scholarly journals Psychosocial Impact of Assistive Technologies for Mobility and Their Implications for Active Ageing

Author(s):  
Anabela Martins ◽  
João Pinheiro ◽  
Beatriz Farias ◽  
Jeffrey Jutai

Active ageing is defined as the process of optimizing opportunities for physical, social and mental health to enable older people to take an active part in society without discrimination and to enjoy an independent and good quality of life. The World Health Organization assumed this as a process for increasing and maintaining an individual’s participation in activities to enhance his/her quality of life. In this survey, the authors addressed the following question: “Is assistive technology (AT) for mobility contributing to enhancement of lifelong capacity and performance?”. From June 2015 until February 2016, 96 community dwelling adults, AT users for mobility (powered wheelchairs, manual wheelchairs, lower limb prostheses, walkers, crutches and canes), aged 45-97, mean 67.02 +/- 14.24 years old, 56.3% female, were interviewed using the Psychosocial Impact of Assistive Devices Scale (P-PIADS), the Activities and Participation Profile related to Mobility (APPM) and demographics, clinical and questions about AT use and training. The participants’ profiles revealed moderate limitation and restrictions in participation, measured by the APPM (2.03). Most participants showed positive impact of AT; average scores obtained from the P-PIADS subscales were: Self-esteem 0.62, Competency 1.11 and Adaptability 1.10. P-PIADS total was 0.96, with the powered wheelchair users scoring the highest (1.53) and the walker users scoring the lowest (0.73). All subscales and P-PIADS total were positively correlated with the activities and participation profile. There was no relation between age and the psychosocial impact of AT or activities and participation profile. These results encourage the authors to follow these participants up for a lifelong intervention. To accomplish that aim, currently, the protocol is implemented at the AT prescribing centers in Coimbra, Portugal in order to assess the impact of AT on participation in society, one of the domains of the Active Ageing Index, a new analytical tool to help policy makers in developing policies for active and healthy ageing. 

2002 ◽  
Vol 8 (2-3) ◽  
pp. 354-362
Author(s):  
M. I. Kamel

The effect of schistosomiasis on quality of life [QOL] and productivity of workers was examined. In a textile factory in Alexandria, Egypt, personal, occupational and sociodemographic data were collected from 172 workers with schistosomiasis and 172 workers without schistosomiasis. Several indicators of productivity and the World Health Organization QOL brief were used to determine the impact of schistosomiasis. The disease affected the general, physical and independence, psychological and spiritual, and social domains of QOL. Although the productivity score of workers with schistosomiasis did not differ significantly from the control group, they had significantly lower additional hours of work and lower total incentives/month. A significant relationship was found between severity of schistosomiasis and QOL domains and productivity indicators.


2020 ◽  
Vol 50 (9) ◽  
pp. 990-998
Author(s):  
Shigeko Umezaki ◽  
Yusuke Shinoda ◽  
Akitake Mukasa ◽  
Shota Tanaka ◽  
Shunsaku Takayanagi ◽  
...  

Abstract Objective The factors associated with health-related quality of life in patients with glioma remain unclear; particularly, the impact of symptoms on quality of life has not been studied comprehensively. This study aims to document the quality of life of patients with glioma and clarify the impact of symptoms. Methods In this cross-sectional study, participants were recruited from patients at The University of Tokyo Hospital and from patients who were registered at the Japan Brain Tumor Alliance. We included adult patients with World Health Organization grade II–IV glioma and excluded those with disturbances of consciousness or aphasia. We used the European Organization for Research and Treatment of Cancer QLQ-C30 and BN20 to evaluate quality of life and the symptoms. Multiple regression analyses were performed to investigate the impact of symptoms on European Organization for Research and Treatment of Cancer global health status and QLQ-C30 social functioning. In addition, we performed univariate subgroup analyses classified by World Health Organization grade and history of chemotherapy. Results This study included 76 patients. Seven symptoms occurred in more than 50% of the patients: fatigue, future uncertainty, drowsiness, communication deficit, financial difficulties, motor dysfunction and weakness of legs. Multiple regression analyses showed that insomnia affected their global health status, and appetite loss, financial difficulties and motor dysfunction were significantly related to their social functioning. In subgroup analysis, the number of symptom subscales that were significantly related to global health status and social functioning was larger in World Health Organization grade II patients compared with grade III/IV patients. Conclusions In addition to neurological deficits, symptoms were associated with poor quality of life in patients with glioma. This study provided the basis on further investigation of usefulness of symptom evaluation on quality of life improvement.


2003 ◽  
Vol 25 (4) ◽  
pp. 249-252 ◽  
Author(s):  
Marcelo T Berlim ◽  
Marcelo P A Fleck

Since the '70s, the assessment of quality of life (QOL) has grown from a 'small cottage' industry to a formal discipline within a coherent theoretical framework, accepted methods, and manifold applications. In recent years, QOL has become increasingly popular as a useful variable tailored to assess the overall impact of diseases and medical treatments from the patient's point of view. In this updating paper, we describe the most frequently used instruments, and discuss the conceptual and practical issues concerning QOL evaluation, as applied to the study of mental disorders. In addition, we present a unifying definition of QOL that has recently been developed by the World Health Organization. Finally, we conclude that QOL measures are potentially useful methods to be applied to research and clinical practice in psychiatry - especially when used to demonstrate the impact of mental illnesses and the possible benefits of therapeutic interventions.


2013 ◽  
Vol 25 (4) ◽  
pp. 193-205 ◽  
Author(s):  
Francesco Corallo ◽  
Rosaria De Luca ◽  
Roberta Leonardi ◽  
Simona De Salvo ◽  
Placido Bramanti ◽  
...  

ObjectiveQuality of life (QoL) is a growing issue in medicine, particularly in the evaluation of rehabilitative care. The concept of QoL is included in and expands the definition of health given by the WHO (World Health Organization) and comprises complete physical, mental, and social well-being. It expresses the degree of satisfaction in various areas as a result of the opportunities that arise during one's lifetime despite the restrictions and impediments that life itself puts forth. The last decade has exponentially increased the number of studies on QoL, although they are still limited.MethodsWe performed a literature review on the QoL scales used in patients with neurological disorders.ResultsRecent studies have shown the importance of QoL assessment because standard treatments do not assess the treatment impact felt by the patient. In fact, by understanding the impact of treatment on survival and QoL, one can make a clearer interpretation of the health of the patient.ConclusionThis review has adopted an innovative holistic methodological approach, which allowed a global evaluation of the comfort reported by the patients. The scales applied in this study allowed to choose the most suitable therapeutic strategies and programme individual therapeutic treatment.


BJPsych Open ◽  
2021 ◽  
Vol 7 (3) ◽  
Author(s):  
Luciano Magalhães Vitorino ◽  
Gerson Hiroshi Yoshinari Júnior ◽  
Gabriela Gonzaga ◽  
Isabela Faria Dias ◽  
João Pedro Lambert Pereira ◽  
...  

Background Although mental distress and quality of life (QoL) impairments because of the pandemic have increased worldwide, the way that each community has been affected has varied. Aims This study evaluated the impact of social distancing imposed by coronavirus disease-2019 (COVID-19) on Brazilians’ mental health and QoL. Method In this cross-sectional community-based online survey, data from 1156 community-dwelling adults were gathered between 11 May and 3 June 2020. We examined independent correlates of depression, anxiety and QoL, including sociodemographic and clinical characteristics, optimism/pessimism and spiritual/religious coping. Dependent variables were assessed using the 9-item Patient Health Questionnaire for depressive symptoms, the 7-item Generalized Anxiety Disorder Scale for anxiety symptoms, and the World Health Organization Quality of Life-BREF for QoL. Correlates of depressive and anxiety disorder were estimated using logistic regression. Results There were high levels of depressive symptoms (41.9%) and anxiety symptoms (29.0%) in participants. Negative spiritual/religious coping was positively correlated with depressive disorder (odds ratio (OR) = 2.14 95% CI 1.63–2.80; P < 0.001) and with anxiety disorder (OR = 2.46 95% CI 1.90–3.18; P < 0.001), and associated with worse social and environmental QoL (P < 0.001). Healthcare professionals were less likely to have depressive symptoms (OR = 0.71, 95% CI 0.55–0.93; P < 0.001). Participants with friend/family with COVID-19 scored lower on psychological and environmental QoL (P < 0.05). Participants with a longer duration of social isolation were less likely to experience anxiety disorder (OR = 0.99, 95% CI 0.98–0.99; P = 0.004). Conclusions We found high levels of depressive and anxiety symptoms and low levels of QoL in Brazil, which has become a pandemic epicentre. Several characteristics were associated with negative mental health symptoms in this study. This information may contribute to local health policies in dealing with the mental health consequences of COVID-19.


2020 ◽  
Vol 10 (32) ◽  
pp. 175-182
Author(s):  
Angela Rita Marçano Affonso ◽  
Cassia Cristina Venci Gonzales ◽  
Neusa Falbo Wandalsen

O principal objetivo desse estudo foi avaliar o impacto da dermatite atópica (DA) na qualidade de vida (QV) de cuidadores de crianças e adolescentes menores de 18 anos, com esse diagnóstico, acompanhados no município de Santo André, estes foram selecionados durante as consultas, sendo registrados dados gerais e sobre a doença, e aplicado o questionário, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF aos cuidadores. Para a análise estatística, foram utilizadas as variáveis qualitativas descritas por frequências absolutas e relativas. Os dados mostram um comprometimento da QV dos cuidadores das crianças e adolescentes com DA, quando comparada à de cuidadores de controles sadios, especialmente nos domínios físico, psicológico e de relações sociais. A presença da DA afeta a QV da família conduzindo a um alto grau de comprometimento da dinâmica familiar.Descritores: Dermatite Atópica, Qualidade de Vida, Pais, Cuidadores. Quality of life in caregivers of minors with atopic dermatitisAbstract: The main objective of this study was to assess the impact of atopic dermatitis (AD) on the quality of life (QOL) of caregivers of children and adolescents under 18, followed up in the municipality of Santo André. They were selected during consultations, being recorded general and disease data, and the questionnaire, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF, was applied to caregivers. For the statistical analysis, the qualitative variables described by absolute and relative frequencies were used. The data show a compromise in the QoL of caregivers of children and adolescents with AD, when compared to that of caregivers of healthy controls, especially in the physical, psychological and social relations domains. The presence of AD affects the family's QOL leading to a high degree of impairment of family dynamics.Descriptors: Atopic Dermatitis, Quality of Life, Parents, Caregivers. Calidad de vida en cuidadores de menores con dermatitis atópicaResumen: El objetivo principal de este estudio fue evaluar el impacto de la dermatitis aopica (DA) en la calidad de vida (CV) de los cuidadores de niños y adolescentes menores de 18 años, con este diagnóstico, seguido en el municipio de Santo André, fueron seleccionados durante las consultas. Se registraron datos generales y de enfermedades, y se aplicó el cuestionario, El instrumento de la Organización Mundial de la Salud para evaluar la calidad de vida - WHOQOL-BREF, a los cuidadores. Para el análisis estadístico, se utilizaron las variables cualitativas descritas por frecuencias absolutas y relativas. Los datos muestran un compromiso en la calidad de vida de los cuidadores de niños y adolescentes con EA, en comparación con la de los cuidadores de controles sanos, especialmente en los dominios de las relaciones físicas, psicológicas y sociales. La presencia de EA afecta la calidad de vida de la familia, lo que lleva a un alto grado de deterioro de la dinámica familiar.Descriptores: Dermatitis Atópica, Calidad de Vida, Padres, Cuidadores.


2021 ◽  
Vol 31 (Supplement_2) ◽  
Author(s):  
Maria do Carmo Figueiredo ◽  
José Amendoeira ◽  
Marta Rosa ◽  
Rui Matos ◽  
Mário Silva ◽  
...  

Abstract Background The epidemic of COVID-19 caused by the Coronavirus -SARS-CoV-2, was declared by the World Health Organization an International Public Health Emergency. The 2019–2020 coronavirus pandemic has affected educational systems worldwide, leading to the closure of educational institutions. This situation kept students socially distant, with little adaptation time, interfering with their quality of life. Methods The aim of this study is to evaluate the quality of life of higher education students in the face of the impact of the COVID-19 pandemic. 775 students were selected by convenience sampling. Study with a quantitative, descriptive, correlational approach. The WHOQOL-bref instrument adapted from WHO was applied. Data analysis was undertaken using the IBM SPSS Statistics for Windows, Version 27.0. Armonk, NY: IBM Corp. Results Students' self-assessment about Quality of Life is globally superior to the self-assessment with their satisfaction with health, where the female students have lower average values than the male students. The WHOQOL-bref domains referring to Quality of Life with higher values were the Physical and the Environment ones, with the Social Relations and Psychological domains having the lowest values. Conclusions The development of this study made it possible to achieve the objective set. The domain of social relations has low average values, with students from IPSantarem standing out, with lower self-assessment of QoL in this domain, compared to those from IPLeiria. In the psychological domain, the low average values in both institutes stand out, especially in IPLeiria, where the average is less than 50%, in both genders.


Author(s):  
Vivian Puplampu ◽  
Elise Matthews ◽  
Gideon Puplampu ◽  
Murray Gross ◽  
Sushila Pathak ◽  
...  

ABSTRACTThe global population including Canada’s is aging, which demands planning for housing that will support older adults’ quality of life. This mixed-method study is the first Canadian study to examine the impact of cohousing on older adults’ quality of life and involved 23 participants. The older adults rated their quality of life very high, especially in the environmental, physical, and psychological domains of the World Health Organization Quality of Life (WHOQOL_BREF) survey; quality of life in the social domain was rated low, which was surprising in light of the focus group data findings. Four themes of “belonging in a community”, “life in the community”, “changes associated with aging,” and “aging in place” emerged from the qualitative data to explain factors that influence older adults’ quality of life. This research provides foundational, strong evidence that seniors’ cohousing is an innovative housing solution that can support older adults’ quality of life.


2020 ◽  
Author(s):  
Nor Hana Ahmad Bahuri ◽  
Hussein Rizal ◽  
Hazreen Abdul Majid ◽  
Mas Ayu Said ◽  
Tin Tin Su

Abstract BackgroundThe World Health Organization endorsed the Active Ageing Framework (AAF) in 2002, aiming to improve quality of life of future older people. Active ageing is defined as the process of optimising the opportunity of health, participation and security in order to enhance the quality of life as people age. However, little is known about the status of awareness of active ageing at the population level with no appropriate tool for assessment. The aim of this study is to develop the Awareness of Active Ageing Questionnaire (AAAQ) based on the AAF. MethodsThe content, linguistic and face validations, as well as test-retest reliability were conducted. Exploratory Factor Analysis (EFA) and Confirmatory Factor Analysis (CFA) were performed to test the structural validity of the AAAQ. ResultsA total of 110 participants (mean ± SD = 50.19 ± 5.52) were selected for the pilot, 81 participants (mean ± SD = 49.40 ± 5.70) for the test-retest and 404 participants (mean ± SD = 49.90 ± 5.80) for the CFA and EFA tests. The 16 items AAAQ Malay version showed satisfactory reliability and validity. The Cronbach’s alpha was more than 0.7, and the model showed good fit: Cmin/df = 2.771, GFI = 0.903, TLI = 0.951, RMSEA = 0.08. ConclusionsThe AAAQ is suitable for measuring the awareness of active ageing among middle-aged Malaysians and may be instrumental for the development of evidence-informed active ageing promotion programme.


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