scholarly journals Planting the S.E.E.D.S of Indigenous Population Health Data Linkage

2020 ◽  
Vol 5 (5) ◽  
Author(s):  
Robyn K Rowe ◽  
Jennifer D Walker
Keyword(s):  
Population Health ◽  
Indigenous Peoples ◽  
Health Care Policy ◽  
Indigenous Population ◽  
Data Linkage ◽  
Indigenous Health ◽  
Population Data ◽  
Health Data ◽  
Indigenous Populations ◽  
Data Stewardship

IntroductionThe increasing accessibility of data through digitization and linkage has resulted in Indigenous and allied individuals, scholars, practitioners, and data users recognizing a need to advance ways that assert Indigenous sovereignty and governance within data environments. Advances are being talked about around the world for how Indigenous data is collected, used, stored, shared, linked, and analysed. Objectives and ApproachDuring the International Population Data Linkage Network Conference in September of 2018, two sessions were hosted and led by international collaborators that focused on regional Indigenous health data linkage. Notes, discussions, and artistic contributions gathered from the conference led to collaborative efforts to highlight the common approaches to Indigenous data linkage, as discussed internationally. This presentation will share the braided culmination of these discussions and offer S.E.E.D.S as a set of guiding Indigenous data linkage principles. ResultsS.E.E.D.S emerges as a living and expanding set of guiding principles that: 1) prioritizes Indigenous Peoples’ right to Self-determination; 2) makes space for Indigenous Peoples to Exercise sovereignty; 3) adheres to Ethical protocols; 4) acknowledges and respects Data stewardship and governance, and; 5) works to Support reconciliation between Indigenous Peoples and settler states. S.E.E.D.S aims to centre and advance Indigenous-driven population data linkage and research while weaving together common global approaches to Indigenous data linkage. Conclusion / ImplicationsEach of the five elements of S.E.E.D.S interweave and need to be enacted together to create a positive Indigenous data linkage environment. When implemented together, the primary goals of the S.E.E.D.S Principles is to guide positive Indigenous population health data linkage in an effort to create more meaningful research approaches through improved Indigenous-based research processes. The implementation of these principles can, in turn, lead to better measurements of health progress that are critical to enhancing health care policy and improving health and wellness outcomes for Indigenous populations.

scholarly journals SEEDS of Indigenous Population Health Data Linkage

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Robyn Rowe ◽  
Stephanie Russo Carroll ◽  
Chyloe Healy ◽  
Desi Rodriguez-Lonebear ◽  
Jennifer D Walker
Keyword(s):  
Population Health ◽  
Indigenous Peoples ◽  
Health Care Policy ◽  
Indigenous Population ◽  
Data Linkage ◽  
Research Priorities ◽  
The United States ◽  
Indigenous Populations ◽  
Data Governance ◽  
Indigenous Nations

IntroductionGlobally, the ways that Indigenous data are collected, used, stored, shared, and analyzed are advancing through Indigenous data governance movements. However, these discussions do not always include the increasingly sensitive nature of linking Indigenous population health (IPH) data. During the International Population Data Linkage Network Conference in September of 2018, Indigenous people from three countries (Canada, New Zealand, and the United States) gathered and set the tone for discussions around Indigenous-driven IPH data linkage. ObjectivesCentering IPH data linkage and research priorities at the conference led to budding discussions from diverse Indigenous populations to share and build on current IPH data linkage themes. This paper provides a braided summary of those discussions which resulted in the SEEDS principles for use when linking IPH data. MethodsDuring the Conference, two sessions and a keynote were Indigenous-led and hosted by international collaborators that focused on regional perspectives on IPH data linkage. A retrospective document analysis of notes, discussions, and artistic contributions gathered from the conference resulted in a summary of shared common approaches to the linkage of IPH data. ResultsThe SEEDS Principles emerge as collective report that outlines a living and expanding set of guiding principles that: 1) prioritizes Indigenous Peoples' right to Self-determination; 2) makes space for Indigenous Peoples to Exercise sovereignty; 3) adheres to Ethical protocols; 4) acknowledges and respects Data stewardship and governance, and; 5) works to Support reconciliation between Indigenous nations and settler states. ConclusionEach of the elements of SEEDS need to be enacted together to create a positive data linkage environment. When implemented together, the SEEDS Principles can lead to more meaningful research and improved Indigenous data governance. The mindful implementation of SEEDS could lead to better measurements of health progress through linkages that are critical to enhancing health care policy and improving health and wellness outcomes for Indigenous nations.

scholarly journals Perspectives on Linkage Involving Indigenous data

2018 ◽  
Vol 3 (4) ◽  
Author(s):  
Jennifer Walker ◽  
Bonnie Healy ◽  
Chyloe Healy ◽  
Tina Apsassin ◽  
William Wadsworth ◽  
...  
Keyword(s):  
Community Engagement ◽  
First Nations ◽  
Linked Data ◽  
Data Linkage ◽  
Indigenous Health ◽  
Health Centre ◽  
Population Data ◽  
Data Access ◽  
Indigenous Populations ◽  
Data Governance

Topic: Perspectives on Linkage Involving Indigenous dataIndigenous populations across the globe are reaffirming their sovereignty rights in the collection and use of Indigenous data. The Indigenous data sovereignty movement has been widely influential and can be unsettling for those who routinely use population-level linked data that include Indigenous identifiers. Ethical policies that stipulate community engagement for access, interpretation and dissemination of Indigenous data create an enabling environment through the critical process of negotiating and navigating data access in partnership with communities. This session will be designed to create space for leading Indigenous voices to set the tone for the discussion around Indigenous population data linkage. Objectives: To provide participants with an opportunity to build on the themes of Indigenous Data Sovereignty presented in the keynote session as they apply to diverse Indigenous populations. To explore approaches to the linkage of Indigenous-identified population data across four countries, including First Nations in three Canadian regions. To share practical applications of Indigenous data sovereignty on data linkage and analysis and discussion. To center Indigenous-driven data linkage and research. Facilitator:Jennifer Walker. Canada Research Chair in Indigenous Health, Laurentian University and Indigenous Lead, Institute for Clinical Evaluative Sciences. Collaborators: Alberta: Bonnie Healy, Tina Apsassin, Chyloe Healy and William Wadsworth (Alberta First Nations Information Governance Centre) Ontario: Carmen R. Jones (Chiefs of Ontario) and Jennifer Walker (Institute for Clinical Evaluative Sciences) British Columbia: Jeff Reading (Providence Health Centre) and Laurel Lemchuk-Favel (First Nations Health Authority) Australia: Raymond Lovett (Australian National University) Aotearoa / New Zealand: Donna Cormack (University of Otago) United States: Stephanie Rainie and Desi Rodriguez-Lonebear (University of Arizona) Session format: 90 minutesCollaborators will participate in a round-table introduction to the work they are doing. Collaborators will discuss the principles underlying their approaches to Indigenous data linkage as well as practical and concrete solutions to challenges. Questions to guide the discussion will be pre-determined by consensus among the collaborators and the themes will include: data governance, community engagement, Indigenous-led linkage and analysis of data, and decision-making regarding access to linked data. Other participants attending the session will be encouraged to listen and will have an opportunity to engage in the discussion and ask questions. Intended output or outcome:The key outcome of the session will be twofold. First, those actively working with Indigenous linked data will have an opportunity for an in-depth and meaningful dialogue about their work, which will promote international collaboration and sharing of ideas. Second, those with less experience and knowledge of the principles of Indigenous data sovereignty and their practical application will have an opportunity to listen to Indigenous people who are advancing the integration of Indigenous ways of knowing into data linkage and analysis. The output of the session will be a summary paper highlighting both the diversity and commonalities of approaches to Indigenous data linkage internationally. Areas where consensus exists, opportunities for collaboration, and challenges will be highlighted.

scholarly journals Overview: The international group for indigenous health measurement and COVID-19

2021 ◽  
pp. 1-6
Author(s):  
Michele Connolly ◽  
Kalinda Griffiths ◽  
John Waldon ◽  
Malcolm King ◽  
Alexandra King ◽  
...  
Keyword(s):  
New Zealand ◽  
Total Population ◽  
Indigenous Health ◽  
Health Data ◽  
Indigenous Populations ◽  
Health Measurement ◽  
Country Group ◽  
International Group ◽  
The Us ◽  
The Impact

The International Group for Indigenous Health Measurement (IGIHM) is a 4-country group established to promote improvements in the collection, analysis, interpretation and dissemination of Indigenous health data, including the impact of COVID-19. This overview provides data on cases and deaths for the total population as well as the Indigenous populations of each country. Brief summaries of the impact are provided for Canada and New Zealand. The Overview is followed by. separate articles with more detailed discussion of the COVID-19 experience in Australia and the US.

Living Well and Health Practices among Aymara People in Northern Chile

2021 ◽  
pp. 0094582X2110049
Author(s):  
Alejandra Carreño-Calderón
Keyword(s):  
Indigenous Peoples ◽  
Indigenous Population ◽  
Indigenous Health ◽  
Health Programs ◽  
Northern Chile ◽  
Medical Field ◽  
Buen Vivir ◽  
Living Well ◽  
Intercultural Health ◽  
Health Model

The current Chilean health model seeks to promote health equity among indigenous peoples by means of state intercultural health programs. As implemented regionally, these have been widely criticized as depoliticizing mechanisms meant to dominate the indigenous population. Study of the experiences of several indigenous health agents and associations fostered by these programs reveals that the strategic use of the concept of living well by indigenous peoples raises questions about the issues that are to be included in or excluded from the intercultural medical field. El actual modelo de salud chileno busca promover el acceso equitativo a la salud entre los pueblos indígenas a través de programas estatales de salud intercultural. Tal y como se aplican a nivel regional, estos han sido ampliamente criticados como mecanismos de despolitización diseñados para dominar a la población indígena. El estudio de las experiencias de varios agentes y asociaciones de salud indígenas impulsados por estos programas revela que el uso estratégico del concepto del buen vivir por parte de los pueblos indígenas plantea interrogantes sobre qué asuntos deben o no incluirse en el campo médico intercultural.

scholarly journals Creating a sense of ‘CLOSURE’: Providing confidence intervals on some recent estimates of indigenous populations

2006 ◽  
Vol 33 (1) ◽  
pp. 1 ◽  
Author(s):  
Boyd H. Hunter ◽  
Mardi H. Dungey
Keyword(s):  
Population Growth ◽  
Confidence Intervals ◽  
Indigenous Peoples ◽  
Indigenous Population ◽  
National Level ◽  
Estimation Method ◽  
Natural Increase ◽  
Dual System ◽  
Indigenous Populations ◽  
Policy Makers

The error of closure is the population growth that cannot be accounted for by either natural increase or quantifiable non-demographic factors, and is an issue that is particularly pronounced for indigenous peoples. This paper estimates Australia’s indigenous population using the dual system estimation method, and compares these to those produced using the standard undercount method. The main conclusion is that dual system estimates of the indigenous population appear to be reasonably accurate at the national level, which provide an appreciation of the reliability of existing estimates. Notwithstanding, policy makers need to take into account that population statistics are merely estimates.

scholarly journals The Population Health Research Network - Population Data Centre Profile

2019 ◽  
Vol 4 (2) ◽  
Author(s):  
Felicity Flack ◽  
Merran Smith
Keyword(s):  
Population Health ◽  
Health Research ◽  
Data Linkage ◽  
Population Data ◽  
Data Access ◽  
Research Network ◽  
Data Centre ◽  
Wide Range ◽  
Unique Approach ◽  
Data Collections

The Population Health Research Network (PHRN) is an Australian data linkage infrastructure capable of securely and safely linking and integrating data collections from a wide range of sources. It is an example of a national data linkage infrastructure in a country with a federated system of government. This population data centre profile describes Australia’s unique approach to enabling access to linked data from single jurisdictions and from multiple jurisdictions. It covers the background to the establishment of the PHRN as well as information about how it operates today including operating models, governance, data, data linkage and data access. Some of the challenges of data linkage across jurisdictions are also discussed.

scholarly journals The missing voices of Indigenous Australians in the social, cultural and historical experiences of tuberculosis: a systematic and integrative review

2019 ◽  
Vol 4 (6) ◽  
pp. e001794 ◽  
Author(s):  
Sue Devlin ◽  
David MacLaren ◽  
Peter D Massey ◽  
Richard Widders ◽  
Jenni A Judd
Keyword(s):  
Social Determinants Of Health ◽  
Indigenous Peoples ◽  
Social Determinants ◽  
Indigenous Health ◽  
Social Determinant ◽  
Determinants Of Health ◽  
Indigenous Populations ◽  
Indigenous Australians ◽  
The Social ◽  
Biomedical Diagnosis

IntroductionDisparities in tuberculosis (TB) rates exist between Indigenous and non-Indigenous populations in many countries, including Australia. The social determinants of health are central to health inequities including disparities in TB rates. There are limitations in the dominant biomedical and epidemiological approaches to representing, understanding and addressing the unequal burden of TB for Indigenous peoples represented in the literature. This paper applies a social determinants of health approach and examines the structural, programmatic and historical causes of inequities for TB in Indigenous Australia.MethodsAboriginal Australians’ families in northern New South Wales who are affected by TB initiated this investigation. A systematic search of published literature was conducted using PubMed, PsycINFO, Scopus and Informit ATSIhealth databases, the Australian Indigenous Health, InfoNet and Google. Ninety-five records published between 1885 and 2019 were categorised and graphed over time, inductively coded and thematically analysed.ResultsIndigenous Australians’ voices are scarce in the TB literature and absent in the development of TB policies and programmes. Epidemiological reports are descriptive and technical and avoid analysis of social processes involved in the perpetuation of TB. For Indigenous Australians, TB is more than a biomedical diagnosis and treatment; it is a consequence of European invasion and a contributor to dispossession and the ongoing fight for justice. The introduction and spread of TB has resulted in the stealing of lives, family, community and cultures for Indigenous Australians. Racist policies and practices predominate in the experiences of individuals and families as consequences of, and resulting in, ongoing structural and systematic exclusion.ConclusionDevelopment of TB policies and programmes requires reconfiguration. Space must be given for Indigenous Australians to lead, be partners and to have ownership of decisions about how to eliminate TB. Shared knowledge between Indigenous Australians, policy makers and service managers of the social practices and structures that generate TB disparity for Indigenous Australians is essential.A social determinant of health approach will shift the focus to the social structures that cause TB. Collaboration with Indigenous partners in research is critical, and use of methods that amplify Indigenous peoples' voices and reconfigure power relations in favour of Indigenous Australians in the process is required.

scholarly journals High prevalence of anti-SARS-CoV-2 IgG antibody in the Xikrin of Bacajá (Kayapó) indigenous population in the brazilian Amazon

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Eliene Putira Sacuema Rodrigues ◽  
Isabella Nogueira Abreu ◽  
Carlos Neandro Cordeiro Lima ◽  
Dennyson Leandro Mathias da Fonseca ◽  
Sávio Felipe Gomes Pereira ◽  
...  
Keyword(s):  
Indigenous Population ◽  
Indigenous Health ◽  
Rapid Test ◽  
Brazilian Amazon ◽  
Indigenous Populations ◽  
Health Policies ◽  
Enzyme Linked Immunosorbent Assay ◽  
Igg Antibody ◽  
High Prevalence ◽  
The Impact

AbstractThe COVID-19 pandemic caused by Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) reached the Brazilian Amazon and spread among indigenous populations. In the present study, we demonstrate a high prevalence of infection among the Xikrin of Bacajá people (Kayapó). A sample of 100 individuals of both sexes (51 men and 49 women) with ages ranging from 2 to 82 years were clinically evaluated and tested for the presence of anti-SARS-CoV-2 IgG antibody. Among all investigated individuals, 58 were IgG-reactive (58 %) by a rapid test, and 73 (73 %) were reactive in an enzyme-linked immunosorbent assay, with no difference between sexes. Oxygen saturation ranged from 82 to 99 %, with the lowest value observed in a two-year-old girl. The results show that as expected, SARS-CoV-2 infection rapidly reached more than 70 % of the population, most likely because of the difficulties of maintaining social distance due to cultural characteristics. These results highlight the importance of indigenous health policies as a means of minimizing the impact of the pandemic on these communities.

scholarly journals COMPLETING THE CIRCLE: TOWARDS THE ACHIEVEMENT OF IND-EQUITY- A CULTURALLY RELEVANT HEALTH EQUITY MODEL BY/FOR INDIGENOUS POPULATIONS

2020 ◽  
Vol 2 (1) ◽  
pp. 97-110
Author(s):  
Bernice Downey
Keyword(s):  
Health Equity ◽  
Indigenous Peoples ◽  
Indigenous Health ◽  
Ways Of Knowing ◽  
Truth And Reconciliation Commission ◽  
Structural Reform ◽  
Indigenous Populations ◽  
Truth And Reconciliation ◽  
Health Practitioners ◽  
Equity Model

Health equity is defined in ways that espouse values of social justice and benevolence and is held up as an ideal state achievable by all. However, there remains a troubling gap in health outcomes between Indigenous Peoples and other Canadians. Public health stakeholders aspire to ‘close the gap’ and ‘level the gradient’ to reduce inequities though the implementation of various health equity focused strategies. The Truth and Reconciliation Commission of Canada echoes this objective and calls for self-determining structural reform to address health inequity for Indigenous Peoples. This paper proposes an IND-equity model as a reconciliation inspired response that upholds Indigenous self-determination and is informed by diverse Indigenous ways of knowing.  When adopting this model, the goal is to complete the circle and foster wholistic balance. Further development and implementation of an IND-equity model requires advocacy by all health practitioners. Nurses hold potential to lead and engage in structural reform through an Indigenous health ally role.

Issues in Service Delivery for Women Statewide: Koori Context

1998 ◽  
Vol 4 (3) ◽  
pp. 89
Author(s):  
Sharon Firebrace
Keyword(s):  
Human Rights ◽  
New Zealand ◽  
Service Delivery ◽  
Health Outcomes ◽  
Indigenous Population ◽  
Indigenous Health ◽  
Indigenous Populations ◽  
Health Profile ◽  
Health Providers ◽  
The World

For introduction, let me state what most of us will readily acknowledge as fact: the Koori health profile contains the greatest challenge for health providers on all levels today. This has been the case for decades and current indicators confirm the relatively stagnant health outcomes of Australia's indigenous population. Similarly challenged indigenous populations throughout the world -especially in New Zealand, Canada and USA - have improved their indigenous health profiles while we, in Australia, lag behind. Despite the best intentions of government and indigenous agencies, the state of indigenous health remains a damning indictment of our society's human rights conscience.

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