Addressing dementia needs in Australia

Author(s):  
Irene Blackberry ◽  
Clare Wilding ◽  
Michael Bauer ◽  
Margaret Winbolt ◽  
Hilary Davis

Delivering dementia care in rural Australia remains a challenge. Large geographical area, small population, and lack of skilled workforce cause inequity in health outcomes for people living in rural areas. While a third of older people live outside metropolitan areas, the proportion of older people is higher and 40% of people with dementia reside in rural areas. In this chapter, we present government policy to address dementia, the second cause of death in Australia. We showcase latest research and innovative approaches to rural dementia care that aim to build from government policy objectives and here we talk about approaches that include technologies, care pathways, and training volunteers and local primary care workforce in the rural Australian context.

Author(s):  
Lowri M. Edwards ◽  
Mair Parry

Abstract Background North West Wales is predominantly rural with a relatively small population spread over a large geographical area. The rapid development of the COVID-19 pandemic led to a radical re-thinking of how to provide continuing paediatric outpatient care in the face of a lockdown. The solution adopted was to use telephone consultations. Aims This study took place during the summer of 2020, after the first lockdown had been relaxed. The purpose of this study was to evaluate the acceptability of telephone consultations as an alternative to conventional paediatric outpatient appointments and assess whether it could continue to have a useful role beyond the pandemic. Methods Two hundred ninety-five telephone surveys were conducted with respondents, most of whom were carers of paediatric outpatients. Questions explored the child’s underlying condition, respondents’ attitudes towards the service received, social factors including distance previously travelled to the hospital and whether they would find ongoing telephone review acceptable or not. Results Sixty-one percent of respondents expressed a positive interest in ongoing telephone consultations. They commented particularly on compatibility with work commitments, childcare arrangements and travel times. Those travelling more than 1 h were particularly positive in their support. Respondents expressed the continued need for face-to-face review if the child’s condition changed acutely. Conclusion Telephone consultations are an acceptable means of improving clinic punctuality, accessibility and convenience for families in rural areas, with ongoing potential beyond the pandemic. Careful consideration is required of the individual’s needs and requirement for physical examination when extending the use of telephone consultations.


Author(s):  
Suzanne Cahill

This chapter will be used to highlight the key contribution this book makes to the field of dementia care policy and practice, as well as identifying some of its limitations. Returning to the core themes consolidated in the UN Convention and introduced in chapter three namely equality autonomy participation and solidarity and based on the topics reviewed in earlier chapters, the chapter points to the gaps that exist between the rhetoric of policy initiatives and the reality of peoples’ everyday lives and the further gap that can exist between policy objectives and research evidence. The chapter argues for a need for much more budgetary and political attention to be focused on dementia and for future iterations of dementia strategies to take cognizance of human rights issues. Human rights legislation rather than being seen as punitive and burdensome should be viewed as a critical framework for guiding all levels of action with people with dementia and their family members.


2014 ◽  
Vol 9 (1) ◽  
pp. 69-95 ◽  
Author(s):  
Christina Buse ◽  
Julia Twigg

The article explores how clothing exposes – and troubles – the ambiguous location of care homes on the boundaries of public/private, home/institutional space. It deploys a material analysis of the symbolic uses and meanings of dress, extending the remit of the new cultural gerontology to encompass the “fourth age,” and the lives of older people with dementia. The article draws on an ESRC-funded study “Dementia and Dress,” conducted in the United Kingdom (UK), which explored everyday experiences of clothing for people with dementia, carers and careworkers, using ethnographic and qualitative methods. Careworkers and managers were keen to emphasise the “homely” nature of care homes, yet this was sometimes at odds with the desire to maintain presentable and orderly bodies, and with institutional routines of bodywork. Residents’ use of clothing could disrupt boundaries of public/private space, materialising a sense of not being “at home,” and a desire to return there.


2010 ◽  
Vol 2010 ◽  
pp. 1-9 ◽  
Author(s):  
Nicola Roberts ◽  
Stephen Curran ◽  
Virginia Minogue ◽  
Jane Shewan ◽  
Rebecca Spencer ◽  
...  

Background. A pilot study using a mixed methodology was used to evaluate the effects of travelling on NHS Patient Transport Service ambulances on the experience of patients with dementia. The study assessed the feasibility of using Dementia Care Mapping in this setting and looked at the effects of the presence of designated staff teams on journeys, compared to journeys without such designated staff.Method. Dementia Care Mapping was used to observe and record participants' behaviour, mood, and engagement during their outward and return journeys to NHS hospital sites. Observations were analysed for themes relating to the effects of travelling on PTS across the two groups.Results and Conclusions. Participant's observed mood scores did not differ significantly across the two groups but the range of behaviours recorded on the escorted group journeys did and were reflective of formal care environments. The findings from this study highlight the importance of trained escorts on NHS PTS ambulances for people with dementia and provide important information regarding further research in this area.


Author(s):  
Abel Chai Yu Hao ◽  
Chean Hung Lai ◽  
Hieng Tiong Su ◽  
Yi Lung Then ◽  
Fei Siang Tay ◽  
...  

<p>In rural Sarawak, the internet accessibility is low due to unreliable power grids to support telecommunication network and large geographical area. The risk for network infrastructure implementation is high for Internet Service Provider (ISP), thus more practical and accurate cost estimation methods should be used [1-3]. This paper reviews different types of cost estimation methods and the accuracy and feasibility of each methods are discussed and compared for network infrastructure implementation in rural Sarawak. The unique characteristics of rural Sarawak are considered in this work, including the topography, development of rural areas and acceptance of new technologies. Different cost estimation methods are identified for different senarios and availability of data.</p>


2005 ◽  
Vol 68 (8) ◽  
pp. 367-374 ◽  
Author(s):  
Sarah Baillon ◽  
Erik van Diepen ◽  
Richard Prettyman ◽  
Nan Rooke ◽  
Julie Redman ◽  
...  

Snoezelen and reminiscence are interventions commonly used by occupational therapists in dementia care. Snoezelen is reported to have a positive effect on patients' mood and their behaviour, in particular on agitated behaviour. A study was designed to assess the effects of Snoezelen on agitated behaviour in dementia. Reminiscence therapy was selected as a suitable comparison intervention, which would enable the benefits of Snoezelen other than those attributable to receiving one-to-one attention from staff to be evaluated. There was found to be considerable variation in the direction and magnitude of change in individual participants' agitated behaviour and heart rate during and after the sessions. This article considers the possible explanations for these individual differences and the practical implications of this research.


2021 ◽  
Vol 13 (24) ◽  
pp. 13976
Author(s):  
Eugenio Cejudo-García ◽  
Francisco Navarro-Valverde ◽  
José Antonio Cañete-Pérez ◽  
Noelia Ruiz-Moya

Civil society plays an essential role in the development of our rural areas. In spite of this, little research has been conducted on the role of non-profit organizations, often referred to in general terms as the third sector, within the framework of the LEADER program for rural development, especially in such a large geographical area as Andalusia, the study area of this research. The diversity of the groups that make up the “Others” group of rural development stakeholders is one of its most important characteristics. Over the course of the study period (2000–2015), these organizations have played a very significant role in Andalusia in both quantitative and qualitative terms. In order to find out more about the diversity of third sector organizations and to quantify and evaluate their importance, we carried out a detailed analysis of all the LEADER projects commenced in Andalusia between 2000 and 2015. The quantitative and quantitative results obtained highlight the diversity of these projects and how widely their presence varied from one type of rural area to the next. Our research reopens the debate about the growing role played by non-profit organizations in developed societies at a global level and within LEADER in particular.


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