scholarly journals From Resistance to Creation: Socio-Environmental Activism in Chile’s “Sacrifice Zones”

2021 ◽  
Vol 13 (6) ◽  
pp. 3481
Author(s):  
Katia Valenzuela-Fuentes ◽  
Esteban Alarcón-Barrueto ◽  
Robinson Torres-Salinas
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Capital Accumulation ◽  
Local Communities ◽  
Structured Interviews ◽  
Buen Vivir ◽  
Environmental Conflicts ◽  
Industrial Projects

The last decade has witnessed the proliferation of socio-environmental conflicts across Chile, characterized by the resistance of local communities against extractive and industrial projects. Increasingly, these conflicts have revealed the multiple injustices experienced by communities living in sacrifice zones. A sacrifice zone can be defined as a segregated place where the quality of life of its communities is compromised in the name of progress and capital accumulation. By focusing on socio-environmental struggles taking place in Quintero-Puchuncaví Bay, Coronel Bay, and Hualpén-Talcahuano Bay, three highly polluted and industrialized areas in Chile, this article explores the views and practices developed by grassroots activists in their quest for resisting and moving beyond the capitalist and extractivist model of development. By conducting a thematic analysis of semi-structured interviews with 32 socio-environmental activists, this qualitative study provides a detailed account of how they understand a sacrifice zone and resist in these areas. Furthermore, it describes alternatives to capitalist and extractivist development envisioned and enacted by grassroots movements, expanding on the notions of territorial sovereignty and “buen vivir”.

scholarly journals Dysthanasia: nursing professionals' perception

2009 ◽  
Vol 17 (4) ◽  
pp. 443-448 ◽  
Author(s):  
Milene Barcellos de Menezes ◽  
Lucilda Selli ◽  
Joseane de Souza Alves
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Qualitative Study ◽  
Study Data ◽  
Structured Interviews ◽  
Pain And Suffering ◽  
One Year ◽  
Nursing Professionals

Dysthanasia means slow and painful death without quality of life. This study aimed to know whether nurses identify dysthanasia as part of the final process of the lives of terminal patients hospitalized at an adult ICU. This is an exploratory-qualitative study. Data were collected through semi-structured interviews with ten nurses with at least one year of experience in an ICU, and interpreted through content analysis. Results indicate that nurses understand and identify dysthanasia, do not agree with it and recognize elements of orthonasia as the adequate procedure for terminal patients. We conclude that nurses interpret dysthanasia as extending life with pain and suffering, while terminal patients are submitted to futile treatments that do not benefit them. They also identify dysthanasia using elements of orthonasia to explain it.

scholarly journals Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

Autism ◽  
2021 ◽  
pp. 136236132110337
Author(s):  
Jane Goodwin ◽  
Priyanka Rob ◽  
Mark Freeston ◽  
Deborah Garland ◽  
Victoria Grahame ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thematic Analysis ◽  
Intolerance Of Uncertainty ◽  
Well Being ◽  
Anxiety Reduction ◽  
Autistic Children ◽  
Structured Interviews ◽  
Daily Lives ◽  
The Impact

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6–16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. Lay abstract Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children’s ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.

scholarly journals Perceptions of adolescents with cancer undergoing palliative care about their illness process

2020 ◽  
Vol 41 ◽  
Author(s):  
Tuani Magalhães Guimarães ◽  
Sandra Teixeira de Araújo Pacheco ◽  
Michelle Darezzo Rodrigues Nunes ◽  
Liliane Faria da Silva
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Qualitative Study ◽  
Interpersonal Relationships ◽  
Thematic Analysis ◽  
Public Hospital ◽  
The Awakening ◽  
The Social ◽  
Process Method

ABSTRACT Objective: To understand the perception of adolescents with cancer undergoing palliative cares about their illness process. Method: An exploratory and qualitative study, per formed at a federal public hospital specialized in oncology disease in Rio de Janeiro, through interviews with nine adolescents aged 12 to 20 years old, from July to August 2017. Data was submitted to thematic analysis and the theoretical framework was Hildegard Peplau's Theory of Interpersonal Relationships Results: Three categories emerged: Living the difficult moment of the trajectory of the disease; Feeling the social isolation and that life has stopped; and Overcoming the difficult stage of the disease. They addressed the trajectory of the disease since the diagnosis, with the awakening of feelings of isolation and stagnation of life. Moreover, they highlighted the overcoming power of these adolescents. Final considerations: The study made it possible to know the difficulties experienced during the course of the disease, providing subsidies for the practice of nurses to happen in a sensitive, individualized manner and focused on the individual's need thus enhancing comfort and quality of life.

scholarly journals Quality of Life after Total Glosso-Laryngectomy

2007 ◽  
Vol 54 (1) ◽  
pp. 29-38 ◽  
Author(s):  
Leanie Engelbrecht ◽  
Anita Van der Merwe
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
South African ◽  
Thematic Analysis ◽  
Oral Communication ◽  
Well Being ◽  
Shared Decision ◽  
Structured Interviews ◽  
Multi Disciplinary Team

The article explores the quality of life of two participants who had undergone total glosso-laryngectomy as treatment for advanced tongue base cancer. Semi-structured interviews were conducted and questions relating to the effects of treatment on physical, functional, social and psychological well-being were asked. Thematic analysis of the interviews was done to determine recurring themes in the answers of the participants. The findings showed that total glosso-laryngectomy has a significant impact on quality of life. A good quality of life can be maintained in a patient who has an extensive support structure and can achieve intelligible oral communication. Pre-operative counselling by a multi-disciplinary team is important for a person to make an informed decision regarding surgery for head and neck cancer. Shared decision-making needs to be addressed in the South African service delivery context.

scholarly journals Perceived changes to quality of life indicators following a physical activity intervention for recovering cancer patients: A qualitative study.

2016 ◽  
Vol 4 (2) ◽  
pp. 305
Author(s):  
Martyn Queen ◽  
Saul Bloxham ◽  
Phil Brown ◽  
Melissa Coyle ◽  
Ben Jane
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Psychological Health ◽  
Physical Activity Intervention ◽  
Chronic Fatigue ◽  
Theory Approach ◽  
Structured Interviews

The aim of this study was to examine the perceived changes to the quality of life (QoL) for a group of recovering cancer patients, following 6 months of physical activity.Background Evidence suggests that physical activity can improve the QoL of recovering cancer patients, reducing many of the side-effects of cancer and its related treatments, including depression, anxiety, chronic fatigue and improve physical and psychological health. Method A qualitative study with 14 mixed site cancer patients aged 43-70 (12 women, 2 men). The intervention was in 2 parts the first part was an 8-week physical activity programme, the second part related to a period of non-supervised, physical activity for 4 months (6 months in total). The Programme took place at a university in the South West of England. Semi-structured interviews with patients took place 3 times over 6 months. A grounded theory approach was used to analyse the data.Results We found that prior to the 6-month physical activity intervention many of the patients were anxious about being able to complete the initial 8 week programme. Anxieties related to low self-esteem and the chronic fatigue resulting from their cancer treatment. Consequently several patients expressed concerns about their ability to help themselves self-manage their recovery through physical activity. On completion of the intervention the majority of patients reported improvements in their perceived QoL relating to their ability to self-manage, their self-efficacy, energy levels, along with decreases in chronic fatigue.Conclusion Our study has provided valuable insights into how the perceived QoL of a group of recovering cancer patients can be improved through a combined 6-month period of supervised and independent physical activity. These findings serve as further evidence of the effectiveness of a person centred healthcare approach for recovering cancer patients.

scholarly journals Conforto nos momentos finais da vida: a percepção da equipe multidisciplinar sobre cuidados paliativos [Comfort in the last moments of life: the multidisciplinary team's perception on palliative care] [Confort en los momentos finales de la vida: la percepción del equipo multidisciplinaria en cuidados paliativos]

2019 ◽  
Vol 27 ◽  
pp. e45135
Author(s):  
Antonio Ribeiro Silva ◽  
Thereza Maria Magalhães ◽  
Raquel Sampaio Florencio ◽  
Lorena Campos Souza ◽  
Amanda Caboclo Flor ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Multidisciplinary Team ◽  
Northeastern Brazil ◽  
Care Practice ◽  
Structured Interviews ◽  
Hospital Unit ◽  
Descriptive Qualitative

Objetivo: analisar a percepção dos profissionais da equipe multidisciplinar acerca da assistência em cuidados paliativos. Método: estudo descritivo, qualitativo, desenvolvido em outubro de 2017, em hospital especializado em doenças cardiopulmonares situado em uma capital do nordeste brasileiro. O projeto do estudo foi aprovado por Comitê de Ética em Pesquisa. A amostra contou com 15 participantes da equipe multidisciplinar. Os dados foram coletados mediante entrevista semiestruturada e submetidos à análise temática. Resultados: da análise, emergiram duas categorias: conhecimento da equipe multidisciplinar sobre cuidados paliativos e a percepção da prática dos cuidados paliativos. Os profissionais possuem um conhecimento ainda incipiente sobre cuidados paliativos e suas prerrogativas, além da necessidade de um comprometimento efetivo para a qualidade desse cuidado. Conclusão: apesar de os profissionais reconhecerem a necessidade de oferecer conforto nos momentos finais da vida, o conhecimento acerca do cuidado paliativo é limitado e, por isso, eles vivenciam dilemas ao lidar com equipes, pacientes e familiares.ABSTRACTObjective: to analyze the perception of professionals of the multidisciplinary team about assistance in palliative care. Method: descriptive, qualitative study, developed in October 2017 in a hospital unit specialized in cardiopulmonary diseases located in a capital of Northeastern Brazil. The sample included 15 participants from the multidisciplinary team. Data were collected through semi-structured interviews and submitted to thematic analysis. Results: from the analysis, two categories emerged: knowledge of the multidisciplinary team on palliative care and the perception of palliative care practice. The professionals have a still incipient knowledge about what palliative care is and its prerogatives, in addition to the need for an effective commitment to the quality of this care. Conclusion: Although professionals recognize the need to offer comfort in the final moments of life, knowledge about palliative care is limited and, therefore, professionals perceive dilemmas when dealing with staff, patient and family.RESUMENObjetivo: analizar la percepción de los profesionales del equipo multidisciplinario sobre la asistencia en cuidados paliativos. Método: estudio descriptivo, cualitativo, desarrollado en octubre de 2017 en una unidad hospitalaria especializada en enfermedades cardiopulmonares ubicada en una capital del noreste de Brasil. La muestra incluyó a 15 participantes del equipo multidisciplinario. Los datos fueron recolectados a través de entrevistas semiestructuradas y sometidos a análisis temático. Resultados: del análisis surgieron dos categorías: conocimiento del equipo multidisciplinario sobre cuidados paliativos y la percepción de la práctica de cuidados paliativos. Los profesionales tienen un conocimiento aún incipiente sobre qué son los cuidados paliativos y sus prerrogativas, además de la necesidad de un compromiso efectivo con la calidad de esta atención. Conclusión: aunque los profesionales reconocen la necesidad de ofrecer comodidad en los momentos finales de la vida, el conocimiento sobre los cuidados paliativos es limitado y, por lo tanto, los profesionales perciben dilemas al tratar con el personal, el paciente y la familia.

scholarly journals Psychological Status in Multiple Sclerosis Patients: A Qualitative Study

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Psychological Status ◽  
Psychological State ◽  
Analysis Approach ◽  
Data Saturation ◽  
Multiple Sclerosis Patients

Background: Multiple Sclerosis (MS) is a chronic and progressive disease and getting along with the social activities ages have a significant impact on the quality of life and psychological status of these patients. Because the psychological state of patients is an effective factor in the treatment process and life in chronic conditions, The aim of this study was to identify the psychological status of these patients from the viewpoint of patients and experts. Methods: The current qualitative study was conducted in thematic analysis approach. In this study, participated 24 MS patients with maximum diversity in gender, age, illness duration and illness severity, and 8 experts in Neurology, Psychiatry, Psychology and Nursing from Guilan province. Participants were selected by purposive sampling method and Then, the data were gathered through unstructured interviews up to data saturation. Data analysis was done using thematic analysis approach by Attride-Stirling method. Findings: From the total information, three global themes (individual problems, interactive problems, and disease-related problems) were identified. Interactive problems included (interpersonal sensitivity, aggression, sexual, social, and dependence) and disease-related problems (disease reaction). Conclusion: The results of this study showed that MS patients are involved in several psychological problems in the domains include; individual, interactive, and disease-related, Accordingly, it is necessary to develop psychological interventions based on these problems and present for improving the mental status, quality of life and their compatibility.

scholarly journals Evaluation of An Online Tool About the Expected Course of Disease for Glioblastoma Patients – A Qualitative Study

2021 ◽  
Author(s):  
Eva van Diest ◽  
Wendy H Oldenmenger ◽  
Marit Eland ◽  
Walter Taal
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Information Needs ◽  
Survival Rates ◽  
Clinical Implementation ◽  
Structured Interviews ◽  
Online Tool ◽  
Course Of Disease ◽  
Perceived Quality Of Life

Abstract Background Patients with glioblastoma have a short life-expectancy, with median survival rates of nine to twelve months. Providing information about the expected course of disease can be complicated. Therefore, an online tool has been developed. The objective of this tool is to better inform patients and proxies, and decrease their uncertainties and improve their quality of life. This study aims to gather experiences of future end-users, to identify if the tool meets the previously mentioned objectives. Methods This is a qualitative study based on thematic analysis. Interviews were conducted with fifteen patient-proxy dyads. For these interviews, a combined method of think-aloud sessions and semi-structured interviews was used. Audiotapes of these interviews were transcribed verbatim and thematically analyzed. Results The analysis revealed four major themes: unmet information needs, improvement possibilities, effects of the tool and clinical implementation. Participants indicated that this tool could decrease uncertainties and increase their perceived quality of life. Also, they often mentioned that it could have a positive effect on the efficiency and quality of consultations. Conclusion Participants considered this tool to be useful and effective in decreasing uncertainties and improving the quality of life for both patients with glioblastoma and their proxies. Moreover, participants brought up that this tool could positively influence the efficiency and quality of consultations. This could lead to more patient participation and empowerment, and could therefore enhance shared decision making and timely advanced care planning.

scholarly journals PERSEPSI SOSIAL TENTANG STUNTING DI KABUPATEN TANGERANG

2019 ◽  
Vol 18 (1) ◽  
pp. 37-47
Author(s):  
Silva Liem ◽  
Hana Panggabean ◽  
Rustono Marta Farady
Keyword(s):  
Qualitative Study ◽  
Human Resources ◽  
Community Participation ◽  
Thematic Analysis ◽  
Social Perception ◽  
Local Communities ◽  
Childhood Nutrition ◽  
Perception Process ◽  
Depth Interviews

ABSTRACT Stunting is an indicator of chronic malnutrition in the first 1000 days of a child’s life. This threatens the quality of human resources of Indonesia. The local communities generally interpret stunting as “short” and use different terms such as ‘kerdil’, ‘cebol’, ‘kuntet’, and ‘kuntring’. Having short posture is frequently perceived as heredity rather than as malnutrition.  Inadequate meanings derived from social perception process may lead mothers to ignore such behavior that will increase risks of stunting and undermine community participation in government-led programme to reduce stunting. This qualitative study aims to describe facts on how community preceived stunted children. Data were obtained through field observation and in-depth interviews with four mothers having under-five-aged children in Tangerang. Thematic analysis was used to analyse the collected data. This study revealed that stunting is not being associated with health or nutrition issues. In fact, participants perceive stunted children as smart children. Holding on to such perception may jeopardize optimal community participation in government’s efforts to reduce stunting prevalences. Design of appropriate activities may need to consider social perception held by local communities where the intervention will be implemented.  Keywords: Stunting, social perception, childhood nutrition   ABSTRAK  Stunting adalah indikator kekurangan gizi kronis dalam periode 1000 hari pertama kehidupan seseorang. Hal ini mengancam kualitas sumber daya manusia Indonesia. Masyarakat setempat pada umumnya memaknai stunting sebatas “berbadan pendek” dengan menggunakan istilah yang berbeda, misalnya ‘kerdil’, ‘cebol’, ‘kuntet’, dan ‘‘kuntring’’ sebagai akibat dari faktor keturunan. Perspektif persepsi sosial penting dalam pemaknaan tersebut, karena berpotensi mengabaikan perilaku berisiko anak stunting oleh para ibu dan menghambat partisipasi masyarakat dalam program pemerintah menurunkan kejadian stunting. Penelitian kualitatif ini bertujuan untuk mengetahui bagaimana masyarakat memaknai balita berbadan pendek. Data diperoleh melalui observasi dan wawancara mendalam dengan empat orang ibu yang memiliki anak balita di kabupaten Tangerang. Data diolah dengan analisis tematik. Hasil penelitian menunjukkan balita pendek tidak dikaitkan dengan masalah kesehatan maupun gizi, bahkan responden memandang anak ‘‘kuntring’’ sebagai anak yang pintar. Persepsi demikian dapat berdampak pada keterlibatan masyarakat yang tidak optimal dalam upaya pemerintah mengurangi kejadian stunting. Perencanaan intervensi pencegahan yang tepat perlu mempertimbangkan persepsi sosial yang berlaku dalam masyarakat.  Kata kunci: Stunting, persepsi sosial, gizi anak balita

scholarly journals “My Friends are at the Bottom of My Schedule”: A Qualitative Study on Social Health among Nursing Students during Clinical Placement

2020 ◽  
Vol 17 (18) ◽  
pp. 6921
Author(s):  
Hon Lon Tam ◽  
Aimei Mao ◽  
Pak Leng Cheong ◽  
Iat Kio Van
Keyword(s):  
Quality Of Life ◽  
Nursing Students ◽  
Career Development ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Professional Knowledge ◽  
Social Health ◽  
Clinical Placement ◽  
Depth Interviews

Clinical placement is an essential component for nursing students, allowing them to transfer professional knowledge into practice. The quality of life among nursing students and nurses was reviewed to examine its impact on the quality of provided care. However, it is unclear how social health among nursing students is affected during clinical placement. Final-year students who had finished clinical placement were invited to participate in this qualitative study. Twenty-one in-depth interviews were conducted and transcribed verbatim for thematic analysis. Two main themes, i.e., contributors to lack of social health, and manifestations of lack of social health, emerged from seven sub-themes. Students experienced different challenges during the clinical placement, but some of these did contribute to effects on their social health. Lack of social health might further influence career development after graduation. Supportive strategies from colleagues, nursing colleges and hospitals might potentially improve students’ social health during the clinical placement.

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