scholarly journals National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study (Preprint)

2021 ◽  
Author(s):  
Heather McIntyre ◽  
Mark Loughhead ◽  
Laura Hayes ◽  
Nicholas Gerard Procter
Keyword(s):  
Emergency Department ◽  
Focus Group ◽  
Data Collection ◽  
Lived Experience ◽  
Research Team ◽  
Disability Insurance ◽  
Advisory Group ◽  
Insurance Scheme ◽  
Psychosocial Disability ◽  
Current Practices

BACKGROUND Currently, within Australia, 3.6% of all emergency department (ED) presentations are mental health–related. Information about the context of the person presenting to the ED (beyond immediate needs), including their psychosocial disability (PSD) National Disability Insurance Scheme (NDIS) plan, is reported as incomplete and fragmented. There are missed opportunities for early intervention and care continuity that could potentially inform ED practitioners to revise current practices. OBJECTIVE The aims of this study are: (1) to obtain original data from the lived experience voice of those with the PSD NDIS plan and their experience when presenting to an ED, (2) to gather information from NDIS service providers to reveal communication pathways between the ED and NDIS services, and (3) to gain knowledge from ED clinicians around processes for continuity of care with this population group. METHODS This inductive, mixed methods phenomenological study will involve data collection analyzed sequentially, with each stage informing future stages of the research. Interviews will focus on the lived experience voice exploring potential indicators that have led to an ED presentation, alongside an analysis of associated clinical and administrative documentation and communications. Focus groups with NDIS support workers and support coordinators will provide phenomenological data around the experience from their perspective. National quantitative surveys among those with a PSD NDIS plan and emergency services clinicians will provide insight into current practices within community care and ED presentations. The research project design includes a lived experience advisory group who are assisting with the design of the interview and focus group schedules and national surveys, as well as in shaping the interpretation of qualitative information. All transcripts will be subject to thematic analysis to understand individuals’ meaning-making of these complex and particular phenomena. The research team includes a lived experience researcher and a lived experience carer (PhD candidate). RESULTS This study is funded by MIND Australia as a PhD industry scholarship, which commenced in April 2020. A systematic review as a preresearch activity has been completed and is currently under review. The Human Research Ethics Committee of the University of South Australia has approved this project. An advisory group has been selected, and interview, focus group, and survey schedules are currently being codesigned. Recruitment will commence in November 2021. It is envisaged that data collection will be completed by June 2022. CONCLUSIONS Understanding the lived experience of the precare, during care, and postcare stages of ED presentations from the perspective of those with a PSD NDIS plan will inform the research team around current practices and provide information about improvement for pathways of care for this vulnerable group of people, while also informing health policy. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/33268

Correction: ‘National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study’. (Preprint)

2021 ◽  
Author(s):  
Heather McIntyre ◽  
Mark Loughhead ◽  
Laura Hayes ◽  
Nicholas Gerard Procter
Keyword(s):  
Emergency Department ◽  
Mixed Methods ◽  
Lived Experience ◽  
Disability Insurance ◽  
Mixed Methods Study ◽  
Insurance Scheme ◽  
Psychosocial Disability

UNSTRUCTURED In ‘National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study’ some errors were noted after publication. One author has requested a revision of the text; although the article was signed off the author’s contribution was not contained in the article.

scholarly journals 1490Activist and Epidemiologist: Collision or Synergy?

2021 ◽  
Vol 50 (Supplement_1) ◽  
Author(s):  
Anne Kavanagh
Keyword(s):  
Lived Experience ◽  
Expert Witness ◽  
Disability Insurance ◽  
Government Policies ◽  
Royal Commission ◽  
Disabled People ◽  
Insurance Scheme ◽  
Epidemiological Research ◽  
Disability Support ◽  
Knowledge Claims

Abstract Focus of Presentation In this presentation, I discuss how activism and lived experience can enhance epidemiological research. I argue that my lived experience of disability and activism, enhance my research because I: have understanding of the contexts in which disabled people live, I focus on what is relevant to disabled people, and have the impetus to interrogate government knowledge claims. I illustrate this through two research/activism scenarios: COVID-19 pandemic proposed reforms to Australia’s National Disability Insurance Scheme (NDIS) – which provides individual budgets for nearly 500,000 Australians with disability. Findings During the COVID-19, I spearheaded ‘calls to action’ for governments to respond to the specific risks faced by people with disability. I led a research demonstrating the risks to disability support workers. My expert witness testimonies at the Disability Royal Commission were central to the Commission’s recommendations. And my work changed government policies relating to managing outbreaks in disability settings and vaccination. In relation to the NDIS, I have critiqued the research government conducts, and the data they use, to support their arguments for reform. Conclusions/Implications Being an activist with lived experience requires reflexivity to ensure individual biases are not reinforced, but it also offers opportunities. Research is contextualised and the pathway to change more easily charted. Epidemiology should foster the careers of researchers with lived experience who maybe activists as well. Key messages Lived experience researchers and activists can enhance epidemiological research bringing unique insights and new opportunities for change.

scholarly journals Partners in Recovery: paving the way for the National Disability Insurance Scheme

2018 ◽  
Vol 24 (3) ◽  
pp. 208 ◽  
Author(s):  
Victoria Stewart ◽  
Maddy Slattery ◽  
Helena Roennfeldt ◽  
Amanda J. Wheeler
Keyword(s):  
Planning Process ◽  
Disability Insurance ◽  
Support Network ◽  
Advisory Group ◽  
Structured Interviews ◽  
Insurance Scheme ◽  
Persistent Mental Illness ◽  
Commonwealth Government ◽  
Flexible Funding ◽  
Partners In Recovery

Australians experiencing severe and persistent mental illness and who require services from multiple agencies, experience a fragmented service delivery system. In 2014, the Commonwealth Government introduced the Partners in Recovery (PIR) service, which provides service coordination and flexible funding to improve outcomes for this group of people. This study presents qualitative findings from a research project that aimed to understand the experiences of PIR participants, including aspects of the planning process and the effectiveness of the PIR program in meeting their needs from the perspective of the participant, their carer or family member and other support people within their lives. Semi-structured interviews were conducted with 31 stakeholders involved in the PIR program, of which 14 were participants, 17 were members of the participant’s support network and three were members of a consumer and carer advisory group. Overall participation in the PIR program had a positive effect on the participant’s lives. Relationships with the support facilitators were seen as an important element of the process, along with a focus on recovery-oriented goals and advocacy and linking to other agencies. These findings are important for informing the roll-out of the National Disability Insurance Scheme in Australia, which will replace PIR.

The National Disability Insurance Scheme and people with severe and persistent mental illness/psychosocial disability: A review, analysis and synthesis of published literature

2020 ◽  
Vol 54 (12) ◽  
pp. 1162-1172
Author(s):  
Debra Hamilton ◽  
Nicola Hancock ◽  
Justin Newton Scanlan ◽  
Michelle Banfield
Keyword(s):  
Qualitative Analysis ◽  
Disability Insurance ◽  
Future Research ◽  
Insurance Scheme ◽  
Persistent Mental Illness ◽  
External Data ◽  
Barriers To Access ◽  
Wide Range ◽  
Analysis And Synthesis ◽  
Psychosocial Disability

Objectives: The aim of this scoping review was to map and synthesise peer-reviewed literature reporting on the Australian National Disability Insurance Scheme and psychosocial disability. Method: The review followed the rigorous and systematic protocol of Arksey and O’Malley. Five databases were searched and, using strict inclusion and exclusion criteria, publications were identified for inclusion. Data were extracted from publications, tabulated and graphically presented. A qualitative analysis was also completed. Results: Twenty-eight publications were included. While a wide range of issues were covered across this literature, only eight publications specifically focused on the National Disability Insurance Scheme. Almost half of publications were only author commentary without analysis of external data. There were no evaluations and a paucity of publications documenting the lived experiences of people with psychosocial disability or their families. Qualitative analysis identified 59 separate themes. These were grouped using a modified strengths, weakness, opportunities and threats framework. While it was acknowledged that the Scheme has the capacity to enrich people’s lives and enhance service integration, themes relating to weakness and threats dominated within this literature. These included a variety of existing or predicted problems such as poor integration of a recovery philosophy into the National Disability Insurance Scheme, complex application processes creating barriers to access, concern for those ineligible or not accessing the National Disability Insurance Scheme, the need to ensure National Disability Insurance Scheme plans address specific, changing participant needs and that services will be available to provide required supports. Conclusion: Given the significant impact of the National Disability Insurance Scheme on the lives of individuals and the wider mental health service system, there continues to be surprisingly limited peer-reviewed literature reporting on experiences and outcomes of the Scheme for people living with psychosocial disability. Future research examining outcomes and shedding light on National Disability Insurance Scheme experiences of people with psychosocial disability and their families are particularly important for ongoing development and evaluation of the Scheme.

Enabling choice, recovery and participation: evidence-based early intervention support for psychosocial disability in the National Disability Insurance Scheme

2018 ◽  
Vol 26 (6) ◽  
pp. 578-585 ◽  
Author(s):  
Laura Hayes ◽  
Lisa Brophy ◽  
Carol Harvey ◽  
Juan Jose Tellez ◽  
Helen Herrman ◽  
...  
Keyword(s):  
Early Intervention ◽  
Supported Employment ◽  
Disability Insurance ◽  
Skills Training ◽  
Evidence Base ◽  
Behavioural Therapy ◽  
Supported Housing ◽  
Evidence Based ◽  
Insurance Scheme ◽  
Psychosocial Disability

Objectives: The aim of this study was to identify the most effective interventions for early intervention in psychosocial disability in the National Disability Insurance Scheme (NDIS) through an evidence review. Methods: A series of rapid reviews were undertaken to establish possible interventions for psychosocial disability, to develop our understanding of early intervention criteria for the NDIS and to determine which interventions would meet these criteria. Results: Three interventions (social skills training, supported employment and supported housing) have a strong evidence base for effectiveness in early intervention in people with psychosocial disability, with the potential for adoption by the NDIS. They support personal choice and recovery outcomes. Illness self-management, cognitive remediation and cognitive behavioural therapy for psychosis demonstrate outcomes to mitigate impairment. The evidence for family psycho-education is also very strong. Conclusions: This review identified evidence-based, recovery-oriented approaches to early intervention in psychosocial disability. They meet the criteria for early intervention in the NDIS, are relevant to participants and consider their preferences. Early intervention has the potential to save costs by reducing participant reliance on the scheme.

Management Strategy for Distributing Questionnaires and Interview Guidelines in the Research Data Collection Process

2018 ◽  
Vol 2 (2) ◽  
pp. 104-111
Author(s):  
Po. Abas Sunarya ◽  
George Iwan Marantika ◽  
Adam Faturahman
Keyword(s):  
Focus Group ◽  
Data Collection ◽  
Management Strategy ◽  
Research Data ◽  
Accurate Information ◽  
Focus Group Interviews ◽  
Good Management ◽  
Research Activities ◽  
Data Collection Process ◽  
Group Interviews

Writing can mean lowering or describing graphic symbols that describe a languageunderstood by someone. For a researcher, management of research preparation is a veryimportant step because this step greatly determines the success or failure of all researchactivities. Before a person starts with research activities, he must make a written plan commonlyreferred to as the management of research data collection. In the process of collecting researchdata, of course we can do the management of questionnaires as well as the preparation ofinterview guidelines to disseminate and obtain accurate information. With the arrangement ofplanning and conducting interviews: the ethics of conducting interviews, the advantages anddisadvantages of interviews, the formulation of interview questions, the schedule of interviews,group and focus group interviews, interviews using recording devices, and interview bias.making a questionnaire must be designed with very good management by giving to theinformation needed, in accordance with the problem and all that does not cause problems at thestage of analysis and interpretation.

Social Media Literacy For Housewives In Kanoman Maguwoharjo Village, Sleman, Yogyakarta

2020 ◽  
Author(s):  
Dewi Novianti ◽  
Siti Fatonah
Keyword(s):  
Social Media ◽  
Focus Group ◽  
Data Collection ◽  
Focus Group Discussion ◽  
Media Literacy ◽  
Participant Observation ◽  
Group Discussion ◽  
Qualitative Approach ◽  
Research Subjects

Social media is a necessity for everyone in communicating and exchanging information. Social media users do not know the boundaries of age, generation, gender, ethnicity, and religion. However, what is interesting is the user among housewives. This study took the research subjects of housewives. Housewives are chosen as research subjects because they are pillars or pillars in a household. If the pillar is strong, then the household will also be healthy. Thus, if we want to build a resilient and robust generation, we will start from the housewives. A healthy household starts from strong mothers too. This study aims to find out the insights of the housewives of Kanoman village regarding the content on smartphones and social media and provide knowledge of social media literacy to housewives. This study used a qualitative approach with data collection techniques using participant observation, interviews, focus group discussion (FGD), and documentation. The results of the study showed that previously housewives had not experienced social media literacy. Then the researchers took steps to be able to achieve the desired literacy results. Researchers took several steps to make them become social media literates. They become able to use social media, understand social media, and even produce messages through social media.

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