scholarly journals Adjusting the family’s life: A grounded theory of caring for children with special healthcare needs in rural areas, Thailand

PLoS ONE ◽  
2021 ◽  
Vol 16 (10) ◽  
pp. e0258664
Author(s):  
Katemanee Moonpanane ◽  
Salisa Kodyee ◽  
Chomnard Potjanamart ◽  
Eva Purkey

This study aims to understand the experiences of families of children with special healthcare needs in rural areas in Thailand. Grounded theory (GT) was employed to understand families’ experiences when caring for children with special healthcare needs (CSHCN) in rural areas. Forty-three family members from thirty-four families with CSHCN participated in in-depth interviews. Interviews were recorded and transcribed. The constant comparative method was used for data analysis and coding analysis. Adjusting family’s life was the emergent theory which included experiencing negative effects, managing in home environment, integrating care into a community health system, and maintaining family normalization. This study describes the process that families undergo in trying to care for CSHCN while managing their lives to maintain a sense of normalcy. This theory provides some intervention opportunities for health care professionals when dealing with the complexities in their homes, communities and other ambulatory settings throughout the disease trajectory, and also indicates the importance of taking into consideration the family’s cultural background.

2021 ◽  
pp. 1-21
Author(s):  
Julian C. Hughes ◽  
Jordan Baseman ◽  
Catherine Hearne ◽  
Mabel Leng Sim Lie ◽  
Dominic Smith ◽  
...  

Abstract This paper reports on a study which examined the notions of authenticity and citizenship for people living with cognitive impairment or dementia in a care home in the North-East of England. We demonstrated that both notions were present and were encouraged by engagement with an artist, where this involved audio and visual recordings and the creation of a film. The artist's interactions were observed by a non-participant observer using ethnographic techniques, including interviews with the residents, their families and the staff of the care home. The data were analysed using grounded theory and the constant comparative method of qualitative analysis. Our findings suggest that participatory art might help to maintain and encourage authenticity and citizenship in people living with dementia in a care home. Certainly, authenticity and citizenship are notions worth pursuing in the context of dementia generally, but especially in care homes.


2007 ◽  
Vol 22 (4) ◽  
pp. 140-146 ◽  
Author(s):  
Shannon McCready ◽  
Denise Reid

Student musicians frequently need to take breaks from playing their instruments because of physical playing-related injuries, yet little is known about their experiences with these occupational disruptions. We conducted a qualitative study that explored student musicians' lived experiences with unplanned disruptions stemming from engagement in their major occupation of playing an instrument. In-depth interviews with seven student musicians who attended either a special arts high school or a university were conducted. Consistent with a grounded theory approach to qualitative research, the constant comparative method of qualitative data analysis was implemented. A major finding related to the theme of “being and becoming,” where student musicians expressed a strong sense of belonging to a group of other like musicians who they learned from, relied on for support, and created music with. Another theme was motivation to excel, where students expressed a strong desire and motivation to improve and master their instrument. Occupational tensions and pressures emerged as another theme. Students were aware of the need to practice and the need to care for their bodies. A constant negotiation was required in which students struggled to find a good balance between the need to practice and to respect their bodies while maintaining an identity of a musician. These findings are discussed in relation to how health care providers and educators need to understand the demands and stresses associated with playing an instrument so that they can better support these young musicians.


2017 ◽  
Author(s):  
Ιωάννα Μπακιρτζή

Η παρούσα διατριβή πραγματεύεται τρόπους προώθησης της Συμπεριληπτικής Εκπαίδευσης στην Πρωτοβάθμια Εκπαίδευση στην Ελλάδα. Ειδικότερα προτείνει την εφαρμογή της Καθολικής Σχεδίασης για Μάθηση και της Ολικής Ποιότητας στην Εκπαίδευση ως ένα δομημένο πλαίσιο στο οποίο προάγεται η φιλοσοφία της συμπερίληψης και οι αρχές της. Η μέθοδος που ακολουθήθηκε για τη διεξαγωγή της έρευνας εντάσσεται στους κόλπους της ποιοτικής ερευνητικής μεθόδου και συγκεκριμένα της έρευνας – δράσης. Επιπρόσθετα, αξιοποιήθηκαν στοιχεία της θεμελιωμένης θεωρίας (grounded theory), στην οποία βασίστηκε η ανάλυση και επεξεργασία των δεδομένων, που έγινε μέσω της συνεχούς συγκριτικής μεθόδου (constant comparative method). Όσον αφορά στη μεθοδολογία, έγινε χρήση του photovoice, της παρατήρησης, της συνέντευξης καθώς και του αναστοχαστικού ημερολογίου. Για την επίτευξη της εμπιστευσιμότητας εφαρμόστηκε μία πληθώρα στρατηγικών, η οποία στόχευε στην αξία της αλήθειας, στη μεταφερσιμότητα, στην αληθοφάνεια και την επιβεβαιωσιμότητα. Η έρευνα διεξήχθη σε ένα ελληνικό δημόσιο δημοτικό σχολείο και συμμετέχοντές της ήταν μαθητές του σχολείου, οι γονείς τους, οι εκπαιδευτικοί των αντίστοιχων τάξεων και η διευθύντρια.Η έρευνα χωρίστηκε σε τρία στάδια, με το καθένα να προκύπτει λόγω αναγκαιότητας από το προηγούμενο. Έτσι, διαμορφώθηκε το στάδιο της αρχικής αξιολόγησης της υπάρχουσας κατάστασης στο σχολείο με στόχο τη διερεύνηση του βαθμού ανάπτυξης της συμπεριληπτικής εκπαίδευσης, το στάδιο της παρέμβασης με βάση τις αρχές των φιλοσοφιών της καθολικής σχεδίασης για μάθηση και της ολικής ποιότητας και αυτό της τελικής αξιολόγησης της παρέμβασης.Τα αποτελέσματα φανέρωσαν τη δυναμική των δύο παραπάνω φιλοσοφιών για την προώθηση της συμπεριληπτικής εκπαίδευση. Η κάθε μία ξεχωριστά αλλά και σε συνδυασμό με την άλλη οδήγησαν στην εξάλειψη φαινομένων περιθωριοποίησης των μαθητών, στην αύξηση της συμμετοχής τους στο καθημερινό μάθημα και τις σχολικές δραστηριότητες, στην υπερπήδηση των εμποδίων και στην απόδοση ισότιμων ευκαιριών προς όλους. Θετικό αντίκτυπο είχε η παρέμβαση και προς τους γονείς οι οποίοι ήρθαν πιο κοντά στο σχολείο και είδαν τις ανάγκες τους να ικανοποιούνται, όπως και προς τους εκπαιδευτικούς, που ανέπτυξαν σχέσεις συνεργασίας και είδαν την αλλαγή τόσο στους μαθητές τους όσο και στο σύνολο του σχολείου.


Author(s):  
Mayckel da Silva Barreto ◽  
Bruna Sodré Simon ◽  
Veronica Francisqueti Marquete ◽  
Rebeca Rosa de Souza ◽  
Nara Marilene Oliveira Girardon-Perlini ◽  
...  

ABSTRACT Objetive: Describing the theoretical sampling process in the development of a Grounded Theory based on the Straussian strand. The objective of the field research, used as an example, was to develop a substantive theory, based on the theoretical framework of Symbolic Interactionism, about the perceptions and experiences of patients, family members, and health professionals regarding the presence of the family during emergency care. Method: In the theoretical sampling, 42 participants were recruited, divided into nine sample groups, constituted based on the constant comparative method. Results: The description of this example allowed to identify how theoretical sampling guided data collection, which occurred through the in-depth study of concepts and the search for answers to questions arising from the data. Final Considerations: It is expected that the readers find subsidies to understand how theoretical sampling is conducted in a Grounded Theory study, based on the Straussian strand, and thus be able to apply it.


2017 ◽  
Vol 27 (4) ◽  
pp. 877-897 ◽  
Author(s):  
Jana Lay-Hwa Bowden ◽  
Jodie Conduit ◽  
Linda D. Hollebeek ◽  
Vilma Luoma-aho ◽  
Birgit Apenes Solem

Purpose Online brand communities (OBCs) are an effective avenue for brands to engage consumers. While engaging with the brand, consumers simultaneously interact with other OBC members; thus engaging with multiple, interrelated engagement objects concurrently. The purpose of this paper is to explore both positively and negatively valenced consumer engagement with multiple engagement objects, the interplay between these, and the spillover effect from consumers’ engagement with the OBC to their engagement with the brand. Design/methodology/approach Drawing on 16 in-depth interviews with OBC members of a luxury accessory brand, a constant comparative method was adopted using axial and selective coding procedures. The objective was to understand the nature of participants’ engagement with the brand, the OBC, and the interplay between individuals’ engagement with these objects. The coding framework and resultant interpretive frameworks address engagement valence, outcomes, and direction. Findings This study illustrates consumer expressions of consumers’ positively and negatively valenced engagement with a focal brand, and with the OBC. Further, it demonstrates the interplay (spillover effect) that occurs between consumers’ engagement with the OBC, to their engagement with the brand. While the existence of positively valenced engagement with the OBC was found to further enhance consumer brand engagement (i.e. reflecting an engagement accumulation effect), negatively valenced engagement with the OBC was found to reduce consumer brand engagement (i.e. reflecting an engagement detraction effect). Originality/value While consumer engagement has been recognized to have both positive and negative manifestations, this study demonstrates that consumers’ engagement valence may differ across interrelated engagement objects (i.e. the brand and the OBC). Further, we demonstrate the existence of engagement spillover effects from the OBC to the brand for both positively and negatively valenced engagement.


2019 ◽  
Vol 33 (6) ◽  
pp. 676-684 ◽  
Author(s):  
Martina Sinta Kristanti ◽  
Christantie Effendy ◽  
Adi Utarini ◽  
Myrra Vernooij-Dassen ◽  
Yvonne Engels

Background: Strong family bonds are part of the Indonesian culture. Family members of patients with cancer are intensively involved in caring, also in hospitals. This is considered “normal”: a societal and religious obligation. The values underpinning this might influence families’ perception of it. Aim: To explore and model experiences of family caregivers of patients with cancer in Indonesia in performing caregiving tasks. Design: A grounded theory approach was applied. The constant comparative method was used for data analysis and a paradigm scheme was employed for developing a theoretical model. Setting/participants: The study was conducted in three hospitals in Indonesia. The participants were family caregivers of patients with cancer. Results: A total of 24 family caregivers participated. “Belief in caregiving” appeared to be the core phenomenon. This reflects the caregivers’ conviction that providing care is an important value, which becomes the will power and source of their strength. It is a combination of spiritual and religious, value and motivation to care, and is influenced by contextual factors. It influences actions: coping mechanisms, sharing tasks, and making sacrifices. Social support influences the process of the core phenomenon and the actions of the caregivers. Both positive and negative experiences were identified. Conclusion: We developed a model of family caregivers’ experiences from a country where caregiving is deeply rooted in religion and culture. The model might also be useful in other cultural contexts. Our model shows that the spiritual domain, not only for the patient but also for the family caregivers, should be structurally addressed by professional caregivers.


2020 ◽  
Vol 19 ◽  
pp. 160940692094760
Author(s):  
Pablo A. Cantero-Garlito ◽  
Juan Antonio Flores-Martos ◽  
Pedro Moruno-Miralles

The general objective of this study is to describe and analyze the meanings that participants gave to the experience related to maternal caregiving activities of children with disabilities in the rural context and their impact on daily life and health. In order to achieve this general objective, the following specific objectives were established: (1) To describe the meanings given to experiences related to caregiving activities of children with disabilities; (2) To analyze the impact on daily life and health that these mothers attribute to those activities; (3) To describe how they experience the support provided by the social and healthcare system in rural areas. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method.


2014 ◽  
Vol 75 (4) ◽  
pp. 173-179 ◽  
Author(s):  
Diane Morris ◽  
June Matthews

Purpose: Health care professionals are expected to work collaboratively across diverse settings. In rural hospitals, these professionals face different challenges from their urban colleagues; however, little is known about interprofessional practice in these settings. Methods: Eleven health care professionals from 2 rural interprofessional teams were interviewed about collaborative practice. The data were analyzed using a constant comparative method. Results: Common themes included communication, respect, leadership, benefits of interprofessional teams, and the assets and challenges of working in small or rural hospitals. Differences between the cases were apparent in how the members conceptualized their teams, models of which were then compared with an “Ideal Interprofessional Team”. Conclusions: These results suggest that many experienced health care professionals function well in interprofessional teams; yet, they did not likely receive much education about interprofessional practice in their training. Providing interprofessional education to new practitioners may help them to establish this approach early in their careers and build on it with additional experience. Finally, these findings can be applied to address concerns that have arisen from other reports by exploring innovative ways to attract health professionals to communities in rural, remote, and northern areas, as there is a constant need for dietitians and other health care professionals in these practice settings.


2012 ◽  
Vol 2012 ◽  
pp. 1-15 ◽  
Author(s):  
Sandra P. Small ◽  
Kaysi Eastlick Kushner ◽  
Anne Neufeld

The purpose of this study was to understand parental approach to the topic of smoking with school-age preadolescent children. In-depth interviews were conducted with 38 parents and yielded a grounded theory that explains how parents communicated with their children about smoking. Parents perceived smoking to be a latent danger for their children. To deter smoking from occurring they verbally interacted with their children on the topic and took action by having a no-smoking rule. There were three interaction approaches, which differed by style and method of interaction. Most parents interacted by discussing smoking with their children. They intentionally took advantage of opportunities. Some interacted by telling their children about the health effects of smoking and their opposition to it. They responded on the spur-of-the-moment if their attention was drawn to the issue by external cues. A few interacted by acknowledging to their children the negative effects of smoking. They responded only when their children brought it up. The parents’ intent for the no-smoking rule, which pertained mainly to their homes and vehicles, was to protect their children from second-hand smoke and limit exposure to smoking. The theory can be used by nurses to guide interventions with parents about youth smoking prevention.


2016 ◽  
Vol 26 (14) ◽  
pp. 2024-2034 ◽  
Author(s):  
Andrew Hunter ◽  
John Keady ◽  
Dympna Casey ◽  
Annmarie Grealish ◽  
Kathy Murphy

The objective of this study was to develop a substantive grounded theory of staff psychosocial intervention use with residents with dementia in long-stay care. “Becoming a person again” emerged as the core category accounting for staffs’ psychosocial intervention use within long-stay care. Interview data were collected from participants in nine Irish long-stay settings: 14 residents with dementia, 19 staff nurses, one clinical facilitator, seven nurse managers, 21 nursing assistants, and five relatives. Constant comparative method guided the data collection and analysis. The researcher’s theoretical memos, based on unstructured observation, and applicable extant literature were also included as data. By identifying the mutuality of the participants’ experiences, this classic grounded theory explains staff motivation toward psychosocial intervention use within long-stay care. It also explains how institutional factors interact with those personal factors that incline individuals toward psychosocial intervention use.


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