary for implementing KT in universities of medical sciences in Iran. 


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