scholarly journals Brokenness / Transformation: Reflections on Academic Critiques of L'Arche

2016 ◽  
Vol 36 (1) ◽  
Author(s):  
Madeline Burghardt
Keyword(s):  
Intellectual Disabilities ◽  
Disability Studies ◽  
People With Disabilities ◽  
International Federation ◽  
Apparent Lack ◽  
Adults With Intellectual Disabilities

<p>L'Arche, an international federation of communities for adults with intellectual disabilities, has been critiqued by disability studies scholars throughout its fifty-year history due to its religiosity, its apparent lack of a rigorous stance on the need to address policy concerning people with disabilities, its philosophy concerning disability's meanings, and features of its language and discourse.  I address these concerns as someone who is both an academic and a long-term member of a L'Arche community. While there is historically limited and uneasy interaction between these two communities, I suggest there is potential for mutual and worthwhile exchange from theoretical and practical perspectives.</p>

Long-Term Experiences in Cash and Counseling for Young Adults with Intellectual Disabilities: Familial Programme Representative Descriptions

2016 ◽  
Vol 30 (4) ◽  
pp. 573-583 ◽  
Author(s):  
Melissa L. Harry ◽  
Lynn MacDonald ◽  
Althea McLuckie ◽  
Christina Battista ◽  
Ellen K. Mahoney ◽  
...  
Keyword(s):  
Young Adults ◽  
Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Cash And Counseling

scholarly journals Long-term condition management in adults with intellectual disability in primary care: a systematic review

BJGP Open ◽  
2018 ◽  
Vol 2 (1) ◽  
pp. bjgpopen18X101445 ◽  
Author(s):  
Peter Hanlon ◽  
Sara MacDonald ◽  
Karen Wood ◽  
Linda Allan ◽  
Sally-Ann Cooper
Keyword(s):  
Systematic Review ◽  
Primary Care ◽  
Intellectual Disability ◽  
General Population ◽  
Intellectual Disabilities ◽  
Barriers And Facilitators ◽  
Long Term Conditions ◽  
Health Checks ◽  
Adults With Intellectual Disabilities

BackgroundAdults with intellectual disabilities have higher morbidity and earlier mortality than the general population. Access to primary health care is lower, despite a higher prevalence of many long-term conditions.AimTo synthesise the evidence for the management of long-term conditions in adults with intellectual disabilities and identify barriers and facilitators to management in primary care.Design & settingMixed-methods systematic review.MethodSeven electronic databases were searched to identify both quantitative and qualitative studies concerning identification and management of long-term conditions in adults with intellectual disability in primary care. Both the screening of titles, abstracts, and full texts, and the quality assessment were carried out in duplicate. Findings were combined in a narrative synthesis.ResultsFifty-two studies were identified. Adults with intellectual disabilities are less likely than the general population to receive screening and health promotion interventions. Annual health checks may improve screening, identification of health needs, and management of long-term conditions. Health checks have been implemented in various primary care contexts, but the long-term impact on outcomes has not been investigated. Qualitative findings highlighted barriers and facilitators to primary care access, communication, and disease management. Accounts of experiences of adults with intellectual disabilities reveal a dilemma between promoting self-care and ensuring access to services, while avoiding paternalistic care.ConclusionAdults with intellectual disabilities face numerous barriers to managing long-term conditions. Reasonable adjustments, based on the experience of adults with intellectual disability, in addition to intervention such as health checks, may improve access and management, but longer-term evaluation of their effectiveness is required.

scholarly journals The Romantic and Sexual Experiences of Adults with Intellectual Disabilities in Ontario, Canada.

2018 ◽  
Author(s):  
Alan Santinele Martino
Keyword(s):  
Intellectual Disabilities ◽  
Disability Studies ◽  
Lived Experiences ◽  
Sexual Experiences ◽  
Disabled People ◽  
Critical Disability Studies ◽  
Adults With Intellectual Disabilities

This dissertation will examine the sexual and intimate lives of adults with intellectual disabilitiesby putting into conversation theories from both the sociology of sexualities and the field ofcritical disability studies. The intersection of disabilities and sexualities remains a taboo topic inour society (Esmail et al. 2009; Shakespeare 2014). Research on the intersection of disabilitiesand sexualities remains under-researched and under-theorized in both the sociology of sexualitiesand critical disability studies, resulting in significant gaps in our understanding of the sexual andintimate lived experiences of disabled people (Erel et al. 2011; Kattari 2015; Liddiard 2011,2013; McRuer and Mollow 2012).

Prevalence of visual and hearing impairment in adults with intellectual disabilities in the southwestern Iran: a cross sectional study

2017 ◽  
Vol 16 (3) ◽  
Author(s):  
Amal Saki-Malehi ◽  
Gholamreza Seddiq-rad ◽  
Abdoulaziz Sayyahi ◽  
Fakhri Mousavi-Far ◽  
Mohammad Veysi ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Hearing Impairment ◽  
People With Disabilities ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Rehabilitation Centers ◽  
State Welfare ◽  
Adults With Intellectual Disabilities ◽  
Southwestern Iran

AbstractA disability is a set of physical or mental disorders that personally or socially prohibit a person from having a normal and independent life. This study aimed to determine the prevalence of visual and hearing impairment in adults with intellectual disabilities in southwestern Iran. This cross-sectional study was conducted on people with disabilities in all rehabilitation centers of the Khuzestan state welfare organization in southwestern Iran from 1st January 2015 to 20th March 2016. The questionnaire was designed using the International Classification of Diseases-10 based criteria of intellectual disabilities diagnosis, in which it is referred to as a significantly sub-average intellectual functioning, slow development during the developmental period and a deficit in adaptive behavior. The questionnaire was field tested and validated before use. Visual and hearing impairment was defined based on the International Association for the Study of Intellectual and Developmental Disabilities (IASSID) international consensus statement. Two hundred cases were diagnosed to have either intellectual disabilities or visual and hearing impairment. Diagnoses of intellectual disabilities, visual and hearing impairment had been confirmed in the present screening in 79 (39.5%), 38 (19%) and 83 (41.5%) subjects, respectively. Considering the overall population of people with disabilities that refer to all rehabilitation centers of the Khuzestan state welfare organization (n=22483), the prevalence of intellectual disabilities, visual and hearing impairment in the present screening was 0.35, 0.27, and 0.37, respectively. Consanguineous marriage and history of consanguinity were the leading causes of intellectual disabilities, visual and hearing impairments in the southwestern region of Iran, most of which are avoidable. Design for the prevention of these disabilities is most recommended to decrease the proportion of avoidable disorders.

scholarly journals Transitioning to long-term care for older adults with intellectual disabilities: A concept analysis

2021 ◽  
pp. 174462952110418
Author(s):  
Caroline Egan ◽  
Helen Mulcahy ◽  
Corina Naughton
Keyword(s):  
Older Adults ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Long Term Care ◽  
Later Life ◽  
Concept Analysis ◽  
Older Person ◽  
Term Care ◽  
Adults With Intellectual Disabilities

Aim: To undertake a concept analysis of transitioning to long-term care for older adults with intellectual disabilities. Background: Individuals with an intellectual disability are experiencing increased longevity which is associated with an increase in transitions in later life to long-term care. Their experience of later life transitions is likely to be different to the general older population. Methodology: Concept Analysis was undertaken using the Walker and Avant framework. Results: Eight studies met the inclusion criteria. Defining attributes are an older person with intellectual disability; a planned relocation to a long-term care facility; person-centred; and supported decision-making. Conclusion: There is a dearth of empirical evidence and theorisation on this concept. Transitions of this nature have been inadequately informed by the perspective of the older person with an intellectual disability, and future research and practice requires greater efforts to include their voice.

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