A national guideline for youth-friendly health services developed by chronically ill young people and health care professionals – a Delphi study

2020 ◽  
Vol 0 (0) ◽  
Author(s):  
Ena Lindhart Thomsen ◽  
Pernille Grarup Hertz ◽  
Charlotte Blix ◽  
Kirsten A. Boisen
Keyword(s):  
Health Care ◽  
Young People ◽  
Health Services ◽  
Health Care Professionals ◽  
Delphi Study ◽  
Transitional Care ◽  
Chronically Ill ◽  
National Guideline ◽  
Adolescent Medicine ◽  
Youth Friendly

AbstractObjectivesSignificant variation in cultural and socio-economic factors across different countries means that modification of existing guidelines for youth-friendly health services are needed. Furthermore, including the views and perspectives of young people in developing health services add significant value. The aim of this study was to develop a national guideline for youth-friendly health services using the Delphi method.MethodsWe invited young people with chronic conditions, managers of paediatric, psychiatric and relevant adult departments and health care professionals with experience and interest in adolescent medicine to participate. The initial list of elements was constructed based on international guidelines and systematic reviews. The study consisted of three electronic questionnaire rounds assessing relevance, importance and whether the elements were essential/very important, respectively. We used 70% agreement as cut-off.ResultsMore than 70% of participants agreed that only one element was essential: ‘Young people should be actively involved in decisions about their treatment and encouraged and supported to ask questions about their illness and treatment’. Additionally, 18 elements reached more than 70% agreement, when the ‘essential’ was combined with the ‘very important’ category. We grouped these 19 elements into five themes: 1) staff competences and workflow, 2) developmentally appropriate communication, 3) focus on youth life, including mental health 4) youth participation and shared decisions, and 5) autonomy and transitional care.ConclusionThis guideline for a youth-friendly health care system may serve as inspiration for concrete changes, both locally and internationally, as it was developed together by young people, staff, and management.

Young people and developmentally appropriate transitional care in rheumatology

2013 ◽  
pp. 11-21
Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson
Keyword(s):  
Young People ◽  
Transitional Care ◽  
Developmentally Appropriate ◽  
Adolescent And Young Adult ◽  
Adolescent Medicine ◽  
Psychosocial Needs ◽  
Long Term Conditions ◽  
Health And Illness ◽  
Youth Friendly

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a developmentally appropriate, youth-friendly rheumatology service including staff trained in adolescent and young adult (AYA) health.

Young people and transitional care in rheumatology

2018 ◽  
Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson
Keyword(s):  
Young People ◽  
Adolescent Development ◽  
Transitional Care ◽  
Developmentally Appropriate ◽  
Adolescent Medicine ◽  
Psychosocial Needs ◽  
Long Term Conditions ◽  
Health And Illness ◽  
Youth Friendly

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including rheumatic disease) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a youth-friendly rheumatology service including staff trained in adolescent health.

scholarly journals The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: A scoping review of the literature and a synthesis of the evidence

2018 ◽  
Vol 22 (3) ◽  
pp. 332-358 ◽  
Author(s):  
Lauren Burke ◽  
Jamie Kirkham ◽  
Janine Arnott ◽  
Victoria Gray ◽  
Matthew Peak ◽  
...  
Keyword(s):  
Health Care ◽  
Juvenile Idiopathic Arthritis ◽  
Young People ◽  
Health Services ◽  
Scoping Review ◽  
Health Care Services ◽  
Transitional Care ◽  
Adult Health ◽  
Review Of The Literature ◽  
Care Services

Young people with long-term health conditions (LTCs) can face challenges when making the transition to adult health services. This paper sought to identify studies that assess and explore transitional care for young people with LTCs. Two conditions were used as exemplars: juvenile idiopathic arthritis (JIA) and epilepsy. A scoping review of the literature was conducted by using search terms to search for papers in English between 2001 and 2016 concerning transitional care on four databases. Qualitative papers were reviewed and synthesized using thematic analysis. Quantitative papers using health outcomes were also synthesized. Twenty-eight papers were selected for review. Despite the wealth of literature concerning aspects of transitional care that are key to a successful transition for young people with JIA or epilepsy, there is a paucity of outcomes that define ‘successful’ transition and consequently a lack of reliable research evaluating the effectiveness of transitional care interventions to support young people moving to adult health services.

Experiences of Young Offenders and Health-care Professionals Involved in Transitions from Forensic Adolescent Mental Health Services: A Qualitative Study

2017 ◽  
Vol 41 (S1) ◽  
pp. S153-S153
Author(s):  
M. Livanou ◽  
V. Furtado ◽  
S. Singh
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Services ◽  
Young People ◽  
Health Services ◽  
Health Care Professionals ◽  
Adolescent Mental Health ◽  
Child And Adolescent ◽  
Young Offenders ◽  
Adult Services

IntroductionTransitions from child and adolescent mental health services to adult mental health services have been quite troublesome for young people in the UK. There is strong evidence throughout the literature that long waiting lists and rigid adult services criteria hamper dramatically transitions across services. Little knowledge exists about transitions from forensic adolescent services to adult services.ObjectivesTo interview health-care professionals and young offenders in transition of care from forensic child and adolescent mental health services in England.AimsThis study aimed to bridge the current literature gap in regards to transitions across forensic services and the complexities resulting from disruptive care.MethodsThis study adopted a prospective design to identify young offenders referred to adult services over a six-month period. We utilized semi-structured interviews. Health-care professionals were interviewed about their transition views and perspectives. Young offenders were followed-up within a month of their transition and were interviewed.ResultsThe numbers of transitions within forensic settings are much lower compared to those of general transitions across mental health services in England. Transition delays were a repetitive theme across interviews due to lack of bed availability, especially in medium secure hospitals, and poor multi-agency communication. Commissioning determines age boundaries along with transfer destination for each service.ConclusionsIneffective liaison among different sectors might impact adversely young people and hallmark their long-stay in the system. Therefore, continuity of care within forensic services should be looked warily along with the role of policy shaped by commissioning. Multiple transitions can repeatedly traumatize young people moving across services.

Young people and transitional care in rheumatology

2013 ◽  
Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson
Keyword(s):  
Young People ◽  
Adolescent Development ◽  
Transitional Care ◽  
Developmentally Appropriate ◽  
Adolescent Medicine ◽  
Psychosocial Needs ◽  
Long Term Conditions ◽  
Health And Illness ◽  
Youth Friendly

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including rheumatic disease) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a youth-friendly rheumatology service including staff trained in adolescent health.

Young people and transitional care in rheumatology

2016 ◽  
Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson
Keyword(s):  
Young People ◽  
Adolescent Development ◽  
Transitional Care ◽  
Developmentally Appropriate ◽  
Adolescent Medicine ◽  
Psychosocial Needs ◽  
Long Term Conditions ◽  
Health And Illness ◽  
Youth Friendly

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including rheumatic disease) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a youth-friendly rheumatology service including staff trained in adolescent health.

Perceptions of Canadian Armed Forces Health Services health care professionals on cognitive assessment processes

2021 ◽  
pp. e20200066
Author(s):  
Chelsea Jones ◽  
Lorraine Smith-MacDonald ◽  
Suzette Brémault-Phillips
Keyword(s):  
Health Care ◽  
Health Services ◽  
Cognitive Functioning ◽  
Health Care Professionals ◽  
Brain Injuries ◽  
Armed Forces ◽  
Canadian Armed Forces ◽  
Qualitative Thematic Analysis ◽  
Cognitive Screen ◽  
And Function

Lay Summary Canadian Armed Forces (CAF) Service Members (SMs) experience mild traumatic brain injuries (mTBI), which can affect cognitive functioning. Adequate cognitive functioning is needed to perform military duties safely and function in all aspects of life. A standardized process that includes cognitive screen/assessment within a mTBI rehabilitation strategy is not widely used within Canadian Forces Health Services (CFHS). A qualitative thematic analysis nested within an implementation science approach was used to explore the experiences of 17 CFHS health care professionals who perform cognitive screens/assessments. Perceived facilitators, barriers, and recommendations for improving cog-nitive assessment practices for injured CAF-SMs were identified within 5 themes. Development and implementation of cognitive screen/assessment policies and protocols will enable CFHS to best assess and treat cognitive dysfunction among CAF-SMs.

INTRODUCTION

PEDIATRICS ◽  
1993 ◽  
Vol 91 (5) ◽  
pp. ii-ii
Keyword(s):  
Health Care ◽  
Chronic Illness ◽  
Child Development ◽  
Health Services ◽  
Cultural Sensitivity ◽  
Health Care Professionals ◽  
Research Policy ◽  
The United States ◽  
Policy Formulation ◽  
Full Account

In June 1992, 35 health care professionals, child and disability advocates, researchers, clinicians, and parents met at Wingspread Center in Racine, Wisconsin, for an invitational conference on Culture and Chronic Illness in Childhood. The meeting had as its goal the identification of the state of knowledge on the interface between culture, chronic illness, child development, and family functioning so as to lay the foundations for "culturally appropriate" health policy formulation, "culturally sensitive" services, and "culturally competent" clinicians. The purpose of this special supplement is to establish a national agenda for research, policy, service delivery, and training in addressing the needs of all children with chronic illnesses and disabilities that takes the family, ethnicity, socioeconomic status, and culture into full account. To meet this task, five papers were commissioned. The first, by Newacheck et al, addresses the changes in incidence and prevalence of chronic illness and disability among children and youth by ethnic group. The second paper, by McManus et al, focuses on the trends in health services organization, delivery, and financing as they vary among ethnic groups in the United States. What emerges is a rhetoric of cultural sensitivity not paralleled in the organization or financing of health services. Groce and Zola's paper addresses how cultural attitudes and beliefs are the foundations of our perceptions about health and illness. Those perceptions at times are predisposed to conflict with a health care professional who, coming from a different culture, may hold different norms and beliefs. Brookins grounds her discussion within the context of child development and argues that for a child of color or one whose ethnic heritage is other than mainstream, the key to developmental success is bicultural competence—the ability to walk in and between two worlds.

scholarly journals A Tool to Assess the Trustworthiness of Evidence-Based Point-of-Care Information for Health Care Professionals (CAPOCI): Design and Validation Study (Preprint)

2021 ◽  
Author(s):  
Gerlinde Lenaerts ◽  
Geertruida E Bekkering ◽  
Martine Goossens ◽  
Leen De Coninck ◽  
Nicolas Delvaux ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Delphi Study ◽  
Critical Appraisal ◽  
Point Of Care ◽  
Scoring Systems ◽  
Likert Scale ◽  
Ordinal Scale ◽  
Evidence Based ◽  
Care Information

BACKGROUND User-friendly information at the point of care for health care professionals should be well structured, rapidly accessible, comprehensive, and trustworthy. The reliability of information and the associated methodological process must be clear. There is no standard tool to evaluate the trustworthiness of such point-of-care (POC) information. OBJECTIVE We aim to develop and validate a new tool for assessment of trustworthiness of evidence-based POC resources to enhance the quality of POC resources and facilitate evidence-based practice. METHODS We designed the Critical Appraisal of Point-of-Care Information (CAPOCI) tool based on the criteria important for assessment of trustworthiness of POC information, reported in a previously published review. A group of health care professionals and methodologists (the authors of this paper) defined criteria for the CAPOCI tool in an iterative process of discussion and pilot testing until consensus was reached. In the next step, all criteria were subject to content validation with a Delphi study. We invited an international panel of 10 experts to rate their agreement with the relevance and wording of the criteria and to give feedback. Consensus was reached when 70% of the experts agreed. When no consensus was reached, we reformulated the criteria based on the experts’ comments for a next round of the Delphi study. This process was repeated until consensus was reached for each criterion. In a last step, the interrater reliability of the CAPOCI tool was calculated with a 2-tailed Kendall tau correlation coefficient to quantify the agreement between 2 users who piloted the CAPOCI tool on 5 POC resources. Two scoring systems were tested: a 3-point ordinal scale and a 7-point Likert scale. RESULTS After validation, the CAPOCI tool was designed with 11 criteria that focused on methodological quality and author-related information. The criteria assess authorship, literature search, use of preappraised evidence, critical appraisal of evidence, expert opinions, peer review, timeliness and updating, conflict of interest, and commercial support. Interrater agreement showed substantial agreement between 2 users for scoring with the 3-point ordinal scale (τ=.621, <i>P</i>&lt;.01) and scoring with the 7-point Likert scale (τ=.677, <i>P</i>&lt;.01). CONCLUSIONS The CAPOCI tool may support validation teams in the assessment of trustworthiness of POC resources. It may also provide guidance for producers of POC resources.

Overconcern and Overtreatment

PEDIATRICS ◽  
1980 ◽  
Vol 65 (4) ◽  
pp. 863-863
Author(s):  
Frank J. Volpe
Keyword(s):  
Health Care ◽  
Health Services ◽  
Health Care Professionals ◽  
American Association ◽  
Marketing Effort ◽  
Utilization Of Services ◽  
Utilization Of Health Services

Recently I received the pamphlet "Age 3 - Age 7" from the American Association of Orthodontists. It strikes me as a not-so-subtle marketing effort to increase the business of orthodontists. Could it be that pediatricians are being asked to do their marketing for them? At a time when health care professionals should be doing their utmost to decrease costs and unnecessary utilization of health services, this pamphlet encourages increased utilization of services of questionable worth.

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