scholarly journals Relacja, zobowiązanie, współpraca. Założenia i wyzwania badań etnograficznych wśród osób niewidomych

2021 ◽  
Author(s):  
Kamil Pietrowiak
Keyword(s):  
Social Research ◽  
Ethnographic Research ◽  
Research Participants ◽  
Methodological Choices ◽  
Philosophy Of Dialogue ◽  
Research Findings ◽  
Collaborative Ethnography ◽  
As Relationship ◽  
Role Engagement

The article presents the main assumptions and conditions of collaboration between the author and the vision-impaired research participants over several years of ethnographic research (2011–2017). Adopting the perspective of philosophy of dialogue, the author follows different stages of rapport, focusing on mutual expectations and emotions, as well as relationship dynamics and its underlying conditions in general. The author’s long-term research was inspired by concepts developed by Luke Lassiter in his collaborative ethnography and by Anna Wyka in her social research through shared experience, both of which marked the author’s ethical and methodological choices, including invitation extended to research participants to comment on the research findings. The second part of the article is based on research participants’ impressions and reflections on their role, engagement and relationship with the researcher.

scholarly journals Development Within a Religious Ontology? The Argument from Islamic Dharma

2019 ◽  
Vol 32 (4) ◽  
pp. 1038-1056
Author(s):  
Fernande W. Pool
Keyword(s):  
Life Experiences ◽  
Religious Life ◽  
Ethnographic Research ◽  
Human Society ◽  
Research Participants ◽  
The Core ◽  
Development Framework

AbstractDrawing on long-term ethnographic research with Muslims in India, this article suggests that religion should not (only) be understood as a sub-category of development but as an integral part of the meta-ontology based on which one should engage with development initially. Value-driven development implies a normative view of society, and a ‘more human’ society is at the core of worthwhile development. For the research participants, their ontological conceptions (notions of what being human means) and the ethical autonomy to deliberate on a normative view of life and society are embedded in the Islamic dharma. To approach religion as only a sub-category in an otherwise secular development framework marginalises these, and probably many other, religious life experiences and ontological notions from the outset. Instead, secular and religious ontologies should be considered at par in an inclusive dialogue on worthwhile development.

scholarly journals Building National Capacity for Dementia Caregiving Research: The NIA Edward R. Roybal Centers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 570-570
Author(s):  
Karina Davidson ◽  
Susan Hughes ◽  
Jeffrey Kaye ◽  
Scott Halpern ◽  
Kenneth Hepburn ◽  
...  
Keyword(s):  
Behavioral Interventions ◽  
Social Connectedness ◽  
Data Science ◽  
Social Research ◽  
Early Stage ◽  
Care Delivery ◽  
Use Of Technology ◽  
Research Findings ◽  
Racial Ethnic

Abstract The NIA Edward R. Roybal Centers for Translational Research in the Behavioral and Social Sciences of Aging aim to translate and integrate basic behavioral and social research findings into principle-driven interventions aimed at innovatively improving both the lives of older people and the capacity of institutions to adapt to societal aging. Newly funded Centers focus on interventions to promote caregiving mastery, integrate the use of technology in care support to improve assessments and interventions in care provision, develop behavioral interventions to reduce isolation and promote social connectedness in caregivers, promote health in racial/ethnic minorities, and apply insights from data science and behavioral economics to improve palliative care delivery and long-term support facilities for persons with dementia and their caregivers. Center leaders will present an overview of their cutting-edge, early-stage research projects based on the NIH Stage model conceptual framework and discuss implications for improving care of caregivers and patients.

Gaining access to the field in medical ethnography: Reflections on ethical, methodological, and structural challenges in the study of long-term care facilities

2021 ◽  
pp. 136345932098887
Author(s):  
Neta Roitenberg
Keyword(s):  
Long Term Care ◽  
Ethnographic Research ◽  
Term Care ◽  
Medical Institutions ◽  
Care Workers ◽  
Care Facilities ◽  
Key Issues ◽  
Access To The Field ◽  
Medical Ethnography

The article extends the discussion on the challenges in gaining access to the field in medical ethnographic research, focusing on long-term care (LTC) facilities. Medical institutions have been documented to be difficult sites to access. The reference, however, is to the recruitment of patients as informants. The challenges of recruiting practitioners as informants have not been investigated at all. The article presents the key issues that emerged in the process of gaining social access at the sites of two LTC facilities as part of a study on care workers’ identities. The main obstacles encountered during the fieldwork were organizational constraints and negotiating control over the process of recruiting the lower occupational tier of care workers with gatekeepers. The article presents the coping strategies implemented to overcome the ethical and methodological obstacles: continually reassessing the consent and cooperation of participants and developing a rapport with nurse’s aides during interviews.

I said, they said: The ethnographic backstage and the politics of producing engaged anthropology

Ethnography ◽  
2021 ◽  
pp. 146613812110168
Author(s):  
Roseann Liu
Keyword(s):  
Power Relations ◽  
Research Participants ◽  
Research Findings ◽  
Engaged Anthropology ◽  
Equal Power ◽  
Critical Aspects

Two commonly articulated goals of engaged anthropology include: 1) creating equal power relations with research participants; and 2) producing scholarship that critiques inequality. Though these seem commensurate, this article discusses how working toward both goals can lead to conflict when collaborators vehemently disagree with the critical aspects of your research findings. This article argues that writing about the ethnographic backstage — the background negotiations that rarely make it to the printed page — can help engaged anthropologists foster more egalitarian relations when it comes to ethnographic representation and can sharpen our sociocultural critiques. Because engaged anthropology, by definition, is shaped by negotiations with research participants, examining the ethnographic backstage helps us better understand an important axis in the production of anthropological knowledge.

Data inputs and assumptions in calculating the non-fatal burden in burden of disease studies

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J Haagsma ◽  
G Wyper ◽  
B Devleesschauwer
Keyword(s):  
Real Life ◽  
Disability Weight ◽  
Health States ◽  
Methodological Choices ◽  
Disability Weights ◽  
Disability Adjusted Life ◽  
Simple Step ◽  
Years Lived With Disability ◽  
Disability Adjusted Life Year

Abstract Years Lived with Disability (YLD) is a component of the Disability-Adjusted Life Year (DALY), and measures the healthy time that is lost because of living with a disease or disability. YLDs are calculated by multiplying the prevalence and/or incidence of a disorder by the short- or long-term loss of health associated with that disability (the disability weight) and disease severity (severity distribution). The process of calculating a YLD involves several components and in this presentation each step will be highlighted through a sequential walk through for each step in the YLD calculation, including counting disease occurrencethe relationship between disability weights, health states and severity distributionsadjusting for comorbiditiesdealing with uncertainty The aim of this presentation is to provide a simple step by step guide on the key components in the YLD calculation. Using the real-life example of cerebrovascular disease, the presentation will outline the key choices and assumptions that underline each data input in the YLD calculation. Participants in this session will also be provided with links to resources to help facilitate this decision-making process. The workshop will end with an interactive session where the presenters will discuss the implications of the different methodological choices with the audience.

Obstetric Violence in Their Own Words: How Women in Mexico and South Africa Expect, Experience, and Respond to Violence

2021 ◽  
pp. 107780122110373
Author(s):  
Vania Smith-Oka ◽  
Sarah E. Rubin ◽  
Lydia Z. Dixon
Keyword(s):  
South Africa ◽  
Ethnographic Research ◽  
Powerful Method ◽  
Obstetric Violence ◽  
The World ◽  
Core Feature ◽  
Temporal Model ◽  
Women's Stories ◽  
Structural Inequalities

This article, based on ethnographic research in Mexico and South Africa, presents two central arguments about obstetric violence: (a) structural inequalities across diverse global sites are primarily linked to gender and lead to similar patterns of obstetric violence, and (b) ethnography is a powerful method to give voice to women's stories. Connecting these two arguments is a temporal model to understand how women across the world come to expect, experience, and respond to obstetric violence—that is, before, during, and after the encounter. This temporal approach is a core feature of ethnography, which requires long-term immersion and attention to context.

A multiperspective on the broad dissemination of research findings to past research participants and the community-at-large

2021 ◽  
Author(s):  
Tilicia L Mayo-Gamble ◽  
Jennifer Cunningham-Erves ◽  
Chioma Kas-Osoka ◽  
George W Johnson ◽  
Nicole Frazier ◽  
...  
Keyword(s):  
Past Research ◽  
Critical Element ◽  
Community Members ◽  
Research Participants ◽  
Funding Agencies ◽  
Semistructured Interviews ◽  
Dissemination Of Research ◽  
Research Findings ◽  
Dissemination Process ◽  
Research Continuum

Abstract Dissemination of research findings to past research participants and the community-at-large is a critical element to improving health outcomes, yet it is often overlooked by researchers. Few studies have explored how to provide study findings to the community, and no studies have investigated how community members can be involved in this process. This study explored views on the broad dissemination of research findings to community members and the role of the community in the dissemination process. We conducted a comparative analysis from the perspective of researchers, community members, and program officers (POs) from national health research funding agencies. Semistructured interviews were conducted with community members (African American, N = 10; Latino, N = 10), academic researchers (N = 10), and POs (N = 5). Thematic analysis was utilized in which codes and themes were created. One cross-cutting theme was identified, Views on Disseminating Research Findings to Communities. There were three additional themes identified among community members, five among researchers, and four among POs. All groups perceived the value of dissemination to communities as meaningful and ethical. Groups differed in their perceptions of prioritization of dissemination audiences. This study highlighted consensus on the value of broad dissemination to the community-at-large and identified areas of insufficiency in the translational research continuum that could be expanded or improved to ensure targeted groups receive the intended benefits of positive research findings. The long-term benefit of disseminating findings to the community-at-large is increased acceptability of interventions and reduced mistrust in research and researchers.

Introduction

2018 ◽  
Author(s):  
Caroline Gatrell ◽  
Esther Dermott
Keyword(s):  
Social Research ◽  
Visual Methods ◽  
Policy Makers ◽  
Qualitative And Quantitative ◽  
The Social ◽  
Research Findings ◽  
Research Questions ◽  
Research Relationships ◽  
The Impact

This introductory chapter explains how different research questions and methods can contribute to better understanding of contemporary fathers, fatherhood, and fathering. Given the enhanced methodological diversity and increased sophistication of methods across the social sciences, embracing qualitative and quantitative approaches, traditional (such as interviewing) and contemporary approaches (such as netnography and visual methods), and general ‘handbooks’ offering basic introductions to social research have limited use for advanced researchers and students. The book aims to link detailed concerns about conducting individual projects to wider methodological debates concerning the value of different forms and sources of data, the negotiation of research relationships, and the impact of research findings on participants, policy makers, employers, and a wider public.

scholarly journals Creativity as a Methodological dimension of Social Research between Quantity and Quality

2019 ◽  
Vol 9 (1) ◽  
pp. e049
Author(s):  
Francesco Sacchetti
Keyword(s):  
Social Research ◽  
Quantitative Approach ◽  
Creative Processes ◽  
Methodological Choices ◽  
Personal Involvement ◽  
Qualitative Approaches ◽  
First Case ◽  
Qualitative Work ◽  
The Creation ◽  
A Performance

In this work I address creativity in the process of social sciences research, comparing quantitative and qualitative approaches. In discussing creativity I go back to Chomsky and his distinction between rule-governed and rule-changing creativity. In my analysis I suggest that the quantitative approach is characterized by rule-governed creativity, the qualitative one by rule-changing creativity: these are two models of creativity that the Chomskian vision links to a set of rules. Thus in the first case the creation of the tools by which the researcher collects information is submitted to a set of rules related to substantial and procedural competences. In the second case the creative phase does not have a place in the creation of a tool, but rather in a performance. The idea of performance as a constitutive part in qualitative research is analysed on a substantial basis, revealing the implications of distinct creative processes under different methodological choices. Whilst a quantitative approach requires using procedural and substantial competences, I suggest that in a qualitative enquiry the researcher’s fieldwork is considered as a ‘performance’ because of its adaptive character. The researcher is constantly confronted with unforeseen situations, surrounded by an unknown environment. Also, this use of the notion of ‘performance’ comprehends both elements of the process as well as of the outcome of fieldwork, as it recalls peculiar characteristics of qualitative work: action and interaction, personal involvement and, above all, orientation to a purpose (in this context, the teleological purpose of knowledge production).

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