scholarly journals Staff Perceptions of How Music Therapy Can Support Palliative Care Patients in a New Zealand / Aotearoa Hospice, with a Particular Focus on Spiritual Care

2021 ◽  
Author(s):  
◽  
Keryn Squires
Keyword(s):  
Palliative Care ◽  
New Zealand ◽  
Music Therapy ◽  
Narrative Analysis ◽  
Spiritual Care ◽  
Team Work ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Dying Patients ◽  
Over Time

<p>The purpose of this study was to explore the perceptions of staff from a hospice, in New Zealand / Aotearoa, regarding the use of music therapy in the care of dying patients. The study has a particular focus on spiritual aspects of palliative care in music therapy, as spirituality is an inherent aspect of the work done by caregivers in palliative care. Hospice staff were asked to reflect on what they knew and understood of music therapy before, and after, a music therapy student arrived at the hospice, and their narratives were explored to uncover the links between patients, music and spirituality. The aim of this was to identify what might be needed to increase knowledge, to improve referral processes, and to increase opportunities for collaborative team work. A cross-section of staff, i.e. two nurses, one doctor, an occupational therapist, and a counsellor, who were part of the palliative care team, were recruited to participate in two semi-structured interviews to discuss their perceptions of the potential for music therapy to support the spiritual needs of hospice patients. A qualitative approach was employed and narrative analysis was used to interpret the interviews. Narrative research emphasises the language of human understanding and in this research it involved gathering participants' 'stories' of their evolving perceptions over time. Findings suggest the language used to describe spiritual care in music therapy was different for each participant although common meanings were drawn from the participants' stories. Commonalities included: music therapy in the hospice was valued by the participants; some participants would like more knowledge to make an informed referral. In addition, staff understanding appeared to have increased over time partly due to educational seminars, sharing at team meetings, actual exposure to music therapy, informal conversations with staff, and participants' growing knowledge of music therapy through their own personal process of learning.</p>

scholarly journals Staff Perceptions of How Music Therapy Can Support Palliative Care Patients in a New Zealand / Aotearoa Hospice, with a Particular Focus on Spiritual Care

2021 ◽  
Author(s):  
◽  
Keryn Squires
Keyword(s):  
Palliative Care ◽  
New Zealand ◽  
Music Therapy ◽  
Narrative Analysis ◽  
Spiritual Care ◽  
Team Work ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Dying Patients ◽  
Over Time

<p>The purpose of this study was to explore the perceptions of staff from a hospice, in New Zealand / Aotearoa, regarding the use of music therapy in the care of dying patients. The study has a particular focus on spiritual aspects of palliative care in music therapy, as spirituality is an inherent aspect of the work done by caregivers in palliative care. Hospice staff were asked to reflect on what they knew and understood of music therapy before, and after, a music therapy student arrived at the hospice, and their narratives were explored to uncover the links between patients, music and spirituality. The aim of this was to identify what might be needed to increase knowledge, to improve referral processes, and to increase opportunities for collaborative team work. A cross-section of staff, i.e. two nurses, one doctor, an occupational therapist, and a counsellor, who were part of the palliative care team, were recruited to participate in two semi-structured interviews to discuss their perceptions of the potential for music therapy to support the spiritual needs of hospice patients. A qualitative approach was employed and narrative analysis was used to interpret the interviews. Narrative research emphasises the language of human understanding and in this research it involved gathering participants' 'stories' of their evolving perceptions over time. Findings suggest the language used to describe spiritual care in music therapy was different for each participant although common meanings were drawn from the participants' stories. Commonalities included: music therapy in the hospice was valued by the participants; some participants would like more knowledge to make an informed referral. In addition, staff understanding appeared to have increased over time partly due to educational seminars, sharing at team meetings, actual exposure to music therapy, informal conversations with staff, and participants' growing knowledge of music therapy through their own personal process of learning.</p>

Sexuality and Intimacy Needs Within a Hospitalized Palliative Care Population: Results From a Qualitative Study

2021 ◽  
pp. 104990912110369
Author(s):  
Anne Kelemen ◽  
Clara Van Gerven ◽  
Katherine Mullins ◽  
Hunter Groninger
Keyword(s):  
Palliative Care ◽  
Family Relationships ◽  
Comparative Method ◽  
Future Research ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Course Of Illness ◽  
Serious Illness ◽  
Medical Teams ◽  
The Impact

Background: Palliative care (PC) clinicians are well trained to address physical, psychosocial and spiritual needs of patients who have a serious illness. However, one area that is often overlooked is intimacy and sexuality. Objective: To explore patient concerns regarding intimacy as it relates to illness, family reactions, physician conversations, and coping strategies and challenges. Methods: Eligible subjects (at least 18 years old, capacitated, receiving PC consultation at the lead author’s institution) participated in semi-structured interviews between November and December 2017. Transcripts were open-coded and analyzed using Dedoose 3.5.35 software. A constant comparative method was used to identify patterns in the data. Results: 21 interviews were analyzed and several themes emerged. Participants described the effect of physical and mental/emotional changes on their relationships. Family relationships, romantic relationships, and sexuality were prominent in patients’ experiences of intimacy and how it changed as the illness progressed. Relationships were often noted to strengthen during the course of illness, while sexual activity was frequently reported to be negatively impacted. Patients consistently reported little provider communication on the impact of illness on intimacy beyond instructions about what sexual activities they could or could not engage in. Conclusion: This study underlines the significant impact of serious, progressive illness on relationships, sexuality, and physical and emotional intimacy. It highlights that these topics continue to be priorities for patients with serious illness, and that medical teams frequently fail to address them at all. Future research should further explore these issues across diverse patient populations.

scholarly journals Nurses’ performance in palliative care: spiritual care in the light of Theory of Human Caring

2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  
Keyword(s):  
Palliative Care ◽  
Content Analysis ◽  
Qualitative Study ◽  
Spiritual Care ◽  
Structured Interviews ◽  
Spiritual Dimension ◽  
Nurses Role ◽  
Theory Of Human Caring ◽  
Process Elements ◽  
Human Caring

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.

Is Meeting Spiritual Need within the Occupational Therapy Domain?

2005 ◽  
Vol 68 (4) ◽  
pp. 177-180 ◽  
Author(s):  
Marion Hoyland ◽  
Christine Mayers
Keyword(s):  
Occupational Therapy ◽  
Spiritual Care ◽  
Occupational Therapists ◽  
Holistic Approach ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Relationship Of ◽  
The Relationship

The profession's present interest in the topic of spirituality initiated the decision to undertake this study, which aimed to investigate the extent to which occupational therapists consider clients' spiritual needs as part of their domain. The objectives of the study were to ascertain whether this was part of the occupational therapist's role and to identify the ways in which occupational therapists addressed the spiritual needs of their clients. Six senior II occupational therapists participated in semi-structured interviews. The participants felt that all individuals have spiritual needs, although not all would recognise or acknowledge them as such. All the participants considered spiritual care to be part of their role, but there was some uncertainty regarding the relationship of spiritual care to occupational therapy in general. Spiritual needs were addressed by a listening and holistic approach.

Spiritual beliefs, practices, and needs at the end of life: Results from a New Zealand national hospice study

2016 ◽  
Vol 15 (2) ◽  
pp. 223-230 ◽  
Author(s):  
Richard Egan ◽  
Rod MacLeod ◽  
Chrystal Jaye ◽  
Rob McGee ◽  
Joanne Baxter ◽  
...  
Keyword(s):  
New Zealand ◽  
End Of Life ◽  
Organizational Support ◽  
Spiritual Care ◽  
Development Program ◽  
Spiritual Needs ◽  
International Studies ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Peace Of Mind

AbstractObjective:International studies have shown that patients want their spiritual needs attended to at the end of life. The present authors developed a project to investigate people's understanding of spirituality and spiritual care practices in New Zealand (NZ) hospices.Method:A mixed-methods approach included 52 semistructured interviews and a survey of 642 patients, family members, and staff from 25 (78%) of NZ's hospices. We employed a generic qualitative design and analysis to capture the experiences and understandings of participants' spirituality and spiritual care, while a cross-sectional survey yielded population level information.Results:Our findings suggest that spirituality is broadly understood and considered important for all three of the populations studied. The patient and family populations had high spiritual needs that included a search for (1) meaning, (2) peace of mind, and (3) a degree of certainty in an uncertain world. The healthcare professionals in the hospices surveyed seldom explicitly met the needs of patients and families. Staff had spiritual needs, but organizational support was sometimes lacking in attending to these needs.Significance of results:As a result of our study, which was the first nationwide study in NZ to examine spirituality in hospice care, Hospice New Zealand has developed a spirituality professional development program. Given that spirituality was found to be important to the majority of our participants, it is hoped that the adoption of such an approach will impact on spiritual care for patients and families in NZ hospices.

scholarly journals Supporting people with dementia who are experiencing loss and grief; developing student music therapy practice

2021 ◽  
Author(s):  
◽  
Alicia Joy Stewart
Keyword(s):  
New Zealand ◽  
Action Research ◽  
Music Therapy ◽  
Spiritual Care ◽  
Therapy Group ◽  
Human Hand ◽  
Action Research Project ◽  
Loss And Grief ◽  
People With Dementia ◽  
Therapy Services

<p>This study is an action research project to develop my music therapy practice with people living with dementia who are encountering loss and grief. The research was developed during my practicum at the Music Moves Me Trust; a charitable trust offering music therapy services to people and their families living with dementia in the Waikato, New Zealand. The researched question was, “How can I use music therapy to support people with dementia through loss and grief?” This research is particularly relevant given the call for non-pharmaceutical dementia care in New Zealand. Over three action research cycles, I planned, performed, evaluated and reflected upon focused research actions. Thematic analysis was used to find common themes across the research cycles. Five themes of: sensing over speaking; human connection; honouring spirituality; knowing individuals closely and therapist self-care are presented in the model of a human hand. The palm of the hand holds the core theme valuing the person, as inspired by Kitwood (1997)’s model of personhood. The research’s findings valuing spiritual care, and an emphasis on nonverbal connection aligns with Kirkland, Fortuna, Kelson, and Phinney (2014)’s study of a spiritual care and music therapy group.</p>

scholarly journals Cultural health literacy: the experiences of Māori in palliative care

2018 ◽  
Vol 25 (4) ◽  
pp. 15-23 ◽  
Author(s):  
Jacquie Kidd ◽  
Stella Black ◽  
Rawiri Blundell ◽  
Tamati Peni
Keyword(s):  
Palliative Care ◽  
New Zealand ◽  
Health Literacy ◽  
Health Information ◽  
Health Professionals ◽  
Health Resources ◽  
Structured Interviews ◽  
Aotearoa New Zealand ◽  
Palliative Care Setting ◽  
Maori Health

Abstract: Health literacy is a concept that is frequently applied to the patient’s ability to find and comprehend health information. However, recent literature has included the skill of the health professional and the accessibility of health resources as important factors in the level of health literacy achieved by individuals and populations. In 2014 a qualitative study undertaken in Aotearoa New Zealand, investigated the context of health literacy for Māori in a palliative care setting (Māori are the indigenous people of Aotearoa New Zealand). The study included the experiences of patients, whānau (families), and health professionals. Method: Individual semi-structured interviews were held with 21 patients, whānau and six key informants: a medical specialist, a service leader involved in developing culturally specific responses to patients, two Māori service managers, and two Māori health team leaders. Focus groups were held with a total of 54 health professionals providing palliative care services. Data analysis: A thematic analysis was undertaken using a general inductive approach. The trustworthiness and reliability of the analysis was supported by sharing analysis of the transcripts among the research team. Member checking or respondent validation was used in seeking confirmation of the interim findings at five hui (meetings) with the research communities involved. Findings: This study found that the shock and grief that attends a life-limiting illness made hearing and processing health information very difficult for patients and whānau. Further, ‘hard conversations’ about moving from active treatment to palliative care were often avoided by health professionals, leaving patients and whānau distressed and confused about their choices and prognosis. Finally, poor cultural health literacy on the part of organisations has likely impacted on late access to or avoidance of palliative care for Māori.

scholarly journals Assisted Living Administrators' Views of Palliative Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 906-906
Author(s):  
Elise Abken ◽  
Molly Perkins ◽  
Alexis Bender
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Assisted Living ◽  
Spiritual Needs ◽  
Structured Interviews ◽  
Age In Place ◽  
Care Access ◽  
Access And Quality ◽  
Using Data

Abstract As many older adults with progressive chronic conditions choose to age-in-place in assisted living (AL) communities, external healthcare workers (e.g., those who provide palliative care) increasingly support AL staff in caring for residents with complex health needs. Palliative care is a branch of healthcare dedicated to preserving quality of life by attending to the physical, mental, and spiritual needs of individuals with chronic, life-threatening diseases and is well suited to manage AL residents’ progressive medical conditions. However, AL residents and their care partners often face barriers to accessing palliative care. Using data from a larger 5-year NIA-funded study, we examined AL administrator knowledge and use of palliative care in seven AL communities around the Atlanta metropolitan area that were racially, ethnically, and socioeconomically diverse. Findings from thematic analysis of semi-structured interviews with 16 administrators indicated that 15 of 16 administrators were familiar with palliative care. A minority of administrators clearly distinguished palliative care from hospice services and conceptualized it as a “bridge” to hospice services. Administrators emphasized how palliative care assists communities in caring for health concerns in-house rather than having to send residents to the hospital. Despite their positive view of palliative care, administrators described infrequent use of palliative services in their communities. Findings show that although none of the AL communities integrate palliative care with their service offerings, AL administrators see value in palliative care for their residents. We provide recommendations for improving palliative care access and quality of life for AL residents at end of life.

Barriers to Addressing the Spiritual and Religious Needs of Patients and Families in the Intensive Care Unit: A Qualitative Study of Critical Care Physicians

2020 ◽  
pp. 104990912097090
Author(s):  
Christian K. Alch ◽  
Christina L. Wright ◽  
Kristin M. Collier ◽  
Philip J. Choi
Keyword(s):  
Intensive Care Unit ◽  
Critical Care ◽  
Intensive Care ◽  
Spiritual Care ◽  
Spiritual Needs ◽  
Care Providers ◽  
Structured Interviews ◽  
Care Services ◽  
Qualitative Research Design ◽  
Data Saturation

Objectives: Though critical care physicians feel responsible to address spiritual and religious needs with patients and families, and feel comfortable in doing so, they rarely address these needs in practice. We seek to explore this discrepancy through a qualitative interview process among physicians in the intensive care unit (ICU). Methods: A qualitative research design was constructed using semi-structured interviews among 11 volunteer critical care physicians at a single institution in the Midwest. The physicians discussed barriers to addressing spiritual and religious needs in the ICU. A code book of themes was created and developed through a regular and iterative process involving 4 investigators. Data saturation was reached as no new themes emerged. Results: Physicians reported feeling uncomfortable in addressing the spiritual needs of patients with different religious views. Physicians reported time limitations, and prioritized biomedical needs over spiritual needs. Many physicians delegate these conversations to more experienced spiritual care providers. Physicians cited uncertainty into how to access spiritual care services when they were desired. Additionally, physicians reported a lack of reminders to meet these needs, mentioning frequently the ICU bundle as one example. Conclusions: Barriers were identified among critical care physicians as to why spiritual and religious needs are rarely addressed. This may help inform institutions on how to better meet these needs in practice.

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