A STUDY OF THE NEED FOR ALTERNATIVE TYPES OF HEALTH CARE FOR CHILDREN IN HOSPITAL

PEDIATRICS ◽  
1969 ◽  
Vol 44 (3) ◽  
pp. 338-347
Author(s):  
Chandrakant P. Shah ◽  
Demetrios Papageorgis ◽  
Geoffrey C. Robinson ◽  
Claire Kinnis ◽  
Sydney Israels
Keyword(s):  
Health Care ◽  
Day Care ◽  
Family Income ◽  
Family Members ◽  
Parental Choice ◽  
Hospitalized Children ◽  
Occupational Class ◽  
Choice Of Care ◽  
Parents Education ◽  
At Home

In a population of hospitalized children, 45% of the 611 parents whose children qualified for day care stated they would have preferred day care if such an alternative had been available at the time and if the choice of type of care had been left to them. Factors which seemed related to the parents' choice of care were the child's age, the distance from home to hospital, the parents' education, the parents' perception of the degree of safety afforded by hospitalization, and the ability to make the necessary arrangements to care for the child at home following day care. No relationship was found between parental choice of care and such variables as type of day care recommended (medical or surgical), sex of child, number of employed family members, occupational class, and family income.

INTEGRUOTŲ SLAUGOS IR PSICHOSOCIALINIŲ PASLAUGŲ POREIKIS NAMUOSE SLAUGOMIEMS SUNKIOS BŪKLĖS PACIENTAMS IR JŲ ŠEIMOS NARIAMS. ATVEJO ANALIZĖ VŠĮ CENTRO POLIKLINIKOJE

2014 ◽  
Vol 25 (1) ◽  
pp. 15-23 ◽  
Author(s):  
Renata Kudukytė Gasperė ◽  
Aleksandras Kriščiūnas
Keyword(s):  
Health Care ◽  
Severe Disease ◽  
Family Members ◽  
Chronically Ill ◽  
Public Institution ◽  
Home Nursing ◽  
Specific Patient ◽  
Psychosocial Services ◽  
Chronically Ill Patients ◽  
At Home

Aging population in Lithuania determinates the demand for integrated services, oriented in solving problems of senior, disable citizens and growing needs of home nursing. At the present time, Lithuania are only at the beginning of analysis for demand of integrated health care as well as nursing and psychosocial services for long care patients. Although more and more attention are paid for management of providing integrated nursing and psychosocial help for chronically ill patients at home, the real patient care burden still lies with patients family. The lack of attention for the needs of patient’s relatives in health care and psychosocial services was noticed. Public institution Centro poliklinika is the almost the only institution in Vilnius, providing integrated home nursing, palliative medicine and social services. This article assess the integrated nursing and psychosocial services demands for Centro poliklinika chronically ill patients and their relatives. The survey was conducted in 2013, by implementing public health program “Ensuring of safe environment at home for patients and social, psychological and spiritual help for their relatives”. 431 chronic severe disease patients with a specific set of permanent nursing or palliative care needs, as well as 220 of their family members were interviewed. It was found that the chronically ill, long term home nursed patients need an integrated comprehensive support and care provided by a multidisciplinary team of specialists, using a specific patient case management principles in organizing and providing diverse on the individual patient and his family members‘ needsoriented services. Psychosocial services are not organized for the patient‘s relatives in Lithuania, however, study has showed that patients‘ family members who are constantly taking care of them, particularly needs recreational services allowing them to rest from the day to day care of the patient.

The needs of terminally ill patients at home: directing one's life, health and things related to beloved others

2004 ◽  
Vol 18 (1) ◽  
pp. 53-61
Author(s):  
Ireen M Proot ◽  
Huda Huijer Abu-Saad ◽  
Ruud HJ ter Meulen ◽  
Minke Goldsteen ◽  
Cor Spreeuwenberg ◽  
...  
Keyword(s):  
Health Care ◽  
Grounded Theory ◽  
Life Expectancy ◽  
Family Members ◽  
Terminally Ill ◽  
Terminal Phase ◽  
Grounded Theory Study ◽  
Terminally Ill Patients ◽  
Taking Care ◽  
At Home

This article describes the results of a grounded theory study among terminally ill patients (with a life expectancy of less than three months) at home ( n = 13, aged 39-83). The most commonly recurring theme identified in the analysis is ‘directing’, in the sense of directing a play. From the perspectives of patients in our study, ‘directing’ concerns three domains: 1) directing one's own life; 2) directing one's own health and health care; and 3) directing things related to beloved others (in the meaning of taking care of beloved ones). The patient's directing is affected by impeding and facilitating circumstances: the patient's needs and problems in the physical, psychological and existential/spiritual domain, and the support by family members and providers. Supporting patients and families, stimulating the patients' directing, giving attention to all domains of needs and counselling patients' families in the terminal phase are issues that need attention and warrant further investigation.

Digital Home Health Care: Culture-Specific Observations in Saudi Arabia (Preprint)

2020 ◽  
Author(s):  
Abdulaziz A Alodhayani ◽  
Marwah Mazen Hassounah ◽  
Fatima R Qadri ◽  
Noura A Abouammoh ◽  
Zakiuddin Ahmed ◽  
...  
Keyword(s):  
Health Care ◽  
Saudi Arabia ◽  
Home Health Care ◽  
Health Program ◽  
Digital Health ◽  
Local Population ◽  
Family Members ◽  
Cultural Factors ◽  
Home Health ◽  
Design And Implementation

BACKGROUND There is growing evidence of the need to consider cultural factors in the design and implementation of digital health interventions. However, there is still inadequate knowledge pertaining to what aspects of the Saudi Arabian culture need to be considered in the design and implementation of digital health programs, especially in the context of home health care services for chronically and terminally ill patients. OBJECTIVE This study aims to explore the specific cultural factors relating to patients and their caregivers from the perspective of physicians, nurses, and trainers that have influenced the pilot implementation of Remotely Accessible Healthcare At Home (RAHAH); a connected health program in the Home Health Care Department at King Saud University Medical City, Riyadh, Saudi Arabia. METHODS A qualitative study design was adopted to conduct a focus group discussion (FGD) in July 2019 using a semi-structured interview guide with 3 female and 4 male participants working as nurses, family physicians, and information technologists. Qualitative data obtained were analyzed using a thematic framework analysis. RESULTS Two categories emerged from the FGD that influenced the experiences of digital health program intervention: (1) culture-related factors including language and communication, cultural views on using cameras during consultation, non-adherence to online consultations, and family role and commitment (2) caregiver characteristics in telemedicine that includes their skills and education and electronic literacy. Participants of this study revealed that indirect contact with the patients and their family members may work as a barrier to proper communication through RAHAH. CONCLUSIONS We recommend exploring the use of interpreters in digital health, creating awareness among the local population regarding privacy in digital health, and actively involving the direct family members with the healthcare providers.

scholarly journals Caring for One’s Wife With Dementia—at Home: Older Husbands’ Experiences With Managing Challenges of Everyday Life

SAGE Open ◽  
2019 ◽  
Vol 9 (1) ◽  
pp. 215824401983445
Author(s):  
Linda Rykkje ◽  
Oscar Tranvåg
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Qualitative Interviews ◽  
Care Services ◽  
People With Dementia ◽  
Memory Clinics ◽  
Male Caregivers ◽  
Caregiving Roles ◽  
Caregiver Role ◽  
At Home

More than 80,000 Norwegians live with dementia. Most caregivers for people with dementia are spouses, and women outnumber men. Due to an aging population, and women’s higher risk of dementia as well as men’s increased life expectancy, the number of male caregivers will rise. There are some differences in the caregiving roles of men and women. Research suggest that males report lower burden and depression than female caregivers, but some men struggle to adjust to the caregiver role, and men are less likely to access health care services. The aim of this study is to explore the experiences of husbands engaged in caregiving for their home-dwelling spouse with dementia. This knowledge will add to the growing body of research about men in the context of dementia care and may raise gender awareness. The method is qualitative interviews with hermeneutical interpretation. The participants are five husbands recruited from two Hospital Memory Clinics in Norway. The results portray how the husbands managed their everyday challenges, and how they adapted to changes, experiences of loss and bereavement, and how they redefined personal freedom and expanded their responsibilities. Acknowledging the rewards of caregiving, the husbands found their life meaningful and they were thriving in their caregiving role. Health care personnel should recognize and respect the challenging life situation caregiving husbands may experience, calling for personnel to learn from, care for, and collaborate with them, enabling the couple to live a meaningful life together at home as long as possible.

scholarly journals Older people living at home: experiences of healthy ageing

2021 ◽  
Vol 22 ◽  
Author(s):  
Astrid Fjell ◽  
Kristin Ådnøy Eriksen ◽  
Monica Hermann ◽  
Anne-Marie Boström ◽  
Seiger Berit Cronfalk
Keyword(s):  
Health Care ◽  
Older People ◽  
Older Persons ◽  
Health Care Services ◽  
Healthy Ageing ◽  
Group Discussions ◽  
Care Services ◽  
Manifest Content ◽  
Professional Perspective ◽  
At Home

Abstract Aim: The purpose of this study was to investigate how old persons perceived their life to be, how they viewed the ageing process and their need of health care and societal support. Background: The purpose of WHO’s Healthy Ageing strategy and development of age-friendly environments is to support physiological and psychosocial changes in old persons by facilitating basic needs. Interventions to operationalize these needs in older people living at home are often developed from a professional perspective and to a small extent involves the perceptions, experience and expectations of the older persons. Method: This qualitative study has an explorative design using focus group discussions to collect data. In all, 34 persons between 69 and 93 years of age participated in seven group discussions. The interviews were analyzed using inductive manifest content analysis. Findings: The main results suggest that most old persons enjoyed life and wished it to continue for as long as possible. Important was to sustain networks and to feel useful. Unexpected changes were described as threats and the need to use health care services was associated with illness and being dependent. The result is presented in three categories with sub-categories: ‘Embracing life’, ‘Dealing with challenges’ and ‘Considering the future’.

scholarly journals Nursing consultation practice for psychosocial problems on heart failure patiens in hospital-based outpatient clinic

2021 ◽  
Vol 10 (Supplement_1) ◽  
Author(s):  
ERWIN Erwin ◽  
ELLY Nurachmah ◽  
TUTI Herawati
Keyword(s):  
Heart Failure ◽  
Support System ◽  
Family Environment ◽  
Outpatient Clinic ◽  
Social Problems ◽  
Family Members ◽  
Psychosocial Problems ◽  
The Family ◽  
Hospital Outpatients ◽  
At Home

Abstract Funding Acknowledgements Type of funding sources: None. Background The client"s condition for heart failure requires environmental support to be able to be confident and able to carry out activities according to the directions given while the patient is undergoing treatment in the hospital, but sometimes in the client"s time period at home there will be situations where patients may experience complaints or changes in conditions that can affect his cardiovascular status. Purpose this study is conducted to identify psychological and social problems and needs of heart failure clients with a qualitative approach of observation, invite individuals or families to participate, motivate individuals to develop the potential to maintain optimal health. In addition, this study was conducted to assess the need and effectiveness of the practice of consulting for heart failure nursing in hospital outpatients Method qualitative observation approach in nursing consulting practice using steps of the nursing process consisting of an assessment of physical, psychological and social conditions and client needs, formulating problems, making plans and taking care of actions in accordance with the problems that exist by nurses in the outpatient clinic at home sick. Results Clients who came to the outpatient clinic had various  psychological and social problems. From the observations and interviews it was found that psychological and social problems were the most common causes. Psychosocial problems arise due to the client himself, life companion (husband or wife) and family members who live together. So that the family system to support clients with heart failure is not awakened. Health education and promotion to clients, life companions, and family members of heart failure clients who live at home are needed when the client controls health to maintain the client"s health support system while at home. All clients and families in this study stated that the practice of nursing consultations in hospital outpatients is very helpful for clients and families to improve the situation they face. Conclusion the practice of nursing consultations can identify the problems and needs of clients and families. Strengthening the client support system for heart failure at home is needed so that psychological and social problems can be reduced when the client is in the family environment. Nursing consultation practices at outpatient hospitals are needed to help motivate clients and families in maintaining and increasing care and support for clients who suffer from heart failure while at home. Psychosocial problems The client felt anxious, lack of attention, complained sleeping difficulty, often forgot taking medicine, and forgot managing fluid intakeThe client,while at home, was fastidious and wanted to many, was difficult to be told or managed, was always suspicious with their spouse"s activity easily got angry or temperamental, the client"s child felt annoyed because the client acted annoying, the client"s spouse felt annoyed because the client was impatient and temperamentalPsychological, and social problems in heart failure patients

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