Health visitors' experiences supporting families with a child who has a congenital syndrome
It is important for practitioners involved in a child's early years, such as health visitors, to feel confident in caring for families with a child who has a named syndrome or syndrome without a name (SWAN). Health visitors' perspectives on their capacity to support these families are yet to be examined in the literature. Therefore, this study aimed to explore health visitors' perceived roles and confidence when caring for families with children who have a named syndrome or SWAN. Semi-structured interviews involving 10 health visitors, working across three community teams in south-east England, fulfilled the research aims. Interviews were transcribed verbatim for thematic analysis. Perceived lack of training, professional support and subsequently practitioner confidence were contributing factors to health visitors' feelings when supporting these families.