scholarly journals Pregnancy and Parenting Experiences of Women With Twin-to-twin Transfusion Syndrome: A Qualitative Study

2020 ◽  
Author(s):  
Lijie Ren ◽  
Cancan Song ◽  
Chunling Xia ◽  
Nan Wang ◽  
Yan Yang ◽  
...  
Keyword(s):  
Health Information ◽  
Disease Diagnosis ◽  
Structured Interview ◽  
Children's Health ◽  
Children’S Health ◽  
Referral Process ◽  
Research Subjects ◽  
Interview Method ◽  
Experiences Of Women

Abstract BackgroundQualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support.MethodsA semi-structured interview method was used to assess the pregnancy and parenting experiences of women who presented with TTTS.ResultsWomen who presented with TTTS during pregnancy experienced persistent worry about their children’s health from the disease diagnosis to the subsequent parenting processes, when slight changes in their children’s health elicited concern. The lack of an efficient referral process and health information increased their uncertainty about their children’s health.ConclusionIn addition to the children’s health, other difficulties encountered during pregnancy and parenting may aggravate the pressure. Regardless of whether with successful delivery, women who experiencing TTTS may be more susceptible to psychological problems. Clinicians should improve the referral process and establish a follow-up system to provide women with health information and psychological support.

scholarly journals Pregnancy and parenting experiences of women with twin-to-twin transfusion syndrome: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Lijie Ren ◽  
Cancan Song ◽  
Chunling Xia ◽  
Nan Wang ◽  
Yan Yang ◽  
...  
Keyword(s):  
Health Information ◽  
Disease Diagnosis ◽  
Structured Interview ◽  
Psychological Support ◽  
Children's Health ◽  
Children’S Health ◽  
Referral Process ◽  
Research Subjects ◽  
Interview Method ◽  
Experiences Of Women

Abstract Background Qualitative research can reflect the actual thoughts and experience of research subjects and can be used to explore the experiences of women presenting with twin-to-twin transfusion syndrome (TTTS) to facilitate the provision of targeted psychological support. Methods A semi-structured interview method was used to assess the pregnancy and parenting experiences of women with TTTS. Colaizzi method was used for data analysis. Results Eighteen women participated in the study. We found that women with TTTS during pregnancy experienced persistent worry about their children’s health from the disease diagnosis to the subsequent parenting processes, even in case of minor changes in their children’s health. The lack of an efficient referral process and health information increased their uncertainty about their children’s health. Conclusion In addition to the children’s health, other difficulties encountered during pregnancy and parenting may aggravate the pressure. Clinicians in the first-visit hospital and foetal medicine centre should improve the referral process and establish a follow-up system to provide women with health information and psychological support.

scholarly journals Development of an Instrument to Assess Parents’ Excessive Web-Based Searches for Information Pertaining to Their Children’s Health: The “Children’s Health Internet Research, Parental Inventory” (CHIRPI)

10.2196/16148 ◽  
2020 ◽  
Vol 22 (4) ◽  
pp. e16148
Author(s):  
Antonia Barke ◽  
Bettina K Doering
Keyword(s):  
Health Information ◽  
Health Anxiety ◽  
Chronically Ill ◽  
Children's Health ◽  
Internet Research ◽  
Children’S Health ◽  
Web Based ◽  
Related Information ◽  
Health Related ◽  
Main Effects

Background People often search the internet to obtain health-related information not only for themselves but also for family members and, in particular, their children. However, for a minority of parents, such searches may become excessive and distressing. Little is known about excessive web-based searching by parents for information regarding their children’s health. Objective This study aimed to develop and validate an instrument designed to assess parents' web-based health information searching behavior, the Children’s Health Internet Research, Parental Inventory (CHIRPI). Methods A pilot survey was used to establish the instrument (21 items). CHIRPI was validated online in a second sample (372/384, 96.9% mothers; mean age 32.7 years, SD 5.8). Item analyses, an exploratory factor analysis (EFA), and correlations with parents’ perception of their children’s health-related vulnerability (Child Vulnerability Scale, CVS), parental health anxiety (modified short Health Anxiety Inventory, mSHAI), and parental cyberchondria (Cyberchondria Severity Scale, CSS-15) were calculated. A subset of participants (n=73) provided retest data after 4 weeks. CHIRPI scores (total scores and subscale scores) of parents with a chronically ill child and parents who perceived their child to be vulnerable (CVS+; CVS>10) were compared with 2×2 analyses of variances (ANOVAs) with the factors Child’s Health Status (chronically ill vs healthy) and perceived vulnerability (CVS+ vs CVS−). Results CHIRPI’s internal consistency was standardized alpha=.89. The EFA identified three subscales: Symptom Focus (standardized alpha=.87), Implementing Advice (standardized alpha=.74) and Distress (standardized alpha=.89). The retest reliability of CHIRPI was measured as rtt=0.78. CHIRPI correlated strongly with CSS-15 (r=0.66) and mSHAI (r=0.39). The ANOVAs comparing the CHIRPI total score and the subscale scores for parents having a chronically ill child and parents perceiving their child as vulnerable revealed the main effects for perceiving one’s child as vulnerable but not for having a chronically ill child. No interactions were found. This pattern was observed for the CHIRPI total score (η2=0.053) and each subscale (Symptom Focus η2=0.012; Distress η2=0.113; and Implementing Advice η2=0.018). Conclusions The psychometric properties of CHIRPI are excellent. Correlations with mSHAI and CSS-15 indicate its validity. CHIRPI appears to be differentially sensitive to excessive searches owing to parents perceiving their child’s health to be vulnerable rather than to higher informational needs of parents with chronically ill children. Therefore, it may help to identify parents who search excessively for web-based health information. CHIRPI (and, in particular, the Distress subscale) seems to capture a pattern of factors related to anxious health-related cognitions, emotions, and behaviors of parents, which is also applied to their children.

scholarly journals Making health information meaningful: Children's health literacy practices

2016 ◽  
Vol 2 ◽  
pp. 476-484 ◽  
Author(s):  
Hannah Fairbrother ◽  
Penny Curtis ◽  
Elizabeth Goyder
Keyword(s):  
Health Literacy ◽  
Health Information ◽  
Literacy Practices ◽  
Children's Health ◽  
Children’S Health

scholarly journals One- and Two-Year Effects of the Healthy Primary School of the Future on Children’s Dietary and Physical Activity Behaviours: A Quasi-Experimental Study

Nutrients ◽  
2019 ◽  
Vol 11 (3) ◽  
pp. 689 ◽  
Author(s):  
Nina H.M. Bartelink ◽  
Patricia van Assema ◽  
Stef P.J. Kremers ◽  
Hans H.C.M. Savelberg ◽  
Marije Oosterhoff ◽  
...  
Keyword(s):  
Physical Activity ◽  
Primary School ◽  
Mixed Model ◽  
Health Behaviours ◽  
Well Being ◽  
Children's Health ◽  
Children’S Health ◽  
The Future ◽  
Quasi Experimental

Schools can help to improve children’s health. The ‘Healthy Primary School of the Future’ (HPSF) aims to sustainably integrate health and well-being into the school system. This study examined the effects of HPSF on children’s dietary and physical activity (PA) behaviours after 1 and 2 years’ follow-up. The study (n = 1676 children) has a quasi-experimental design with four intervention schools, i.e., two full HPSF (focus: nutrition and PA) and two partial HPSF (focus: PA), and four control schools. Accelerometers and child- and parent-reported questionnaires were used at baseline, after 1 (T1) and 2 (T2) years. Mixed-model analyses showed significant favourable effects for the full HPSF versus control schools for, among others, school water consumption (effect size (ES) = 1.03 (T1), 1.14 (T2)), lunch intake of vegetables (odds ratio (OR) = 3.17 (T1), 4.39 (T2)) and dairy products (OR = 4.43 (T1), 4.52 (T2)), sedentary time (ES = −0.23 (T2)) and light PA (ES = 0.22 (T2)). Almost no significant favourable effects were found for partial HPSF compared to control schools. We conclude that the full HPSF is effective in promoting children’s health behaviours at T1 and T2 compared with control schools. Focusing on both nutrition and PA components seems to be more effective in promoting healthy behaviours than focusing exclusively on PA.

Parent Involvement with Children's Health Promotion: A One-Year Follow-up of the Minnesota Home Team

1989 ◽  
Vol 16 (2) ◽  
pp. 171-180 ◽  
Author(s):  
Cheryl L. Perry ◽  
Russell V. Luepker ◽  
David M. Murray ◽  
Marsha D. Hearn ◽  
Andrew Halper ◽  
...  
Keyword(s):  
Health Promotion ◽  
Parent Involvement ◽  
Children's Health ◽  
Children’S Health ◽  
Home Team ◽  
One Year

scholarly journals Evidence Review, Co-Production and Prototyping A Process of Creating a Consumer Research Contact List in a Paediatric Health Setting: The PARTICIPATE Project

2021 ◽  
Author(s):  
Fenella Jane Gill ◽  
Catherine Pienaar ◽  
Tanya Jones
Keyword(s):  
Consumer Research ◽  
Strong Support ◽  
Children's Health ◽  
Children’S Health ◽  
Future Research ◽  
Research Recruitment ◽  
Contact List ◽  
Evidence Review ◽  
The Impact

Abstract The impact of child health research can be far reaching; affecting children’s immediate health, their adult health, the health of future generations and the economic wellbeing of countries. Consumer and community involvement is increasingly recognised as key to successful research recruitment. Systematic approaches to research recruitment include research registries or research contact lists. Objective: Develop a process of creating a consumer research contact list for participating in future research opportunities at a children’s health service.Methods: A healthcare improvement approach used a 3 stage framework; 1) evidence review and consultation 2) co-production of a research communications plan with stakeholders and consumers, including a draft research information brochure 3) prototyping involved iteratively testing the brochure, surveying parents or carers who attended outpatient clinics or the hospital Emergency Department, and conducting follow up telephone calls.Results: There was overall support for the creation of a research contact list, but some unknowns remain. 367 parents or carers completed the survey and 36 participated in a follow up telephone call. Over half were willing to join a research contact list and more than 90% of the children of parents or carers surveyed were not currently participating in research. Several potential barriers identified by stakeholders were dispelled. Research communications and a future contact list should be available in electronic form.Conclusions: There was strong support for creating a research contact list. The co‑production approach will inform our future directions including creation of an electronic research contact list easily accessible by consumers of the children’s health service

scholarly journals HUBUNGAN PENGETAHUAN IBU TERHADAP STATUS KESEHATAN ANAK DI DESA JETISKARANGPUNG, KALIJAMBE, SRAGEN

2019 ◽  
Vol 11 (01) ◽  
pp. 54
Author(s):  
Titik Anggraeni ◽  
Tri Yuniarti
Keyword(s):  
Health Status ◽  
Correlation Coefficient ◽  
Well Being ◽  
Children's Health ◽  
Children’S Health ◽  
Research Subjects ◽  
Direct Role ◽  
Cross Sectional ◽  
Purposive Sampling ◽  
The Family

Titik Anggraeni1), Tri Yuniarti2)1) Prodi S1 Keperawatan STIKES Estu Utomo2) Prodi DIII Keperawatan STIKES Mamba’ul ‘Ulum SurakartaE-mail : [email protected], [email protected] Belakang: Kesehatan anak merupakan hal yang sangat penting dalam keluarga. Anak yang sehat secara fisik dan psikis yang akan memberikan dampak yang baik bagi masyarakat, bangsa dan negara. Keluarga berperan dalam kesehatan dan kesejahteraan anak karena berkaitan dengan kasih sayang dalam keluarga, kesehatan fisik, mental, emosional dan sosial dari orang tua serta struktur dan fungsi keluarga. Anggota keluarga yang berperan langsung terhadap status kesehatan dan kesejahteraan adalah adalah ibu. Subyek dan Metode Penelitian: penelitian ini kuantitatif dengan desain cross sectional. Subyek penelitian berjumlah 197 responden yang diambil dengan tehnik purposive sampling. Variabel dependen adalah pengetahuan ibu dan variabel independen adalah status kesehatan anak. Data dikumpulkan dengan menggunakan kusioner. Analisis dengan menggunakan uji Kendall Tau. Hasil: ada hubungan antara pengetahuan ibu dengan status kesehatan anak(π: 0,17; p: 0,013). Simpulan: pengetahuan ibu mempunyai hubungan yang erat dengan status kesehatan anak(π: 0,17 ; p: 0,013; correlation coefficient: 1,00)Keywords: Pengetahuan Ibu, Status Kesehatan AnakMOTHER'S KNOWLEDGE RELATIONSHIP TO CHILDREN'S HEALTH STATUS IN DESA JETISKARANGPUNG, KALIJAMBE, SRAGENABSTRACTBackground: Child health is very important in the family. Children who are physically and psychologically healthy who will have a good impact on society, nation and country. Families play a role in the health and well-being of children because they are related to love in the family, physical, mental, emotional and social health of parents and family structure and function. Family members who play a direct role in health and welfare status are mothers. Subjects and Research Methods: This research is quantitative with a cross sectional design. The research subjects amounted to 197 respondents taken with purposive sampling technique. The dependent variable is maternal knowledge and the independent variable is the child's health status. Data is collected using questionnaires. Analysis using the Kendall Tau test. Results: there was a relationship between knowledge of mothers and children's health status (π: 0.17; p: 0.013). Conclusion: mother's knowledge has a close relationship with the child's health status (π: 0.17; p: 0.013; correlation coefficient: 1.00)Keywords: mother's knowledge, children's health status

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