Needs assessment for the development of an electronic cross-facility health record (ECHR) for pediatric palliative care: A design thinking approach (Preprint)

2021 ◽  
Author(s):  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Sven Kernebeck ◽  
Larissa Alice Dreier ◽  
Dorothee Meyer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Design Thinking ◽  
Quality Care ◽  
Qualitative Interviews ◽  
Pediatric Palliative Care ◽  
User Needs ◽  
User Centered Design ◽  
Time Data ◽  
Comprehensive Picture ◽  
User Centered

BACKGROUND Pediatric palliative care (PPC) is characterized by years of multisectoral and multiprofessional care. The exchange of information through effective communication between various PPC professionals is essential for high-quality care. Evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. Given the specific needs of and content exchanged within PPC, the use of specific ECHRs in this area is necessary. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. OBJECTIVE The aim was to record PPC professionals’ needs (nurses, physicians, and secretaries) regarding ECHRs, as they may represent future users in inpatient and outpatient PPC as well as general practitioners and pediatrists from medical offices. METHODS Guided by design thinking, this study consisted of six steps: (1) empathize, (2) define, (3) ideate, (4) prototype, (5) test, and (6) iteration. First, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Prototypes of the ECHR (mock-ups) were then developed according to the needs mentioned in the interviews and were discussed in the FGs. Finally, the indicated needs were supplemented and specified in an iterative process. The mock-ups were further adapted according to these results. RESULTS Across seven main categories, medical history, actual medication, the emergency view with the most critical data, and messaging functions were identified as some participants’ desired core components of an ECHR. Utilizing design thinking facilitated an explicit articulation of user needs. The mock-ups clearly aligned the research and development team’s ideas with the simulated work in the ECHR for the users. CONCLUSIONS Developing an ECHR with the content that participants identified, which is currently being shared, that integrates overarching new views and functionality would make it possible to obtain real-time data during emergencies, to track what other PPC professionals have done, and to make the applied treatments visible to others. Moreover, it would give all providers with a more comprehensive picture of the complex conditions that are common in PPC. Concerning relevant content and functionality, user-centered design, and sensitivity to the various sectors regarding the needs of PPC professionals employed in those sectors emerged as strengths of the design thinking approach. An ECHR that directly addresses user needs will foster pediatric palliative care across sectors.

scholarly journals Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach

Children ◽  
2021 ◽  
Vol 8 (7) ◽  
pp. 602
Author(s):  
Theresa Sophie Busse ◽  
Chantal Jux ◽  
Sven Kernebeck ◽  
Larissa Alice Dreier ◽  
Dorothee Meyer ◽  
...  
Keyword(s):  
Palliative Care ◽  
Design Thinking ◽  
Quality Care ◽  
Qualitative Interviews ◽  
Pediatric Palliative Care ◽  
Time Data ◽  
Basic Model ◽  
Use Of Technology ◽  
Current Medication ◽  
Core Components

Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information between PPC professionals is, therefore, essential for quality care. The evidence shows that electronic cross-facility health records (ECHRs) provide useful support in this context. To our knowledge, no ECHRs have been developed through a user-centered approach for this specific setting in Germany. Methods: Guided by design thinking, first, qualitative interviews were conducted to assess the needs of PPC professionals. Second, the elicited needs were specified in focus groups (FGs). Based on the needs stated in the interviews, prototypes of the ECHR were developed and discussed in the FGs. The indicated needs were supplemented and specified in an iterative process. The prototypes were further adapted according to these results. The unified theory of acceptance and use of technology was the basic model in the evaluation of needs. Results: Across seven main categories, past and current medication, emergency view, and messaging functions were identified as the participants’ desired core components of an ECHR. Utilizing design thinking facilitated the explicit articulation of user needs. Conclusions: Developing an ECHR with the content identified would allow for real-time data during emergencies, tracking what other PPC professionals have done, and making the applied treatments visible to others. This would offer a broader picture of the complex conditions common to PPC.

User Centered Approach to the Supra-Functional Needs of People Living with Amyotrophic Lateral Sclerosis (ALS)

2020 ◽  
Author(s):  
Deana McDonagh ◽  
Kayla Arquines ◽  
Elizabeth T. Hsiao-Wecksler ◽  
Mahshid Mansouri ◽  
Girish Krishnan ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Design Thinking ◽  
Healthcare Management ◽  
User Centered Design ◽  
Emotional Needs ◽  
Empathic Understanding ◽  
The Individual ◽  
Lateral Sclerosis ◽  
User Centered

Abstract User-centered design relies upon the appreciation that assistive technology device solutions need to include the functional and supra-functional (e.g., emotional, social, cultural) needs of users. Developing solutions without basing decision-making on both quantitative (functional) and qualitative (supra-functional) needs can lead to imbalanced devices, services, and/or environments. Satisfying both functional and supra-functional needs is the foundation of user-centered design, which in itself relies upon empathic understanding of the person that one is aiming to serve. This paper presents a study of the lived experiences of people living with Amyotrophic Lateral Sclerosis, their caregivers, and members of the healthcare management team from a human-centered perspective in the pursuit of pain points, deeper understanding of the emotional needs, and revelation of opportunities for improving quality of life and human experience through more user-centered design. We focus on user-centered design-thinking research tools (e.g., mood boards, journey maps, personas) to (a) understand the authentic experience of the individual in their vernacular and their terminology, and (b) to support a data rich conversation that focuses upon both functional and supra-functional needs to highlight opportunities for design interventions).

scholarly journals User Centered Design Method for Developing a Mobile-Based Product Distribution Application

SinkrOn ◽  
2022 ◽  
Vol 7 (1) ◽  
pp. 33-38
Author(s):  
Meriska Defriani ◽  
Mochzen Gito Resmi ◽  
Okta Amien Permana
Keyword(s):  
Development Process ◽  
User Behavior ◽  
Design Method ◽  
Product Distribution ◽  
User Needs ◽  
User Requirements ◽  
User Centered Design ◽  
Human Centered Design ◽  
Strongly Agree ◽  
User Centered

Anyelir Cake And Bakery is the largest cake shop in Purwakarta which is engaged in the production of various kinds of cakes.  In the process of distributing products from the central store to branch stores, they still use WhatsApp to place orders. This causes frequent discrepancies in the number of products requested and the number of products received due to an error in reading the message. In this study, a mobile-based application will be built that is able to manage order data more accurately. The development of this application uses the User Centered Design (UCD). This is a design method that focuses on user needs so that the final result of this application does not need to change user behavior when using the application. The UCD method consists of four stages, namely plan the human centered design, specify user and organizational requirements, product design solutions, and evaluate design against user requirements. In the development process, application testing was carried out to get feedback from users with good scores, namely an average of 4 (agree) and 5 (strongly agree). This shows that the application is in accordance with the needs of the user.

scholarly journals Rancang Bangun Mobile Commerce di Lamandau Store Berbasis Android berdasarkan User Centered Design (UCD)

2021 ◽  
Vol 5 (1) ◽  
pp. 287
Author(s):  
Tadonny Vani ◽  
Rahmat Hidayat ◽  
Arnoldus Yansen Friska Danar Yudhistira
Keyword(s):  
Data Collection ◽  
System Design ◽  
Mobile Commerce ◽  
Design Stage ◽  
User Needs ◽  
User Centered Design ◽  
Report Writing ◽  
Sales Process ◽  
User Centered

Lamandau Store is a place for marketing and selling products that produced by Micro, Small and Medium Entrepreneurs named Usaha Mikro Kecil Menengah (UMKM) and Small Medium Industry products or Industri Kecil Menengah (IKM) in Lamandau Regency. The marketing and sales system at Lamandau Store has been manual which is costumers come to the store. This has not attracted enough consumers, resulting in lower levels of marketing and sales. This study aims to produce an Android-based mobile commerce application that can be used to support the marketing and sales process at the Lamandau Store. The research was conducted in several stages, namely the Data Collection Stage, the System Design Stage and the Report Writing Stage. The system design stage was developed based on the User Centered Design (UCD) method. The results show that a mobile commerce application is in accordance with user needs and has been presented as a new innovation at the Lamandau Store.

Simplifying Dialysis Through User-Centered Design and Sensor-Based Interactions on the Tablo Hemodialysis System

2021 ◽  
Vol 65 (1) ◽  
pp. 864-867
Author(s):  
Brittany Lim ◽  
Amy Kerdok
Keyword(s):  
Patient Safety ◽  
Unique Solution ◽  
User Needs ◽  
User Centered Design ◽  
Complicated Process ◽  
Hemodialysis System ◽  
Improve Device ◽  
User Centered

Hemodialysis is a complicated process that comes with many risks to both the user and the patient. The Tablo Hemodialysis System demonstrates how applying user-centered approaches to design could greatly improve device usability, and in turn, user and patient safety. Even with the Covid-19 pandemic creating unexpected hurdles to this approach, Tablo’s sensor-based technology offers a unique solution to ensure that user needs continue to be met.

Design Method of the Skull Restoration Based on User-Centered

2013 ◽  
Vol 470 ◽  
pp. 396-399
Author(s):  
Jin Wei Liu ◽  
Tian Min Guan ◽  
Yong Chen ◽  
Li Jun Shan
Keyword(s):  
Design Method ◽  
Prosthesis Design ◽  
User Needs ◽  
Functional Requirement ◽  
Emotional Design ◽  
User Centered Design ◽  
Titanium Plate ◽  
Manufacturing Error ◽  
Design Idea ◽  
User Centered

The user needs during the skull restoration design were classified into functional requirement, physiological requirement and emotional requirement. The diagram of user-centered design in the skull prosthesis was drawn. The skull restoration formulas of titanium plate strength, compressive stiffness, bending stiffness and skull prosthesis manufacturing error were established. The hierarchy of the emotional design in the skull prosthesis was drawn. Through the analysis and research on the functional requirement, physiological requirement and emotional requirement, the user-centered design idea was shown, which had an important guiding significance for the development of the skull prosthesis design. Keywords: User-centered design, Skull restoration, Functional requirement, Physiological requirement, Emotional requirement

scholarly journals Implementation of User Centered Design in User Experience Architecture for Geo-COVID mobile Applications

2021 ◽  
Vol 328 ◽  
pp. 04006
Author(s):  
Devie Rosa Anamisa ◽  
Fifin Ayu Mufarroha ◽  
Fauziah Reza Oktaviyani ◽  
Nanda Prabu Angganata ◽  
M. Dimas Arya Muhajir
Keyword(s):  
User Experience ◽  
Mobile Applications ◽  
Design Method ◽  
User Needs ◽  
User Centered Design ◽  
Public Health Services ◽  
The Public ◽  
One Stop ◽  
Interface Type ◽  
User Centered

In Indonesia, there has been a significant increase in positive confirmed cases of Covid-19 caused by mutations in the Alpha, Beta and Delta variants. The uncontrolled spread has overwhelmed hospitals to treat Covid-19 patients. Hospitals are full of COVID-19 patients, making many people hesitate to check their health conditions. Geo-COVID is a one-stop application that aims to make it easier for the public to access health consultations, buy drugs online so as to reduce activities outside the home, PCR testing from home, transparency of information on the spread of COVID-19 cases, and sharing with families affected by COVID-19. The method used in the Geo-COVID architecture is User Centered Design. User Centered Design is a system design method that focuses on potential users. The stages used in achieving application goals in Geo-COVID design are Understanding the Context of Use, Determining User Needs, Design Solutions, Design Evaluation of User Needs. The target users of the Geo-COVID application are Indonesian people who are active outside the home and often interact with many individuals. The Geo-COVID application is oriented towards user experience which is limited to the Covid-19 distribution map in Indonesia, public health services, using a GUI interface type.

scholarly journals Design and Development of an eHealth Service for Collaborative Self-Management among Older Adults with Chronic Diseases: A Theory-Driven User-Centered Approach

2021 ◽  
Vol 19 (1) ◽  
pp. 391
Author(s):  
Mirjam Ekstedt ◽  
Marie Kirsebom ◽  
Gunilla Lindqvist ◽  
Åsa Kneck ◽  
Oscar Frykholm ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Conditions ◽  
Healthcare Professionals ◽  
Phase 1 ◽  
Collaborative Management ◽  
User Needs ◽  
Complex Nature ◽  
User Centered Design ◽  
Ehealth Service ◽  
User Centered

The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. As patients’ engagement in self-managing their chronic conditions becomes increasingly important, eHealth interventions are a promising resource for the provision of adequate and timely support. However, there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients. This study applied an evidence-based and theory-informed user-centered design approach in three phases to identify the needs of older adults and healthcare professionals in the collaborative management of multimorbidity (phase 1), develop an eHealth service to address these needs (phase 2), and test the feasibility and acceptance of the eHealth service in a clinical setting (phase 3). Twenty-two user needs were identified and a web-based application—ePATH (electronic Patient Activation in Treatment at Home)—with separate user interfaces for patients and healthcare professionals was developed. The feasibility study with two nurses and five patients led to a redesign and highlighted the importance of adequately addressing not only varying user needs but also the complex nature of healthcare organizations when implementing new services and processes in chronic care management.

Putting pediatric palliative care in prime time.

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 68-68
Author(s):  
Rebecca A Kirch ◽  
Christina K Ullrich
Keyword(s):  
Palliative Care ◽  
Childhood Cancer ◽  
Consumer Research ◽  
Quality Care ◽  
Essential Element ◽  
Lessons Learned ◽  
Pediatric Palliative Care ◽  
Cancer Society ◽  
Early Integration ◽  
Care Experience

68 Background: For patients and families at any age and stage, treating the symptoms and stress of cancer is as important as treating the disease. Palliative care has hit its stride as one of the nation’s fastest growing health care trends, with a robust evidence base, new quality standards, increasing awareness and understanding, and a related public policy agenda. This momentum positions pediatric palliative care as an essential aspect of advancing childhood cancer survivorship with high quality of life – particularly important for children given the documented symptoms, late effects and disabling conditions they experience into adulthood and across their lifetime. This oral presentation will describe pediatric palliative care’s prominent role in addressing the challenges of childhood cancer and survivorship across the continuum, providing practical clinical case study context and highlights of consumer research findings and an advocacy agenda helping address palliative care’s “identity problem” that affects access to quality care. Methods: This presentation provides practical information for integrating palliative care to benefit children and families, including lessons learned through implementation of early pediatric palliative care alongside disease-directed treatment under the Concurrent Care for Children Requirement and other initiatives. It will also identify available resources for communicating about palliative care based on consumer research from the American Cancer Society and Center to Advance Palliative Care. Results: This presentation will inform and inspire person-centered and family-focused activities to advance early integration of palliative care in research and clinical practice. It will also highlight opportunities for active involvement in the QOL national movement to improve quality cancer care. Conclusions: Audience will understand benefits of pediatric palliative care and strategies supporting its delivery through the pediatric concurrent care experience in oncology. They will also gain improved proficiency in communicating about palliative care, and will be well-positioned to engage in the QOL legislative campaign to bring palliative care everywhere as an essential element of quality care.

Sign in / Sign up

Export Citation Format

Share Document