Enamel Renal Syndrome: Protocol for a Scoping Review

Background Enamel renal syndrome (ERS) (OMIM 204690) is a rare autosomal recessive disorder characterized by hypoplastic amelogenesis imperfecta, failed tooth eruption, intrapulpal calcifications, gingival enlargement, and nephrocalcinosis. The rarity of the condition and the variability of the phenotype has led to ERS not being fully characterized. Objective This scoping review aims to account for the range and current state of knowledge on ERS and synthesize these findings into a comprehensive summary, focusing on the pathophysiology, genotype-phenotype correlations, and patient management from a dental perspective. Methods The authors will conduct a systematic search of PubMed (MEDLINE), BioMed Central, EbscoHost Web, Web of Science, and WorldCat. We will include all studies with human participants with a confirmed diagnosis of ERS. Articles will be screened in two stages (ie, initially by title and abstract screening and then full-text screening by two independent reviewers). Data extraction will be conducted using a customized electronic data extraction form. We will provide a narrative synthesis of the findings from the included studies. We will structure the results according to themes. Results This protocol is registered with the Open Science Framework. The electronic search was conducted in July 2020 and updated in April 2021. The research findings will be published in an open access journal. Conclusions Dentists should be able to identify patients with clinical features of ERS so that they receive appropriate referrals for renal evaluation, genetic counseling, and oral rehabilitation to increase the patient’s quality of life. A scoping review is the most appropriate method to conduct this comprehensive exploration of the current evidence, which may be sparse due to the rarity of the condition. It will also enable us to identify gaps in the research. Trial Registration Open Science Framework; https://osf.io/cghsa International Registered Report Identifier (IRRID) DERR1-10.2196/29702

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Enamel Renal Syndrome: Protocol for a Scoping Review (Preprint)

10.2196/preprints.29702 ◽

2021 ◽

Author(s):

Imaan A Roomaney ◽

Salma Kabbashi ◽

Manogari Chetty

Keyword(s):

Scoping Review ◽

Data Extraction ◽

Autosomal Recessive Disorder ◽

Open Science ◽

Open Access Journal ◽

Current Evidence ◽

Oral Rehabilitation ◽

Gingival Enlargement ◽

Data Extraction Form ◽

Science Framework

BACKGROUND Enamel renal syndrome (ERS) (OMIM 204690) is a rare autosomal recessive disorder characterized by hypoplastic amelogenesis imperfecta, failed tooth eruption, intrapulpal calcifications, gingival enlargement, and nephrocalcinosis. The rarity of the condition and the variability of the phenotype has led to ERS not being fully characterized. OBJECTIVE This scoping review aims to account for the range and current state of knowledge on ERS and synthesize these findings into a comprehensive summary, focusing on the pathophysiology, genotype-phenotype correlations, and patient management from a dental perspective. METHODS The authors will conduct a systematic search of PubMed (MEDLINE), BioMed Central, EbscoHost Web, Web of Science, and WorldCat. We will include all studies with human participants with a confirmed diagnosis of ERS. Articles will be screened in two stages (ie, initially by title and abstract screening and then full-text screening by two independent reviewers). Data extraction will be conducted using a customized electronic data extraction form. We will provide a narrative synthesis of the findings from the included studies. We will structure the results according to themes. RESULTS This protocol is registered with the Open Science Framework. The electronic search was conducted in July 2020 and updated in April 2021. The research findings will be published in an open access journal. CONCLUSIONS Dentists should be able to identify patients with clinical features of ERS so that they receive appropriate referrals for renal evaluation, genetic counseling, and oral rehabilitation to increase the patient’s quality of life. A scoping review is the most appropriate method to conduct this comprehensive exploration of the current evidence, which may be sparse due to the rarity of the condition. It will also enable us to identify gaps in the research. CLINICALTRIAL Open Science Framework; https://osf.io/cghsa INTERNATIONAL REGISTERED REPORT DERR1-10.2196/29702

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Enamel Renal Syndrome: A Scoping Review Protocol

10.21203/rs.3.rs-93115/v1 ◽

2020 ◽

Author(s):

Imaan Amina Roomaney ◽

Salma Kabbashi ◽

Manogari Chetty

Keyword(s):

Scoping Review ◽

Data Extraction ◽

Autosomal Recessive Disorder ◽

Open Science ◽

Current Evidence ◽

Oral Rehabilitation ◽

Gingival Enlargement ◽

Data Extraction Form ◽

Human Participants ◽

Science Framework

Abstract Background: Enamel Renal Syndrome (ERS) (OMIM # 204690) is a rare autosomal recessive disorder characterized by hypoplastic amelogenesis imperfecta (AI), failed tooth eruption, intra-pulpal calcifications, gingival enlargement and nephrocalcinosis. The rarity of the condition and the variability of the phenotype has led to ERS not being fully characterized. This scoping review aims to account for the range and current state of knowledge on ERS and synthesize these findings into a comprehensive summary, focusing on the pathophysiology, genotype-phenotype correlations and patient management from a dental perspective.Methods: The authors will conduct a systematic search of PubMed (MEDLINE), BioMed Central, EbscoHost Web, Web of Science and WorldCat. We will include all studies with human participants with a confirmed diagnosis of ERS. Articles will be screened in two stages i.e. initially by title and abstract screening and then full-text screening by two independent reviewers. Data extraction will be conducted using a customised electronic data extraction form. We will provide a narrative synthesis of the findings from the included studies. We will structure the results according to themes.Discussion: Dentists should be able to identify patients with clinical features of ERS so that they receive appropriate referrals for renal evaluation, genetic counselling and oral rehabilitation to increase the patient’s quality of life. A scoping review is the most appropriate method to conduct this comprehensive exploration of the current evidence which may be sparse due to the rarity of the condition. It will also enable us to identify gaps in the research.Registration: This study is registered with the Open Science Framework (OSF) (https://osf.io/cghsa).

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Evacuation solutions for individuals with functional limitations in the built environment: a scoping review protocol

Systematic Reviews ◽

10.1186/s13643-021-01844-w ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Brad W. R. Roberts ◽

Abdulrahman Al Bochi ◽

Mark Weiler ◽

Yashoda Sharma ◽

Cesar Marquez-Chin ◽

...

Keyword(s):

Built Environment ◽

Scoping Review ◽

Data Extraction ◽

Functional Limitations ◽

Open Science ◽

Included Study ◽

Study Data ◽

Different Types ◽

Review Protocol ◽

Science Framework

Abstract Background Whether due to aging, disability, injury, or other circumstances, an increasing number of Canadians experience functional limitations that reduce their ability to participate in activities of daily life. While the built environment has become increasingly accessible, existing Canadian evacuation guidelines lack comprehensive strategies for evacuating individuals with functional limitations from buildings during emergencies. To inform guideline revisions, a map of existing solutions for evacuating such individuals is required. Therefore, this scoping review aims to provide an account of solutions that have been reported to safely evacuate individuals with functional limitations from the built environment. Methods We will conduct a scoping review using the Arksey and O’Malley methodological framework. To identify potentially relevant studies, comprehensive searches (from January 2002 onwards) of the CINAHL, Ei Compendex, Inspec, Embase, MEDLINE, KCI, RSCI, SciELO CI, Web of Science Collection, and Scopus databases will be performed. Using a set of inclusion and exclusion criteria, two reviewers will independently (1) classify identified studies as relevant, irrelevant, or maybe relevant by evaluating their titles and abstracts and (2) classify the relevant and maybe relevant studies as included or excluded by evaluating their full-text. From each included study, data on publication information, study purpose, methodological details, evacuation information, and outcomes will be extracted using a set of data extraction items. We will present a numerical summary of the key characteristics of the included studies. For each evacuation activity, reported evacuation solutions will be summarized, and citations provided for functional limitations that are targeted by a given evacuation solution. To inform Canadian evacuation guideline revisions, we will tabulate evacuation activities common to different types of buildings and emergencies. Discussion To our knowledge, this will be the first scoping review to identify the state and use of solutions for evacuating individuals with functional limitations from the built environment. Identifying solutions that enable all individuals to safely evacuate from different types of buildings will allow us to inform recommendations for the revision of evacuation guidelines in Canada and other jurisdictions. The findings of this scoping review will be published in a peer-reviewed journal, presented at relevant conferences, and made publicly available on the internet. Systematic review registration Open Science Framework: osf.io/jefgy

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Systematic examination of preprint platforms for use in the medical and biomedical sciences setting

BMJ Open ◽

10.1136/bmjopen-2020-041849 ◽

2020 ◽

Vol 10 (12) ◽

pp. e041849

Author(s):

Jamie J Kirkham ◽

Naomi C Penfold ◽

Fiona Murphy ◽

Isabelle Boutron ◽

John P Ioannidis ◽

...

Keyword(s):

Data Extraction ◽

Open Science ◽

Biomedical Sciences ◽

Screening Process ◽

Small Communities ◽

Non Profit ◽

For Profit ◽

Data Extraction Form ◽

Science Framework ◽

Almost All

ObjectivesThe objective of this review is to identify all preprint platforms with biomedical and medical scope and to compare and contrast the key characteristics and policies of these platforms.Study design and settingPreprint platforms that were launched up to 25 June 2019 and have a biomedical and medical scope according to MEDLINE’s journal selection criteria were identified using existing lists, web-based searches and the expertise of both academic and non-academic publication scientists. A data extraction form was developed, pilot tested and used to collect data from each preprint platform’s webpage(s).ResultsA total of 44 preprint platforms were identified as having biomedical and medical scope, 17 (39%) were hosted by the Open Science Framework preprint infrastructure, 6 (14%) were provided by F1000 Research (the Open Research Central infrastructure) and 21 (48%) were other independent preprint platforms. Preprint platforms were either owned by non-profit academic groups, scientific societies or funding organisations (n=28; 64%), owned/partly owned by for-profit publishers or companies (n=14; 32%) or owned by individuals/small communities (n=2; 5%). Twenty-four (55%) preprint platforms accepted content from all scientific fields although some of these had restrictions relating to funding source, geographical region or an affiliated journal’s remit. Thirty-three (75%) preprint platforms provided details about article screening (basic checks) and 14 (32%) of these actively involved researchers with context expertise in the screening process. Almost all preprint platforms allow submission to any peer-reviewed journal following publication, have a preservation plan for read access and most have a policy regarding reasons for retraction and the sustainability of the service.ConclusionA large number of preprint platforms exist for use in biomedical and medical sciences, all of which offer researchers an opportunity to rapidly disseminate their research findings onto an open-access public server, subject to scope and eligibility.

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An investigation into the use of mHealth in musculoskeletal physiotherapy: Scoping Review (Preprint)

10.2196/preprints.33609 ◽

2021 ◽

Author(s):

Jonathon Michael Russell Agnew ◽

Catherine Hanratty ◽

Joseph McVeigh ◽

Christopher Nugent ◽

Daniel Kerr

Keyword(s):

Scoping Review ◽

English Language ◽

Data Extraction ◽

Cost Effective ◽

Exercise Programme ◽

Open Science ◽

Home Exercise ◽

Home Exercise Programme ◽

Exercise Programmes ◽

Science Framework

BACKGROUND Musculoskeletal (MSK) physiotherapy provides conservative management for a range of conditions. Currently, there is a lack of engagement with exercise programmes due to a lack of supervision and low self-efficacy. The use of mHealth interventions could be a possible solution to this problem, helping to promote self-management in the home. However, there is little evidence within MSK physiotherapy on the most effective forms of mHealth. OBJECTIVE The aim of this review was to investigate the literature focusing on the use of mHealth within MSK physiotherapy and summarise the evidence METHODS A scoping review of six peer-reviewed databases was conducted. No date limits were applied, but only articles in the English language were selected. One reviewer screened all articles, followed by two additional researchers screening a random sample prior to data extraction. RESULTS 28 studies (n = 1393) were identified. Intervention characteristics consisted of stretching and strengthening exercises, primarily for degenerative joint pain and spinal conditions. The most reported use of mHealth included telephone and/or videoconferencing calls to provide a home exercise programme or used as an adjunct to a physiotherapy MSK assessment. While patient satisfaction with mHealth was reported as high, reasons for disengagement included a lack of high-quality information and poor Internet speeds. Barriers to clinical uptake included insufficient training with the intervention and lack of time to become familiar. CONCLUSIONS MHealth has some benefits regarding treatment adherence and can potentially be as effective as normal physiotherapy care while being more cost effective. Current use is most effective when ongoing feedback from a healthcare professional is available. CLINICALTRIAL The protocol for this Scoping Review was registered on the Open Science Framework (DOI 10.17605/OSF.IO/2YWPZ).

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Key elements and effects of cardiovascular disease management programs based on community-based participatory research: protocol for a scoping review

Systematic Reviews ◽

10.1186/s13643-021-01804-4 ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Juhyeon Yang ◽

Eunsim Kim ◽

Bohyun Park

Keyword(s):

Participatory Research ◽

Scoping Review ◽

Data Extraction ◽

Economic Status ◽

Grey Literature ◽

Implementation Process ◽

Community Based Participatory Research ◽

Open Science ◽

Community Based ◽

Science Framework

Abstract Background Cardiovascular diseases (CVDs) are health problems that demonstrate high death and prevalence rates, and exhibit large health inequalities across different socio-economic status. Although interest in community-based participatory research (CBPR) is increasing because of the efforts to improve health equity, not enough literature review has been conducted on CBPR-based CVD management programs. The objective of this scoping review is to identify the key elements that should be considered when developing CBPR-based CVD management programs, and explore the effects of CBPR-based CVD management programs. Methods This study will use the databases of PubMed, Cochrane, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) including grey literature. The criteria for selecting literature will be research that was published in or after 2000, applied CBPR, and either developed or implemented CVD management programs. No limit will be placed on the research design or method. Data extraction will be conducted independently by two researchers, and in the case of data mismatch, a consensus will be reached through discussion. The extracted data will be combined through narrative synthesis. Discussion This scoping review will identify specific methods in the development and implementation process of CBPR-based CVD management programs, as well as the characteristics of the programs that were shown to be effective. Therefore, it will be able to provide specific guidelines to researchers, government agencies, and local organizations to design and implement participatory health promotion programs related to CVDs. Systematic review registration Open Science Framework 10.17605/OSF.IO/ZW2UY

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Could the Perioperative Use of Opioids Influence Cancer Outcomes After Surgery? A Scoping Review Protocol

10.21203/rs.3.rs-100212/v1 ◽

2020 ◽

Author(s):

Marco Cascella ◽

Arturo Cuomo ◽

Francesca Bifulco ◽

Barbara Di Caprio ◽

Rosanna Accardo ◽

...

Keyword(s):

Scoping Review ◽

English Language ◽

Data Extraction ◽

Grey Literature ◽

Cancer Recurrence ◽

Open Science ◽

Future Research ◽

Cancer Outcomes ◽

Review Protocol ◽

Science Framework

Abstract BackgroundOpioids are commonly used for the treatment of cancer and non-cancer pain, and during and after general anesthesia. Because preclinical studies underlined a potential opioid-mediated immunosuppression, it was postulated that the perioperative administration of opioids could influence cancer outcomes after surgery. Nevertheless, clinical data have been extrapolated mainly from retrospective analyses. Thus, the precise link between perioperative opioids use and cancer recurrence/metastasis or cancer-related mortality/morbidity remains unresolved.Methods/designThis scoping review is planned following the Joanna Briggs Institute recommendations. The authors will conduct a literature review through the PRISMA statement using PubMed and EMBASE databases; the Grey literature will be explored using Google Scholar, Conference Proceedings Citation Index (via Web of Science) and Open Grey. The search strategy will be limited to articles published in the English language and to human studies. The database searches are planned from the inception to November 2020. Two reviewers will independently screen titles and abstracts, followed by a full-text screening of potentially relevant articles with standardized data extraction. Any disagreement for the inclusion between the two reviewers will be discussed with a third reviewer.DiscussionThe review aim to map the available literature focusing on a possible association between the perioperative opioids use and cancer outcomes in patients undergoing surgery. The proposed approach will allow to identify and analyze the knowledge gap in the field and, serving as a prerequisite for future research including systematic reviews and clinical studies.Scoping review registrationOpen Science Framework https://osf.io/ng57c/ DOI 10.17605/OSF.IO/NG57C

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How Inhaler Technique is Assessed in Children and Young People: A Scoping Review Protocol

10.21203/rs.3.rs-1135431/v1 ◽

2021 ◽

Author(s):

Kathryn Claire Anne Ferris ◽

Paddy McCrossan ◽

Michael D Shields ◽

James Paton ◽

Dara O’Donoghue

Keyword(s):

Young People ◽

Scoping Review ◽

Data Extraction ◽

Open Science ◽

Cochrane Library ◽

Inhaler Technique ◽

Case Control Studies ◽

Children And Young People ◽

Randomised Control Trials ◽

Science Framework

Abstract BackgroundAsthma is the most common chronic childhood condition. Unfortunately, many children have poorly controlled asthma. Current guidelines strongly recommend that all asthma review appointments must include an assessment of the patient’s inhaler technique. However, most guidelines do not provide information on how the healthcare professional should conduct this assessment. The aim of this scoping review is to explore the published literature on methods used to assess inhaler technique. MethodsThis scoping review will follow the frameworks founded by Arksey and O’Malley and the Joanna Briggs Institute guidelines. We will search MEDLINE, Embase, Cinahl and the Cochrane library for studies published from 1st January 1956 to 30th November 2021, on methods of assessing inhaler technique in children and young people aged 1 to 16 years of age with asthma. We will include randomised control trials, case control studies, cohort studies and retrospective studies which investigate methods used to assess inhaler technique in children and young people. We will include studies conducted in all areas where inhaler technique assessment occurs and studies conducted by all healthcare professionals who usually undertake inhaler assessments in practice. Two reviewers will complete all screening and data extraction independently. Data will be extracted onto a charting table and a descriptive summary of the results presented. DiscussionThis scoping review will provide a broad overview of currently used methods to assess inhaler technique in children and young people with asthma. The analysis of which will allow us to consider how these methods might be used in clinical practice and research settings. Scoping review registration Open Science Framework (osf.io/e47sa).

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Overview of current legislation, experiences and existing scenarios on allowing the sale of tobacco products only in tobacco stores: a scoping review protocol

Research Society and Development ◽

10.33448/rsd-v10i16.21884 ◽

2021 ◽

Vol 10 (16) ◽

pp. e402101621884

Author(s):

Lucas Manoel da Silva Cabral ◽

Fernando Nagib Jardim ◽

Maria José Domingues da Silva Giongo ◽

Andréa Ramalho Reis Cardoso ◽

Maria Raquel Fernandes da Silva ◽

...

Keyword(s):

Scoping Review ◽

Passive Smoking ◽

Smoking Prevalence ◽

Methodological Approach ◽

Open Science ◽

Tobacco Products ◽

Scoping Reviews ◽

Review Protocol ◽

Science Framework

This article presents the scoping review protocol on allowing the sale of tobacco products only in tobacco stores in Brazil. It is based on the hypothesis that limiting the sale of tobacco products only in tobacco shops would significantly prevent initiation and encourage cessation, thus reducing smoking prevalence and passive smoking in Brazil. The protocol aims to document the processes involved in the planning and methodological approach of an extensive scoping review, guided by Joanna Briggs Institute’s manual. The review protocol was prepared following PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation. It was registered in the Open Science Framework.

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Complex Lifestyle and Psychological Intervention in Knee Osteoarthritis: Scoping Review of Randomized Controlled Trials

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph182312757 ◽

2021 ◽

Vol 18 (23) ◽

pp. 12757

Author(s):

Bryan Yijia Tan ◽

Tivona Thach ◽

Yasmin Lynda Munro ◽

Soren Thorgaard Skou ◽

Julian Thumboo ◽

...

Keyword(s):

Knee Osteoarthritis ◽

Scoping Review ◽

Psychological Intervention ◽

Care Delivery ◽

Data Extraction ◽

Psychosocial Interventions ◽

Current Evidence ◽

Future Research ◽

Controlled Trials ◽

Knee Oa

Knee osteoarthritis (OA) causes pain, disability and poor quality of life in the elderly. The primary aim was to identify and map out the current evidence for randomised controlled trials (RCTs) on complex lifestyle and psychosocial interventions for knee OA. The secondary aim was to outline different components of complex lifestyle and psychosocial interventions. Our scoping review searched five databases from 2000 to 2021 where complex lifestyle or psychosocial interventions for patients with knee OA were compared to other interventions. Screening and data extraction were performed by two review authors independently and discrepancies resolved through consensus and in parallel with a third reviewer. A total of 38 articles were selected: 9 studied the effectiveness of psychological interventions; 11 were on self-management and lifestyle interventions; 18 looked at multifaceted interventions. This review highlights the substantial variation in knee OA interventions and the overall lack of quality in the current literature. Potential areas of future research, including identifying prognostic social factors, stratified care models, transdisciplinary care delivery and technology augmented interventions, have been identified. Further high-quality RCTs utilizing process evaluations and economic evaluation in accordance with the MRC guidelines are critical for the development of evidence-based knee OA programs globally.

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