The voices of parents whose children hospitalized with chronic kidney disease: A qualitative study

2020 ◽  
Author(s):  
Fatemeh Khorsandi ◽  
Naser Parizad ◽  
Aram Feizi ◽  
Masumeh Hemmati MaslakPak
Keyword(s):  
Chronic Kidney Disease ◽  
Content Analysis ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Healthcare Personnel ◽  
Face To Face ◽  
Practical Guidelines ◽  
Conventional Content Analysis ◽  
Negative Impacts ◽  
And Behavior

Abstract Background Parents play an important role in the treatment of children with chronic kidney disease (CKD) and their dissatisfaction may result in negative impacts on children’s health outcomes as well as their medical treatment. Thus, exploring parents' experience and identifying and addressing challenging issues could be helpful in managing the patients’ chronic conditions during their hospitalization. This study aimed to explore parents’ experiences during the hospitalization of their children with CKD. Methods This study was a qualitative study with the content analysis approach. Participants were 15 parents of children with CKD who were selected by purposive sampling. Data were collected using in-depth, semi-structured, face-to-face interviews. Data were analyzed using conventional content analysis. Results Two overarching categories of “improper behavior of personnel” and “unprofessional performance of personnel” were extracted from the data. The first category included sub-categories of ‘staff aggression’ and ‘staff indifference’. ‘Disturbed interaction’, ‘poor patient care, and ‘poor skills of personnel’ were considered as the sub-categories of "unprofessional performance of personnel". Conclusion The results indicated that improper behavior and unprofessional performance of the healthcare personnel can intensify the child’s and parents’ problems, and make it more difficult for them to deal with these difficulties. The medical team can significantly help parents by establishing appropriate communication and behavior, providing them the required information about their child’s disease and the necessary care to mitigate or eliminate their problems. Also, health care authorities can develop and implement educational and practical guidelines for healthcare personnel to improve their knowledge and skills.

scholarly journals Coping experiences of Pakistani nurses against corona stressor; a qualitative study

2020 ◽  
Vol 9 (1) ◽  
pp. 37
Author(s):  
Ali H. Haider
Keyword(s):  
Qualitative Research ◽  
Content Analysis ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Coping Strategy ◽  
World Wide ◽  
Face To Face ◽  
The World ◽  
Standard Operating ◽  
Conventional Content Analysis

Objective: The aim of the present qualitative study was to find out how Pakistani Nurses are experiencing the coping strategies against Corona- Stressor.Background: Corona is the World- Wide stressor for Nurses. The Pakistani Nurses are experiencing this stressor and are coping with it too. The present study is on Coping of Nurses of Pakistan against Corona- Stressor.Method: Narrative variation of qualitative research with conventional content analysis was applied to extract results from open- ended interview questions which were administered on nurses face to face with purposive sampling technique.Results: Six major themes; five of conventional coping strategies and one new coping strategy were used by Nurses against Corona- Stressor.Discussion & Conclusion: Nurses in Pakistan are using Standard Operating Procedures as a new coping strategy against Corona Stressor with the already established conventional coping strategies.   

Exploring Patients' Experiences After Chronic Kidney Disease Diagnosis: A Qualitative Study

2020 ◽  
Vol 47 (1) ◽  
pp. 67
Author(s):  
Areti Stavropoulou ◽  
Michael Rovithis ◽  
Maria G. Grammatikopoulou ◽  
Konstantina Kyriakidi ◽  
Andriani Pylarinou ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Disease Diagnosis

scholarly journals Long-term views on chronic kidney disease research priorities among stakeholders engaged in a priority-setting partnership: A qualitative study

2018 ◽  
Vol 21 (6) ◽  
pp. 1142-1149 ◽  
Author(s):  
Meghan J. Elliott ◽  
Joanna E. M. Sale ◽  
Zahra Goodarzi ◽  
Linda Wilhelm ◽  
Andreas Laupacis ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Priority Setting ◽  
Research Priorities ◽  
Disease Research ◽  
A Priority ◽  
Priority Setting Partnership

scholarly journals Patients’ and healthcare professionals’ beliefs, perceptions and needs towards chronic kidney disease self-management in China: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e044059
Author(s):  
Hongxia Shen ◽  
Rianne M J J van der Kleij ◽  
Paul J M van der Boog ◽  
Wenjiao Wang ◽  
Xiaoyue Song ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Illness Perceptions ◽  
Chinese Patients ◽  
Self Management ◽  
Tertiary Referral Hospital ◽  
Chinese Context ◽  
Management Interventions

ObjectivesTo support the adaptation and translation of an evidence-based chronic kidney disease (CKD) self-management intervention to the Chinese context, we examined the beliefs, perceptions and needs of Chinese patients with CKD and healthcare professionals (HCPs) towards CKD self-management.DesignA basic interpretive, cross-sectional qualitative study comprising semistructured interviews and observations.SettingOne major tertiary referral hospital in Henan province, China.Participants11 adults with a diagnosis of CKD with CKD stages G1–G5 and 10 HCPs who worked in the Department of Nephrology.ResultsFour themes emerged: (1) CKD illness perceptions, (2) understanding of and motivation towards CKD self-management, (3) current CKD practice and (4) barriers, (anticipated) facilitators and needs towards CKD self-management. Most patients and HCPs solely mentioned medical management of CKD, and self-management was largely unknown or misinterpreted as adherence to medical treatment. Also, the majority of patients only mentioned performing disease-specific acts of control and not, for instance, behaviour for coping with emotional problems. A paternalistic patient–HCP relationship was often present. Finally, the barriers, facilitators and needs towards CKD self-management were frequently related to knowledge and environmental context and resources.ConclusionsThe limited understanding of CKD self-management, as observed, underlines the need for educational efforts on the use and benefits of self-management before intervention implementation. Also, specific characteristics and needs within the Chinese context need to guide the development or tailoring of CKD self-management interventions. Emphasis should be placed on role management and emotional coping skills, while self-management components should be tailored by addressing the existing paternalistic patient–HCP relationship. The use of electronic health innovations can be an essential facilitator for implementation.

Barriers to self-care in elderly people with hypertension: a qualitative study

2018 ◽  
Vol 22 (4) ◽  
pp. 243-251
Author(s):  
Hanieh Gholamnejad ◽  
Ali Darvishpoor Kakhki ◽  
Fazlollah Ahmadi ◽  
Camelia Rohani
Keyword(s):  
Data Collection ◽  
Qualitative Study ◽  
Elderly People ◽  
Self Care ◽  
Content Type ◽  
Common Chronic Disease ◽  
Face To Face ◽  
Purposeful Sampling ◽  
Data Saturation ◽  
Conventional Content Analysis

Purpose Hypertension is the most common chronic disease throughout the world. Self-care is the key criteria in determining the final course of the disease. However, the majority of elderly people do not observe self-care behaviors. The purpose of this paper is to analyze the experiences of elderly people with hypertension in order to understand the barriers of their self-care behaviors. Design/methodology/approach This is a qualitative study with a conventional content analysis approach conducted in Tehran, Iran in 2017. Data collection was done among 23 participants – 14 elderly people; 6 cardiologists, geriatric physicians and nurses working in the cardiovascular ward; and 3 caregivers – who were selected by purposeful sampling. Using semi-structured, face-to-face interviews, data collection was continued until data saturation. Findings Three main categories, including attitude limitations, inefficient supportive network and desperation, all showed barriers to self-care by the experiences of elderly people with hypertension. Originality/value Lack of knowledge of the disease and its treatment process is one of the main barriers to self-care in elderly people with hypertension. Deficient supportive resources along with economic and family problems exacerbate the failure to do self-care behaviors.

scholarly journals Exploring health literacy in patients with chronic kidney disease: a qualitative study

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Une Elisabeth Stømer ◽  
Astrid Klopstad Wahl ◽  
Lasse Gunnar Gøransson ◽  
Kristin Hjorthaug Urstad
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Qualitative Study

scholarly journals Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Esmaeel Toni ◽  
Habibollah Pirnejad ◽  
Khadijeh Makhdoomi ◽  
Azam Mivefroshan ◽  
Zahra Niazkhani
Keyword(s):  
Chronic Kidney Disease ◽  
Health Literacy ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Personal Health Record ◽  
Self Management ◽  
Personal Health ◽  
Health Record ◽  
User Centered Design ◽  
Electronic Personal Health Record

Abstract Background To improve chronic disease outcomes, self-management is an effective strategy. An electronic personal health record (ePHR) is a promising tool with the potential to support chronic patient’s education, counseling, and self-management. Fitting ePHRs within the daily practices of chronic care providers and chronic patients requires user-centered design approaches. We aimed to understand users’ needs and requirements in chronic kidney disease (CKD) care to consider in the design of an ePHR to facilitate its implementation, adoption, and use. Methods A qualitative study was conducted in a major Iranian nephrology center including inpatient and outpatient settings in 2019. We conducted 28 semi-structured interviews with CKD patients, nurses, and adult nephrologists. To confirm or modify the requirements extracted from the interviews, a focus group was also held. Data were analyzed to extract especially those requirements that can facilitate implementation, adoption, and sustained use based on the PHR adoption model and the unified theory of acceptance and use of technology. Results Participants requested an ePHR that provides access to up to date patient information, facilitates patient-provider communication, and increases awareness about patient individualized conditions. Participants expected a system that is able to cater to low patient e-health literacy and high provider workload. They requested the ePHR to include purposeful documentation of medical history, diagnostic and therapeutic procedures, tailored educational content, and scheduled care reminders. Messaging function, tailored educational content to individual patients’ conditions, and controlled access to information were highly valued in order to facilitate its implementation, adoption, and use. Conclusions We focused on the ePHR’s content and functionalities in the face of facilitators and/or barriers envisioned for its adoption in nephrology care. Designers and implementers should value CKD patients’ needs and requirements for self-management such as providing personalized education and counseling (on the basis of their condition and risk factors), health literacy, and disease progression levels. The socio-technical aspects of care also need further attention to facilitate ePHR’s adoption.

The Fluid Management Experience in Patients with Chronic Kidney Disease Undergoing Hemodialysis in Indonesia: A Qualitative Study

2021 ◽  
Vol 11 (3) ◽  
pp. 389-403
Author(s):  
Fitri Mailani ◽  
Rahmi Muthia ◽  
Yelly Herien ◽  
Emil Huriani ◽  
Chong Mei Chan ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Qualitative Study ◽  
Fluid Management ◽  
Phenomenological Approach ◽  
Tertiary Hospital ◽  
Structured Education ◽  
Personal Approach ◽  
Management Experience ◽  
Control Fluid

Background: Fluid management can reduce mortality, severe comorbidities, and debilitating symptoms in patients on hemodialysis. Therefore, a restricted fluid intake plan is crucial for patients with chronic kidney disease (CKD). Little evidence has been found to date on exploring the experience in fluid management of CKD patients in Indonesia.Purpose: This study aimed to explore the fluid management experience of adults with chronic kidney disease participating in hemodialysis treatment in Indonesia.Methods: A qualitative study with a phenomenological approach was conducted. Purposive sampling was used to recruit 14 adults patients with chronic kidney disease undergoing hemodialysis in a tertiary hospital in Padang between July and September 2020. Manual content analysis using the Colaizzi approach was used to identify themes.Results: Data analysis revealed four themes with 12 sub-themes. The four major themes include the challenge of thirst control, fluid/diet restriction management, inadequate information, and the support system.Conclusions: The result showed the severe suffering and sadness experienced by CKD patients who conform to fluid restrictions. It is important to provide clear information on the fluid prescription or the exact consumable amount per day. Structured education with a personal approach is recommended to ensure detailed information regarding "fluid prescribing". The support obtained from family, friends, and dialysis staff is a significant factor in promoting acceptance and adherence.

scholarly journals Home run—results of a chronic kidney disease Telemedicine Patient Education Study

2019 ◽  
Vol 13 (5) ◽  
pp. 867-872 ◽  
Author(s):  
Andrea M Easom ◽  
Ashutosh M Shukla ◽  
Dumitru Rotaru ◽  
Songthip Ounpraseuth ◽  
Sudhir V Shah ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Informed Choice ◽  
Assessment Tools ◽  
Controlled Study ◽  
Care Group ◽  
Mortality And Morbidity ◽  
Face To Face ◽  
Randomized Controlled

Abstract Background Chronic kidney disease (CKD) incidence is increasing and associated mortality and morbidity are high. Educating patients is effective in delaying progression and establishing optimal renal replacement therapy (RRT). Tele-education/telemedicine (TM) can be an effective tool to provide such education, but there are no available data quantifying its effectiveness. We attempted to establish such evidence correlating the effect of education in patient choices and with the start of actual RRT. We present results from a 3-year pilot study evaluating the effectiveness of comprehensive predialysis education (CPE) through TM for CKD patients compared with a standard care group [face to face (FTF)]. The patient’s ability to choose RRT was the primary endpoint. Methods This was a randomized controlled study providing CPE over three classes at nine sites (one FTF and eight TM). Three assessment tools were utilized to compare groups: CKD knowledge, literacy and quality of life. Results A total of 47.1% of FTF and 52.2% of TM patients reported not having enough information to choose a modality. This decreased by the third visit (FTF 7.4%, TM 13.2%). Home modality choices more than doubled in both groups (FTF 25.8–67.7%, TM 22.2–50.1%). In patients that completed one visit and needed to start RRT, 47% started on a home modality or received a pre-emptive transplant (home hemodialysis 6%, peritoneal dialysis 38%, transplant 3%). Conclusions Results show almost 90% (TM 87%, FTF 95%) of the attendees could choose a modality after education. Home modality choices doubled. Patients were able to make an informed choice regardless of the modality of education.

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