scholarly journals Odgovornost za financiranje zdravil

2021 ◽  
pp. 39-47
Author(s):  
Jurij Fürst ◽  
Keyword(s):  
Rare Diseases ◽  
Cost Management ◽  
Current Model ◽  
International Comparisons ◽  
Developed Countries ◽  
Orphan Drugs ◽  
European Level ◽  
Special Fund ◽  
Set Up ◽  
Improve Cost

This paper presents the regulatory framework for medicine in Slovenia and describes its financing. Financing approaches for medicine, with lower prices than the market, are being introduced at several levels. International comparisons show that the availability of medicine in Slovenia is at the average European level. An area in which we are far behind the most developed countries is the use of biosimilars. Suggestions are made to increase their consumption. This will improve cost management and allow new medicine to be introduced faster. This is especially important in the area of medicine for rare diseases (orphan drugs), where we keep facing highly high costs. Proposals to set up a special fund for orphan drugs mean a nonsystematic solution and diversification of funding to several financially and personnel-limited payers, which would weaken Slovenia's bargaining power against pharmaceutical companies and make the medicine less accessible. The current model of drug development and marketing is becoming increasingly socially unacceptable. That is why ideas about how to improve the way medicine is developed, patented, and funded to the benefit of society are emerging

Comparison and analysis of the fda approved orphane drugs registerand the vital and essential drugs list of the Russian Federation

2020 ◽  
pp. 4-16
Author(s):  
D.S. Yurochkin ◽  
◽  
A.A. Leshkevich ◽  
Z.M. Golant ◽  
I.A. NarkevichSaint ◽  
...  
Keyword(s):  
United States ◽  
Russian Federation ◽  
Rare Diseases ◽  
Orphan Drugs ◽  
The United States ◽  
Orphan Diseases ◽  
Essential Drugs ◽  
The Russian Federation ◽  
Comparison And Analysis ◽  
The Government

The article presents the results of a comparison of the Orphan Drugs Register approved for use in the United States and the 2020 Vital and Essential Drugs List approved on October 12, 2019 by Order of the Government of the Russian Federation No. 2406-r. The comparison identified 305 international non-proprietary names relating to the main and/or auxiliary therapy for rare diseases. The analysis of the market of drugs included in the Vital and Essential Drugs List, which can be used to treat rare (orphan) diseases in Russia was conducted.

scholarly journals Pricing of orphan drugs in oncology and rare diseases

2020 ◽  
Vol 8 (1) ◽  
pp. 1838191
Author(s):  
Mark Nuijten ◽  
Stefano Capri
Keyword(s):  
Rare Diseases ◽  
Orphan Drugs

A Most Active Customer

2014 ◽  
Vol 44 (5) ◽  
pp. 470-502 ◽  
Author(s):  
Simone Turchetti
Keyword(s):  
World War Ii ◽  
Nuclear Power ◽  
Atomic Energy Commission ◽  
Developed Countries ◽  
Atomic Energy ◽  
Peace Treaty ◽  
Research Committee ◽  
Energy Field ◽  
Set Up ◽  
The U.S

After World War II had ended, Italy, not unlike other developed countries, held the ambition to establish an atomic energy program. The Peace Treaty of 1947 forbade its administration from seeking to acquire atomic weaponry, but in 1952 a national research committee was set up to explore the peaceful uses of atomic energy, in particular with regard to building nuclear reactors. One of the committee’s goals was to use nuclear power to make the country less reliant on foreign energy provisions. Yet, this paper reveals that the atomic energy project resulted in actually increasing Italy’s dependence on overseas assistance. I explain the reasons for this outcome by looking at the unfolding of U.S.–Italy relations and the offers of collaboration in the atomic energy field put forth by the U.S. State Department and the U.S. Atomic Energy Commission. I argue that these offers undermined plans to shape the nuclear program as its Italian architects had envisioned, caused them to reconsider the goal of self-sufficiency in energy provisioning, and reconfigured the project to be amenable to the security and economic priorities of the U.S. administration. In this way, I conclude, the path for the Italian project to “de-develop” was set.

Injuries in Swedish Day-Care Centers

PEDIATRICS ◽  
1994 ◽  
Vol 94 (6) ◽  
pp. 1033-1036
Author(s):  
Eva Sellström ◽  
Sven Bremberg ◽  
Albert Chang
Keyword(s):  
Day Care ◽  
Care Center ◽  
Health And Safety ◽  
Developed Countries ◽  
Day Care Centers ◽  
Number Of Children ◽  
Common Coding ◽  
Risk Of Injury ◽  
Local Injury ◽  
Set Up

In the developed countries, an increasing number of children are enrolled in day-care centers. When parents leave their child in a day-care center they expect high standards of health and safety. Accidental injuries are a major threat in this age group. In a comparable institution that serves children, the school, the risk of injury is higher than in the home environment.1-2 Thus, safety in day-care centers cannot be taken for granted. A few studies of injuries in day-care centers have been reported, from the Nordic countries2,3-5 and from the US.6-10 Most of these studies, however, have been small and most lack information on time of exposure. Information about the risk of injury in Swedish day-care centers might be of interest as enrollment has been high for a long time. In Sweden, within the frame of a national injury program,11 a number of local hospital- and health center-based injury report systems have been set up. All have a basic common coding. These systems enable compilation of injuries in day-care centers on a national basis. The aim of our study was to analyze child injuries in day-care centers as reported in 10 local injury registry systems in Sweden regarding incidence, type, and mechanism of injury. METHOD Data were compiled from 10 local injury registry systems, covering 1- to 2-year periods. The earliest registers were from the years 1983 to 1984 and the latest from 1991. These systems were set up in all medical institutions at a predefined level, covering all individuals in a total or a part of a county.

Neglected tropical diseases in Europe: rare diseases and orphan drugs?

Infection ◽  
2018 ◽  
Vol 47 (1) ◽  
pp. 3-5 ◽  
Author(s):  
Guido Calleri ◽  
Andrea Angheben ◽  
Marco Albonico
Keyword(s):  
Rare Diseases ◽  
Neglected Tropical Diseases ◽  
Orphan Drugs ◽  
Tropical Diseases

scholarly journals Cloud Computing in Education in Developing Countries

2017 ◽  
Vol 10 (2) ◽  
pp. 87 ◽  
Author(s):  
Faten Karim ◽  
Giselle Rampersad
Keyword(s):  
Cloud Computing ◽  
Developing Countries ◽  
Technology Adoption ◽  
Tertiary Education ◽  
Developed Countries ◽  
Education Sector ◽  
It Infrastructure ◽  
Cloud Computing Adoption ◽  
Limited Degree ◽  
Set Up

The main advantage of cloud computing is to reduce the IT cost. By using cloud computing, organisations do not have to set up an IT infrastructure, and instead are able to rent resources and give payment only for the using services. Even with the appealing of cloud computing benefits, it is still in infancy in developing countries due to many reasons. Technology adoption has been explored to a limited degree in developing countries, particularly in relation to cloud computing in the tertiary education sector. Existing studies have examined technology adoption in developed countries and to a lesser extent in developing countries in non-education contexts such as e-government. This paper contributes to the cloud computing adoption literature in developing countries, and specifically in Saudi Arabian universities. 

scholarly journals Freedom of conscience in Europe? An analysis of three cases of midwives with conscientious objection to abortion

2017 ◽  
Vol 44 (2) ◽  
pp. 104-108 ◽  
Author(s):  
Valerie Fleming ◽  
Beate Ramsayer ◽  
Teja Škodič Zakšek
Keyword(s):  
European Union ◽  
Health Professionals ◽  
Developed Countries ◽  
Conscientious Objection ◽  
The European Union ◽  
European Level ◽  
Major Area ◽  
Documentary Analysis ◽  
Opt Out ◽  
Church Law

While abortion has been legal in most developed countries for many years, the topic remains controversial. A major area of controversy concerns women’s rights vis-a-vis the rights of health professionals to opt out of providing the service on conscience grounds. Although scholars from various disciplines have addressed this issue in the literature, there is a lack of empirical research on the topic. This paper provides a documentary analysis of three examples of conscientious objection on religious grounds to performing abortion-related care by midwives in different Member States of the European Union, two of which have resulted in legal action. These examples show that as well as the laws of the respective countries and the European Union, professional and church law each played a part in the decisions made. However, support from both professional and religious sources was inconsistent both within and between the examples. The authors conclude that there is a need for clear guidelines at both local and pan-European level for health professionals and recommend a European-wide forum to develop and test them.

402 The challenge of medical information on the internet: The experiences of Orphanet dedicated to the rare diseases and orphan drugs

1999 ◽  
Vol 3 (6) ◽  
pp. A56
Author(s):  
S. Aymé ◽  
D. Oziel ◽  
B. Urbero ◽  
E. Lecouturier ◽  
F. Reboul-Salze ◽  
...  
Keyword(s):  
Rare Diseases ◽  
Medical Information ◽  
Orphan Drugs ◽  
The Internet
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