scholarly journals O design da informação na modelagem de ambientes digitais em saúde: políticas informacionais no transcurso da epidemia pelo zika vírus | Information design in the modeling of health websites: information policies in the course of the epidemic by zika virus

2018 ◽  
Vol 14 (2) ◽  
Author(s):  
Maria José Vicentini Jorente ◽  
Laís Alpi Landim ◽  
Anahi Rocha Silva
Keyword(s):  
Health Literacy ◽  
Web 2.0 ◽  
Health Information ◽  
Zika Virus ◽  
Information Design ◽  
Public Institutions ◽  
New Materials ◽  
Bibliographic Analysis ◽  
Communities Of Interest ◽  
Cultural Reality

RESUMO A informação em saúde disponibilizada em ambientes digitais pode não surtir os efeitos esperados nas comunidades de interesse, em razão de inadequações no design da informação. O objetivo deste artigo é analisar três desses ambientes de instituições públicas brasileiras com informações sobre o zika vírus e a microcefalia, partindo da análise bibliográfica, sob a perspectiva do design da informação. Demonstram-se resultados das análises e elaboram-se recomendações para novos materiais disponibilizados na web 2.0, voltados à temática da microcefalia por zika vírus. A reflexão é necessária diante da realidade sociopolítica e cultural da contemporaneidade brasileira.Palavras-chave: Design da Informação; Ambientes Digitais de Saúde; Alfabetização em Saúde; Políticas de Informação em Saúde; Epidemia de Zika Vírus e Microcefalia.ABSTRACT Health information available on websites may not have the expected effects on the communities of interest due to inadequacies in their information design project. The aim of this paper is to analyze three of these websites of Brazilian public institutions with information about zika virus and microcephaly, from the bibliographic analysis, under the perspective of information design. The results of the analyzes are presented and recommendations are made for new materials available on web 2.0, focused on the topic of microcephaly by zika virus. Reflection is necessary in view of the sociopolitical and cultural reality of Brazilian contemporaneity.Keywords: Information Design; Health Information Websites; Health Literacy; Health Information Policies; Zika Virus Epidemic and Microcephaly.

scholarly journals Aspectos cognitivos de Design da Informação para ambientes e-Saúde | Cognitive aspects of Information Design for eHealth digital environments

2019 ◽  
Vol 16 (3) ◽  
pp. 388-399
Author(s):  
Laís Alpi Landim ◽  
Maria José Vicentini Jorente
Keyword(s):  
Health Literacy ◽  
Digital Media ◽  
Health Information ◽  
Information Science ◽  
Information Design ◽  
Cognitive Effort ◽  
The People ◽  
Digital Environments ◽  
Different Levels ◽  
The Web

O objetivo deste trabalho é investigar aspectos cognitivos de Design da Informação que devem ser considerados no projeto e concepção de ambientes digitais e-Saúde, levando em consideração os graus de literacia em saúde das comunidades a quem se destinam. Assim, as características da e-Saúde, as relações entre saúde e tecnologia e os estudos em Design da Informação voltados à temática são relacionados, em convergência com a Ciência da Informação. O fornecimento de informação em saúde, tanto em meios analógicos quanto digitais, não significa necessariamente uma mudança nos hábitos de autocuidado e prevenção, devido aos diferentes graus de literacia em saúde das pessoas que as acessam. Há aspectos e características específicas na disponibilização de informações em saúde na Web que devem ser levados em consideração no Design de ambientes e-Saúde. Esse tipo de informação deve ser apresentado e representado de acordo com critérios e diretrizes especificamente voltados a esses ambientes, que são provenientes de estudos que consideram a carga cognitiva e o grau de literacia em saúde necessários para o processamento de determinados formatos de informação no processo comunicacional nesse contexto. Determinados fatores, como a ausência de jargões e formato do texto, emprego de recursos gráficos na apresentação e representação da informação e modalidades audiovisuais exigem menor esforço cognitivo no processamento da informação, sendo, assim, mais adequados a pessoas com diferentes níveis de literacia em saúde. Assim, apresenta-se como resultado um mapa conceitual com recomendações voltadas aos conteúdos textuais e gráficos para o Design de Informação de ambientes e-Saúde.*****The purpose of this paper is to investigate cognitive aspects of Information Design that should be considered in the design of eHealth environments, taking into account the degrees of health literacy of the communities to which they are intended. The characteristics of eHealth, the relationships between health and technology and the studies in Information Design related to the thematic area related, in convergence with Information Science. The provision of health information in both analogue and digital media does not necessarily mean a change in self-care and prevention habits due to the different degrees of health literacy of the people who access it. There are specific aspects in the provision of health information on the Web that should be taken into account in the Design of eHealth environments. This type of information must be presented and represented according to criteria and guidelines specifically geared to these environments, which are derived from studies that consider the cognitive load and degree of health literacy required for the processing of certain information formats in the communicational process in this context. Certain factors, such as the lack of jargon and the format of the text, the use of graphic resources in the presentation and representation of information and audio-visual modalities require less cognitive effort in information processing and are therefore more appropriate for people with different levels of health literacy. We present as a result of a conceptual map with recommendations focused on the textual and graphic contents for the Information Design of eHealth environments.

scholarly journals The Voices of Persons Living With Dementia: Exploring Their Information Needs to Live Well

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 60-60
Author(s):  
Michelle Kimzey ◽  
Ramona Baucham ◽  
Chelsea Martin ◽  
Carol Howe
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Information Needs ◽  
Hybrid Approach ◽  
Convenience Sample ◽  
Health Decisions ◽  
People With Dementia ◽  
Care Partners ◽  
Diagnosis Of Dementia ◽  
Services And Supports

Abstract There are unique challenges and considerations when receiving the diagnosis of dementia. There are interventions, services, and supports for people with dementia and their care partners, yet they are often unknown, disconnected, and may not be widely available or easily accessible. Health literacy was defined as the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions. Using a descriptive qualitative design, the purpose of this study was to describe how persons living with dementia and their care partners obtain, understand, and use information to make health decisions to live well with dementia. The convenience sample consisted of 28 care partners and 15 people living with dementia participating in 6 separate focus groups. To illuminate findings, data was analyzed using a hybrid approach (deductive followed by inductive). Four themes emerged deductively as persons gain health literacy in dementia (access, understand, appraise, and understand). The notable finding is the trend at diagnosis where they first are “seeking the expert” ,and as they move from dependence and gain understanding they are “becoming the expert”, and finally as they apply information they are “acting as the expert” for themselves and others. Engaging them in research not only gave them a voice but more importantly it influenced the health information that will be developed and implemented by them. These findings suggest there is a wealth of knowledge to be gained by persons living with dementia and their care partners.

scholarly journals Health literacy level in a various nephrology population from Québec: predialysis clinic, in-centre hemodialysis and home dialysis; a transversal monocentric observational study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Annabel Boyer ◽  
Yannick Begin ◽  
Julie Dupont ◽  
Mathieu Rousseau-Gagnon ◽  
Nicolas Fernandez ◽  
...  
Keyword(s):  
Health Literacy ◽  
Observational Study ◽  
Health Information ◽  
Healthcare Providers ◽  
Significant Proportion ◽  
Good Health ◽  
Sufficient Information ◽  
Home Dialysis ◽  
Limited Health Literacy ◽  
Limited Health

Abstract Background Health literacy refers to the ability of individuals to gain access to, use, and understand health information and services in order to maintain a good health. It is especially important in nephrology due to the complexity of chronic kidney disease (CKD). The present study sought to define health literacy levels in patients followed in predialysis clinic, in-center dialysis (ICHD), peritoneal dialysis (PD) and home hemodialysis (HHD). Methods This transversal monocentric observational study analysed 363 patients between October 2016 and April 2017. The Brief Health Literacy Screen (BHLS) and the Health Literacy Questionnaire (HLQ) were used to measure health literacy. Multivariate linear regressions were used to compare the mean scores on the BHLS and HLQ, across the four groups. Results Patients on PD had a significantly higher BHLS’score than patients on ICHD (p = 0.04). HLQ’s scores differed across the groups: patients on HHD (p = 0.01) and PD (p = 0.002) were more likely to feel understood by their healthcare providers. Compared to ICHD, patients on HHD were more likely to have sufficient information to manage their health (p = 0.02), and patients in the predialysis clinic were more likely to report high abilities for health information appraisal (p < 0.001). Conclusion In a monocentric study, there is a significant proportion of CKD patients, especially in predialysis clinic and in-centre hemodialysis, with limited health literacy. Patients on home dialysis (HHD and PD) had a higher level of health literacy compared to the other groups.

scholarly journals 31.C. Workshop: Development and implementation of action plans on health literacy

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  
Keyword(s):  
Public Health ◽  
Health Care ◽  
Health Literacy ◽  
Health Information ◽  
Digital Health ◽  
Action Plan ◽  
Knowledge Society ◽  
Implementation Strategies ◽  
Social Consequences ◽  
Action Plans

Abstract Health literacy (HL) has become an important topic in many countries. As HL - meaning the ability to access, understand, appraise and apply health information (Sørensen et al. 2012) - is important to make sound health decisions, to promote health and to take an active part in managing health and illness in everyday life and navigating the health care system. In the modern digital knowledge society, HL is also indispensable for orienting oneself in the abundance of mostly digital health information, including incorrect and false information, for locating reliable information and for assessing the trustworthiness and quality of information. However, available studies show that HL is insufficient in many countries. Low HL has - as many studies show - negative social consequences ranging from unhealthy behaviour, higher risk for diseases, less self-care and deficits in coping with illness and chronicity, to over- and misuse (extensive use) of health care. The promotion of HL is therefore an important public health task. An increasing number of population studies and policy documents currently underline this. The WHO has therefore included HL into many of its strategies, like the declarations of Shanghai (2016) and Astana (2018), and has published several publications focusing on HL, like the Solid Facts (2013), the 57th Health Evidence Network Report (2018) or the Roadmap for Implementing Health Literacy Activities (2019). In many countries, strategies and national action plans to improve HL have been developed in response to the political call for action, e.g. in Scotland, Germany and recently also in Portugal. Other countries and regions are currently working on the development of a HL action plan, e.g. Belgium and the WHO European Region action plan on HL. The development and especially the implementation strategies of action plans in different countries and the experiences gained will be discussed comparatively in the workshop. Following an introduction (10'), two countries, which already have action plans will introduce their implementation strategy in one presentation each: Germany and Portugal (30'). This will be followed by two presentations of countries/regions in which action plans are currently being developed: Belgium and WHO Europe (30'). Afterwards the participants will have the opportunity to ask questions and discuss on the different strategies (20'). The workshop will help other initiatives to successfully develop and implement policy plans and strategies in different fields of public health. Key messages Strategies and national action plans to improve HL have been developed in different countries/regions. It is important to reflect on the chosen development and implementation strategies and to discuss their effects, successes and barriers.

Training humanities doctoral students in collaborative and digital multimedia

2011 ◽  
Vol 11 (1-2) ◽  
pp. 140-156 ◽  
Author(s):  
Astrid Ensslin ◽  
Will Slocombe
Keyword(s):  
Web 2.0 ◽  
Doctoral Students ◽  
Text Analysis ◽  
Information Design ◽  
Doctoral Training ◽  
Desktop Publishing ◽  
Digital Multimedia ◽  
Relevant Theory ◽  
Training Scheme

This study reports on the pedagogic rationale, didactic design and implications of an AHRC-funded doctoral training scheme in collaborative and digital multimedia in the humanities. In the second part of this article we discuss three areas of provision that were identified as particularly significant and/or controversial. These include (1) desktop publishing and information design for academic posters, (2) quantitative, corpus-based approaches to text analysis, and (3) a discussion of the affordances and constraints of ‘collaborative’ Web 2.0 based research as reflected by participants and relevant theory.

Barriers, Enablers, and Consumer Design Ideas for Health Literacy Responsive Hospital Waiting Areas: A Framework Method Analysis

2021 ◽  
pp. 193758672110329
Author(s):  
Cassie E. McDonald ◽  
Louisa J. Remedios ◽  
Kate L. Cameron ◽  
Catherine M. Said ◽  
Catherine L. Granger
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Information Resources ◽  
Outpatient Rehabilitation ◽  
Personal Factors ◽  
Future Health ◽  
Barriers And Enablers ◽  
Accessibility Issues ◽  
Health Information Resources ◽  
Design Ideas

Aim: The study aim was to (1) investigate the barriers and enablers experienced by consumers to accessing and engaging with health tools in hospital waiting areas and (2) evaluate consumers’ ideas for designing a health literacy responsive waiting area. Background: Health information, resources, and supports (“health tools”) in waiting areas should be responsive to the health literacy needs of consumers. However, consumers’ experiences of using health tools and their ideas for improving them are not known. Methods: Multicenter study was set in hospital waiting areas of outpatient rehabilitation services. Semistructured in-person interviews were conducted with 33 adult consumers attending appointments for various health conditions. Seven stages of the Framework Method were used to analyze data. Results: Six themes were identified which explained barriers and enablers from the perspective of consumers. The barriers were accessibility issues; personal factors—physical condition, emotional state, and preferences; and poorly presented and outdated resources. The enablers were design suits consumer needs and preferences; usable in available time or portable; and compatible environment for engaging and sharing. Consumers shared design ideas which fit within four typologies. Conclusions: A range of barriers and enablers exist which have an impact on consumers’ ability to engage with available health information, resources, and supports in hospital outpatient waiting areas. Practical insights from the perspective of consumers can be applied to future health service design. Consumer’s design ideas suggest that partnerships with consumers should be formed to design health literacy responsive waiting areas.

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