Health visitors' experiences supporting families with a child who has a congenital syndrome

2020 ◽  
Vol 8 (1) ◽  
pp. 32-40
Author(s):  
Rebecca Ingleby ◽  
Marianne Piano ◽  
Pat Colliety

It is important for practitioners involved in a child's early years, such as health visitors, to feel confident in caring for families with a child who has a named syndrome or syndrome without a name (SWAN). Health visitors' perspectives on their capacity to support these families are yet to be examined in the literature. Therefore, this study aimed to explore health visitors' perceived roles and confidence when caring for families with children who have a named syndrome or SWAN. Semi-structured interviews involving 10 health visitors, working across three community teams in south-east England, fulfilled the research aims. Interviews were transcribed verbatim for thematic analysis. Perceived lack of training, professional support and subsequently practitioner confidence were contributing factors to health visitors' feelings when supporting these families.

2015 ◽  
Vol 13 (2-3) ◽  
pp. 162-184
Author(s):  
Sarah Flanagan

Background and rationale. Reading stories telling stories is a familiar practice within primary education; furthermore there is recognition that stories are used within higher education. This study seeks to understand how storytelling within higher education contributes to the learning experience of early years students. It is anticipated that a deeper understanding of stories and storytelling in this context will lead to a greater appreciation of this resource and its enhanced use. Design/methods. A qualitative methodology was used. The participants included 45 early years students. All students involved in the study were employed as early years workers contributing to the care and education of children aged 0–5. Semi structured interviews and non-participant observations were completed to collect the data and thematic analysis was used in its interpretation. Findings. Participants saw multiple contributions of story and storytelling including the facilitation of learning, the enhancement of reflective practice and the reinforcement of professional/group culture. Story and storytelling provided opportunities for relaxation, entertainment and had a significant social impact. Certain activities encouraged storytelling and the most engaging stories were those that the listener could relate to


2021 ◽  
pp. 104973232110413
Author(s):  
Jane Lockton ◽  
Melissa Oxlad ◽  
Clemence Due

Pregnancy loss and neonatal death are recognized as distressing experiences for parents and other family members. However, no research has specifically addressed the experiences of grandfathers. This study aimed to understand grandfathers’ grief experiences, and to identify supports they provide, receive, and desire following the loss of a grandchild in pregnancy or the neonatal period. Semi-structured interviews with 10 Australian grandfathers were analyzed, applying principles of thematic analysis. Three themes related to grief and three themes related to support were identified. Findings indicated that grandfathers expressed grief in a range of ways, and emotional expressiveness did not reflect the extent of their grief. Grandfathers typically provided extensive support to their child and family; however, few supports were available to help grandfathers. Recognition and validation of grandfathers’ grief, early access to information, and guidance to a variety of supports including written materials, peer and professional support, is required.


2020 ◽  
Vol 8 (10) ◽  
pp. 426-434
Author(s):  
Sue Peckover ◽  
Katie Shearn ◽  
David Wood ◽  
Sharon Frankland ◽  
Patricia Day

In 2018, an employing organisation in the north of England introduced an initiative for health visitors and school nurses (SCPHN) to work in the other field of practice. The aim of this study was to explore SCPHN professionals’ and managers’ views about the introduction, benefits and challenges of extended SCPHN practice. Semi-structured interviews were undertaken with health visitors, school nurses, practice teachers, mentors and managers undertaking or supporting this initiative (n=18) and one focus group with eight SCPHNs working in the 0–19 service. These were audio-recorded, transcribed and thematically analysed. Workplace learning was challenging. Support from colleagues, mentors and practice teachers was crucial. Additional skills and knowledge were valued. SCPHNs gained confidence in working with children and families across the 0–19 age range. Additional skills enabled SCPHNs to deliver a more streamlined service to families with children aged 0–19 but concerns about workforce capacity and changing professional roles remain.


2021 ◽  
Author(s):  
Philippa K Bird ◽  
Zoe Hindson ◽  
Abigail Dunn ◽  
Anna Cronin de Chavez ◽  
Josie Dickerson ◽  
...  

A secure parent-infant relationship lays the foundations for childrens development, however there are currently no measurement tools recommended for clinical practice. We evaluate the clinical utility of a structured assessment of the parent-infant relationship (the Maternal Postnatal Attachment Scale, MPAS) in a deprived, multi-ethnic urban community in England. This paper answers the question: what are health visitors views on the parent-infant relationship, and experiences of piloting the MPAS? It explores the barriers and facilitators to implementation, and complements the paper on psychometric properties and representativeness reported in Dunn et al (submitted). Semi-structured interviews were conducted with 11 health visitors and data were analysed using thematic analysis. Health visitors stressed the importance of the parent-infant relationship and reported benefits of the MPAS, including opening conversation, and identifying and reporting concerns. Challenges included timing, workload, the appropriateness and understanding of the questions and the length of the tool. Suggestions for improvements to the tool were identified. Our findings help to explain results in Dunn et al, and challenges identified would hinder routine assessment of the parent-infant relationship. Further work with health professionals and parents has been undertaken to co-produce an acceptable, feasible and reliable tool for clinical practice.


2020 ◽  
Vol 13 (4) ◽  
pp. 60-71
Author(s):  
Aglaia Stampoltzi ◽  
Εrene Stylianaki ◽  
Εfstratia Stavrinou

Introduction: Children’s immunization has been one of the most important public health measures in the 20th century. However, a number of parents consider the vaccines unsafe and they are skeptical about their use. Aim: The aim of the present study was to investigate parents’ perceptions and views on children’s vaccination. Methods: Twenty parents (2 male and 18 female) were included in the present pilot study which was based on semi-structured interviews. Ten parents (females) were healthcare professionals (nurses and health visitors) and ten (2 males and 8 females) were not healthcare professionals. Interview data were analyzed using the thematic analysis technique. Results: Results show that parents were concerned about vaccination safety, side effects of the vaccines, lifelong coverage of children, immune system overload, commercial purposes of vaccines and validity of information about vaccination. Comparisons between parents who were healthcare professionals and parents who had a different profession showed that the latter were more hesitant and had more misconceptions about vaccines. Conclusions: The decision to vaccinate children or not is a huge responsibility towards every child, but also towards society. Healthcare professionals are able to provide objective information to parents to take informed decisions.


Author(s):  
Alan Emond ◽  
Alice Haynes

Five programmes which offer additional services to enhance the child health programmes for families at risk of poorer maternal and child health and development outcomes are being evaluated. Flying Start is a community-based programme targeted on families with children under 4 years of age living in deprived neighbourhoods in Wales. A Better Start is a place-based programme implemented by local partnerships in English wards with high levels of economic deprivation, providing services and support for all families living in the target wards from pregnancy until a child’s fourth birthday. The Family Nurse Partnership is a structured programme of home visits for first-time young mothers. The Maternal Early Childhood Sustained Home-visiting programme is a structured programme of sustained home visiting delivered by health visitors in pregnancy and the first 2 years. The Trial of Healthy Relationship Initiatives for the Very Early-years is comparing two parenting programmes for women with additional mental health or social support needs in pregnancy with outcomes up to 18 months. Early published results are reviewed and links given to the websites to signpost the reader to up-to-date information on the effectiveness of each programme.


2020 ◽  
pp. 136749352096783
Author(s):  
Nicola Brown ◽  
Tim Luckett ◽  
Patricia M Davidson ◽  
Michelle DiGiacomo

Cigarette smoking is the leading preventable cause of poor pregnancy outcomes. Pregnancy is a trigger for smoking cessation yet, up to 50% of parents will relapse in the early years of their child’s life. This study explored the smoking-related perceptions and experiences of 11 parents seeking professional help with the care and parenting of babies and toddlers using semi-structured interviews. Inductive thematic analysis identified three themes: parenting as a change catalyst, smoking as a parenting challenge and smoking as a coping strategy. Becoming a parent is a catalyst to reduce the associated risks and stigma associated with smoking, but maintaining rules and boundaries can be perceived as a further burden for parents who are struggling to care for their infant. When faced with difficulties with parenting, parents may revert to smoking as a coping strategy. Based on these study findings, interventions targeting gender norms may be useful in addressing smoking cessation.


2021 ◽  
Vol 29 (12) ◽  
pp. 674-682
Author(s):  
Grace Baptie ◽  
Elena Mueller Januário ◽  
Alyson Norman

Background Approximately one-third of women reflect on childbirth as a traumatic experience and the way women appraise their birth experience is significant to their postnatal wellbeing. This study aimed to identify and compare experiences of childbirth for mothers who reflect on birth as a traumatic or non-traumatic event. Methods Semi-structured interviews were conducted with 14 mothers in the postpartum period who appraised their birth as either traumatic or non-traumatic. The data were analysed using thematic analysis to elicit themes and subthemes. Results Thematic analysis revealed two contrasting themes relating to whether women felt empowered or powerless during birth. Empowerment was associated with women's trust in their maternity care, the sense of control they felt over their body and birth and the extent to which they felt informed of their options. Being powerless was associated with distrust towards healthcare services, feeling as though they lacked control over the process and feeling ‘in the dark’ about what was happening. Conclusions Women's sense of empowerment during birth is an important contributor to the appraisal of childbirth as a traumatic or non-traumatic experience. Empowerment is largely determined by the dynamic between a mother and the support around her.


2017 ◽  
Vol 13 (3) ◽  
pp. 263-274 ◽  
Author(s):  
Tonia Crawford ◽  
Peter Roger ◽  
Sally Candlin

Effective communication skills are important in the health care setting in order to develop rapport and trust with patients, provide reassurance, assess patients effectively and provide education in a way that patients easily understand (Candlin and Candlin, 2003). However with many nurses from culturally and linguistically diverse (CALD) backgrounds being recruited to fill the workforce shortfall in Australia, communication across cultures with the potential for miscommunication and ensuing risks to patient safety has gained increasing focus in recent years (Shakya and Horsefall, 2000; Chiang and Crickmore, 2009). This paper reports on the first phase of a study that examines intercultural nurse patient communication from the perspective of four Registered Nurses from CALD backgrounds working in Australia. Five interrelating themes that were derived from thematic analysis of semi-structured interviews are discussed. The central theme of ‘adjustment’ was identified as fundamental to the experiences of the RNs and this theme interrelated with each of the other themes that emerged: professional experiences with communication, ways of showing respect, displaying empathy, and vulnerability.


2021 ◽  
Vol 31 (3) ◽  
pp. 472-483
Author(s):  
Ana Cristina Lindsay ◽  
Madelyne J. Valdez ◽  
Denisse Delgado ◽  
Emily Restrepo ◽  
Yessica M. Guzmán ◽  
...  

This descriptive qualitative study explored Latinx mothers’ acceptance of the human papillomavirus (HPV) vaccine for their adolescent children. Data were collected through individual, semi-structured interviews and analyzed using a hybrid method of thematic analysis that incorporated deductive and inductive approaches. Twenty-two ( n = 22), mostly foreign-born, Latinx mothers of male and female adolescents participated in the study. Three main themes and nine subthemes emerged from the analyses. Findings identified the need for increased efforts to raise awareness and knowledge among Latinx mothers of the direct benefits of the HPV vaccine for sons, including stressing prevention of HPV-associated cancers in males. Findings also underscore the need for improved health care providers’ communication and recommendation of the HPV vaccine for Latinx adolescent males. Future research should intervene upon the study’s findings to address barriers that remain and affect Latinx mothers’ acceptance and uptake of the HPV vaccine for their children, in particular their sons.


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