Factors Associated with Family Caregiver Burden Among Frail Older Persons With Multimorbidity

Author(s):  
Teck Yong Gabriel DING ◽  
Jacqueline Giovanna DE ROZA ◽  
Cheuk Ying CHAN ◽  
Poay Sian Sabrina LEE ◽  
Sin Kee ONG ◽  
...  

Abstract Introduction: Singapore is facing an ageing population and the care needs of the population will increase in tandem. A segment of this population would be living with the multimorbidity and frailty. Our study aimed to determine the prevalence of caregiver burden for primary family caregivers of frail older adults with multimorbidity. We also investigated the factors that were associated with primary family caregiver burden. Methods: This was an interviewer-administered, cross-sectional study of primary family caregivers of frail older patients with multimorbidity that was conducted in two National Healthcare Group polyclinics. Convenience sampling was used. The 12-item Zarit Burden Index (ZBI) was used to assess primary family caregiver burden. The scores of the ZBI range from 0 to 48, with a score of 10 or above indicating that the primary family caregiver perceives burden. Descriptive statistics were used to provide information regarding the caregivers and the care recipients. Multivariable logistic regression was used to investigate the factors affecting primary family caregiver burden. Results: 188 family caregivers were interviewed and 71.8 % of them perceived burden on the ZBI. After adjusting for other factors via multivariable analysis, the ethnicity of the caregiver and the increase in time spent caregiving per week were the two factors positively associated with family caregiver burden. A Chinese primary family caregiver had almost three times the odds of perceiving burden when compared to a non-Chinese primary family caregiver. Conclusion: Caregiver burden was high amongst primary family caregivers of frail older adults with multimorbidity. Being a Chinese primary family caregiver compared to non-Chinese ethnic groups as well as being a primary family caregiver who spent increased time caregiving per week were the two factors positively associated with family caregiver burden. Further exploratory, qualitative studies can be done to find out the reasons to Chinese primary family caregivers being more burdened compared to the non-Chinese primary family caregivers. In addition, the specific factors related to increased time caregiving per week and family caregiver burden can also be studied.

2001 ◽  
Vol 19 (1) ◽  
pp. 125-142 ◽  
Author(s):  
MARGARET J. BULL

Family caregivers are the mainstay of long-term care, as they enable chronically ill elders and children to remain at home. The majority of family caregivers are women and historically their caregiving role has been viewed as an extension of their roles as wife and mother. Although numerous studies report the stresses associated with family caregiving and are predictors of burden, less attention has been given to interventions for family caregivers. The objective of this review is to examine reports of interventions to reduce family caregiver burden, to consider their implications for nursing practice, and to identify directions for future nursing research.


2017 ◽  
Vol 6 (1) ◽  
Author(s):  
Thom Ringer ◽  
Afeez Abiola Hazzan ◽  
Arnav Agarwal ◽  
Adam Mutsaers ◽  
Alexandra Papaioannou

Author(s):  
A. Nenobais ◽  
Ah. Yusuf ◽  
S.R.D Andayani

The primary caregiver of schizophrenia patients is a family member. Caring for schizophrenia patients with other routine activities makes the family as caregivers experiences substantive stress or burden. The aims of this study is to describe the burden of the family caregivers of patiens with schizophrenia. This study was a descriptive study with a sample of 104 family nurse patients with schizophrenia, who visited the outpatient and inpatient care of Naimata Mental Hospital in Kupang, East Nusa Tenggara. The burden of family caregivers was measured using The Zarit Burden Interview. The results showed mild to moderate burden was 23.1%, moderate to severe burden 49%, severe burden 22.1% and little or no burden 5.8%. Family caregiver burden is an important indicator for the provision of mental health services because it impacts on the ability of families to maintain their caregiving role. Keywords: family; caregiver; burden; schizophrenia ABSTRAK Pengasuh utama pasien Skizofrenia adalah anggota keluarga. Merawat pasien skizofrenia dengan kegiatan rutin lainnya menjadikan keluarga sebagai pengasuh mengalami stres atau beban yang substansial. Tujuan dari penelitian ini adalah untuk menggambarkan beban pengasuh keluarga pasien skizofrenia. Penelitian ini adalah penelitian deskriptis dengan sampel penelitian 104 perawat keluarga pasien dengan skizofrenia, yang berkunjung di rawat jalan dan rawat inap Rumah Sakit Jiwa Naimata di Kupang Nusa Tenggara Timur. Beban pengasuh keluarga diukur menggunakan The Zarit Burden Interview. Hasil penelitian menunjukkan beban ringan sampai sedang adalah 23,1%, beban sedang hingga berat 49%, beban berat 22,1% dan sedikit atau tidak ada beban 5,8%. Beban pengasuh keluarga merupakan indikator penting untuk penyediaan layanan kesehatan mental karena berdampak pada kemampuan keluarga untuk mempertahankan peran pengasuhan mereka. Kata kunci: keluarga; caregiver; beban; skizofrenia


Author(s):  
Jian-An Su ◽  
Chih-Cheng Chang

Family caregivers of people with dementia (PWD) have a heavy care burden. Affiliate stigma is the stigma internalized by individuals associated with PWD. Limited research has addressed the affiliate stigma among caregivers of PWD and its influence on caregiver burden. Thus, our study investigated the burden of caregivers of PWD and its relationship with affiliate stigma. In addition, we examined the factors related to affiliate stigma. This cross-sectional study was conducted in a general hospital in Taiwan. We recruited 270 PWD and their family caregivers from the outpatient department. Relevant demographic and clinical assessment data of the patients and caregivers were evaluated. Regression analysis was performed to examine the factors associated with affiliate stigma. In total, 23.7% of the family caregivers had depression and 37.4% had anxiety. Male caregivers had higher levels of anxiety and heavier care burdens related to affiliate stigma compared with female caregivers. Moreover, characteristics such as younger age and low levels of dependence in daily activities among PWD were associated with increased affiliate stigma. A higher family caregiver burden was related to more severe affiliate stigma. Interventions for decreasing the family caregiver burden might reduce the effect of affiliate stigma.


2018 ◽  
Vol 30 (3) ◽  
pp. 222-230 ◽  
Author(s):  
Zehra Gok Metin ◽  
Canan Karadas ◽  
Cafer Balci ◽  
Mustafa Cankurtaran

Purpose: The older population has reached to 8.5%, and the prevalence of frailty is reported as 39.2% in Turkey. The purpose of the study was to assess caregiver burden in families who care for frail older adults in Turkish culture. Method: This descriptive study was conducted in Turkey between June and October 2017. Frail older adults who had no severe cognitive impairment were included. Data were measured using the Older Adult Information Form, Edmonton Frailty Scale, Caregiver Information Form, and Zarit Burden Interview. Results: In total, 131 older person/caregiver dyads were analyzed; the Zarit Burden Interview mean score was 37.59 ± 18.20. Caregivers with less education and providing care more than 8 hours experienced a higher burden ( p < .05). The severity of frailty significantly correlated with the caregiver scores ( R = .36, p < .01). Conclusion: The caregiver burden in Turkish family caregivers was found mild to moderate and correlated with the degree of frailty. Policymakers should focus on culture-specific formal caregiver services.


Author(s):  
Alberto Sardella ◽  
Vittorio Lenzo ◽  
Angela Alibrandi ◽  
Antonino Catalano ◽  
Francesco Corica ◽  
...  

The association between caregiver burden and the physical frailty of older adults has been the object of previous studies. The contribution of patients’ dispositional optimism on caregiver burden is a poorly investigated topic. The present study aimed at investigating whether older adults’ multidimensional frailty and optimism might contribute to the burden of their family caregivers. The Caregiver Burden Inventory was used to measure the care-related burden of caregivers. The multidimensional frailty status of each patient was evaluated by calculating a frailty index, and the revised Life Orientation Test was used to evaluate patients’ dispositional optimism. The study involved eighty family caregivers (mean age 64.28 ± 8.6) and eighty older patients (mean age 80.45 ± 7.13). Our results showed that higher frailty status and lower levels of optimism among patients were significantly associated with higher levels of overall burden and higher burden related to the restriction of personal time among caregivers. Patients’ frailty was additionally associated with caregivers’ greater feelings of failure, physical stress, role conflicts, and embarrassment. Understanding the close connection between patient-related factors and the burden of caregivers appears to be an actual challenge with significant clinical, social, and public health implications.


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