scholarly journals Quality of life assessment among Cystic Fibrosis patients in Palestine: Cross Sectional Study

2021 ◽  
Author(s):  
Samya Salah ◽  
Nisreen Rumman ◽  
Amal Nassar ◽  
Maher Khdour ◽  
Hussein Hallak
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
West Bank ◽  
Cross Sectional Study ◽  
Mean Value ◽  
Life Assessment ◽  
Sectional Study ◽  
Cross Sectional ◽  
Group I

Objective: To assess the quality of life (QoL) of Cystic fibrosis (CF) patients in West Bank, Palestine using the Cystic Fibrosis Questionnaire-Revised (CFQ-R) form. Method: A cross-sectional study involving application of CFQ-R questionnaire in CF patients attending pediatric pulmonology clinic at Caritas Baby Hospital (CBH). Their health status was assessed by measuring different parameters including pulmonary function test (FEV1) and body mass index (BMI). Results: The sample consisted of 77 patients from 58 families: 46.75% were males. Mean age was 10.7 years. Patients were divided into three groups by age in years: group I (< 6), II (6-13), and III (≥ 14). The highest and lowest CFQ scores were for the eat domain in group III (55.56 ± 22.49) and the body domain in group II (14.48 ± 17.67), respectively. Illness severity as measured by FEV1 mean value 69.6. BMI mean value of 15.998. The overall mean age at time of diagnosis in our sample was 4.16 years (± 6.239). The study showed that 1.7% of families had four affected siblings and 21% had death cases related to CF. Finally, all parameters for CF patients in West Bank, Palestine appear to be noticeably lower than those reported in other countries. Conclusions: quality of life for patients with CF is poor relative to international standards, the medications used including hypertonic saline and Gentamycin IV form used as nebulizer solution are not first line therapies around the world. This study illustrates the need of new therapies for CF patients in Palestine.

Quality of life assessment in retinoblastoma: A cross-sectional study of 122 survivors.

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. 10068-10068
Author(s):  
Atul Batra ◽  
Mamta Kumari ◽  
Reeja Paul ◽  
Deepa Dhawan ◽  
Sameer Bakhshi
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Sectional Study ◽  
Quality Of Life Assessment ◽  
Cross Sectional

scholarly journals Estrogen Supplementation Is Associated With Higher Quality of Life Scores in Women With Cystic Fibrosis

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A732-A732
Author(s):  
Malinda Wu ◽  
Neha Arora ◽  
Viranuj Sueblinvong ◽  
William R Hunt ◽  
Vin Tangpricha
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Estrogen Therapy ◽  
Cross Sectional Study ◽  
Rank Test ◽  
Sectional Study ◽  
Mineral Density ◽  
Cross Sectional ◽  
Domain Scores

Abstract Purpose: With rapid advancements in therapeutic options for patients with cystic fibrosis (CF), the median predicted survival has increased to 47 years along with the prevalence of non-pulmonary complications for patients with CF. Women with CF suffer irregular menses, sexual dysfunction and low bone mineral density. With increasing pregnancies among women with CF, they may consider contraception. Estrogen supplementation may modulate these outcomes and others. The purpose of this study was to explore the effects of supplemental estrogen use on quality of life (QOL) in CF. Methods: Women with CF ages 16-50 years were administered a validated CF-specific QOL survey (CFQ-R) during a routine CF clinic visit through an IRB-approved cross-sectional study. The QOL domain scores of subjects taking and not taking estrogen were compared pairwise by Kruskal Wallis tests and overall by Wilcoxon signed rank test. Results: The estrogen exposed and estrogen unexposed subjects with CF had similar age, BMI, FEV1, race, CF mutation, pancreatic insufficiency, diabetes and relationship status. The estrogen exposed subjects were taking 20-30 mcg of ethinyl estradiol in oral contraceptive pills. The estrogen exposed subjects had consistently higher QOL scores than the estrogen unexposed subjects (p=0.001). The estrogen exposed subjects had significantly higher scores in 7 of the 12 CFQ-R categories: physical, vitality, treatment burden and role domains and weight, respiratory and digestion symptom scales (p&lt;0.05). When correcting for multiple comparisons, the estrogen-supplemented women had higher role domain scores than women not taking estrogen supplement (p=0.03). Conclusions: Estrogen supplementation was associated with improved quality of life in women with CF. This cross-sectional study highlights the need for further investigation into the potential benefits of estrogen supplementation. The dose, route, formulation and timing of estrogen therapy may modulate the beneficial effects for women with CF. Support: This work was supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under award TL1TR002382 and UL1TR002378, and Cystic Fibrosis Foundation award WU20D0. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH or CFF.

P.07.26 QUALITY OF LIFE ASSESSMENT IN ULCERATIVE COLITIS OUTPATIENTS: A CROSS SECTIONAL STUDY

2018 ◽  
Vol 50 (2) ◽  
pp. e204
Author(s):  
C. Marinelli ◽  
F. Zingone ◽  
M. Inferrera ◽  
G. Lorenzon ◽  
A. Rigo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ulcerative Colitis ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Sectional Study ◽  
Quality Of Life Assessment ◽  
Cross Sectional

scholarly journals Physical activity and quality of life of children and adolescents with cystic fibrosis: a cross-sectional study

2020 ◽  
Vol 33 ◽  
Author(s):  
Taiane dos Santos Feiten ◽  
Josani da Silva Flores ◽  
Paula Maria Eidt Rovedder ◽  
Paulo de Tarso Roth Dalcin ◽  
Bruna Ziegler
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Cystic Fibrosis ◽  
Clinical Score ◽  
Cross Sectional Study ◽  
Lower Number ◽  
Sectional Study ◽  
Cross Sectional ◽  
Hrqol Questionnaire

Abstract Introduction: Regular physical activity (PA) is part of outpatient care offered to most people with cystic fibrosis (CF). Objective: To determine the frequency of the self-reported PA and, secondarily evaluate associations between PA with clinical variables and health-related quality of life (HRQoL) in pediatric and adolescent CF subjects. Method: In this cross-sectional study, subjects between 6 and 17 years of age with a confirmed diagnosis of CF were recruited in the outpatient clinic. The subjects answered questions about the practices of PA, HRQoL questionnaire and clinical variables were collected. Subjects were classified into two groups according to weekly PA practice: PA performed ≥ 3 times/week and performed PA ≤ 2 times/week. Results: 66 subjects completed the study, 72.7% (n=48) had PA ≥ 3 times/week and 27.2% (n=18) had PA ≤ 2 times/week. Only twelve children (18,2%) reached the recommendations of the World Health Organization (WHO) to practice moderate to vigorous physical activities daily. The mean age of the subjects evaluated was 12.3 ± 3.2 years, forced expiratory volume in one second 90 ± 24.1% and forced vital capacity 95 ± 20.4%. The group that performed PA ≥ 3 times/week had a better clinical score (p=0.033), a lower number of hospitalizations in the year (p=0.002), a lower number of days hospitalized in the last year (p=0.020) and better score for the physical (p=0.003) and emotion (p=0.048) domains in HRQoL questionnaire. Conclusion: This study concluded that most subjects did not reach the WHO recommendations for the practice of PA. However, individuals who practice PA at least 3 times/week have better HRQoL, clinical score and fewer hospitalizations.

scholarly journals Cognition and quality of life relationship among the elderly community: a cross-sectional study

2020 ◽  
Vol 73 (suppl 3) ◽  
Author(s):  
Barbara Maria Lopes da Silva Brandão ◽  
Alice Maria Barbosa da Silva ◽  
Rafaella Queiroga Souto ◽  
Fabia Alexandra Pottes Alves ◽  
Gleicy Karine Nascimento de Araújo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Health ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Screening Tools ◽  
Sectional Study ◽  
Cross Sectional ◽  
Quantitative Descriptive

ABSTRACT Objective: to assess cognitive functions and their association with quality of life among elderly people enrolled in a Family Health Unit (FHU) of Primary Health Care in Recife-PE. Methods: a quantitative, descriptive, cross-sectional study in which elderly aged 60 years and over were studied. Results: 76.7% of the elderly were women and the age group was less than or equal to 70 years. 68.6% had cognitive impairment, and in the quality of life assessment it was found that the social participation facet had the highest mean score among the elderly (14.25), while the lowest was observed in the sensory functioning facet (9.10). There was an association between cognitive decline and quality of life. Conclusion: most of the elderly had good quality of life rates, but low cognitive level. Using screening tools allows early detection of health problems, guiding the nursing staff in the construction of preventive measures.

scholarly journals Quality of life assessment in stoma patients in a tertiary care hospital in South India: a cross- sectional study

2017 ◽  
Vol 4 (6) ◽  
pp. 2037 ◽  
Author(s):  
A. P. Roshini ◽  
Ann Sunny ◽  
Anthony P. Rozario
Keyword(s):  
Quality Of Life ◽  
Support Groups ◽  
Tertiary Care Hospital ◽  
Tertiary Care ◽  
Cross Sectional Study ◽  
Life Assessment ◽  
Care Hospital ◽  
Sectional Study ◽  
Cross Sectional

Background: Quality of life (QOL) of patients is affected due to procedures done to treat the disease. A good QOL is essential to achieve a holistic approach in treating patients.Methods: We did a cross-sectional study in a tertiary care hospital to describe, identify and compare the factors affecting the QOL of these patients.Results: 42.5% had a permanent stoma and a majority 32.5% were due to a malignancy. Major concerns were skin rash and irritation, depression, loneliness and suicidal thoughts. 62.5% of the total had not gone to work after creation of a stoma. Malignancy was found to be a significant predictor of having a low QOL score.Conclusions: Quality of life of stoma patients in present study was not ideal. There is a definite need to have support groups for these patients in all hospitals.

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