scholarly journals Aspectos cognitivos de Design da Informação para ambientes e-Saúde | Cognitive aspects of Information Design for eHealth digital environments

2019 ◽  
Vol 16 (3) ◽  
pp. 388-399
Author(s):  
Laís Alpi Landim ◽  
Maria José Vicentini Jorente

O objetivo deste trabalho é investigar aspectos cognitivos de Design da Informação que devem ser considerados no projeto e concepção de ambientes digitais e-Saúde, levando em consideração os graus de literacia em saúde das comunidades a quem se destinam. Assim, as características da e-Saúde, as relações entre saúde e tecnologia e os estudos em Design da Informação voltados à temática são relacionados, em convergência com a Ciência da Informação. O fornecimento de informação em saúde, tanto em meios analógicos quanto digitais, não significa necessariamente uma mudança nos hábitos de autocuidado e prevenção, devido aos diferentes graus de literacia em saúde das pessoas que as acessam. Há aspectos e características específicas na disponibilização de informações em saúde na Web que devem ser levados em consideração no Design de ambientes e-Saúde. Esse tipo de informação deve ser apresentado e representado de acordo com critérios e diretrizes especificamente voltados a esses ambientes, que são provenientes de estudos que consideram a carga cognitiva e o grau de literacia em saúde necessários para o processamento de determinados formatos de informação no processo comunicacional nesse contexto. Determinados fatores, como a ausência de jargões e formato do texto, emprego de recursos gráficos na apresentação e representação da informação e modalidades audiovisuais exigem menor esforço cognitivo no processamento da informação, sendo, assim, mais adequados a pessoas com diferentes níveis de literacia em saúde. Assim, apresenta-se como resultado um mapa conceitual com recomendações voltadas aos conteúdos textuais e gráficos para o Design de Informação de ambientes e-Saúde.*****The purpose of this paper is to investigate cognitive aspects of Information Design that should be considered in the design of eHealth environments, taking into account the degrees of health literacy of the communities to which they are intended. The characteristics of eHealth, the relationships between health and technology and the studies in Information Design related to the thematic area related, in convergence with Information Science. The provision of health information in both analogue and digital media does not necessarily mean a change in self-care and prevention habits due to the different degrees of health literacy of the people who access it. There are specific aspects in the provision of health information on the Web that should be taken into account in the Design of eHealth environments. This type of information must be presented and represented according to criteria and guidelines specifically geared to these environments, which are derived from studies that consider the cognitive load and degree of health literacy required for the processing of certain information formats in the communicational process in this context. Certain factors, such as the lack of jargon and the format of the text, the use of graphic resources in the presentation and representation of information and audio-visual modalities require less cognitive effort in information processing and are therefore more appropriate for people with different levels of health literacy. We present as a result of a conceptual map with recommendations focused on the textual and graphic contents for the Information Design of eHealth environments.

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
J Dratva ◽  
S Juvalta ◽  
M Gemperle ◽  
D Händler-Schuster ◽  
M Scheermesser ◽  
...  

Abstract Background Digital transformation in health and health systems is a chance and a challenge for health professionals irrespective of their field. To maximize the benefit for patients high digital health literacy is required. A requirement not represented in health professions’ curricula in Switzerland. Little is known on the digital health competencies of students, on their utilization and views of digital media in the context of health, thus a cross-sectional survey was performed at a School of Health Professsions in Switzerland. Methods All BSc. students (N = 1200; nursing, midwifery, occupational health, physiotherapy and health promotion) received an online questionnaire covering utilization of various information resources, views on digital health & media and the German eHealth Literacy Scale (eHEALS, score 0 - 40). Descriptive and group analyses were performed, further adjusted analyses will be run. Results 453 students responded (female N = 368, male N = 26). Participation was 38% and highest in 1st students. Personal health information resources used most were: internet 82%, familiy&friends 70%, health professionals 66%, textbooks 40%. A majority rated digital media as important (66%) or rather important (30%) for their future professional activities. The overall eHeals-score was 28.6 (sd 4.93); critical evaluation and confidence in applying information scored lowest. Preliminary group analyses show significant increase by study year (1st 28.0, 2nd 28.9, 3rd 29.7, p = 0.01), while scores by gender or health profession were non-significantly different. Conclusions Almost all students in health professions use digital media for their own health information needs and consider digital media as highly relevant for their future career. Critical evaluation skills need to be strenghtend. Digital Health Literacy is only slightly higher in 3rd year students. Longitudinal data are needed to differentiate cohort from learning effects. Key messages Digital media are increasingly important in health systems, a view shared by future health professionals. Data indicate only a small increase of digital health literacy across three years of study. Curricula should include digital health competencies to ensure a highly digitally skilled health work force.


Author(s):  
Michael Mackert ◽  
Sara Champlin ◽  
Jisoo Ahn

Health literacy—defined as the ability of an individual to obtain, process, understand, and communicate about health information—contributes significantly to health outcomes and costs to the U.S. health-care system. Approximately one-quarter to one-half of U.S. adults struggle with health information, which includes understanding patient education materials, reading medication labels, and communicating with health-care providers. Low health literacy is more common among the elderly, those who speak English as a second language, and those of lower socioeconomic status. In addition to conceptualizing health literacy as an individual-level skill, it can also be considered an organizational or community-level ability. Increased attention to the field of health literacy has resulted in debates about the definition and the best ways to assess health literacy; there is also a strong and growing movement within the field of health literacy research and practice to frame health literacy less as a deficit to overcome and more as an approach to empowering patients and improving outcomes. As health-care providers have recognized the importance of health literacy, workshops, and training programs have been developed and evaluated to improve the care of low-health-literate patients. Similarly, health promotion professionals have developed best practices for reaching low-health-literate audiences with traditional and new digital media, which can also increase access for patients with hearing or visual impairments. Additionally, recent policy changes in the United States, including those related to the Affordable Care Act, contribute to a greater focus and regulation of factors that impact health literacy. Researchers and practitioners together are advancing understanding of health literacy, its relationship to health outcomes and health-care costs, and improved strategies for improving the health of lower health literate patients. Development and review of health literacy pieces can aid in shared decision making and provide insights for patients on various health-care services.


2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
L Covolo ◽  
M Guana ◽  
G Bonaccorsi ◽  
L Brunelli ◽  
S Castaldi ◽  
...  

Abstract Background In 2018, 52% of the European population use the Web to seek health information and 77% consider it a useful tool to improve their knowledge about health. The Italian survey “SEI Donna” aims to investigate knowledge, perceptions and use of the web tools in women regarding health issues. Methods We used an online questionnaire to collect data including the type of online research and the degree of trust towards different sources. We also assessed health literacy (HL) and eHealth literacy scale (eHEALS) using validated tests. Results Of 7291 women who completed the questionnaire, 96% (n = 7022) seeks health information online. The 33% of women follows social media groups on health. One third of sample (31%) purchased a health product online, particularly cosmetics (75%) and supplements (41%). More than one third of sample thinks that information retrieved by web improve their health (35%) and influence their habits (34%). Half of sample (52%) searched online for a second opinion after medical examination. The reason was the need of a deepening in the 67% of cases. Overall, the HL is functional in 34% of cases, marginal in 56% and low in the rest (10%). Women with low HL trust less health information reported by institutional websites than women with functional HL, respectively 73% vs 86% (p < 0.001) and the eHEALS score of women less trusting is lower than those trusting, 23±7 vs 28±7 (p < 0.001). One third of women declares not to be able to evaluate the reliability of a website particularly women with low HL (36%) compared to those with functional HL (20%), p < 0.001. Women reporting not to be able to evaluate the reliability of a website have eHEALS score lower than women who indicated an institutional website, respectively 24±7 vs 28±7 (p < 0.001). Conclusions The results confirm the large use of the web as a tool to seek health information, have a second opinion and buy health products. A good level of HL and eHEALS seem to make women more skilled in surfing the web. Key messages The results confirm the importance to put effort on strategies aiming to improve health literacy and eHealth literacy in the population. In the public health communication perspective, the fact that one third of women thinks that information retrieved by web improve their health and influence their habits, must be considered.


2016 ◽  
Vol 12 (1) ◽  
Author(s):  
Maria José Vicentini Jorente ◽  
Natalia Nakano ◽  
Talita Cristina Da Silva ◽  
Lucinéia Da Silva Batista

RESUMO O Marco Civil da Internet do Brasil é a primeira legislação do mundo a regular a internet de forma ampla e irrestrita; e respeita os princípios da internet complexa, aberta e sustentável. Define-se assim a problemática deste artigo: de que maneira a Ciência da Informação (CI) se insere no que preconiza o Marco Civil? Este estudo apresenta referencial teórico sobre o que preconiza o Marco Civil, relacionando-o com a CI, e então introduz dois exemplos de software livre que podem contribuir com a sua efetivação. Conclui que a CI não pode ficar alijada das discussões sobre o Marco, e sugere, para estudos futuros, investigações que reflitam sobre o design de ambientes digitais em que estão depositadas informações para acesso, e sua relação com o que reza o Marco Civil da Internet.Palavras-chave: Informação e Tecnologia; Web 2.0; AtoM; Archivematica; Design da Informação.ABSTRACT The Brazilian Civil Rights Framework for the Internet is the first legislation in the world to regulate the Internet broadly and non-restrictively; and it respects the principles of complex, sustainable, open Internet. The research problem of this article is: how is Information Science (IS) contemplated in the legal recommendations? This study presents a theoretical framework on what the Civil Rights Framework advocates, relating it to IS, and then presents two examples of open software that can contribute to its operationalization. The study concludes that IS cannot be excluded from the discussions on the Framework and suggests, for further studies, investigations that reflect on the design of digital environments in which information is deposited and its relation to the Brazilian Civil Rights Framework for the Internet.Keywords: Information and Technology; Web 2.0; AtoM;Archivematica; Information Design.


2018 ◽  
Vol 14 (2) ◽  
Author(s):  
Maria José Vicentini Jorente ◽  
Laís Alpi Landim ◽  
Anahi Rocha Silva

RESUMO A informação em saúde disponibilizada em ambientes digitais pode não surtir os efeitos esperados nas comunidades de interesse, em razão de inadequações no design da informação. O objetivo deste artigo é analisar três desses ambientes de instituições públicas brasileiras com informações sobre o zika vírus e a microcefalia, partindo da análise bibliográfica, sob a perspectiva do design da informação. Demonstram-se resultados das análises e elaboram-se recomendações para novos materiais disponibilizados na web 2.0, voltados à temática da microcefalia por zika vírus. A reflexão é necessária diante da realidade sociopolítica e cultural da contemporaneidade brasileira.Palavras-chave: Design da Informação; Ambientes Digitais de Saúde; Alfabetização em Saúde; Políticas de Informação em Saúde; Epidemia de Zika Vírus e Microcefalia.ABSTRACT Health information available on websites may not have the expected effects on the communities of interest due to inadequacies in their information design project. The aim of this paper is to analyze three of these websites of Brazilian public institutions with information about zika virus and microcephaly, from the bibliographic analysis, under the perspective of information design. The results of the analyzes are presented and recommendations are made for new materials available on web 2.0, focused on the topic of microcephaly by zika virus. Reflection is necessary in view of the sociopolitical and cultural reality of Brazilian contemporaneity.Keywords: Information Design; Health Information Websites; Health Literacy; Health Information Policies; Zika Virus Epidemic and Microcephaly.


Author(s):  
Diane Levin-Zamir ◽  
Isabella Bertschi

Health literacy describes skills and competencies that enable people to gain access to, understand and apply health information to positively influence their own health and the health of those in the social environment. In an increasingly media saturated and digitized world, these skill sets are necessary for accessing and navigating sources of health information and tools, such as television, the Internet, and mobile apps. The concepts of Media Health Literacy (MHL) and eHealth Literacy (eHL) describe the specific competencies such tasks require. This article introduces the two concepts, and then reviews findings on the associations of MHL and eHL with several contextual variables in the social environment such as socio-demographics, social support, and system complexity, as a structural variable. As eHL and MHL are crucial for empowering people to actively engage in their own health, a growing body of literature reports of the potential and the effectiveness of intervention initiatives to positively influence these competencies. From an ethical standpoint, equity is emphasized, stressing the importance of accessible media environments for all - including those at risk of exclusion from (digital) media sources. Alignment of micro and macro contextual spheres will ultimately facilitate both non-digital and digital media to effectively support and promote public health.


Author(s):  
Diane Levin-Zamir ◽  
Isabella Bertschi

Health literacy describes skills and competencies that enable people to gain access to, understand and apply health information to positively influence their own health and the health of those in their social environments. In an increasingly media saturated and digitized world, these skill sets are necessary for accessing and navigating sources of health information and tools, such as television, the Internet, and mobile apps. The concepts of Media Health Literacy (MHL) and eHealth Literacy (eHL) describe the specific competencies such tasks require. This article introduces the two concepts, and then reviews findings on the associations of MHL and eHL with several contextual variables in the social environment such as socio-demographics, social support, and system complexity, as a structural variable. As eHL and MHL are crucial for empowering people to actively engage in their own health, there is a growing body of literature reporting on the potential and the effectiveness of intervention initiatives to positively influence these competencies. From an ethical standpoint, equity is emphasized, stressing the importance of accessible media environments for all—including those at risk of exclusion from (digital) media sources. Alignment of micro and macro contextual spheres will ultimately facilitate both non-digital and digital media to effectively support and promote public health.


1994 ◽  
Vol 33 (03) ◽  
pp. 246-249 ◽  
Author(s):  
R. Haux ◽  
F. J. Leven ◽  
J. R. Moehr ◽  
D. J. Protti

Abstract:Health and medical informatics education has meanwhile gained considerable importance for medicine and for health care. Specialized programs in health/medical informatics have therefore been established within the last decades.This special issue of Methods of Information in Medicine contains papers on health and medical informatics education. It is mainly based on selected papers from the 5th Working Conference on Health/Medical Informatics Education of the International Medical Informatics Association (IMIA), which was held in September 1992 at the University of Heidelberg/Technical School Heilbronn, Germany, as part of the 20 years’ celebration of medical informatics education at Heidelberg/Heilbronn. Some papers were presented on the occasion of the 10th anniversary of the health information science program of the School of Health Information Science at the University of Victoria, British Columbia, Canada. Within this issue, programs in health/medical informatics are presented and analyzed: the medical informatics program at the University of Utah, the medical informatics program of the University of Heidelberg/School of Technology Heilbronn, the health information science program at the University of Victoria, the health informatics program at the University of Minnesota, the health informatics management program at the University of Manchester, and the health information management program at the University of Alabama. They all have in common that they are dedicated curricula in health/medical informatics which are university-based, leading to an academic degree in this field. In addition, views and recommendations for health/medical informatics education are presented. Finally, the question is discussed, whether health and medical informatics can be regarded as a separate discipline with the necessity for specialized curricula in this field.In accordance with the aims of IMIA, the intention of this special issue is to promote the further development of health and medical informatics education in order to contribute to high quality health care and medical research.


2003 ◽  
Vol 1 (1) ◽  
pp. 70-86
Author(s):  
Christine Rzepka

One of the top reasons given for use of the internet is the ability to search for health information. However, much of the planning for web-based health information often fails to consider accessibility issues. If health care organizations and community agencies’ web sites have the latest, most wellresearched information on the health topics of the day, it is useless to those who cannot access it because of invisible technological barriers. Many flashy, high-tech sites were designed only to appeal to the needs of the mainstream population, with no consideration given to how people with disabilities must adapt their use of the web in order to access information. This article addresses issues of access specific to web site development, and will explore barriers to accessibility frequently experienced by web users with disabilities, requirements for ADA compliance, and how people with disabilities use the web. Web site accessibility guidelines, as well as simple evaluation tools, will be discussed. A thorough review of the article will enable even the least tech-savvy of health educators to enhance their skills in planning and evaluating web sites to promote access for people with disabilities.


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