scholarly journals Care of Children With Disabilities in Rural Areas: Meanings and Impact on Everyday life and Health. Study Protocol

2020 ◽  
Vol 19 ◽  
pp. 160940692094760
Author(s):  
Pablo A. Cantero-Garlito ◽  
Juan Antonio Flores-Martos ◽  
Pedro Moruno-Miralles

The general objective of this study is to describe and analyze the meanings that participants gave to the experience related to maternal caregiving activities of children with disabilities in the rural context and their impact on daily life and health. In order to achieve this general objective, the following specific objectives were established: (1) To describe the meanings given to experiences related to caregiving activities of children with disabilities; (2) To analyze the impact on daily life and health that these mothers attribute to those activities; (3) To describe how they experience the support provided by the social and healthcare system in rural areas. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method.

Author(s):  
Pablo A. Cantero-Garlito ◽  
Pedro Moruno-Miralles ◽  
Juan Antonio Flores-Martos

The purpose of this research is to describe how the mothers of children with disabilities in rural areas of Extremadura perceive care tasks and the subjective impact that these tasks have on their daily life and health, as well as the subjective assessment that these mothers make of the benefits and services of the Spanish welfare policy. An interpretative paradigm was selected, using a qualitative approach and a phenomenological design. Twelve mothers were included. Data were collected through semi-structured interviews. A discourse analysis of the narrative information was performed using open, axial, and selective coding processes and the constant comparative method. Three topics have been extracted from the findings of the analysis: (1) extensive care responsibilities, (2) impacts upon well-being and daily life, and (3) resources that “barely” help. The care tasks performed by mothers of children with disabilities in rural areas have an enormous impact on their daily life and health. This involvement in caregiving generates a significant occupational imbalance which has an impact on their mental health, and which causes economic and social problems.


Author(s):  
Hsiaowei Cristina Chang ◽  
Resa Marie Kelly ◽  
Ellen P. Metzger

This qualitative study was focused on exploring how in-service teachers' who were attending a three-day “Educating for Sustainability” workshop made sense of sustainability. Another goal of this study was to examine teachers' perceptions of the portrayal of the three dimensions of sustainability (environment, economy and social equity) in short movies that served as “real world” exemplars of sustainability that were freely available online through YouTube or other websites. Data was collected largely through individual semi-structured interviews, but also through questionnaires and written and drawn documentation. The findings, obtained through the constant-comparative method of coding, indicated that teachers' spontaneous descriptions of sustainability emphasized the environmental and economic dimensions of sustainability, but overlooked the equity dimension of sustainability. The videos helped teachers incorporate the 3E's into their sustainability discussions when all three dimensions were addressed, but when the social equity dimension was missing, then it tended to go unnoticed.


2019 ◽  
Vol 11 (11) ◽  
pp. 31-43
Author(s):  
Fredy Andrés Cruz - Vega ◽  
Luz Eliana Figueroa - Granados

The research makes it possible to recognize the judgments of the users who are enrolled in the zero to always family modality and, in turn, establish the relationship they give to the program in the training of their children. The use of qualitative research for this proposal contributes or it establishes the relationship of describing and giving points of view to problems of the social educational and experiential context, the primary objective was to determine the degree of use by users of the program from zero to always family modality, in the municipality of Pamplona. It can be said that the application of this research contributes in part to diagnosing from a personal point of view the impact generated by the program in the training of minors, evidencing in it the theoretical, political and real positions in order to make them aware of the importance of training of children. The instruments used for families in certain rural areas who are the objects of study were semi-structured interviews; validated by experts from the area, they managed to produce key information for the analysis and triangulation. Thanks to the analysis units and the categories established in the interview, it was possible to focus and provide solutions to the objectives set, demonstrating the perception that the beneficiaries of the program of zero They always have in relation to the operation in rural areas of Pamplona. With the information obtained it is clear to establish the conformity of the operation of the program in terms of the role of care for families, the training of minors and the integration of society is thus how the show is getting on the right tide.


Author(s):  
Pablo A. Cantero-Garlito ◽  
Juan Antonio Flores-Martos ◽  
Pedro Moruno-Miralles

Objective: To describe how the assessors of dependency have perceived the process of implementation of the Dependency Act in Spain. Methods: A qualitative method was used to analyse interview data (discourse analysis). Purposive sampling was applied. Sixteen occupational therapists were included, who served as dependency assessors in Extremadura, a region of southern Spain. Data were collected through semi-structured interviews between February and March 2019, focused on the characteristic of the Dependency Act. A discourse analysis of the narrative information was performed using processes of open, axial, and selective coding, as well as the constant comparative method. Results: Three topics were identified: (1) Benefits of implementation, connected with the consideration as subjects of rights and the increase in resources. (2) Difficulties linked to the bureaucratization of the process, the lack of sensitivity of the scale of assessment, and the unequal access to benefits and services. (3) The impact of the 2012 budget cuts on financing and on dependent people and their families. Conclusions: The Dependency Act has established itself as a political tool that has generated important social and economic benefits. However, significant difficulties have emerged, which should be addressed to ensure better care for dependent persons.


2015 ◽  
Vol 30 (S2) ◽  
pp. S147-S147
Author(s):  
J. Denis ◽  
S. Hendrick ◽  
R. Bruffaerts

To provide an effective crisis intervention, there is a need to better understand how these interventions work. The aim of this study was to develop an explanatory theory of therapeutic processes implied in the psychological process of crisis intervention.ObjectivesWe aimed to reduce the gap between clinicians and researchers by showing how a qualitative method may reveal experiences about how professionals explained their clinical practice in crisis intervention and what their representation are of people in crisis.MethodIn depth, semi-structured interviews were conducted, transcribed and independently reviewed by using Grounded Theory Methodology (GTM). Data were analyzed with the constant comparative method. The study was conducted in crisis experts in Psychiatric Emergency Room (PER). A purposive sample of 17 professionals in crisis intervention included in our study.ResultsResults showed that therapeutic processes are managed in multiple interactions and regulations. Crisis intervention is an opportunity to highlight the psychic functioning. There are multiple settings of interventions oriented by the context of the institution and theorical background of professionals. The social realities slow down the possibility to elaborate the end of the intervention.ConclusionThis study illuminates that clinicians and professionals in crisis intervention need guidelines to better improve their therapeutic interventions. They also need a political support to create specialized training and develop medical and psychological services to take in charge people in crisis. This research contributes to show the discrepancy between what the professional thinks to do in their interventions and what he really do.


2021 ◽  
pp. 1-21
Author(s):  
Payge Lindow ◽  
Irene H. Yen ◽  
Mingyu Xiao ◽  
Cindy W. Leung

ABSTRACT Objective: Using an adaption of the Photovoice method, this study explored how food insecurity affected parents’ ability to provide food for their family, their strategies for managing household food insecurity, and the impact of food insecurity on their well-being. Design: Parents submitted photos around their families’ experiences with food insecurity. Afterwards, they completed in-depth, semi-structured interviews about their photos. The interviews were transcribed and analyzed for thematic content using the constant comparative method. Setting: San Francisco Bay Area, California, USA. Subjects: 17 parents (14 mothers and 3 fathers) were recruited from a broader qualitative study on understanding the experiences of food insecurity in low-income families. Results: Four themes were identified from the parents’ photos and interviews. First, parents described multiple aspects of their food environment that promoted unhealthy eating behaviors. Second, parents shared strategies they employed to acquire food with limited resources. Third, parents expressed feelings of shame, guilt, and distress resulting from their experience of food insecurity. And finally, parents described treating their children to special foods to cultivate a sense of normalcy. Conclusions: Parents highlighted the external contributors and internal struggles of their experiences of food insecurity. Additional research to understand the experiences of the food-insecure families may help to improve nutrition interventions targeting this structurally vulnerable population.


Author(s):  
Anne Kelemen ◽  
Clara Van Gerven ◽  
Katherine Mullins ◽  
Hunter Groninger

Background: Palliative care (PC) clinicians are well trained to address physical, psychosocial and spiritual needs of patients who have a serious illness. However, one area that is often overlooked is intimacy and sexuality. Objective: To explore patient concerns regarding intimacy as it relates to illness, family reactions, physician conversations, and coping strategies and challenges. Methods: Eligible subjects (at least 18 years old, capacitated, receiving PC consultation at the lead author’s institution) participated in semi-structured interviews between November and December 2017. Transcripts were open-coded and analyzed using Dedoose 3.5.35 software. A constant comparative method was used to identify patterns in the data. Results: 21 interviews were analyzed and several themes emerged. Participants described the effect of physical and mental/emotional changes on their relationships. Family relationships, romantic relationships, and sexuality were prominent in patients’ experiences of intimacy and how it changed as the illness progressed. Relationships were often noted to strengthen during the course of illness, while sexual activity was frequently reported to be negatively impacted. Patients consistently reported little provider communication on the impact of illness on intimacy beyond instructions about what sexual activities they could or could not engage in. Conclusion: This study underlines the significant impact of serious, progressive illness on relationships, sexuality, and physical and emotional intimacy. It highlights that these topics continue to be priorities for patients with serious illness, and that medical teams frequently fail to address them at all. Future research should further explore these issues across diverse patient populations.


2021 ◽  
Vol 213 (10) ◽  
pp. 81-92
Author(s):  
Lyudmila Shalaeva

Abstract. Goal. The assessment of the main trends in the activity of agricultural producers in crop production was carried out in order to substantiate the possibilities of the Perm Region for self-sufficiency with the main types of food resources in the presence of adverse effects of natural and climatic conditions. Methods. A statistical analysis was carried out using grouping and comparison methods based on the official statistics of the Perm Region for 2016-2020. Results. In accordance with the social and geographical specifics of the Perm Region, on the territory of which rural areas predominate, the largest volume of crop production is produced in the households of the population (up to 58 %), whose activities are characterized by the lowest level of stability and are more susceptible to the negative impact of natural and climatic conditions. The activity of agricultural organizations (share up to 36 %) and farms (share up to 8 %) is more stable. A higher level of dependence on natural and climatic conditions was revealed in the field of potato production, a lower level – in the field of grain and vegetables production of protected soil. The risk is reinforced by the fact that up to 70 % of the natural volume of potatoes and more than 80% of vegetables are produced in households. With a decrease in the total sown area by 1.2 %, there is a decrease in the sown area of potatoes by 15 % and vegetables by 6 %. The identified trends allowed us to identify the risk of reducing the level of food self-sufficiency of the Perm Region with potatoes and vegetables. The insecurity of domestic potato consumption in the Perm Region is, according to preliminary data, 13 % in 2020. The presence of risk was also revealed for vegetables, the internal consumption of the region was provided with vegetable products of its own production by an average of 56% during the study period. The results obtained allow us to identify the directions of optimization of the Perm Region strategy in solving the problems of food self-sufficiency. Scientific novelty. The dynamics of factors of crop production (structure, yield, acreage, intensification) is assessed taking into account the social, geographical, natural and climatic specifics of the Perm Region through the prism of the impact on the regional food balance and the level of self-sufficiency of the region with potatoes and vegetables.


2021 ◽  
pp. 027112142110520
Author(s):  
Nicole B. Adams ◽  
Stacy N. McGuire ◽  
Hedda Meadan ◽  
Melanie R Martin ◽  
Adriana K. Terol ◽  
...  

Challenging behavior (CB) is a common occurrence in early childhood and frequently occurs in young children with disabilities. CB is also culturally perceived and includes differences in how caregivers understand and define the topography of CB. Despite the cultural interpretation, CB is known to impact the child and their family but there has been little exploration of what marginalized caregivers perceive as the impact of the CB that their young children with disabilities exhibit. We used semi-structured interviews to explore the perceptions of 24 caregivers, who identified as Black, Mexican American, and White, about the impact of their child’s CB. Caregivers shared how the CB impacted themselves, their families, their child, and others. Although much of the impact was similar among caregivers, we discuss nuanced differences across ethnic groups.


Urban Studies ◽  
2019 ◽  
Vol 56 (15) ◽  
pp. 3162-3177 ◽  
Author(s):  
Pinelopi Vergou

Global challenges and recent changes in conflict areas in the Middle East, Asia and Africa are reasons for the contemporary forced migration into European countries, which have become places of destination or transit posts for a great number of refugees. Cities have become the focus of the socio-spatial debate, as the main units for receiving refugees, either in state camps or in social housing in city centres. In this article, the focus is on the social-spatial configuration of refugee accommodation in local communities and the way these formations generate urban and school segregation. We argue that the placement of urban refugees in large, camp-like structures with low housing standards, mainly in areas outside cities or in rural areas, provides ground not only for social exclusion and ‘territorial stigmatisation’ but also for de facto school segregation. Furthermore, the attempts to house refugees in small cities, through United Nations and NGO-supplied houses, may also raise concerns about the way dispersal policies are implemented, with the distribution of refugee children in specific schools as a result of territorial social-spatial segregation. In both cases, the school segregation of refugees is connected not only with the implications of immigration and education policies but also with the social practices of local communities and the social-spatial characteristics that determine school education. The empirical material of this study is based on information on the socio-economic profiles of neighbourhoods at the census tract level and on qualitative research, through in-depth semi-structured interviews in two different cities in Greece.


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