scholarly journals SEEDS of Indigenous Population Health Data Linkage

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Robyn Rowe ◽  
Stephanie Russo Carroll ◽  
Chyloe Healy ◽  
Desi Rodriguez-Lonebear ◽  
Jennifer D Walker
Keyword(s):  
Population Health ◽  
Indigenous Peoples ◽  
Health Care Policy ◽  
Indigenous Population ◽  
Data Linkage ◽  
Research Priorities ◽  
The United States ◽  
Indigenous Populations ◽  
Data Governance ◽  
Indigenous Nations

IntroductionGlobally, the ways that Indigenous data are collected, used, stored, shared, and analyzed are advancing through Indigenous data governance movements. However, these discussions do not always include the increasingly sensitive nature of linking Indigenous population health (IPH) data. During the International Population Data Linkage Network Conference in September of 2018, Indigenous people from three countries (Canada, New Zealand, and the United States) gathered and set the tone for discussions around Indigenous-driven IPH data linkage. ObjectivesCentering IPH data linkage and research priorities at the conference led to budding discussions from diverse Indigenous populations to share and build on current IPH data linkage themes. This paper provides a braided summary of those discussions which resulted in the SEEDS principles for use when linking IPH data. MethodsDuring the Conference, two sessions and a keynote were Indigenous-led and hosted by international collaborators that focused on regional perspectives on IPH data linkage. A retrospective document analysis of notes, discussions, and artistic contributions gathered from the conference resulted in a summary of shared common approaches to the linkage of IPH data. ResultsThe SEEDS Principles emerge as collective report that outlines a living and expanding set of guiding principles that: 1) prioritizes Indigenous Peoples' right to Self-determination; 2) makes space for Indigenous Peoples to Exercise sovereignty; 3) adheres to Ethical protocols; 4) acknowledges and respects Data stewardship and governance, and; 5) works to Support reconciliation between Indigenous nations and settler states. ConclusionEach of the elements of SEEDS need to be enacted together to create a positive data linkage environment. When implemented together, the SEEDS Principles can lead to more meaningful research and improved Indigenous data governance. The mindful implementation of SEEDS could lead to better measurements of health progress through linkages that are critical to enhancing health care policy and improving health and wellness outcomes for Indigenous nations.

scholarly journals Planting the S.E.E.D.S of Indigenous Population Health Data Linkage

2020 ◽  
Vol 5 (5) ◽  
Author(s):  
Robyn K Rowe ◽  
Jennifer D Walker
Keyword(s):  
Population Health ◽  
Indigenous Peoples ◽  
Health Care Policy ◽  
Indigenous Population ◽  
Data Linkage ◽  
Indigenous Health ◽  
Population Data ◽  
Health Data ◽  
Indigenous Populations ◽  
Data Stewardship

IntroductionThe increasing accessibility of data through digitization and linkage has resulted in Indigenous and allied individuals, scholars, practitioners, and data users recognizing a need to advance ways that assert Indigenous sovereignty and governance within data environments. Advances are being talked about around the world for how Indigenous data is collected, used, stored, shared, linked, and analysed. Objectives and ApproachDuring the International Population Data Linkage Network Conference in September of 2018, two sessions were hosted and led by international collaborators that focused on regional Indigenous health data linkage. Notes, discussions, and artistic contributions gathered from the conference led to collaborative efforts to highlight the common approaches to Indigenous data linkage, as discussed internationally. This presentation will share the braided culmination of these discussions and offer S.E.E.D.S as a set of guiding Indigenous data linkage principles. ResultsS.E.E.D.S emerges as a living and expanding set of guiding principles that: 1) prioritizes Indigenous Peoples’ right to Self-determination; 2) makes space for Indigenous Peoples to Exercise sovereignty; 3) adheres to Ethical protocols; 4) acknowledges and respects Data stewardship and governance, and; 5) works to Support reconciliation between Indigenous Peoples and settler states. S.E.E.D.S aims to centre and advance Indigenous-driven population data linkage and research while weaving together common global approaches to Indigenous data linkage. Conclusion / ImplicationsEach of the five elements of S.E.E.D.S interweave and need to be enacted together to create a positive Indigenous data linkage environment. When implemented together, the primary goals of the S.E.E.D.S Principles is to guide positive Indigenous population health data linkage in an effort to create more meaningful research approaches through improved Indigenous-based research processes. The implementation of these principles can, in turn, lead to better measurements of health progress that are critical to enhancing health care policy and improving health and wellness outcomes for Indigenous populations.

scholarly journals The representation of Indigenous peoples in chronic disease clinical trials in Australia, Canada, New Zealand, and the United States

2022 ◽  
pp. 174077452110691
Author(s):  
Valerie Umaefulam ◽  
Tessa Kleissen ◽  
Cheryl Barnabe
Keyword(s):  
United States ◽  
Clinical Trials ◽  
New Zealand ◽  
Chronic Disease ◽  
General Population ◽  
Indigenous Peoples ◽  
Indigenous Population ◽  
Clinical Care ◽  
The United States ◽  
Indigenous Populations

Background Indigenous peoples are overrepresented with chronic health conditions and experience suboptimal outcomes compared with non-Indigenous peoples. Genetic variations influence therapeutic responses, thus there are potential risks and harm when extrapolating evidence from the general population to Indigenous peoples. Indigenous population–specific clinical studies, and inclusion of Indigenous peoples in general population clinical trials, are perceived to be rare. Our study (1) identified and characterized Indigenous population–specific chronic disease trials and (2) identified the representation of Indigenous peoples in general population chronic disease trials conducted in Australia, Canada, New Zealand, and the United States. Methods For Objective 1, publicly available clinical trial registries were searched from May 2010 to May 2020 using Indigenous population–specific terms and included for data extraction if in pre-specified chronic disease. For identified trials, we extracted Indigenous population group identity and characteristics, type of intervention, and funding type. For Objective 2, a random selection of 10% of registered clinical trials was performed and the proportion of Indigenous population participants enrolled extracted. Results In total, 170 Indigenous population–specific chronic disease trials were identified. The clinical trials were predominantly behavioral interventions (n = 95). Among general population studies, 830 studies were randomly selected. When race was reported in studies (n = 526), Indigenous individuals were enrolled in 172 studies and constituted 5.6% of the total population enrolled in those studies. Conclusion Clinical trials addressing chronic disease conditions in Indigenous populations are limited. It is crucial to ensure adequate representation of Indigenous peoples in clinical trials to ensure trial data are applicable to their clinical care.

scholarly journals Dual MD–MPH Degree Students in the United States: Moving the Medical Workforce Toward Population Health

2021 ◽  
pp. 003335492097842
Author(s):  
Jo Marie Reilly ◽  
Christine M. Plepys ◽  
Michael R. Cousineau
Keyword(s):  
Public Health ◽  
United States ◽  
Population Health ◽  
Health Care Policy ◽  
The United States ◽  
Extensive Literature ◽  
Master Of Public Health ◽  
Telephone Interviews ◽  
Public Health Training ◽  
The Impact

Objective A growing need exists to train physicians in population health to meet the increasing need and demand for physicians with leadership, health data management/metrics, and epidemiology skills to better serve the health of the community. This study examines current trends in students pursuing a dual doctor of medicine (MD)–master of public health (MPH) degree (MD–MPH) in the United States. Methods We conducted an extensive literature review of existing MD–MPH databases to determine characteristics (eg, sex, race/ethnicity, MPH area of study) of this student cohort in 2019. We examined a trend in the MD community to pursue an MPH career, adding additional public health and health care policy training to the MD workforce. We conducted targeted telephone interviews with 20 admissions personnel and faculty at schools offering MD–MPH degrees in the United States with the highest number of matriculants and graduates. Interviews focused on curricula trends in medical schools that offer an MD–MPH degree. Results No literature describes the US MD–MPH cohort, and available MD–MPH databases are limited and incomplete. We found a 434% increase in the number of students pursuing an MD–MPH degree from 2010 to 2018. The rate of growth was greater than the increase in either the number of medical students (16%) or the number of MPH students (65%) alone. Moreover, MD–MPH students as a percentage of total MPH students more than tripled, from 1.1% in 2010 to 3.6% in 2018. Conclusions As more MD students pursue public health training, the impact of an MPH degree on medical school curricula, MD–MPH graduates, and MD–MPH career pursuits should be studied using accurate and comprehensive databases.

scholarly journals Traditional Food Energy Intake Among Indigenous Populations in Select High-Income Settler Colonized Countries: A Systematic Literature Review

2020 ◽  
Author(s):  
Julia McCartan ◽  
Emma van Burgel ◽  
Isobelle McArthur ◽  
Sharni Testa ◽  
Elisabeth Thurn ◽  
...  
Keyword(s):  
Energy Intake ◽  
Indigenous Peoples ◽  
Primary Outcome ◽  
The United States ◽  
Outcome Data ◽  
High Income ◽  
Indigenous Populations ◽  
Traditional Food ◽  
Food Energy ◽  
Settler Colonization

Abstract The traditional diets of Indigenous Peoples globally have undergone major transition due to settler colonization. This systematic review aims to provide a perspective of traditional food intake of Indigenous populations in high-income countries with a history of settler colonization. For inclusion, studies reported the primary outcome of interest: traditional food contribution to total energy intake (%E) and occurred in Canada, the United States (including Hawaii and Alaska), New Zealand, Australia and/or Scandinavian countries. Primary outcome data were reported and organized by date of data collection by country. Forty-nine articles published between 1987 and 2019 were identified. Wide variation in contribution of traditional food to energy was reported. A trend for decreasing traditional food energy intake over time was apparent; however, heterogeneity in study populations and dietary assessment methods limited conclusive evaluation of this. This review may inform cross-sectoral policy to protect the sustainable utilization of traditional food for Indigenous Peoples.

scholarly journals Creating a sense of ‘CLOSURE’: Providing confidence intervals on some recent estimates of indigenous populations

2006 ◽  
Vol 33 (1) ◽  
pp. 1 ◽  
Author(s):  
Boyd H. Hunter ◽  
Mardi H. Dungey
Keyword(s):  
Population Growth ◽  
Confidence Intervals ◽  
Indigenous Peoples ◽  
Indigenous Population ◽  
National Level ◽  
Estimation Method ◽  
Natural Increase ◽  
Dual System ◽  
Indigenous Populations ◽  
Policy Makers

The error of closure is the population growth that cannot be accounted for by either natural increase or quantifiable non-demographic factors, and is an issue that is particularly pronounced for indigenous peoples. This paper estimates Australia’s indigenous population using the dual system estimation method, and compares these to those produced using the standard undercount method. The main conclusion is that dual system estimates of the indigenous population appear to be reasonably accurate at the national level, which provide an appreciation of the reliability of existing estimates. Notwithstanding, policy makers need to take into account that population statistics are merely estimates.

scholarly journals Wellbeing of Indigenous Peoples in Canada, Aotearoa (New Zealand) the United States: A Systematic Review

2021 ◽  
Vol 18 (11) ◽  
pp. 5832
Author(s):  
Alana Gall ◽  
Kate Anderson ◽  
Kirsten Howard ◽  
Abbey Diaz ◽  
Alexandra King ◽  
...  
Keyword(s):  
United States ◽  
New Zealand ◽  
Indigenous Peoples ◽  
The United States ◽  
Indigenous Populations ◽  
Mortality And Morbidity ◽  
Health And Wellbeing ◽  
Search Terms ◽  
Aotearoa New Zealand ◽  
Full Text Screening

Despite the health improvements afforded to non-Indigenous peoples in Canada, Aotearoa (New Zealand) and the United States, the Indigenous peoples in these countries continue to endure disproportionately high rates of mortality and morbidity. Indigenous peoples’ concepts and understanding of health and wellbeing are holistic; however, due to their diverse social, political, cultural, environmental and economic contexts within and across countries, wellbeing is not experienced uniformly across all Indigenous populations. We aim to identify aspects of wellbeing important to the Indigenous people in Canada, Aotearoa and the United States. We searched CINAHL, Embase, PsycINFO and PubMed databases for papers that included key Indigenous and wellbeing search terms from database inception to April 2020. Papers that included a focus on Indigenous adults residing in Canada, Aotearoa and the United States, and that included empirical qualitative data that described at least one aspect of wellbeing were eligible. Data were analysed using the stages of thematic development recommended by Thomas and Harden for thematic synthesis of qualitative research. Our search resulted in 2669 papers being screened for eligibility. Following full-text screening, 100 papers were deemed eligible for inclusion (Aotearoa (New Zealand) n = 16, Canada n = 43, United States n = 41). Themes varied across countries; however, identity, connection, balance and self-determination were common aspects of wellbeing. Having this broader understanding of wellbeing across these cultures can inform decisions made about public health actions and resources.

scholarly journals Perspectives on Linkage Involving Indigenous data

2018 ◽  
Vol 3 (4) ◽  
Author(s):  
Jennifer Walker ◽  
Bonnie Healy ◽  
Chyloe Healy ◽  
Tina Apsassin ◽  
William Wadsworth ◽  
...  
Keyword(s):  
Community Engagement ◽  
First Nations ◽  
Linked Data ◽  
Data Linkage ◽  
Indigenous Health ◽  
Health Centre ◽  
Population Data ◽  
Data Access ◽  
Indigenous Populations ◽  
Data Governance

Topic: Perspectives on Linkage Involving Indigenous dataIndigenous populations across the globe are reaffirming their sovereignty rights in the collection and use of Indigenous data. The Indigenous data sovereignty movement has been widely influential and can be unsettling for those who routinely use population-level linked data that include Indigenous identifiers. Ethical policies that stipulate community engagement for access, interpretation and dissemination of Indigenous data create an enabling environment through the critical process of negotiating and navigating data access in partnership with communities. This session will be designed to create space for leading Indigenous voices to set the tone for the discussion around Indigenous population data linkage. Objectives: To provide participants with an opportunity to build on the themes of Indigenous Data Sovereignty presented in the keynote session as they apply to diverse Indigenous populations. To explore approaches to the linkage of Indigenous-identified population data across four countries, including First Nations in three Canadian regions. To share practical applications of Indigenous data sovereignty on data linkage and analysis and discussion. To center Indigenous-driven data linkage and research. Facilitator:Jennifer Walker. Canada Research Chair in Indigenous Health, Laurentian University and Indigenous Lead, Institute for Clinical Evaluative Sciences. Collaborators: Alberta: Bonnie Healy, Tina Apsassin, Chyloe Healy and William Wadsworth (Alberta First Nations Information Governance Centre) Ontario: Carmen R. Jones (Chiefs of Ontario) and Jennifer Walker (Institute for Clinical Evaluative Sciences) British Columbia: Jeff Reading (Providence Health Centre) and Laurel Lemchuk-Favel (First Nations Health Authority) Australia: Raymond Lovett (Australian National University) Aotearoa / New Zealand: Donna Cormack (University of Otago) United States: Stephanie Rainie and Desi Rodriguez-Lonebear (University of Arizona) Session format: 90 minutesCollaborators will participate in a round-table introduction to the work they are doing. Collaborators will discuss the principles underlying their approaches to Indigenous data linkage as well as practical and concrete solutions to challenges. Questions to guide the discussion will be pre-determined by consensus among the collaborators and the themes will include: data governance, community engagement, Indigenous-led linkage and analysis of data, and decision-making regarding access to linked data. Other participants attending the session will be encouraged to listen and will have an opportunity to engage in the discussion and ask questions. Intended output or outcome:The key outcome of the session will be twofold. First, those actively working with Indigenous linked data will have an opportunity for an in-depth and meaningful dialogue about their work, which will promote international collaboration and sharing of ideas. Second, those with less experience and knowledge of the principles of Indigenous data sovereignty and their practical application will have an opportunity to listen to Indigenous people who are advancing the integration of Indigenous ways of knowing into data linkage and analysis. The output of the session will be a summary paper highlighting both the diversity and commonalities of approaches to Indigenous data linkage internationally. Areas where consensus exists, opportunities for collaboration, and challenges will be highlighted.

scholarly journals Reflection, Acknowledgement, and Justice: A Framework for Indigenous-Protected Area Reconciliation

2018 ◽  
Vol 9 (3) ◽  
Author(s):  
Chance Finegan
Keyword(s):  
Protected Areas ◽  
Indigenous Peoples ◽  
Protected Area ◽  
Settler Colonialism ◽  
The United States ◽  
Protected Area Management ◽  
Knowledge Use ◽  
Truth Telling ◽  
Indigenous Nations ◽  
Parks Canada

Protected areas have been both tools and beneficiaries of settler colonialism in places such as Canada, Australia, and the United States, to the detriment of Indigenous nations. While some agencies, such as Parks Canada, increasingly partner with Indigenous nations through co-management agreements or on Indigenous knowledge use in protected area management, I believe such efforts fall short of reconciliation. For protected areas to reconcile with Indigenous Peoples, they must not incorporate Indigeneity into existing settler-colonial structures. Instead, agencies must commit to an Indigenous-centered project of truth telling, acknowledging harm, and providing for justice. I begin this article by outlining what is meant by reconciliation. I then argue for protected area-Indigenous reconciliation. I conclude with a framework for Indigenous–settler reconciliation within protected areas.

scholarly journals Apologies to Indigenous Peoples in Comparative Perspective

2014 ◽  
Vol 5 (4) ◽  
Author(s):  
Michael Tager
Keyword(s):  
United States ◽  
Indigenous Peoples ◽  
The United States ◽  
Indigenous Populations ◽  
Comparative Perspective ◽  
National Elections ◽  
The Impact ◽  
Focusing Event ◽  
The U.S

Australia, Canada, and the United States formally apologized to their Indigenous peoples in February 2008, June 2008, and December 2009, respectively. The Indigenous peoples in these countries are relatively small in size and Indigenous issues usually lack salience in national elections, so these near simultaneous apologies appear somewhat surprising. All three came after years of pressure and incompletely realized apologies. The presence of a focusing event and the level of Indigenous mobilization help explain the variation among the apologies, with Canada and Australia’s apologies stronger than the U.S. one. However, the impact of the apologies on the three governments’ efforts to reconcile with their Indigenous populations remains unclear.

Migration to the United States from Indigenous Communities in Mexico

2019 ◽  
Vol 684 (1) ◽  
pp. 120-145 ◽  
Author(s):  
Asad L. Asad ◽  
Jackelyn Hwang
Keyword(s):  
United States ◽  
Indigenous Peoples ◽  
Multilevel Models ◽  
Indigenous Communities ◽  
The United States ◽  
Social Disadvantage ◽  
Indigenous Populations ◽  
Mexican Migration ◽  
Hispanic Populations ◽  
Migratory Process

Research on Mexican migration to the United States has long noted how the characteristics of sending communities structure individuals’ opportunities for international movement. This literature has seldom considered the concentration of indigenous residents (those with origins in pre-Hispanic populations) in migrant-sending communities. Drawing on data from 143 communities surveyed by the Mexican Migration Project, and supplemented with data from the Mexican Census, this article uses multilevel models to describe how the share of indigenous residents in a migrant-sending community relates to different aspects of the migratory process. We focus on (1) the decision to migrate to the United States, and (2) the documentation used on migrants’ first U.S. trip. We do not find that the concentration of indigenous residents in a sending community is associated with the decision to migrate to the United States. However, we do find that people in communities with relatively high indigenous populations are more likely to migrate as undocumented rather than documented migrants. We conclude that the concentration of indigenous peoples in communities likely indicates economic and social disadvantage, which limits the residents’ possibilities for international movement.

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