scholarly journals Perceptions of adolescents with cancer undergoing palliative care about their illness process

2020 ◽  
Vol 41 ◽  
Author(s):  
Tuani Magalhães Guimarães ◽  
Sandra Teixeira de Araújo Pacheco ◽  
Michelle Darezzo Rodrigues Nunes ◽  
Liliane Faria da Silva
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Qualitative Study ◽  
Interpersonal Relationships ◽  
Thematic Analysis ◽  
Public Hospital ◽  
The Awakening ◽  
The Social ◽  
Process Method

ABSTRACT Objective: To understand the perception of adolescents with cancer undergoing palliative cares about their illness process. Method: An exploratory and qualitative study, per formed at a federal public hospital specialized in oncology disease in Rio de Janeiro, through interviews with nine adolescents aged 12 to 20 years old, from July to August 2017. Data was submitted to thematic analysis and the theoretical framework was Hildegard Peplau's Theory of Interpersonal Relationships Results: Three categories emerged: Living the difficult moment of the trajectory of the disease; Feeling the social isolation and that life has stopped; and Overcoming the difficult stage of the disease. They addressed the trajectory of the disease since the diagnosis, with the awakening of feelings of isolation and stagnation of life. Moreover, they highlighted the overcoming power of these adolescents. Final considerations: The study made it possible to know the difficulties experienced during the course of the disease, providing subsidies for the practice of nurses to happen in a sensitive, individualized manner and focused on the individual's need thus enhancing comfort and quality of life.

scholarly journals Brazilian Children’s Understanding of the Quality of Life in Their Living Environment: A Qualitative Study

2020 ◽  
Vol 17 (14) ◽  
pp. 5101
Author(s):  
Camilla Aparecida Silva de Oliveira ◽  
Andréa Maria Duarte Vargas ◽  
Fernanda de Morais Ferreira ◽  
Efigênia Ferreira e Ferreira
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Qualitative Study ◽  
Social Environment ◽  
Physical Environment ◽  
Living Environment ◽  
Public And Private ◽  
The Social ◽  
Graphic Elements

(1) Objective: To understand the perception of Brazilian children about the Quality of Life (QoL) considering their living environment. (2) Methods: This is a qualitative study conducted with children aged 6–10 years, from a medium-sized Brazilian municipality, recruited from public and private schools. An adaptation of the “draw, write, and say” method was used to collect data. At first, all children (n = 252) drew a “neighborhood with QoL”. On the same day, the researcher analyzed the graphic elements of the representations and intentionally selected the two best-detailed drawings from each class (n = 49) and the children were invited to narrate them. The narratives were analyzed through content analysis. (3) Results: Two major themes emerged from the content analysis, namely, the physical environment and social environment. The first included the needs to live in a community, such as housing, places of leisure, essential services, and natural elements. The second was relationships with family and friends. (4) Conclusion: The children presented the meaning of an environment with QoL, pointing out essential items to have this ideal environment. The social environment and the physical environment were perceived interdependently; that is, any change in one of these aspects may affect children’s QoL.

scholarly journals Dignity-conserving care for persons with palliative care needs — identifying outcomes studied in research: An integrative review

2020 ◽  
Vol 18 (6) ◽  
pp. 722-740 ◽  
Author(s):  
Annika Söderman ◽  
Ulrika Östlund ◽  
Carina Werkander Harstäde ◽  
Karin Blomberg
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Integrative Review ◽  
Future Research ◽  
Healthcare Organizations ◽  
Care Needs ◽  
Study Protocols ◽  
The Social ◽  
Palliative Care Needs

AbstractObjectivesWith people living longer, palliative care may be required for lengthier periods of time. This puts demands on healthcare organizations to provide optimal palliative care. Maintaining dignity is central for any person's health and quality of life, but especially for a person with palliative care needs. Dignity-conserving care needs to be evaluated to increase knowledge about outcomes and how to assess these. The purpose of this integrative review was to identify outcomes studied within dignity-conserving care and how these have been operationalized.MethodsAn integrative review was conducted in 26 quantitative or mixed-method studies and study protocols. Thematic synthesis with an abductive approach was used for analysis.ResultsSeven themes of studied outcomes were identified, as well as four cluster themes: themes related to Illness-Related Concerns, themes related to the Dignity-Conserving Repertoire, themes related to the Social Dignity Inventory, and themes regarding Overarching Dignity Issues. Most outcomes studied dealt with Illness-Related Concerns within the themes of “Performance, symptoms and emotional concerns” and “End-of-life and existential aspects”. Themes linked to the Social Dignity Inventory had the lowest number of outcomes studied. Outcomes regarding overarching dignity issues such as “Dignity-related distress” and “Quality of life” were common. However, the results lacked concrete communication outcomes.Significance of resultsThe results will underpin future research in which dignity-conserving care is implemented and evaluated, and contribute to the provision of evidence-based palliative care. A greater focus on outcomes within cluster themes related to the Dignity-Conserving Repertoire and the Social Dignity Inventory is needed, as is more focus on communication outcomes.

scholarly journals Women's in Fitness Social Belonging and Physical Activity in the Context of Quality of Life

2015 ◽  
Vol 3 ◽  
pp. 486
Author(s):  
Aleksandra Cuprika ◽  
Andra Fernate ◽  
Leonids Cupriks
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Interpersonal Relationships ◽  
Positive Impact ◽  
Interpersonal Relationship ◽  
Social Groups ◽  
Physically Active ◽  
The Social ◽  
Social Belonging

<p><em>Forming as many interpersonal relationships as possible is one of the most important goals in peoples’ lives.</em> <em>Mutual p</em><em>hysical activities create a basis for social belonging.</em> <em>Therefore, the goal of the study is </em><em>to determine the correlation between the components of social belonging and physical activity among women in fitness.</em> <em>The social belonging analysis was conducted with the use of questionnaires (adopted in Latvian), and a shortened version of IPAQ to determine the levels of physical activity.</em> <em>The components of social belonging were defined, and several weak, but significant, correlations between these components and the level of physical activity were found.</em> <em>According to the data obtained in the current study we can conclude, that social belonging has positive impact on PA. Those, who more often feel the relatedness, satisfactory from interpersonal relationship and inclusion in the social groups are more physically active. In order to evaluate, how the quality of life aspect of social belonging for women in fitness correlates with physical activity, they must be taken into account.</em></p><p> </p>

scholarly journals Kualitas Hidup Pasien Stroke dalam Perawatan Palliative Homecare

2017 ◽  
Vol 5 (1) ◽  
pp. 42
Author(s):  
Ulfa N Karim ◽  
Erika Lubis
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Palliative Care ◽  
Stroke Patient ◽  
Complex Disease ◽  
Phenomenological Study ◽  
Social Function ◽  
The Social ◽  
Social Domains

<em>Stroke is a neurological deficit multi complex disease that causes physical or mental disability can affect all aspects of an individual's life, including the quality of life of patients. Quality of life related to the welfare of patients and families with the provision of Palliative homecare Phenomenological study was conducted to explore in depth the quality of life of patients in palliative care homecare. Participants in this study with 13 respondents using purposive sampling technique. Themes related to the quality of life is domains includes physical activity, diet, memory and concentration, physical mobility, speech, pain, sleep and rest. Psychological domains include self-image, motivation of life, happiness and sadness. Among other social domains of social change include changes in the social function and the role change. Quality of life domains increased physical activity, diet, mobilization of physical and speech. Quality of life increased in the psychological domains motivation alive, happy feelings. Quality of life increased in the social domains changes in social function. This study shows that the quality of life patients stroke increasing and study recommended importance further research is important and palliative care as an intervention homecare nursing which plays an important role for improving the quality of life stroke patient. This study shows that the quality of life patients stroke increasing and study recommended importance further research is important and palliative care as an intervention homecare nursing which plays an important role for improving the quality of life stroke patient.</em>

scholarly journals Conforto nos momentos finais da vida: a percepção da equipe multidisciplinar sobre cuidados paliativos [Comfort in the last moments of life: the multidisciplinary team's perception on palliative care] [Confort en los momentos finales de la vida: la percepción del equipo multidisciplinaria en cuidados paliativos]

2019 ◽  
Vol 27 ◽  
pp. e45135
Author(s):  
Antonio Ribeiro Silva ◽  
Thereza Maria Magalhães ◽  
Raquel Sampaio Florencio ◽  
Lorena Campos Souza ◽  
Amanda Caboclo Flor ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Multidisciplinary Team ◽  
Northeastern Brazil ◽  
Care Practice ◽  
Structured Interviews ◽  
Hospital Unit ◽  
Descriptive Qualitative

Objetivo: analisar a percepção dos profissionais da equipe multidisciplinar acerca da assistência em cuidados paliativos. Método: estudo descritivo, qualitativo, desenvolvido em outubro de 2017, em hospital especializado em doenças cardiopulmonares situado em uma capital do nordeste brasileiro. O projeto do estudo foi aprovado por Comitê de Ética em Pesquisa. A amostra contou com 15 participantes da equipe multidisciplinar. Os dados foram coletados mediante entrevista semiestruturada e submetidos à análise temática. Resultados: da análise, emergiram duas categorias: conhecimento da equipe multidisciplinar sobre cuidados paliativos e a percepção da prática dos cuidados paliativos. Os profissionais possuem um conhecimento ainda incipiente sobre cuidados paliativos e suas prerrogativas, além da necessidade de um comprometimento efetivo para a qualidade desse cuidado. Conclusão: apesar de os profissionais reconhecerem a necessidade de oferecer conforto nos momentos finais da vida, o conhecimento acerca do cuidado paliativo é limitado e, por isso, eles vivenciam dilemas ao lidar com equipes, pacientes e familiares.ABSTRACTObjective: to analyze the perception of professionals of the multidisciplinary team about assistance in palliative care. Method: descriptive, qualitative study, developed in October 2017 in a hospital unit specialized in cardiopulmonary diseases located in a capital of Northeastern Brazil. The sample included 15 participants from the multidisciplinary team. Data were collected through semi-structured interviews and submitted to thematic analysis. Results: from the analysis, two categories emerged: knowledge of the multidisciplinary team on palliative care and the perception of palliative care practice. The professionals have a still incipient knowledge about what palliative care is and its prerogatives, in addition to the need for an effective commitment to the quality of this care. Conclusion: Although professionals recognize the need to offer comfort in the final moments of life, knowledge about palliative care is limited and, therefore, professionals perceive dilemmas when dealing with staff, patient and family.RESUMENObjetivo: analizar la percepción de los profesionales del equipo multidisciplinario sobre la asistencia en cuidados paliativos. Método: estudio descriptivo, cualitativo, desarrollado en octubre de 2017 en una unidad hospitalaria especializada en enfermedades cardiopulmonares ubicada en una capital del noreste de Brasil. La muestra incluyó a 15 participantes del equipo multidisciplinario. Los datos fueron recolectados a través de entrevistas semiestructuradas y sometidos a análisis temático. Resultados: del análisis surgieron dos categorías: conocimiento del equipo multidisciplinario sobre cuidados paliativos y la percepción de la práctica de cuidados paliativos. Los profesionales tienen un conocimiento aún incipiente sobre qué son los cuidados paliativos y sus prerrogativas, además de la necesidad de un compromiso efectivo con la calidad de esta atención. Conclusión: aunque los profesionales reconocen la necesidad de ofrecer comodidad en los momentos finales de la vida, el conocimiento sobre los cuidados paliativos es limitado y, por lo tanto, los profesionales perciben dilemas al tratar con el personal, el paciente y la familia.

scholarly journals Perception of cancer patients in palliative care about quality of life

2018 ◽  
Vol 71 (4) ◽  
pp. 1998-2004 ◽  
Author(s):  
Silmara Meneguin ◽  
Ticiane Dionísio de Sousa Matos ◽  
Maria de Lourdes da Silva Marques Ferreira
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Quantitative Research ◽  
Public Hospital ◽  
Disease Process ◽  
Well Being ◽  
Relief Of Suffering ◽  
Improvement Method

ABSTRACT Objective: To understand the perception of cancer patients in palliative care about quality of life and identify propositions for its improvement. Method: This is a quantitative research carried out with 96 patients in palliative care, admitted in a public hospital from March 2015 to February 2015. The interviews were transcribed and analyzed by the methodology Discourse of the Collective Subject. Results: Quality of life was tied to meanings of health, well-being, happiness and spirituality; however, family and financial problems also had an impact on the perception of the construct. Interventions aimed at the relief of suffering, possibility of return to work and resolution of problems had suggestions for improvement. Conclusion: The results indicate that the concept of quality of life is subjective, tied to personal values and influenced by the repercussions of the health-disease process. In addition, they can guide actions based on interdisciplinary assistance aimed at the real needs of these patients.

scholarly journals Psychological Status in Multiple Sclerosis Patients: A Qualitative Study

2020 ◽  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Psychological Status ◽  
Psychological State ◽  
Analysis Approach ◽  
Data Saturation ◽  
Multiple Sclerosis Patients

Background: Multiple Sclerosis (MS) is a chronic and progressive disease and getting along with the social activities ages have a significant impact on the quality of life and psychological status of these patients. Because the psychological state of patients is an effective factor in the treatment process and life in chronic conditions, The aim of this study was to identify the psychological status of these patients from the viewpoint of patients and experts. Methods: The current qualitative study was conducted in thematic analysis approach. In this study, participated 24 MS patients with maximum diversity in gender, age, illness duration and illness severity, and 8 experts in Neurology, Psychiatry, Psychology and Nursing from Guilan province. Participants were selected by purposive sampling method and Then, the data were gathered through unstructured interviews up to data saturation. Data analysis was done using thematic analysis approach by Attride-Stirling method. Findings: From the total information, three global themes (individual problems, interactive problems, and disease-related problems) were identified. Interactive problems included (interpersonal sensitivity, aggression, sexual, social, and dependence) and disease-related problems (disease reaction). Conclusion: The results of this study showed that MS patients are involved in several psychological problems in the domains include; individual, interactive, and disease-related, Accordingly, it is necessary to develop psychological interventions based on these problems and present for improving the mental status, quality of life and their compatibility.

Experiences of patients and caregivers with early palliative care: A qualitative study

2016 ◽  
Vol 31 (1) ◽  
pp. 72-81 ◽  
Author(s):  
Breffni Hannon ◽  
Nadia Swami ◽  
Gary Rodin ◽  
Ashley Pope ◽  
Camilla Zimmermann
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Qualitative Study ◽  
Controlled Trial ◽  
Qualitative Interviews ◽  
Cluster Randomised Controlled Trial ◽  
Early Palliative Care ◽  
Individual Interviews ◽  
Randomised Controlled

Background: Early palliative care improves quality of life and satisfaction with care and is increasingly endorsed for patients with advanced cancer. However, little is known about the experience of receiving early palliative care from a patient and caregiver perspective. Aim: The aim of this qualitative study was to determine, from a participant perspective, the experience of receiving early palliative care and elements of that care. Design: Qualitative grounded theory study using individual interviews. Setting/participants: The study took place at a comprehensive cancer centre. Patients ( n = 26) and caregivers ( n = 14) from the intervention arm of a cluster-randomised controlled trial of early palliative care versus standard oncology care participated in qualitative interviews. Participants were asked to comment on their quality of life, the quality of care provided over the intervention period and their experiences with the palliative care team. Results: Participants described feeling supported and guided in their illness experience and in their navigation of the healthcare system. Specific elements of early palliative care included prompt, personalised symptom management; holistic support for patients and caregivers; guidance in decision-making; and preparation for the future. Patients with symptoms particularly valued prompt attention to their physical concerns, while those without symptoms valued other elements of care. Although three patients were ambivalent about their current need for palliative care, no distress was reported as a consequence of the intervention. Conclusion: The elements of care described by participants may be used to develop, support and refine models of early palliative care for patients with cancer.

scholarly journals Workplace Environment and its Impact on the Quality of Life of Employees

2021 ◽  
Vol 23 (2) ◽  
Author(s):  
Bushra Begum ◽  
◽  
Azam Mohd. ◽  
Keyword(s):  
Quality Of Life ◽  
Interpersonal Relationships ◽  
Social Relationship ◽  
Organizational Politics ◽  
Workplace Culture ◽  
Physical And Mental Health ◽  
Workplace Environment ◽  
The Social ◽  
Or Task

The workplace is an arranged area which is provided by the company in order to achieve its goal. An arranged area can be defined as the layout of a work space which suits the nature of the job or task that is to be performed. Environment, as we know, is the sum total of all factors that are present in the surroundings. Workplace environment includes the workplace culture, the interpersonal relationships, the atmosphere prevailing in the organizations, attitude of superiors and colleagues, level of organizational politics prevailing, physical facilities offered to employees like cabins, ventilation, lightening, rest hours, workstations etc. All these factors have a significant impact in maintaining the quality of life of employees either positively or negatively. Quality of life is influenced by an individual’s physical and mental health, the degree of independency, the social relationship with the environment, and other factors (Ruževičius, 2012; Shin, 1979) . An organization has possibilities to increase its employee’s quality of life and loyalty by improving the working conditions and environment. This paper will address Workplace Environment and quality of life of employees.

scholarly journals “My Friends are at the Bottom of My Schedule”: A Qualitative Study on Social Health among Nursing Students during Clinical Placement

2020 ◽  
Vol 17 (18) ◽  
pp. 6921
Author(s):  
Hon Lon Tam ◽  
Aimei Mao ◽  
Pak Leng Cheong ◽  
Iat Kio Van
Keyword(s):  
Quality Of Life ◽  
Nursing Students ◽  
Career Development ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Professional Knowledge ◽  
Social Health ◽  
Clinical Placement ◽  
Depth Interviews

Clinical placement is an essential component for nursing students, allowing them to transfer professional knowledge into practice. The quality of life among nursing students and nurses was reviewed to examine its impact on the quality of provided care. However, it is unclear how social health among nursing students is affected during clinical placement. Final-year students who had finished clinical placement were invited to participate in this qualitative study. Twenty-one in-depth interviews were conducted and transcribed verbatim for thematic analysis. Two main themes, i.e., contributors to lack of social health, and manifestations of lack of social health, emerged from seven sub-themes. Students experienced different challenges during the clinical placement, but some of these did contribute to effects on their social health. Lack of social health might further influence career development after graduation. Supportive strategies from colleagues, nursing colleges and hospitals might potentially improve students’ social health during the clinical placement.

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