The answerability of false hope: Examining the unexpected outcomes of the Finnexia® public art intervention

2021 ◽  
Vol 11 (1) ◽  
pp. 55-75 ◽  
Author(s):  
Lisa Erdman
Keyword(s):  
Creative Process ◽  
Ethical Issues ◽  
Secondary Level ◽  
Art Practice ◽  
Public Performance ◽  
Ethical Considerations ◽  
Railway Station ◽  
Self Reflection ◽  
Art Intervention ◽  
Unexpected Outcomes

This article examines the unexpected ethical issues that emerged from Finnexia®, a performance art intervention. Finnexia consisted of an advertisement campaign for a fictitious medication that helps people learn the Finnish language. Presented in the Helsinki Central Railway Station, the Finnexia performance aimed to generate a space for public dialogue about the experience of immigrants in Finland and the process of learning the Finnish language. On a secondary level, Finnexia presented a satirical critique towards the excess of medicalization in society. Through a detailed description of the Finnexia performance and its outcomes, the author examines the complexity of ethical issues that emerged from the Finnexia performance. The responsibility of the artist is discussed in the context of public performance in art practice and in artistic research. The author proposes that artists approach ethical considerations during the creative process through self-reflection, dialogue with fellow performers and in consultation with experts in the field.

Utilising Indigenous Knowledge or Crime against Humanity?: A Critical Engagement with the Debate Generated by Alick Macheso’s Use of Manhood to Treat Nhova (Sunken Fontanelle)

2019 ◽  
Vol 7 (1) ◽  
Author(s):  
Charles Tembo ◽  
Allan Maganga ◽  
Peterson Dewah
Keyword(s):  
Ethical Issues ◽  
General Tendency ◽  
Ethical Values ◽  
Ethical Considerations ◽  
Lower Back ◽  
African Ethics ◽  
Cultural Grounding ◽  
The Face ◽  
Left And Right ◽  
Points Of View

 This article presents various points of view regarding the treatment of sunken fontanelle by various communities as ignited by the controversial practice of kutara(a practice that involves the father of a child sliding his penis from the lower part of the left and right cheeks to the top of the head, as well as from the lower part of the face to the top of the head, and from the lower back part of the head to the top). The story of Alick Macheso’s use of his manhood to treat nhova (sunken fontanelle) opened a Pandora’s box. The story not only attracted the attention of critics from diverse cultural and ethical backgrounds, but revealed multi-ethnic positions. That is, reactions were steeped in a multiplicity of intellectual, religious and even cultural grounding. Reactions ranged from accusations of backwardness and absurdity, through to medical and Christian orientations toward the treatment of nhova. The overarching idea is that there is a general tendency to dismiss the age-old practice of kutara,coupled with an uncritical celebration of certain positions. The debate that ensued following publication of the story seemed to revolve around ethical considerations. The school of thought that dismisses kutara with disdain regards it as unethical and unimaginable in the present-day world—it is redolent with insinuations of absurdity on the part of those that live and celebrate it. We contend that the raging debate that followed the publication of the story can best be conceptualised within the context of African ethics. We note that kutara has relevance to the spirituality, ethical values, privacy, and protection of children’s rights, among other ethical issues. It is hoped that the article will stir further debate and encourage more research among information practitioners, scholars and researchers into the ethical issues surrounding the treatment of sunken fontanelle in various African communities. It argues for an Afrocentric conceptualisation of phenomena in order to contribute to debates on the renaissance of African cultures, and stresses that it is imperative to harness the life-furthering age-old traditions in African ontological existence.

Recruitment Policies of Non-EU/EEA Nurses and Ethical Issues

2018 ◽  
Author(s):  
Angèle Flora Mendy
Keyword(s):  
Public Opinion ◽  
Health Professionals ◽  
Ethical Issues ◽  
Health Workers ◽  
Ethical Considerations ◽  
Host Countries ◽  
Ethical Argument ◽  
The Past ◽  
The United Kingdom ◽  
Institutional Legacies

By examining policies of recruiting non-EU/EEA health workers and how ethical considerations are taken into account when employing non-EU/EEA nurses in the United Kingdom, France, and Switzerland, this chapter intends to show that the use of the so-called ‘ethical’ argument to convince national public opinion of the relevance of restrictive recruitment policies is recent (since the 1990s). The analysis highlights the fact that in addition to the institutional legacies, qualification and skills—through the process of their recognition—play an important role in the opening or restriction of the labour market to health professionals from the Global South. The legacy of the past also largely determines the place offered to non-EU/EEA health professionals in the different health systems of host countries.

scholarly journals Ethical Considerations on Pediatric Genetic Testing Results in Electronic Health Records

2020 ◽  
Vol 11 (05) ◽  
pp. 755-763
Author(s):  
Shibani Kanungo ◽  
Jayne Barr ◽  
Parker Crutchfield ◽  
Casey Fealko ◽  
Neelkamal Soares
Keyword(s):  
Genetic Testing ◽  
Best Practices ◽  
Health Care Providers ◽  
Genetic Information ◽  
Ethical Issues ◽  
Interdisciplinary Approach ◽  
Care Providers ◽  
Ethical Considerations ◽  
Electronic Health ◽  
Genetic Results

Abstract Background Advances in technology and access to expanded genetic testing have resulted in more children and adolescents receiving genetic testing for diagnostic and prognostic purposes. With increased adoption of the electronic health record (EHR), genetic testing is increasingly resulted in the EHR. However, this leads to challenges in both storage and disclosure of genetic results, particularly when parental results are combined with child genetic results. Privacy and Ethical Considerations Accidental disclosure and erroneous documentation of genetic results can occur due to the nature of their presentation in the EHR and documentation processes by clinicians. Genetic information is both sensitive and identifying, and requires a considered approach to both timing and extent of disclosure to families and access to clinicians. Methods This article uses an interdisciplinary approach to explore ethical issues surrounding privacy, confidentiality of genetic data, and access to genetic results by health care providers and family members, and provides suggestions in a stakeholder format for best practices on this topic for clinicians and informaticians. Suggestions are made for clinicians on documenting and accessing genetic information in the EHR, and on collaborating with genetics specialists and disclosure of genetic results to families. Additional considerations for families including ethics around results of adolescents and special scenarios for blended families and foster minors are also provided. Finally, administrators and informaticians are provided best practices on both institutional processes and EHR architecture, including security and access control, with emphasis on the minimum necessary paradigm and parent/patient engagement and control of the use and disclosure of data. Conclusion The authors hope that these best practices energize specialty societies to craft practice guidelines on genetic information management in the EHR with interdisciplinary input that addresses all stakeholder needs.

Situating requests for medical aid in dying within the broader context of end-of-life care: ethical considerations

2018 ◽  
Vol 45 (2) ◽  
pp. 106-111 ◽  
Author(s):  
Lori Seller ◽  
Marie-Ève Bouthillier ◽  
Veronique Fraser
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Ethical Issues ◽  
Retrospective Chart Review ◽  
Median Number ◽  
Life Care ◽  
Ethical Considerations ◽  
Term Care ◽  
Medical Aid ◽  
Aid In Dying

BackgroundMedical aid in dying (MAiD) was introduced in Quebec in 2015. Quebec clinical guidelines recommend that MAiD be approached as a last resort when other care options are insufficient; however, the law sets no such requirement. To date, little is known about when and how requests for MAiD are situated in the broader context of decision-making in end-of-life care; the timing of MAiD raises potential ethical issues.MethodsA retrospective chart review of all MAiD requests between December 2015 and June 2017 at two Quebec hospitals and one long-term care centre was conducted to explore the relationship between routine end-of-life care practices and the timing of MAiD requests.ResultsOf 80 patients requesting MAiD, 54% (43) received the intervention. The median number of days between the request for MAiD and the patient’s death was 6 days. The majority of palliative care consults (32%) came less than 7 days prior to the MAiD request and in another 25% of cases occurred the day of or after MAiD was requested. 35% of patients had no level of intervention form, or it was documented as 1 or 2 (prolongation of life remains a priority) at the time of the MAiD request and 19% were receiving life-prolonging interventions.InterpretationWe highlight ethical considerations relating to the timing of MAiD requests within the broader context of end-of-life care. Whether or not MAiD is conceptualised as morally distinct from other end-of-life options is likely to influence clinicians’ approach to requests for MAiD as well as the ethical importance of our findings. We suggest that in the wake of the 2015 legislation, requests for MAiD have not always appeared to come after an exploration of other options as professional practice guidelines recommend.

Media-Bodies: Choreography as Intermedial Thinking Through in the Work of William Forsythe

2010 ◽  
Vol 42 (1) ◽  
pp. 61-72 ◽  
Author(s):  
Sabine Huschka
Keyword(s):  
Installation Art ◽  
Art Practice ◽  
Public Performance ◽  
Open Spaces ◽  
Movement Perception ◽  
Movement Performance ◽  
Interactive Relationship ◽  
The Media ◽  
The Spectator

Since Ballet Frankfurt was reconstituted as the Forsythe Company in 2004, William Forsythe has increasingly explored formats of installation art practice. Works such as Human Writes (in collaboration with Kendall Thomas, 2005) and You made me a monster (2005) develop within an interactive and intermedial space and experiment with new ways to experience the production and perception of movement. “Performance installation” is the new term for this intertwined process of movement production and movement perception. The choreographic composition itself grows out of procedures of performative sensing by the dancers, which spreads to onlookers. This multiplex awareness of movement for which the dancer's body is the medium constitutes what I shall call the “media-body” as an essential moment of performance installation as choreographic event. Compared to earlier Forsythe installations—which he called “choreographic objects”—like White Bouncy Castle (1997), City of Abstracts (2000), or Scattered Crowd (2002), with their accessible spaces of movement (in White Bouncy Castle the spectator was a visitor moving about freely inside a white inflatable castle, and City of Abstracts featured choreographic projections of movement on large screens in open spaces) performance installations take place squarely in the theatrical context: in theater lobbies, exhibit halls, or accessible public performance spaces where dancers and the audience come together in a mutually shared yet operationally divided space that leads them into an interactive relationship.

scholarly journals Epistemic and ethical considerations in the direct-to-consumer health and ancestry genetic testing process

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Katherine Huerne
Keyword(s):  
Genetic Testing ◽  
Quantitative Methods ◽  
Ethical Issues ◽  
Social Issues ◽  
Clear Understanding ◽  
Feminist Ethics ◽  
Ethical Considerations ◽  
Ethical Implications ◽  
Direct To Consumer ◽  
The Cost

Background: Direct-to-consumer genetic testing (DTC-GT) is a popular and fast-growing field within the healthcare industry. Consumers often pursue DTC-GT without a clear understanding of its epistemic and medical limitations. This report will present the current state of DTC-GT technology, and highlight the ethical, legal and social issues of DTC-GT. Methods: Quantitative methods such as systematic reviews were used to evaluate the field of DTC-GT. Experimental data was taken from randomized control trials and case studies of 23andMe. Qualitative methods such as newspaper articles and surveys were also used. Relevant policies and regulatory information were analyzed in the context of 23andMe. Broader ethical issues are analyzed from the social disability model and feminist ethics frameworks. Results: Several aspects of direct-to-consumer genetic testing are outlined: (i) regulatory and legal distinctions of DTC-GT that separate its use from conventional genetic testing, (ii) epistemic issues of the genetic testing process within the direct-to-consumer context, and (iii) ethical considerations of DTC-GT in regard to genetic health and genetic ancestry. Conclusion: This report does not take a position for or against the use of DTC-GT; rather, it highlights the key ethical issues often missed in the DTC-GT process. There is no perfect method for understanding genetic health and race. DTC-GT offer consumers the ease and power of taking genetic data ‘in their own hands’, at the cost of exacerbating geneticization and race essentialism. Until further work is done to address the epistemic, regulatory and legal issues, ethical implications of DTC-GT usage will continue to exist.

De glazen deur

KWALON ◽  
2019 ◽  
Vol 24 (2) ◽  
Author(s):  
Sofie Sergeant ◽  
Leendert van de Merbel
Keyword(s):  
Ethical Issues ◽  
Collaborative Reflection ◽  
Participatory Action ◽  
Ethical Considerations ◽  
Policy And Practice ◽  
Target Groups ◽  
Collective Inquiry ◽  
Creative Research ◽  
Working Together ◽  
Group Members

Access to the target group In participatory action research (PAR) the research team should include researchers and experts by experience (and their allies affected by the issue). PAR emphasizes collective inquiry and contribution to changes in policy and practice. In their opening essay Sergeant and Van de Merbel state that it is not enough to promote PAR as a vital way in bringing positive change in policy and practice. In order to conduct PAR in an ethical and just way, one needs to create room, space and time for PAR. PAR is more than a method; it needs time, good overthinking, collaborative reflection, creative research methods, coaching and training for all research group members, and – as Xavier Moonen states in his reply – sometimes also protection of vulnerable people. Moonen argues that this vulnerability should be taken into account and experts by experience should be protected from tokenism and research that does not meet their interests. This means, according to Moonen, that ethical considerations must be made. Gatekeepers should keep in mind that participation is a basic right and that pro’s and con’s should be considered in that light. In reaction to Moonen, Sergeant presents the ‘Working together, learning together’ and the results that come from this research project. She pleads for respecting intergroup-diversity within target groups and for looking beyond procedural ethical issues towards crossing the boundaries between dis- and ability.

Research Protocols and Ethical Considerations in Indigenous Knowledge Systems

2019 ◽  
pp. 714-730
Author(s):  
Mogege David Mosimege
Keyword(s):  
South Africa ◽  
Indigenous Knowledge ◽  
Ethical Issues ◽  
Research Community ◽  
Knowledge Systems ◽  
Ethical Considerations ◽  
Short Period ◽  
Indigenous Knowledge Systems ◽  
Protection Mechanisms ◽  
Very High

Research in Indigenous Knowledge Systems (IKS) in South Africa has grown at a very high pace in a relatively short period of time. The growth thereof has presented researchers and the knowledge holders with challenges that have never faced them in the same way before. It has necessitated a review of how researchers interact with those who hold the knowledge and has required that protection mechanisms be implemented to safeguard the misuse and misappropriation of the indigenous knowledge. This Chapter outlines the focus on IKS in South Africa since 1995 and reflects on the challenges related to this focus. Specifically the Chapter looks at the challenges related to the recognition of knowledge holders, the ethical issues facing both researchers and knowledge holders, and the protocols that have been designed and used in South Africa and other places. It concludes by indicating the challenges that still remain and how these can be explored further by the research community.

A Multi-Disciplinary Approach to Technoethics

2009 ◽  
pp. 20-31 ◽  
Author(s):  
Marc J. de Vries
Keyword(s):  
Multidisciplinary Approach ◽  
Ethical Issues ◽  
Technological Knowledge ◽  
Ethical Considerations

In this chapter it is argued that a multidisciplinary approach to technoethics is necessary to do justice to the complexity of technology. Normativity pervades all aspects of technology, including technological knowledge. As a consequence, ethical considerations should guide not only the production of artifacts, but also their design and the research that is needed to acquire knowledge about the artifact-in-design. Experts from different disciplines should cooperate to identify relevant ethical issues related to the various aspects of the reality in which the artifact will function.

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